Re: catching up

[Guest guest]

, I'm glad you could here your nada's voice and not get a panic attack.

Your self esteem sounds really low right now - are you just tired? We may all

battle for great self esteem, but I think over a period of time we'll love

ourselves more and more. I'm getting there, although, sometimes the nada voice

accuses me of acting. I'm getting better at not even hearing her voice, but

there are times...lol. Don't let low self esteem sabotage your parenting! I'm

so glad, I've got a hubby to back me up when I doubt myself and my decisions.

Glad to hear you're back. I've missed everyone too!

Ilene, moving Friday

[Guest guest]

, so good to hear from you, and especially happy to hear of the continued

progress of your son at ! It is so frustrating that getting the right

help has to be so costly. Have the doctors at been able to explain your

son's difficulty with basic living tasks? Is it that it is so stressful for him

OCD-wise that he wants to avoid them? That is quite possible. Is it some other

complicating factor? I hope that this, too, will get better with maturity and

further work at .

Thanks for your update!

Catching up

Hi all,

Sorry I've been MIA from the board lately. Things have been pretty crazy for the

past few months to say the least! I do read many of the posts and want to reply

but then time gets away from me and I have a hard time catching up with the

threads. I think of you all and pray for you and your kids often.

My son (16) has been at 's for 4 months now and is doing SO much better

than he did when he was admitted. It was pretty shaky for a while there with his

weight loss and eating and his tics going through the roof. He's to the point

now where his tics are much more controllable and thank God his weight and

eating have been stable for some time now. He's also been able to participate in

a lot of activities and excursions, which is great. Overall he is so much

stronger and they have done an amazing job with him, as he has been a VERY

challenging and complex case.

We know at this point that the days of continued insurance coverage are numbered

since there was that whole denial debacle a few months ago. I hold my breath

every time I know there is a review coming up. So far they've continued

approving him every 2 weeks, but everyone agrees that most likely won't continue

for a lot longer.

At this juncture it seems that the most viable next step will be a wilderness

therapy program. It's a long story, but due to his lack of self-motivation to

accomplish basic daily living tasks without constant prompting, among other

things, his options for a therapeutic boarding school are pretty much

non-existent. Home is definitely out of the question as he'd end up right back

at 's in no time flat. We're working with an educational consultant, who I

absolutely love, and she happens to have a lot of experience with placing kids

in the wilderness programs.

A few months ago I never would have considered this because my son was in far

too fragile a state, emotionally and physically, but he's in a much stronger

place now and I think the timing is right. Ill still be scared to death with him

being out there and worrying about him regressing due to the huge change and

adjustment he's going to encounter, but the reality is there really aren't any

other viable options.

Unfortunately wilderness therapy is not something that the school district will

consider funding, and insurance will pay very little if any at all. If anyone

has suggestions for any organizations to contact or other means of possible

funding, please let me know. The programs we're considering have all said

they're willing to work with us financially, but from what I understand it will

be a small reduction in the fee and not enough to make it affordable.

I know several of you are headed to the OCD conference next week, wish I was

able to go but just can't swing it financially. I'll look forward to hearing

about it from the list!

Hugs to all, D.

[Guest guest]

, did they give him another diagnosis, in addition to the OCD. Just

wondering if they think the non-compliance with self cares is due to something

else. Another son of mine has BP and I hooked up with the Balanced Mind website

for support(mood disorders, BP).

Anyway, sounds like similar issues as far as the non-compliance and also people

there have experience with wilderness programs. Might want to check it out.

in WI

>

> Hi all,

>

> Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

>

> My son (16) has been at 's for 4 months now and is doing SO much better

than he did when he was admitted. It was pretty shaky for a while there with his

weight loss and eating and his tics going through the roof. He's to the point

now where his tics are much more controllable and thank God his weight and

eating have been stable for some time now. He's also been able to participate in

a lot of activities and excursions, which is great. Overall he is so much

stronger and they have done an amazing job with him, as he has been a VERY

challenging and complex case.

>

> We know at this point that the days of continued insurance coverage are

numbered since there was that whole denial debacle a few months ago. I hold my

breath every time I know there is a review coming up. So far they've continued

approving him every 2 weeks, but everyone agrees that most likely won't continue

for a lot longer.

>

> At this juncture it seems that the most viable next step will be a wilderness

therapy program. It's a long story, but due to his lack of self-motivation to

accomplish basic daily living tasks without constant prompting, among other

things, his options for a therapeutic boarding school are pretty much

non-existent. Home is definitely out of the question as he'd end up right back

at 's in no time flat. We're working with an educational consultant, who I

absolutely love, and she happens to have a lot of experience with placing kids

in the wilderness programs.

>

> A few months ago I never would have considered this because my son was in far

too fragile a state, emotionally and physically, but he's in a much stronger

place now and I think the timing is right. Ill still be scared to death with him

being out there and worrying about him regressing due to the huge change and

adjustment he's going to encounter, but the reality is there really aren't any

other viable options.

>

> Unfortunately wilderness therapy is not something that the school district

will consider funding, and insurance will pay very little if any at all. If

anyone has suggestions for any organizations to contact or other means of

possible funding, please let me know. The programs we're considering have all

said they're willing to work with us financially, but from what I understand it

will be a small reduction in the fee and not enough to make it affordable.

>

> I know several of you are headed to the OCD conference next week, wish I was

able to go but just can't swing it financially. I'll look forward to hearing

about it from the list!

>

> Hugs to all, D.

>

[Guest guest]

I dont have ny suggestions, but am SO glad to hear your son is doing bettter

[Guest guest]

Jordana, They really are unsure of what the lack of self-motivation stems from.

That's part of the reason they had a full battery psychoeducational test done

this week to see if anything could be teased out that is not decipherable on the

surface.

The things they (his treatment team) struggle with is having to prompt and prod

him to get out of bed each day, brush his teeth, change his clothes, etc. They

said if left to his own devices none of that and many other things would ever

get done. It was the same way at home. Normally I'd say it's a teenage thing,

but it's been this way for as long as I can remember, long before OCD and

Tourette's were really on the radar. However, he did get out of bed and brush

his teeth and take showers a lot more cooperatively, but there were so many

other things he wouldn't do without a ton of prompting.

, I'm guessing that BP stands for bipolar? I don't think that is a factor

in his case because he doesn't really have any of the typical symptoms of a BP

profile. His doctor is thinking about possibilities of PDD, possibly Aspergers,

but they are just not sure. I'm hoping we'll know more one way or another from

the testing this week. I'd love to check out that website you mention. I

googled, but couldn't seem to find it, can you send me the link? I'd love to be

able to find other parents (especially OCD/TS parents) who have had their kids

in wilderness.

Thanks!

> , so good to hear from you, and especially happy to hear of the continued

progress of your son at ! It is so frustrating that getting the right help

has to be so costly. Have the doctors at been able to explain your son's

difficulty with basic living tasks? Is it that it is so stressful for him

OCD-wise that he wants to avoid them? That is quite possible. Is it some other

complicating factor? I hope that this, too, will get better with maturity and

further work at .

>

> Thanks for your update!

>

> Catching up

>

> Hi all,

>

> Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

>

>

[Guest guest]

, so good to hear from you! I was just thinking about you and wondering . .

.. thanks for your prayers! Much felt and needed. Same for you and your son! What

a thrill to hear how well he is doing. Will definitely be praying about

financing - after the miracle with your insurance for , I'm sure this will

happen as well!

((hugs))

Rhonda

Catching up

Hi all,

Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

My son (16) has been at 's for 4 months now and is doing SO much better

than he did when he was admitted. It was pretty shaky for a while there with his

weight loss and eating and his tics going through the roof. He's to the point

now where his tics are much more controllable and thank God his weight and

eating have been stable for some time now. He's also been able to participate in

a lot of activities and excursions, which is great. Overall he is so much

stronger and they have done an amazing job with him, as he has been a VERY

challenging and complex case.

We know at this point that the days of continued insurance coverage are

numbered since there was that whole denial debacle a few months ago. I hold my

breath every time I know there is a review coming up. So far they've continued

approving him every 2 weeks, but everyone agrees that most likely won't continue

for a lot longer.

At this juncture it seems that the most viable next step will be a wilderness

therapy program. It's a long story, but due to his lack of self-motivation to

accomplish basic daily living tasks without constant prompting, among other

things, his options for a therapeutic boarding school are pretty much

non-existent. Home is definitely out of the question as he'd end up right back

at 's in no time flat. We're working with an educational consultant, who I

absolutely love, and she happens to have a lot of experience with placing kids

in the wilderness programs.

A few months ago I never would have considered this because my son was in far

too fragile a state, emotionally and physically, but he's in a much stronger

place now and I think the timing is right. Ill still be scared to death with him

being out there and worrying about him regressing due to the huge change and

adjustment he's going to encounter, but the reality is there really aren't any

other viable options.

Unfortunately wilderness therapy is not something that the school district

will consider funding, and insurance will pay very little if any at all. If

anyone has suggestions for any organizations to contact or other means of

possible funding, please let me know. The programs we're considering have all

said they're willing to work with us financially, but from what I understand it

will be a small reduction in the fee and not enough to make it affordable.

I know several of you are headed to the OCD conference next week, wish I was

able to go but just can't swing it financially. I'll look forward to hearing

about it from the list!

Hugs to all, D.

No virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.2197 / Virus Database: 2437/5145 - Release Date: 07/21/12

[Guest guest]

My son is not motivated as well.  I often wonder about the medication he is on.

________________________________

To:

Sent: Saturday, July 21, 2012 10:45 AM

Subject: Re: Catching up

 

Jordana, They really are unsure of what the lack of self-motivation stems from.

That's part of the reason they had a full battery psychoeducational test done

this week to see if anything could be teased out that is not decipherable on the

surface.

The things they (his treatment team) struggle with is having to prompt and prod

him to get out of bed each day, brush his teeth, change his clothes, etc. They

said if left to his own devices none of that and many other things would ever

get done. It was the same way at home. Normally I'd say it's a teenage thing,

but it's been this way for as long as I can remember, long before OCD and

Tourette's were really on the radar. However, he did get out of bed and brush

his teeth and take showers a lot more cooperatively, but there were so many

other things he wouldn't do without a ton of prompting.

, I'm guessing that BP stands for bipolar? I don't think that is a factor

in his case because he doesn't really have any of the typical symptoms of a BP

profile. His doctor is thinking about possibilities of PDD, possibly Aspergers,

but they are just not sure. I'm hoping we'll know more one way or another from

the testing this week. I'd love to check out that website you mention. I

googled, but couldn't seem to find it, can you send me the link? I'd love to be

able to find other parents (especially OCD/TS parents) who have had their kids

in wilderness.

Thanks!

> , so good to hear from you, and especially happy to hear of the continued

progress of your son at ! It is so frustrating that getting the right help

has to be so costly. Have the doctors at been able to explain your son's

difficulty with basic living tasks? Is it that it is so stressful for him

OCD-wise that he wants to avoid them? That is quite possible. Is it some other

complicating factor? I hope that this, too, will get better with maturity and

further work at .

>

> Thanks for your update!

>

> Catching up

>

> Hi all,

>

> Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

>

>

[Guest guest]

Thanks so much, Rhonda! I've been quickly reading posts here and there as time

allows but am not totally caught up on how your son is doing. What is the latest

on your end?

> , so good to hear from you! I was just thinking about you and wondering .

.. . thanks for your prayers! Much felt and needed. Same for you and your son!

What a thrill to hear how well he is doing. Will definitely be praying about

financing - after the miracle with your insurance for , I'm sure this will

happen as well!

> ((hugs))

> Rhonda

>

> --

>

>

[Guest guest]

Thanks so much, Rhonda! I've been quickly reading posts here and there as time

allows but am not totally caught up on how your son is doing. What is the latest

on your end?

> , so good to hear from you! I was just thinking about you and wondering .

.. . thanks for your prayers! Much felt and needed. Same for you and your son!

What a thrill to hear how well he is doing. Will definitely be praying about

financing - after the miracle with your insurance for , I'm sure this will

happen as well!

> ((hugs))

> Rhonda

>

> --

>

>

[Guest guest]

We actually did hypnosis around motivation to do therapy and it worked pretty

well. I wonder if you could do it for motivation do daily activities?

[Guest guest]

, thanks for asking, you know, he's just a different person. I mean, he's

the person he used to be, except 5 years older now! I so look forward to the day

when you will be saying that about your son.

He doesn't have his license yet so I am continually driving him this place and

that to keep him busy. He has a therapist who has OCD and " gets " it. In our

initial visits with her, he said he was having some OCD thoughts, but whatever

the OCD said to do, he just did the opposite. !!!

Then he went to summer camp - and it was kind of a wilderness experience for

him, I think, because he was in a cabin with 10 other guys (never slept in a

room with someone else before, never slept away from home before going to

inpatient), bathroom was in another building, etc, etc, and he came home saying

he had a great time. Since then he's told therapist, no OCD thoughts at all.

He's off the Risperdal and still on 40 mg Prozac so I'd like to start reducing

that while he's still working with therapist.

We're taking it a day at a time, just happy and thankful for each experience we

can share that we were robbed of for so long. Life is a journey and it doesn't

have to be perfect (or easy!) to be good.

lots of love

Rhonda

Re: Catching up

Thanks so much, Rhonda! I've been quickly reading posts here and there as time

allows but am not totally caught up on how your son is doing. What is the latest

on your end?

> , so good to hear from you! I was just thinking about you and wondering

.. . . thanks for your prayers! Much felt and needed. Same for you and your son!

What a thrill to hear how well he is doing. Will definitely be praying about

financing - after the miracle with your insurance for , I'm sure this will

happen as well!

> ((hugs))

> Rhonda

>

> --

>

>

[Guest guest]

When I read everyone's posts, I see how complicated it is to tease out what it

is behind behaviors. I don't know what this lack of " self-motivation " is caused

by with your son, but when my OCD was severe when I was just out of college, I

actually spent a whole summer never leaving an upstairs bedroom. I slept almost

the day away to avoid having to deal with my OCD fears. Everything having to do

with taking care of myself was so affected by my OCD, that it was all very

aversive.

Catching up

>

> Hi all,

>

> Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

>

>

[Guest guest]

it is possible, but there is no way for them to do that at 's. One of the

wilderness programs we're considering does yoga and meditation with the kids

each day and I think that would be really helpful for my son.

> We actually did hypnosis around motivation to do therapy and it worked pretty

well. I wonder if you could do it for motivation do daily activities?

>

[Guest guest]

Rhonda,

I am SO thrilled to hear that your son is doing so well, that is wonderful

news!!! Wow, he has come a long way in a short time! That's great that he was

able to get off the Risperdal and that he's well enough to start reducing the

Prozac.

What do you think the catalyst was for him making so much progress, or do you

think it was a combination of things?

Just so happy for you and your family, and especially for your son!

> , thanks for asking, you know, he's just a different person. I mean, he's

the person he used to be, except 5 years older now! I so look forward to the day

when you will be saying that about your son.

>

> He doesn't have his license yet so I am continually driving him this place and

that to keep him busy. He has a therapist who has OCD and " gets " it. In our

initial visits with her, he said he was having some OCD thoughts, but whatever

the OCD said to do, he just did the opposite. !!!

>

> Then he went to summer camp - and it was kind of a wilderness experience for

him, I think, because he was in a cabin with 10 other guys (never slept in a

room with someone else before, never slept away from home before going to

inpatient), bathroom was in another building, etc, etc, and he came home saying

he had a great time. Since then he's told therapist, no OCD thoughts at all.

He's off the Risperdal and still on 40 mg Prozac so I'd like to start reducing

that while he's still working with therapist.

>

> We're taking it a day at a time, just happy and thankful for each experience

we can share that we were robbed of for so long. Life is a journey and it

doesn't have to be perfect (or easy!) to be good.

> lots of love

> Rhonda

>

> Re: Catching up

>

> Thanks so much, Rhonda! I've been quickly reading posts here and there as time

allows but am not totally caught up on how your son is doing. What is the latest

on your end?

>

>

>

> > , so good to hear from you! I was just thinking about you and wondering

.. . . thanks for your prayers! Much felt and needed. Same for you and your son!

What a thrill to hear how well he is doing. Will definitely be praying about

financing - after the miracle with your insurance for , I'm sure this will

happen as well!

> > ((hugs))

> > Rhonda

> >

> > --

> >

> >

>

>

[Guest guest]

, here is the link. Lots of dif. support groups depending on your needs.

For me, I just wrote about my situation and they put me in the one that met my

needs. Have been in the psychosis one and the transition 2. Hope this helps.

http://www.thebalancedmind.org/connect/support-groups

>

> Jordana, They really are unsure of what the lack of self-motivation stems

from. That's part of the reason they had a full battery psychoeducational test

done this week to see if anything could be teased out that is not decipherable

on the surface.

>

> The things they (his treatment team) struggle with is having to prompt and

prod him to get out of bed each day, brush his teeth, change his clothes, etc.

They said if left to his own devices none of that and many other things would

ever get done. It was the same way at home. Normally I'd say it's a teenage

thing, but it's been this way for as long as I can remember, long before OCD and

Tourette's were really on the radar. However, he did get out of bed and brush

his teeth and take showers a lot more cooperatively, but there were so many

other things he wouldn't do without a ton of prompting.

>

> , I'm guessing that BP stands for bipolar? I don't think that is a factor

in his case because he doesn't really have any of the typical symptoms of a BP

profile. His doctor is thinking about possibilities of PDD, possibly Aspergers,

but they are just not sure. I'm hoping we'll know more one way or another from

the testing this week. I'd love to check out that website you mention. I

googled, but couldn't seem to find it, can you send me the link? I'd love to be

able to find other parents (especially OCD/TS parents) who have had their kids

in wilderness.

>

> Thanks!

>

>

>

> > , so good to hear from you, and especially happy to hear of the

continued progress of your son at ! It is so frustrating that getting the

right help has to be so costly. Have the doctors at been able to explain

your son's difficulty with basic living tasks? Is it that it is so stressful for

him OCD-wise that he wants to avoid them? That is quite possible. Is it some

other complicating factor? I hope that this, too, will get better with maturity

and further work at .

> >

> > Thanks for your update!

> >

> > Catching up

> >

> > Hi all,

> >

> > Sorry I've been MIA from the board lately. Things have been pretty crazy for

the past few months to say the least! I do read many of the posts and want to

reply but then time gets away from me and I have a hard time catching up with

the threads. I think of you all and pray for you and your kids often.

> >

> >

>

>

>

>

[Guest guest]

Great, thanks so much. I will definitely check it out!

> , here is the link. Lots of dif. support groups depending on your needs.

For me, I just wrote about my situation and they put me in the one that met my

needs. Have been in the psychosis one and the transition 2. Hope this helps.

> http://www.thebalancedmind.org/connect/support-groups

>

> --

[Guest guest]

, thanks so much, I know you can truly appreciate it because you have seen

your son as incapacitated and more. I wish I could say what made it happen. I

know my son had a deep inner desire to get better. He always seemed to know that

life was not supposed to be the way it was for him with the rituals. Yet it was

still very hard for him even in inpatient when it came time to push through the

ERPs. There were a couple nights when I'd be on the phone several times just to

see if he had gone to bed yet that night. They had a very determined staff at

the hospital where he spent the two weeks. They also seemed to like him, so they

were determined for his sake and also their clinical reputation, I think, that

he was going to be successful. He had some super nurses who were like worldclass

cheerleaders.

On the day when his dad and I came into the inpatient unit in order to take son

out for the first time in the car (huge challenge because of contamination

issues with dad), my husband and I were sitting in the unit library and dh

started an argument (IMHO!). So by the time son actually walked into the room,

we were both looking a litte grim. We walked out into the main desk area on our

way out the door. Another teen patient walked up (these were all crisis teen

psych patients) and she just looked at us, the scowling parents, then at son,

and she gave him a big thumbs up and said, " J--, you are awesome - you can do

this! " He lit up and kind of stuck out his shoulders and went out with us. That

was one thing about being on a regular psych unit rather than OCD; there was a

lot of general group building and coping skills that filled a huge emotional

void for my son. I was so touched and still am by how those kids were for him

and for each other. I think that was quite signigficant for him.

The meds obviously made a difference -- he also met with a psychiatrist on the

unit every day. I never even met that doc or spoke to him. I don't know what he

talked to son about. Maybe he had some impact. My son said he could never

remember what they talked about! However, the meds started to be too much once

he was home and he became quite listless and would just lay his head down on the

table. Cutting the Risperdal helped with that.

When son was released, he was still quite upset about having his room changed

while he was gone (with his knowledge and SW's support). He said he would not

sleep in the new room (bigger, better, etc but all his stuff had been MOVED). I

had learned from watching SWs and nurses how to cope with it, plus lots of

coaching here on board and with Liz Lindley. I'm now able to talk to him firmly

yet patiently and respectfully, to give two choices, rather than open-ended, and

to move closer and use physical proximity in a way that is positive yet

forceful. Jordana has been a great help in understanding what a person with OCD

is thinking in a given situation, and what kind of way out will help them.

A lot of prayer - I know you are doing that. My daughters and I prayed for an

hour every day for about 3 weeks, specifically for a miracle. Nothing happened

at that time! But prayers sometimes take awhile to be answered and sometimes

there has to be a lot of effort on our part as well. That's what happened with

us. Hang in there.

Rhonda

Re: Catching up

>

> Thanks so much, Rhonda! I've been quickly reading posts here and there as

time allows but am not totally caught up on how your son is doing. What is the

latest on your end?

>

>

>

> > , so good to hear from you! I was just thinking about you and

wondering . . . thanks for your prayers! Much felt and needed. Same for you and

your son! What a thrill to hear how well he is doing. Will definitely be praying

about financing - after the miracle with your insurance for , I'm sure

this will happen as well!

> > ((hugs))

> > Rhonda

> >

> > --

> >

> >

>

>

[Guest guest]

, thanks so much, I know you can truly appreciate it because you have seen

your son as incapacitated and more. I wish I could say what made it happen. I

know my son had a deep inner desire to get better. He always seemed to know that

life was not supposed to be the way it was for him with the rituals. Yet it was

still very hard for him even in inpatient when it came time to push through the

ERPs. There were a couple nights when I'd be on the phone several times just to

see if he had gone to bed yet that night. They had a very determined staff at

the hospital where he spent the two weeks. They also seemed to like him, so they

were determined for his sake and also their clinical reputation, I think, that

he was going to be successful. He had some super nurses who were like worldclass

cheerleaders.

On the day when his dad and I came into the inpatient unit in order to take son

out for the first time in the car (huge challenge because of contamination

issues with dad), my husband and I were sitting in the unit library and dh

started an argument (IMHO!). So by the time son actually walked into the room,

we were both looking a litte grim. We walked out into the main desk area on our

way out the door. Another teen patient walked up (these were all crisis teen

psych patients) and she just looked at us, the scowling parents, then at son,

and she gave him a big thumbs up and said, " J--, you are awesome - you can do

this! " He lit up and kind of stuck out his shoulders and went out with us. That

was one thing about being on a regular psych unit rather than OCD; there was a

lot of general group building and coping skills that filled a huge emotional

void for my son. I was so touched and still am by how those kids were for him

and for each other. I think that was quite signigficant for him.

The meds obviously made a difference -- he also met with a psychiatrist on the

unit every day. I never even met that doc or spoke to him. I don't know what he

talked to son about. Maybe he had some impact. My son said he could never

remember what they talked about! However, the meds started to be too much once

he was home and he became quite listless and would just lay his head down on the

table. Cutting the Risperdal helped with that.

When son was released, he was still quite upset about having his room changed

while he was gone (with his knowledge and SW's support). He said he would not

sleep in the new room (bigger, better, etc but all his stuff had been MOVED). I

had learned from watching SWs and nurses how to cope with it, plus lots of

coaching here on board and with Liz Lindley. I'm now able to talk to him firmly

yet patiently and respectfully, to give two choices, rather than open-ended, and

to move closer and use physical proximity in a way that is positive yet

forceful. Jordana has been a great help in understanding what a person with OCD

is thinking in a given situation, and what kind of way out will help them.

A lot of prayer - I know you are doing that. My daughters and I prayed for an

hour every day for about 3 weeks, specifically for a miracle. Nothing happened

at that time! But prayers sometimes take awhile to be answered and sometimes

there has to be a lot of effort on our part as well. That's what happened with

us. Hang in there.

Rhonda

Re: Catching up

>

> Thanks so much, Rhonda! I've been quickly reading posts here and there as

time allows but am not totally caught up on how your son is doing. What is the

latest on your end?

>

>

>

> > , so good to hear from you! I was just thinking about you and

wondering . . . thanks for your prayers! Much felt and needed. Same for you and

your son! What a thrill to hear how well he is doing. Will definitely be praying

about financing - after the miracle with your insurance for , I'm sure

this will happen as well!

> > ((hugs))

> > Rhonda

> >

> > --

> >

> >

>

>

[Guest guest]

Thank you so much for sharing some of what you recall the inpatient process to

be like. We will be making the decision this week for our son to either go daily

to the hospital for evaluation, or inpatient if he remains reticent. I had no

idea what happened in this process. All of the emotions are surfacing now as we

approach this decision. We know that we have to make this decision, which is

what seems to keep us going in this direction, along with the daily issues and

stress on the whole family. D#@$ , if this is not one of the hardest things a

parent has to go through, along with our son.

 

Thanks for sharing.

McGinnis

[Guest guest]

,

I am so sorry you are going through this, many of us here have unfortunately

been in your shoes and it is no joy ride to say the least. As hard as it is to

imagine right now, and believe me I know, just know that there is a light at the

end of what seems right now like a never-ending dark tunnel. Sending all good

thoughts and prayers your way.

Hang in there!

> Thank you so much for sharing some of what you recall the inpatient process to

be like. We will be making the decision this week for our son to either go daily

to the hospital for evaluation, or inpatient if he remains reticent. I had no

idea what happened in this process. All of the emotions are surfacing now as we

approach this decision. We know that we have to make this decision, which is

what seems to keep us going in this direction, along with the daily issues and

stress on the whole family. D#@$ , if this is not one of the hardest things a

parent has to go through, along with our son.

>

> Thanks for sharing.

>

> McGinnis

>

>

[Guest guest]

,

I am so sorry you are going through this, many of us here have unfortunately

been in your shoes and it is no joy ride to say the least. As hard as it is to

imagine right now, and believe me I know, just know that there is a light at the

end of what seems right now like a never-ending dark tunnel. Sending all good

thoughts and prayers your way.

Hang in there!

> Thank you so much for sharing some of what you recall the inpatient process to

be like. We will be making the decision this week for our son to either go daily

to the hospital for evaluation, or inpatient if he remains reticent. I had no

idea what happened in this process. All of the emotions are surfacing now as we

approach this decision. We know that we have to make this decision, which is

what seems to keep us going in this direction, along with the daily issues and

stress on the whole family. D#@$ , if this is not one of the hardest things a

parent has to go through, along with our son.

>

> Thanks for sharing.

>

> McGinnis

>

>

[Guest guest]

, yes very hard. Whatever you decide, you must be firm and matter of

fact. Less words, the better. We needed to put another son (with psychosis) in

phosp and then IOP. He had no self-insight and said " it was all a

misunderstanding " Luckily, there was the 72 hr. hold policy and then judge

determined longer. He was very angry and still blames us for putting an obstacle

in his life's plans. Try not to take personally. You are doing your job as a

parent.

in WI

>

> Thank you so much for sharing some of what you recall the inpatient process to

be like. We will be making the decision this week for our

[Guest guest]

, yes very hard. Whatever you decide, you must be firm and matter of

fact. Less words, the better. We needed to put another son (with psychosis) in

phosp and then IOP. He had no self-insight and said " it was all a

misunderstanding " Luckily, there was the 72 hr. hold policy and then judge

determined longer. He was very angry and still blames us for putting an obstacle

in his life's plans. Try not to take personally. You are doing your job as a

parent.

in WI

>

> Thank you so much for sharing some of what you recall the inpatient process to

be like. We will be making the decision this week for our

[Guest guest]

, sounds like a good program for him with the program for OCD and/or

spectrum kids! You may have an outdoors enthusiast when he's through there!

I've met one wilderness camp worker/counselor for one here in NC, he used to

attend meetings I was at. If they are all like him, your son should do

wonderfully!

>

> Thanks, My son's team at 's, as well as the educational

consultant, explained that although therapeutic boarding schools do provide

intensive daily therapy, etc., it's just not at the level of care where they'lll

be able to prompt him with things every step of the way like they're having to

do at 's. The only place that could happen would either be another

residential treatment facility, or a school with severely impaired kids.

>

[Guest guest]

Wow! He keeps making progress. Good for him and good for you for being such a

terrific mom!

Re: Re: Catching up

- yes, he has stayed in it though if I ask him, he still says he doesn't

like it and he liked his old room better. Last night he said he would go to

bed early and listen to Ipod for awhile - first time he's voluntarily done

anything in room besides sleep and change clothes.

He has let me unpack all his boxes and bags and put things up on walls, I

usually ask about once a week which bag he wants to unpack this time. Amazingly

he let me throw out a bunch of his pre-hospital/OCD clothes that were all too

small. He still has his stuff he made during inpatient in a bag in the corner

which he does not want unpacked. Not sure whether to push that or not.

warmly

Rhonda

Re: Catching up

Rhonda, liked what you said about choices. May have missed your saying in other

posts -- I recall son saying he wasn't going to sleep in his room since you all

cleaned/changed it. So where is he sleeping? Did he get used to the room yet?

>

>>

> When son was released, he was still quite upset about having his room

changed while he was gone (with his knowledge and SW's support). He said he

would not sleep in the new room (bigger, better, etc but all his stuff had been

MOVED). I had learned from watching SWs and nurses how to cope with it, plus

lots of coaching here on board and with Liz Lindley. I'm now able to talk to him

firmly yet patiently and respectfully, to give two choices, rather than

open-ended, and to move closer and use physical proximity in a way that is

positive yet forceful. Jordana has been a great help in understanding what a

person with OCD is thinking in a given situation, and what kind of way out will

help them.

>

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