Guest guest Posted October 7, 2010 Report Share Posted October 7, 2010 "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Thu, October 7, 2010 12:48:31 PMSubject: Update from I had my appt today with my dr and all labs are all in normal range, still non detectable. He has dropped my predinose down from 10mg/day to 7.5mg/day. I go back in December for my last appt with them before we move. We are moving to NC in January. Hope everyone is well... Good luck hon, and I dance the happy dance that you are still undetectable. Love Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2010 Report Share Posted October 7, 2010 Thanks Janet, I'm praying I have beat the dragon for good. Dr said 99% chance it won't come back. > > > Â > " There are souls in this world that have the gift of finding joy everywhere and > of leaving it behind them when they go " > Frederick Faber > > > > > > > ________________________________ > > To: Hepatitis_C_Central > Sent: Thu, October 7, 2010 12:48:31 PM > Subject: Update from > > Â > I had my appt today with my dr and all labs are all in normal range, still non > detectable. He has dropped my predinose down from 10mg/day to 7.5mg/day. I go > back in December for my last appt with them before we move. We are moving to NC > in January. > > > Hope everyone is well... > > > > > > > Good luck hon, and I dance the happy dance that you are still undetectable. > Love > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Hang in there, . I'm sorry the whole process was so awful for you and your son, but you are doing the right thing for him. Take time to adjust and come down from high alert and then try to do for yourself--which I'm sure you haven't been able to do in a very long time. (mom w/OCD, almost 12 yo dd w/ OCD, 9.5 yo dd w/tics/ possible OCD) ________________________________ To: Sent: Friday, March 16, 2012 7:50 PM Subject: Update from Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 It is so good to hear that you are back home and you managed to get your son situation at . I will hold good thoughts for all of you that this place will be the answer you need. I hope that while he is getting the right treatment, you use the time to get some much needed relaxation. Update from Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 , thanks for updating us, we were all hoping things would go well. And though it wasn't easy, it did go well as you got him there! I'm glad to hear you were impressed with , have heard good things from others too. And it helps you feel better about his being there. Hey, I'm glad he peed in the chair there too, for them to witness. Good too that they will be able to work with medications faster there, and the great therapy he'll receive...! Try to enjoy some of this time with him away and accept it as a time for you to RELAX and enjoy a few things for yourself. He'll be coming home, and at his age that's home for a few more years (!) so " gift yourself " with this time as you'll be a " mom " again when he returns. So inbetween phone calls, any visits, whatever, do relax and pamper yourself. We're all hopeful for him and his success! And eager for updates over the weeks when you have news! (((hugs))) > > Hi all, > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thanks SO much, Rhonda and everyone for your kind words and encouragement. Less than a year ago, things were so very different with my son, I never imagined in a million years we'd be at this juncture. His main issue at that point were his tics, but they were manageable. There was a little OCD rearing it's ugly head, but it was so minimal I didn't even recognize it as such and figured it was just a passing phase he was going through. Last summer, my son and I took a trip to visit my family in LA. I had " met " a mom online who has a daughter with very severe Tourette's syndrome and was hoping her daughter would be approved for DBS surgery (Deep brain stimulation). We arranged to meet up with them during our visit for lunch, and I have since become pretty close with her mom, we stay in touch frequently by phone and email. At the time, her daughter was in a wheelchair because she had been in and out of the hospital due to a violent motor tic that caused her to fracture her hip. She also had an extremely loud vocal tic, which i wasn't aware of before meeting them. After meeting them, I remember thinking to myself, wow, I don't know how her mom does it, I can't even imagine how difficult it must be to deal with all of that. Little did I know at the time, that I was about to embark on the biggest nightmare of my life with my son going from a mostly functional, " normal " kid to almost completely non-functional in a very short period of time. A few months after our visit, he developed a VERY loud, high pitched screeching tic, along with a forceful motor tic, that ramped up to the point of him having tic outbursts for up to 5 minutes straight. He developed substantial friction burns on the insides of both arms from the motor tic, and it took a huge toll on him physically and mentally. That tic lasted for around 5 months and we didn't know if it would be permanent. At the same time, he started slipping into the grips of OCD, and eventually got to the point where he is now, having lost 18 lbs. on an already slim frame, laying on the stairs in the dark for hours doing nothing, not going anywhere, even a walk outside was too stressful. I look back on all of this now and I realize how my friend in LA is able to cope with her daughter's situation. It's like you go into an " autopilot " mode and you just keep forging and pushing ahead, doing whatever is necessary to get your child well again. I am grateful that God has given me the strength to deal with all of this so far and I pray he continues to give me strength in the days and months ahead. As horrific and difficult as it was seeing my son in the condition he was, and it was almost impossible to deal with him on a daily basis, I sit here missing him terribly and feel a big huge hole in my heart right now. I also struggle with feeling guilty because I know how miserable he is there and it's difficult to try and look beyond that. He's already starting to beg to come home, which I totally expected, but the worst part is that he just sounds so horrible and is so exhausted. If he weren't so physically frail right now, I would still be worried, but not as concerned as I am for his physical well-being. It's so hard to see the light at the end of the tunnel right now, but I just pray there is a glimmer in the not too distant future! > > > I am new to this board and haven't commented before but I just want to add to the comments how proud I am of all you did to hang in there through that whole long day! What resourcefulness and determination --- my heart was pounding and I wasn't even there! I can tell how much you love your son and what it means to know he is with people who are trained to treat his condition and bring HIM back. My son is 17 - just a little older than yours - and has some extreme issues also -- I'm so encouraged by your grit and determination not to give up! I hope to be asking some questions here but I have so many I haven't sorted out which ones to ask yet!! > > Rhonda > > Update from > > Hi all, > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 My son is about where yours was a year ago - and I've gone through the same route of totally not being able to comprehend how fast OCD can take over. We also saw some " signs " but also hoped it was a " phase. " We had other family issues that took priority (WRONG!). My son is now housebound - will not go out because he doesn't want to do all the cleaning rituals when he comes home. Won't change clothes because doesn't want to clean new clothes. Still functional in terms of sitting using his laptop all his waking hours, but stays up for 30 hours at a time, then sleeps 16-17 hours. We thank God that we have a therapist who has come to our home to work with him and begin ERP. Son has done ERP 3 times now and is asking for it every day. THANK GOD!! So far he has rubbed his pant leg against his desk. It looks like a very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN! If you read the book " Life in Rewind " you will see a picture as dark as it can get, yet that guy recovered. It all came down to when HE realized it was up to HIM. No one could rescue him. Our therapist has worked that way from the beginning. It's up to my son to make up HIS mind as to what he wants his life to be. Hope I'm not on a soapbox - it has taken me a long time to get here. warmly Rhonda Update from > > Hi all, > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Rhonda, well asking for ERP shows he is on his way to success, wonderful that he is motivated! I hope having some success (rubbing pant leg against desk) will just make the future successes come more frequently, it can seem like baby steps, but they are still steps! Thanks for sharing, > > > My son is now housebound - will not go out because he doesn't want to do all the cleaning rituals when he comes home. Won't change clothes because doesn't want to clean new clothes. Still functional in terms of sitting using his laptop all his waking hours, but stays up for 30 hours at a time, then sleeps 16-17 hours. We thank God that we have a therapist who has come to our home to work with him and begin ERP. Son has done ERP 3 times now and is asking for it every day. THANK GOD!! So far he has rubbed his pant leg against his desk. It looks like a very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Thanks so much Jordana, and everyone! I have a women's support group I go to weekly and they have all been there with me through much of this. I hadn't been in 2 weeks so they were all anxious to hear how the visit went. They all literally cheered when I was done telling them about my son's progress, it was awesome! > I'm SO happy to read this!!! I can't wait to read each of your progress reports. This is so wonderful to hear because it means that your son is on the road to recovery and you can experience the relief you deserve from the top level stress you must have been feeling before he went to . > > Update from > > Hi all, > > Sorry it's been a while since I posted. I'm very pleased to report that my son is continuing to make good progress at 's. Thank God he is continuing to gain back some weight and is now up to 116. He still needs to gain another 10-15 lbs., but he's eating really well now and not having to drink Ensure anymore. > > We had our first visit with him this past weekend. It was the first time we'd seen him in 6 weeks, the longest we've ever been away from him. I was really nervous about how things would go, but it went really well. He did A LOT of stuff for our first visit. We made our visits in short blocks of time as he tires easily, so we would go and take him out to lunch or to the mall, then bring him back and come back a few hours later to do something else. > > Quote Link to comment Share on other sites More sharing options...
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