Re: Update from

[Guest guest]

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: Hepatitis_C_Central Sent: Thu, October 7, 2010 12:48:31 PMSubject: Update from

I had my appt today with my dr and all labs are all in normal range, still non detectable. He has dropped my predinose down from 10mg/day to 7.5mg/day. I go back in December for my last appt with them before we move. We are moving to NC in January. Hope everyone is well...

Good luck hon, and I dance the happy dance that you are still undetectable.

Love

Janet

[Guest guest]

Thanks Janet,

I'm praying I have beat the dragon for good. Dr said 99% chance it won't come

back.

>

>

>  

> " There are souls in this world that have the gift of finding joy everywhere

and

> of leaving it behind them when they go "

> Frederick Faber

>

>

>

>

>

>

> ________________________________

>

> To: Hepatitis_C_Central

> Sent: Thu, October 7, 2010 12:48:31 PM

> Subject: Update from

>

>  

> I had my appt today with my dr and all labs are all in normal range, still non

> detectable. He has dropped my predinose down from 10mg/day to 7.5mg/day. I go

> back in December for my last appt with them before we move. We are moving to

NC

> in January.

>

>

> Hope everyone is well...

>

>

>

>

>

>

> Good luck hon, and I dance the happy dance that you are still undetectable.

> Love

> Janet

>

[Guest guest]

Hang in there, .  I'm sorry the whole process was so awful for you and your

son, but you are doing the right thing for him.  Take time to adjust and come

down from high alert and then try to do for yourself--which I'm sure you haven't

been able to do in a very long time.

(mom w/OCD, almost 12 yo dd w/ OCD, 9.5 yo dd w/tics/ possible OCD)

________________________________

To:

Sent: Friday, March 16, 2012 7:50 PM

Subject: Update from

Hi all,

So sorry I couldn't post earlier. I tried a few times but for some reason it

bounced back via webmail.

Well.......I am back home now, just flew in this evening. My son is now at

's, and not a moment too soon! I'm glad I prepped myself mentally for a

nightmare ordeal getting him there because it definitely was one. From beginning

to end, every step of the way he was extremely difficult to deal with.

The MD did an amazing job with the " intervention " on Tuesday morning, but  I

don't think anyone could have done a good enough job for my son not to

completely flip out about going. Despite giving him Ativan and later on some

Valium, neither one phased him in the least or helped with his major

anxiety/stress.

On top of everything else, on the way to the airport a crane toppled over on the

main highway so we had to sit for an hour not moving and barely made our plan on

time. Meanwhile, my son peed all over the back seat of my car so we had to pull

off the highway and I had to run in the store and get a dishrag, soap and water

to clean it because I was leaving the car in the parking garage for 3 days in

very warm weather.

Every step of the way, my son didn't want to get in our out of the car, then

once he finally got out at the airport he sat down on the ground in the parking

lot. If my STBX husband wasn't there, there's no way I could have handled it on

my own. Even with the two of us it was almost impossible!

When we got to the terminal, I grabbed a wheelchair and that was a lifesaver

because an attendant pushed the wheelchair so my son wasn't going to try

anything with someone else pushing. We get through security and I realize I left

my cell  phone in the car. I go running top speed to the parking lot and back,

and after I come back I find out that while I was gone who do they pick out to

pat down??? My son in the wheelchair!! Totally freaked him out and he was

already so stressed to begin with!

The next morning, we finally got him to 's then he wouldn't get out of the

car. Eventually he did get out and the program Director came outside to talk

with him and start the process. We were SO impressed with how he handled it! My

son was sitting on the bench outside, so the directory immediately got down on

one knee to be at eye level with him and started talking. I was blown away with

how he was able to really connect with my son despite his terrible state.

Eventually he signed the paperwork and was admitted.The process was pretty long,

so he mostly sat in a chair outside in the hall or laid on one of the sofas

while my husband and I met and talked with everyone. At one point I got up to go

out in the hall and check on my son. He was sitting in a chair and I look down

and his shorts are soaking wet, he had peed in the chair!! One one hand I was

mortified, but on the other hand I was glad that it happened right as we were

admitting him so they could see first-hand. As usual, he insisted it was water.

He is miserable there now, but that's to be expected. He's having a terrible

time with his tics, but that's to be expected as well from the stress of the

whole thing. Even under the best of circumstances it's a huge adjustment for any

teenager to be away from home, but especially under these circumstances.

So far, we are VERY impressed with all the staff, the facility and the whole

operation. They do not seem to leave any stone unturned there when it comes to

getting every minute detail about the kids during admitting. I think in my son's

case it will be a pretty long haul because despite the fact that he's wasted

away to nothing, is peeing all over the place, and living the life of a complete

recluse, he still insists that there is " nothing wrong with him, " and said the

same to his psychiatrist and therapist. He is in such SEVERE denial in every

respect that to get him to the point of recognizing and acknowledging he has

issues will be no easy feat. Then, and only then, will he be able to begin the

work with CBT, ERP, etc. to get to the point of eventually being able to return

home.

Coming home to a childless home this evening and walking by my son's empty room

was so very difficult and heartbreaking. I have been living on high-alert 24/7

for such a long time now dealing with my son that my nervous system became

accustomed to that and it's going to be really tough making such a big

adjustment to almost an opposite extreme. I'm trying to take things one day at a

time now, it's the only way to do this. I just hope and pray that my son's case

is not too complex or too advanced at this point for 's to help him.

I was thinking of you all while i was there and remembering all of your words of

support and encouragement, and it truly helped me get through this awful ordeal.

Thanks SO much again, from the bottom of my heart!

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[Guest guest]

It is so good to hear that you are back home and you managed to get your son

situation at . I will hold good thoughts for all of you that this place

will be the answer you need. I hope that while he is getting the right

treatment, you use the time to get some much needed relaxation.

Update from

Hi all,

So sorry I couldn't post earlier. I tried a few times but for some reason it

bounced back via webmail.

Well.......I am back home now, just flew in this evening. My son is now at

's, and not a moment too soon! I'm glad I prepped myself mentally for a

nightmare ordeal getting him there because it definitely was one. From beginning

to end, every step of the way he was extremely difficult to deal with.

The MD did an amazing job with the " intervention " on Tuesday morning, but I

don't think anyone could have done a good enough job for my son not to

completely flip out about going. Despite giving him Ativan and later on some

Valium, neither one phased him in the least or helped with his major

anxiety/stress.

On top of everything else, on the way to the airport a crane toppled over on the

main highway so we had to sit for an hour not moving and barely made our plan on

time. Meanwhile, my son peed all over the back seat of my car so we had to pull

off the highway and I had to run in the store and get a dishrag, soap and water

to clean it because I was leaving the car in the parking garage for 3 days in

very warm weather.

Every step of the way, my son didn't want to get in our out of the car, then

once he finally got out at the airport he sat down on the ground in the parking

lot. If my STBX husband wasn't there, there's no way I could have handled it on

my own. Even with the two of us it was almost impossible!

When we got to the terminal, I grabbed a wheelchair and that was a lifesaver

because an attendant pushed the wheelchair so my son wasn't going to try

anything with someone else pushing. We get through security and I realize I left

my cell phone in the car. I go running top speed to the parking lot and back,

and after I come back I find out that while I was gone who do they pick out to

pat down??? My son in the wheelchair!! Totally freaked him out and he was

already so stressed to begin with!

The next morning, we finally got him to 's then he wouldn't get out of the

car. Eventually he did get out and the program Director came outside to talk

with him and start the process. We were SO impressed with how he handled it! My

son was sitting on the bench outside, so the directory immediately got down on

one knee to be at eye level with him and started talking. I was blown away with

how he was able to really connect with my son despite his terrible state.

Eventually he signed the paperwork and was admitted.The process was pretty long,

so he mostly sat in a chair outside in the hall or laid on one of the sofas

while my husband and I met and talked with everyone. At one point I got up to go

out in the hall and check on my son. He was sitting in a chair and I look down

and his shorts are soaking wet, he had peed in the chair!! One one hand I was

mortified, but on the other hand I was glad that it happened right as we were

admitting him so they could see first-hand. As usual, he insisted it was water.

He is miserable there now, but that's to be expected. He's having a terrible

time with his tics, but that's to be expected as well from the stress of the

whole thing. Even under the best of circumstances it's a huge adjustment for any

teenager to be away from home, but especially under these circumstances.

So far, we are VERY impressed with all the staff, the facility and the whole

operation. They do not seem to leave any stone unturned there when it comes to

getting every minute detail about the kids during admitting. I think in my son's

case it will be a pretty long haul because despite the fact that he's wasted

away to nothing, is peeing all over the place, and living the life of a complete

recluse, he still insists that there is " nothing wrong with him, " and said the

same to his psychiatrist and therapist. He is in such SEVERE denial in every

respect that to get him to the point of recognizing and acknowledging he has

issues will be no easy feat. Then, and only then, will he be able to begin the

work with CBT, ERP, etc. to get to the point of eventually being able to return

home.

Coming home to a childless home this evening and walking by my son's empty room

was so very difficult and heartbreaking. I have been living on high-alert 24/7

for such a long time now dealing with my son that my nervous system became

accustomed to that and it's going to be really tough making such a big

adjustment to almost an opposite extreme. I'm trying to take things one day at a

time now, it's the only way to do this. I just hope and pray that my son's case

is not too complex or too advanced at this point for 's to help him.

I was thinking of you all while i was there and remembering all of your words of

support and encouragement, and it truly helped me get through this awful ordeal.

Thanks SO much again, from the bottom of my heart!

[Guest guest]

, thanks for updating us, we were all hoping things would go well. And

though it wasn't easy, it did go well as you got him there!

I'm glad to hear you were impressed with , have heard good things from

others too. And it helps you feel better about his being there. Hey, I'm glad

he peed in the chair there too, for them to witness. Good too that they will be

able to work with medications faster there, and the great therapy he'll

receive...!

Try to enjoy some of this time with him away and accept it as a time for you to

RELAX and enjoy a few things for yourself. He'll be coming home, and at his age

that's home for a few more years (!) so " gift yourself " with this time as you'll

be a " mom " again when he returns. So inbetween phone calls, any visits,

whatever, do relax and pamper yourself.

We're all hopeful for him and his success! And eager for updates over the weeks

when you have news!

(((hugs)))

>

> Hi all,

>

> So sorry I couldn't post earlier. I tried a few times but for some reason it

bounced back via webmail.

>

> Well.......I am back home now, just flew in this evening. My son is now at

's, and not a moment too soon! I'm glad I prepped myself mentally for a

nightmare ordeal getting him there because it definitely was one. From beginning

to end, every step of the way he was extremely difficult to deal with.

>

> The MD did an amazing job with the " intervention " on Tuesday morning, but I

don't think anyone could have done a good enough job for my son not to

completely flip out about going. Despite giving him Ativan and later on some

Valium, neither one phased him in the least or helped with his major

anxiety/stress.

>

> On top of everything else, on the way to the airport a crane toppled over on

the main highway so we had to sit for an hour not moving and barely made our

plan on time. Meanwhile, my son peed all over the back seat of my car so we had

to pull off the highway and I had to run in the store and get a dishrag, soap

and water to clean it because I was leaving the car in the parking garage for 3

days in very warm weather.

>

> Every step of the way, my son didn't want to get in our out of the car, then

once he finally got out at the airport he sat down on the ground in the parking

lot. If my STBX husband wasn't there, there's no way I could have handled it on

my own. Even with the two of us it was almost impossible!

>

> When we got to the terminal, I grabbed a wheelchair and that was a lifesaver

because an attendant pushed the wheelchair so my son wasn't going to try

anything with someone else pushing. We get through security and I realize I left

my cell phone in the car. I go running top speed to the parking lot and back,

and after I come back I find out that while I was gone who do they pick out to

pat down??? My son in the wheelchair!! Totally freaked him out and he was

already so stressed to begin with!

>

> The next morning, we finally got him to 's then he wouldn't get out of

the car. Eventually he did get out and the program Director came outside to talk

with him and start the process. We were SO impressed with how he handled it! My

son was sitting on the bench outside, so the directory immediately got down on

one knee to be at eye level with him and started talking. I was blown away with

how he was able to really connect with my son despite his terrible state.

>

> Eventually he signed the paperwork and was admitted.The process was pretty

long, so he mostly sat in a chair outside in the hall or laid on one of the

sofas while my husband and I met and talked with everyone. At one point I got up

to go out in the hall and check on my son. He was sitting in a chair and I look

down and his shorts are soaking wet, he had peed in the chair!! One one hand I

was mortified, but on the other hand I was glad that it happened right as we

were admitting him so they could see first-hand. As usual, he insisted it was

water.

>

> He is miserable there now, but that's to be expected. He's having a terrible

time with his tics, but that's to be expected as well from the stress of the

whole thing. Even under the best of circumstances it's a huge adjustment for any

teenager to be away from home, but especially under these circumstances.

>

> So far, we are VERY impressed with all the staff, the facility and the whole

operation. They do not seem to leave any stone unturned there when it comes to

getting every minute detail about the kids during admitting. I think in my son's

case it will be a pretty long haul because despite the fact that he's wasted

away to nothing, is peeing all over the place, and living the life of a complete

recluse, he still insists that there is " nothing wrong with him, " and said the

same to his psychiatrist and therapist. He is in such SEVERE denial in every

respect that to get him to the point of recognizing and acknowledging he has

issues will be no easy feat. Then, and only then, will he be able to begin the

work with CBT, ERP, etc. to get to the point of eventually being able to return

home.

>

> Coming home to a childless home this evening and walking by my son's empty

room was so very difficult and heartbreaking. I have been living on high-alert

24/7 for such a long time now dealing with my son that my nervous system became

accustomed to that and it's going to be really tough making such a big

adjustment to almost an opposite extreme. I'm trying to take things one day at a

time now, it's the only way to do this. I just hope and pray that my son's case

is not too complex or too advanced at this point for 's to help him.

>

> I was thinking of you all while i was there and remembering all of your words

of support and encouragement, and it truly helped me get through this awful

ordeal. Thanks SO much again, from the bottom of my heart!

>

>

>

[Guest guest]

Thanks SO much, Rhonda and everyone for your kind words and encouragement.

Less than a year ago, things were so very different with my son, I never

imagined in a million years we'd be at this juncture. His main issue at that

point were his tics, but they were manageable. There was a little OCD rearing

it's ugly head, but it was so minimal I didn't even recognize it as such and

figured it was just a passing phase he was going through.

Last summer, my son and I took a trip to visit my family in LA. I had " met " a

mom online who has a daughter with very severe Tourette's syndrome and was

hoping her daughter would be approved for DBS surgery (Deep brain stimulation).

We arranged to meet up with them during our visit for lunch, and I have since

become pretty close with her mom, we stay in touch frequently by phone and

email.

At the time, her daughter was in a wheelchair because she had been in and out of

the hospital due to a violent motor tic that caused her to fracture her hip. She

also had an extremely loud vocal tic, which i wasn't aware of before meeting

them. After meeting them, I remember thinking to myself, wow, I don't know how

her mom does it, I can't even imagine how difficult it must be to deal with all

of that.

Little did I know at the time, that I was about to embark on the biggest

nightmare of my life with my son going from a mostly functional, " normal " kid to

almost completely non-functional in a very short period of time. A few months

after our visit, he developed a VERY loud, high pitched screeching tic, along

with a forceful motor tic, that ramped up to the point of him having tic

outbursts for up to 5 minutes straight. He developed substantial friction burns

on the insides of both arms from the motor tic, and it took a huge toll on him

physically and mentally. That tic lasted for around 5 months and we didn't know

if it would be permanent.

At the same time, he started slipping into the grips of OCD, and eventually got

to the point where he is now, having lost 18 lbs. on an already slim frame,

laying on the stairs in the dark for hours doing nothing, not going anywhere,

even a walk outside was too stressful.

I look back on all of this now and I realize how my friend in LA is able to cope

with her daughter's situation. It's like you go into an " autopilot " mode and you

just keep forging and pushing ahead, doing whatever is necessary to get your

child well again. I am grateful that God has given me the strength to deal with

all of this so far and I pray he continues to give me strength in the days and

months ahead.

As horrific and difficult as it was seeing my son in the condition he was, and

it was almost impossible to deal with him on a daily basis, I sit here missing

him terribly and feel a big huge hole in my heart right now. I also struggle

with feeling guilty because I know how miserable he is there and it's difficult

to try and look beyond that. He's already starting to beg to come home, which I

totally expected, but the worst part is that he just sounds so horrible and is

so exhausted. If he weren't so physically frail right now, I would still be

worried, but not as concerned as I am for his physical well-being. It's so hard

to see the light at the end of the tunnel right now, but I just pray there is a

glimmer in the not too distant future!

>

>

> I am new to this board and haven't commented before but I just want to add to

the comments how proud I am of all you did to hang in there through that whole

long day! What resourcefulness and determination --- my heart was pounding and I

wasn't even there! I can tell how much you love your son and what it means to

know he is with people who are trained to treat his condition and bring HIM

back. My son is 17 - just a little older than yours - and has some extreme

issues also -- I'm so encouraged by your grit and determination not to give up!

I hope to be asking some questions here but I have so many I haven't sorted out

which ones to ask yet!!

>

> Rhonda

>

> Update from

>

> Hi all,

>

> So sorry I couldn't post earlier. I tried a few times but for some reason it

bounced back via webmail.

>

> Well.......I am back home now, just flew in this evening. My son is now at

's, and not a moment too soon! I'm glad I prepped myself mentally for a

nightmare ordeal getting him there because it definitely was one. From beginning

to end, every step of the way he was extremely difficult to deal with.

>

> The MD did an amazing job with the " intervention " on Tuesday morning, but I

don't think anyone could have done a good enough job for my son not to

completely flip out about going. Despite giving him Ativan and later on some

Valium, neither one phased him in the least or helped with his major

anxiety/stress.

>

> On top of everything else, on the way to the airport a crane toppled over on

the main highway so we had to sit for an hour not moving and barely made our

plan on time. Meanwhile, my son peed all over the back seat of my car so we had

to pull off the highway and I had to run in the store and get a dishrag, soap

and water to clean it because I was leaving the car in the parking garage for 3

days in very warm weather.

>

> Every step of the way, my son didn't want to get in our out of the car, then

once he finally got out at the airport he sat down on the ground in the parking

lot. If my STBX husband wasn't there, there's no way I could have handled it on

my own. Even with the two of us it was almost impossible!

>

> When we got to the terminal, I grabbed a wheelchair and that was a lifesaver

because an attendant pushed the wheelchair so my son wasn't going to try

anything with someone else pushing. We get through security and I realize I left

my cell phone in the car. I go running top speed to the parking lot and back,

and after I come back I find out that while I was gone who do they pick out to

pat down??? My son in the wheelchair!! Totally freaked him out and he was

already so stressed to begin with!

>

> The next morning, we finally got him to 's then he wouldn't get out of

the car. Eventually he did get out and the program Director came outside to talk

with him and start the process. We were SO impressed with how he handled it! My

son was sitting on the bench outside, so the directory immediately got down on

one knee to be at eye level with him and started talking. I was blown away with

how he was able to really connect with my son despite his terrible state.

>

> Eventually he signed the paperwork and was admitted.The process was pretty

long, so he mostly sat in a chair outside in the hall or laid on one of the

sofas while my husband and I met and talked with everyone. At one point I got up

to go out in the hall and check on my son. He was sitting in a chair and I look

down and his shorts are soaking wet, he had peed in the chair!! One one hand I

was mortified, but on the other hand I was glad that it happened right as we

were admitting him so they could see first-hand. As usual, he insisted it was

water.

>

> He is miserable there now, but that's to be expected. He's having a terrible

time with his tics, but that's to be expected as well from the stress of the

whole thing. Even under the best of circumstances it's a huge adjustment for any

teenager to be away from home, but especially under these circumstances.

>

> So far, we are VERY impressed with all the staff, the facility and the whole

operation. They do not seem to leave any stone unturned there when it comes to

getting every minute detail about the kids during admitting. I think in my son's

case it will be a pretty long haul because despite the fact that he's wasted

away to nothing, is peeing all over the place, and living the life of a complete

recluse, he still insists that there is " nothing wrong with him, " and said the

same to his psychiatrist and therapist. He is in such SEVERE denial in every

respect that to get him to the point of recognizing and acknowledging he has

issues will be no easy feat. Then, and only then, will he be able to begin the

work with CBT, ERP, etc. to get to the point of eventually being able to return

home.

>

> Coming home to a childless home this evening and walking by my son's empty

room was so very difficult and heartbreaking. I have been living on high-alert

24/7 for such a long time now dealing with my son that my nervous system became

accustomed to that and it's going to be really tough making such a big

adjustment to almost an opposite extreme. I'm trying to take things one day at a

time now, it's the only way to do this. I just hope and pray that my son's case

is not too complex or too advanced at this point for 's to help him.

>

> I was thinking of you all while i was there and remembering all of your words

of support and encouragement, and it truly helped me get through this awful

ordeal. Thanks SO much again, from the bottom of my heart!

>

>

>

>

[Guest guest]

My son is about where yours was a year ago - and I've gone through the same

route of totally not being able to comprehend how fast OCD can take over. We

also saw some " signs " but also hoped it was a " phase. " We had other family

issues that took priority (WRONG!).

My son is now housebound - will not go out because he doesn't want to do all the

cleaning rituals when he comes home. Won't change clothes because doesn't want

to clean new clothes. Still functional in terms of sitting using his laptop all

his waking hours, but stays up for 30 hours at a time, then sleeps 16-17 hours.

We thank God that we have a therapist who has come to our home to work with him

and begin ERP. Son has done ERP 3 times now and is asking for it every day.

THANK GOD!! So far he has rubbed his pant leg against his desk. It looks like a

very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN!

If you read the book " Life in Rewind " you will see a picture as dark as it can

get, yet that guy recovered. It all came down to when HE realized it was up to

HIM. No one could rescue him. Our therapist has worked that way from the

beginning. It's up to my son to make up HIS mind as to what he wants his life to

be. Hope I'm not on a soapbox - it has taken me a long time to get here.

warmly

Rhonda

Update from

>

> Hi all,

>

> So sorry I couldn't post earlier. I tried a few times but for some reason it

bounced back via webmail.

>

> Well.......I am back home now, just flew in this evening. My son is now at

's, and not a moment too soon! I'm glad I prepped myself mentally for a

nightmare ordeal getting him there because it definitely was one. From beginning

to end, every step of the way he was extremely difficult to deal with.

>

> The MD did an amazing job with the " intervention " on Tuesday morning, but I

don't think anyone could have done a good enough job for my son not to

completely flip out about going. Despite giving him Ativan and later on some

Valium, neither one phased him in the least or helped with his major

anxiety/stress.

>

> On top of everything else, on the way to the airport a crane toppled over on

the main highway so we had to sit for an hour not moving and barely made our

plan on time. Meanwhile, my son peed all over the back seat of my car so we had

to pull off the highway and I had to run in the store and get a dishrag, soap

and water to clean it because I was leaving the car in the parking garage for 3

days in very warm weather.

>

> Every step of the way, my son didn't want to get in our out of the car, then

once he finally got out at the airport he sat down on the ground in the parking

lot. If my STBX husband wasn't there, there's no way I could have handled it on

my own. Even with the two of us it was almost impossible!

>

> When we got to the terminal, I grabbed a wheelchair and that was a lifesaver

because an attendant pushed the wheelchair so my son wasn't going to try

anything with someone else pushing. We get through security and I realize I left

my cell phone in the car. I go running top speed to the parking lot and back,

and after I come back I find out that while I was gone who do they pick out to

pat down??? My son in the wheelchair!! Totally freaked him out and he was

already so stressed to begin with!

>

> The next morning, we finally got him to 's then he wouldn't get out of

the car. Eventually he did get out and the program Director came outside to talk

with him and start the process. We were SO impressed with how he handled it! My

son was sitting on the bench outside, so the directory immediately got down on

one knee to be at eye level with him and started talking. I was blown away with

how he was able to really connect with my son despite his terrible state.

>

> Eventually he signed the paperwork and was admitted.The process was pretty

long, so he mostly sat in a chair outside in the hall or laid on one of the

sofas while my husband and I met and talked with everyone. At one point I got up

to go out in the hall and check on my son. He was sitting in a chair and I look

down and his shorts are soaking wet, he had peed in the chair!! One one hand I

was mortified, but on the other hand I was glad that it happened right as we

were admitting him so they could see first-hand. As usual, he insisted it was

water.

>

> He is miserable there now, but that's to be expected. He's having a terrible

time with his tics, but that's to be expected as well from the stress of the

whole thing. Even under the best of circumstances it's a huge adjustment for any

teenager to be away from home, but especially under these circumstances.

>

> So far, we are VERY impressed with all the staff, the facility and the whole

operation. They do not seem to leave any stone unturned there when it comes to

getting every minute detail about the kids during admitting. I think in my son's

case it will be a pretty long haul because despite the fact that he's wasted

away to nothing, is peeing all over the place, and living the life of a complete

recluse, he still insists that there is " nothing wrong with him, " and said the

same to his psychiatrist and therapist. He is in such SEVERE denial in every

respect that to get him to the point of recognizing and acknowledging he has

issues will be no easy feat. Then, and only then, will he be able to begin the

work with CBT, ERP, etc. to get to the point of eventually being able to return

home.

>

> Coming home to a childless home this evening and walking by my son's empty

room was so very difficult and heartbreaking. I have been living on high-alert

24/7 for such a long time now dealing with my son that my nervous system became

accustomed to that and it's going to be really tough making such a big

adjustment to almost an opposite extreme. I'm trying to take things one day at a

time now, it's the only way to do this. I just hope and pray that my son's case

is not too complex or too advanced at this point for 's to help him.

>

> I was thinking of you all while i was there and remembering all of your

words of support and encouragement, and it truly helped me get through this

awful ordeal. Thanks SO much again, from the bottom of my heart!

>

>

>

>

[Guest guest]

Rhonda, well asking for ERP shows he is on his way to success, wonderful that he

is motivated! I hope having some success (rubbing pant leg against desk) will

just make the future successes come more frequently, it can seem like baby

steps, but they are still steps!

Thanks for sharing,

>

>

> My son is now housebound - will not go out because he doesn't want to do all

the cleaning rituals when he comes home. Won't change clothes because doesn't

want to clean new clothes. Still functional in terms of sitting using his laptop

all his waking hours, but stays up for 30 hours at a time, then sleeps 16-17

hours. We thank God that we have a therapist who has come to our home to work

with him and begin ERP. Son has done ERP 3 times now and is asking for it every

day. THANK GOD!! So far he has rubbed his pant leg against his desk. It looks

like a very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN!

>

[Guest guest]

Thanks so much Jordana, and everyone! I have a women's support group

I go to weekly and they have all been there with me through much of this. I

hadn't been in 2 weeks so they were all anxious to hear how the visit went. They

all literally cheered when I was done telling them about my son's progress, it

was awesome!

> I'm SO happy to read this!!! I can't wait to read each of your progress

reports. This is so wonderful to hear because it means that your son is on the

road to recovery and you can experience the relief you deserve from the top

level stress you must have been feeling before he went to .

>

> Update from

>

> Hi all,

>

> Sorry it's been a while since I posted. I'm very pleased to report that my son

is continuing to make good progress at 's. Thank God he is continuing to

gain back some weight and is now up to 116. He still needs to gain another 10-15

lbs., but he's eating really well now and not having to drink Ensure anymore.

>

> We had our first visit with him this past weekend. It was the first time we'd

seen him in 6 weeks, the longest we've ever been away from him. I was really

nervous about how things would go, but it went really well. He did A LOT of

stuff for our first visit. We made our visits in short blocks of time as he

tires easily, so we would go and take him out to lunch or to the mall, then

bring him back and come back a few hours later to do something else.

>

>