Re: Will someone please write my mother a letter?

[Guest guest]

bob, I'll truely be glad to write your mother a letter if you need me to.. I did treatment myself and I was successful even tho every odd was against it for me.. You only want to do tx once if you can and since you're almost across the finish line, its imperative that you finish,,

just let me know if you truely would like me to write a letter, I will!!!

hugs,

jax

Subject: Will someone please write my mother a letter?To: Hepatitis_C_Central Date: Saturday, April 4, 2009, 9:36 PM

i am basically her caregiver. she is in her 80's and very frail. when she sees me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment or a dozen other things concerned with therapy she wants me to stop. not because i'm not taking care of her but because she sees me feel bad. the last few days have been bad for me and i anticipate a few more bad days ahead but, jeebus krist, i only have 4 shots to go. i try my best to be strong for her and don't want her to worry but sometimes it's not in me. i know the stats about my kind of hep c and know i am probably as cured as i ever will be and it wouldn't probably hurt a thing if i threw away my last box of pegysys and my last bottle of ribivirin but how can i make the trade of easing my mothers mind for an additional 4 weeks or facing a future of looking at beeping machines and wishing i had done the last 4 weeks?you don't really need to write a letter. i just needed

to vent.

[Guest guest]

Dear Bob's Mother,

It is certainly hard to see a love one go through treatment isn't it?

It is not the Bob you have had to love and cherish most of his life.

But Dear Mother, Bob is in the fight for his life. And he is almost at the end of this journey to wellness. He has just one short month left and soon he will be his old self if not better. I don't know what this disease has done to Bob. But I can only relate what it did to me. I was tired and ill feeling all the time. I am a very good house keeper. I can't stand dirty and things being out of place. I got to

point, I just didn't care. My house got dirty, junk everywhere. My

husband of many years thought I had lost my mind. He knew me.

He was ready to leave me. Because he thought I had lost interest in him, our family and our home.

He told me one day, go see a doctor to see if there is something

wrong with you. This is not the Janet I married. So I went.

After going to see Doctor after Doctor, I finally asked them have

you tested for the hepatitis virus? They admitted they hadn't and we did the test. Well it came out that I had Hep C.

I did the first treatment without success, although I knocked the virus down to 1500. Then again, I treated about a year and half later and I reached undetectable. But I didn't remain that way.

I am going through treatment again.

Why you ask? Because I am only 55 years old, in a week or so I

will turn 56. I have a 13 year old daughter who I adore, and I want

to be at her wedding, see her graduate from college. I want to bounce her babies on my knee.

If I don't do this treatment till the end, I fear that I will not get to do

that. I will see this treatment to the end. Because it will stop the disease cold in it's tracks. To add years to my life is worth all the

tiredness, the icky feeling, the pain in my joints and muscles.

Because I know this is temporary. The gain I get from getting rid of

this disease is that I have many years more with my family.

Please Bob's mom, be a big support to your son during these last

4 weeks. Love him, encourage him and celebrate his wellness when it is through.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Will someone please write my mother a letter?To: Hepatitis_C_Central Date: Saturday, April 4, 2009, 11:36 PM

i am basically her caregiver. she is in her 80's and very frail. when she sees me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment or a dozen other things concerned with therapy she wants me to stop. not because i'm not taking care of her but because she sees me feel bad. the last few days have been bad for me and i anticipate a few more bad days ahead but, jeebus krist, i only have 4 shots to go. i try my best to be strong for her and don't want her to worry but sometimes it's not in me. i know the stats about my kind of hep c and know i am probably as cured as i ever will be and it wouldn't probably hurt a thing if i threw away my last box of pegysys and my last bottle of ribivirin but how can i make the trade of easing my mothers mind for an additional 4 weeks or facing a future of looking at beeping machines and wishing i had done the last 4 weeks?you don't really need to write a letter. i just needed

to vent.

[Guest guest]

Stick with your 4 weeks, Bob, she just doesn't understand

but loves you enough to feel concern..

We will be here to hang in with you and see you across the

finish line..

i am basically her caregiver. she is in her 80's and very frail. when she sees me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment or a dozen other things concerned with therapy she wants me to stop. not because i'm not taking care of her but because she sees me feel bad. the last few days have been bad for me and i anticipate a few more bad days ahead but, jeebus krist, i only have 4 shots to go. i try my best to be strong for her and don't want her to worry but sometimes it's not in me. i know the stats about my kind of hep c and know i am probably as cured as i ever will be and it wouldn't probably hurt a thing if i threw away my last box of pegysys and my last bottle of ribivirin but how can i make the trade of easing my mothers mind for an additional 4 weeks or facing a future of looking at beeping machines and wishing i had done the last 4 weeks?you don't really need to write a letter. i just needed

to vent.

[Guest guest]

What a beautiful letter. I think it could many of our families who don't quite understand what we are going through.I was at my GP last week and I guess the NP from my visit noted I "appeared severely depressed." I told him if I'm depressed it's from being tired of being sick and tired. I don't have the stamina to keep up with my six kids'(we just took my 17yo nephew in) and hate having to depend on others to do most of their activities. But I can say that because of my family is why I will continue to the end. Five mos to go. Really for the benefits, this year hopefully will be a blur.How long after tx ends do you start feeling like yourself? I have my first grandchild coming in Oct and hope some of my energy will be back.Thanks for sharing what yourselves. It is a relief to know that I am amongst friends.Blessings, AmberSent via BlackBerry by AT&TFrom: Janet Date: Sun, 5 Apr 2009 06:37:53 -0700 (PDT)To: <Hepatitis_C_Central >Subject: Re: Will someone please write my mother a letter? Dear Bob's Mother,It is certainly hard to see a love one go through treatment isn't it?It is not the Bob you have had to love and cherish most of his life.But Dear Mother, Bob is in the fight for his life. And he is almost at the end of this journey to wellness. He has just one short month left and soon he will be his old self if not better. I don't know what this disease has done to Bob. But I can only relate what it did to me. I was tired and ill feeling all the time. I am a very good house keeper. I can't stand dirty and things being out of place. I got to point, I just didn't care. My house got dirty, junk everywhere. My husband of many years thought I had lost my mind. He knew me.He was ready to leave me. Because he thought I had lost interest in him, our family and our home. He told me one day, go see a doctor to see if there is something wrong with you. This is not the Janet I married. So I went.After going to see Doctor after Doctor, I finally asked them have you tested for the hepatitis virus? They admitted they hadn't and we did the test. Well it came out that I had Hep C. I did the first treatment without success, although I knocked the virus down to 1500. Then again, I treated about a year and half later and I reached undetectable. But I didn't remain that way.I am going through treatment again. Why you ask? Because I am only 55 years old, in a week or so I will turn 56. I have a 13 year old daughter who I adore, and I want to be at her wedding, see her graduate from college. I want to bounce her babies on my knee. If I don't do this treatment till the end, I fear that I will not get to do that. I will see this treatment to the end. Because it will stop the disease cold in it's tracks. To add years to my life is worth all the tiredness, the icky feeling, the pain in my joints and muscles. Because I know this is temporary. The gain I get from getting rid ofthis disease is that I have many years more with my family. Please Bob's mom, be a big support to your son during these last 4 weeks. Love him, encourage him and celebrate his wellness when it is through.LoveJanet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"Frederick Faber Subject: Will someone please write my mother a letter?To: Hepatitis_C_Central Date: Saturday, April 4, 2009, 11:36 PMi am basically her caregiver. she is in her 80's and very frail. when she sees me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment or a dozen other things concerned with therapy she wants me to stop. not because i'm not taking care of her but because she sees me feel bad. the last few days have been bad for me and i anticipate a few more bad days ahead but, jeebus krist, i only have 4 shots to go. i try my best to be strong for her and don't want her to worry but sometimes it's not in me. i know the stats about my kind of hep c and know i am probably as cured as i ever will be and it wouldn't probably hurt a thing if i threw away my last box of pegysys and my last bottle of ribivirin but how can i make the trade of easing my mothers mind for an additional 4 weeks or facing a future of looking at beeping machines and wishing i had done the last 4 weeks?you don't really need to write a letter. i just needed to vent.

[Guest guest]

Bob, Can I offer you a virtual {{{{{{{{{{{HUG}}}}}}}}}} hon? I just can't

imagine how exhausting these past months have been for you. Especially when

you have an elderly parent to care for as well. I tip my hat to you my

friend.

I am so glad you felt comfortable enough to come here and vent. I feel very

honored.

Just keep in your mind that it's ONLY 4 weeks. You've made it this far, you

can do this! I know you can! And we'll be at the finish line willing you

on.

Luv

anne

" You can conquer almost any fear

if you will only make up your mind to do so.

Remember, fear doesn't exist anywhere

except in the mind. "

Will someone please write my mother a letter?

>i am basically her caregiver. she is in her 80's and very frail. when she

>sees me feel lathargic or if i sleep a lot or i have stomachcramps from the

>treatment or a dozen other things concerned with therapy she wants me to

>stop. not because i'm not taking care of her but because she sees me feel

>bad. the last few days have been bad for me and i anticipate a few more bad

>days ahead but, jeebus krist, i only have 4 shots to go. i try my best to

>be strong for her and don't want her to worry but sometimes it's not in me.

>

> i know the stats about my kind of hep c and know i am probably as cured as

> i ever will be and it wouldn't probably hurt a thing if i threw away my

> last box of pegysys and my last bottle of ribivirin but how can i make the

> trade of easing my mothers mind for an additional 4 weeks or facing a

> future of looking at beeping machines and wishing i had done the last 4

> weeks?

>

> you don't really need to write a letter. i just needed to vent.

>

>

>

> ------------------------------------

>

> It's a pleasure having you join in our conversations. We hope you have

> found the support you need with us.

>

> If you are using email for your posts, for easy access to our group, just

> click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

[Guest guest]

Gads you cannot worry about anyone or anything while on treatment for it to

work. Easier said than done because that last month for me Bob was just HELL. In

my case I was looking at potential liver failure and I am still here to whine

and complain to people It made me feel better and I highly recommend it! Do

anything but please please do not stop treatment unless a Doctor tells you to! I

did 7 months with end stage liver disease you will be fine! So far nothing

serious has happened since I stopped treatment. My Ct Scan said other than the

fluid I was the same as before I started treatment....just minus the Hep C now.

>

> i am basically her caregiver. she is in her 80's and very frail. when she sees

me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment

or a dozen other things concerned with therapy she wants me to stop. not because

i'm not taking care of her but because she sees me feel bad. the last few days

have been bad for me and i anticipate a few more bad days ahead but, jeebus

krist, i only have 4 shots to go. i try my best to be strong for her and don't

want her to worry but sometimes it's not in me.

>

> i know the stats about my kind of hep c and know i am probably as cured as i

ever will be and it wouldn't probably hurt a thing if i threw away my last box

of pegysys and my last bottle of ribivirin but how can i make the trade of

easing my mothers mind for an additional 4 weeks or facing a future of looking

at beeping machines and wishing i had done the last 4 weeks?

>

> you don't really need to write a letter. i just needed to vent.

>

[Guest guest]

Janet, that is one awesome letter honey,,, thank you for writing that!

love

jackie

From: Bob <unclebutchyahoo (DOT) com>Subject: [Hepatitis_C_ Central] Will someone please write my mother a letter?To: Hepatitis_C_ Central@yahoogro ups.comDate: Saturday, April 4, 2009, 11:36 PM

i am basically her caregiver. she is in her 80's and very frail. when she sees me feel lathargic or if i sleep a lot or i have stomachcramps from the treatment or a dozen other things concerned with therapy she wants me to stop. not because i'm not taking care of her but because she sees me feel bad. the last few days have been bad for me and i anticipate a few more bad days ahead but, jeebus krist, i only have 4 shots to go. i try my best to be strong for her and don't want her to worry but sometimes it's not in me. i know the stats about my kind of hep c and know i am probably as cured as i ever will be and it wouldn't probably hurt a thing if i threw away my last box of pegysys and my last bottle of ribivirin but how can i make the trade of easing my mothers mind for an additional 4 weeks or facing a future of looking at beeping machines and wishing i had done the last 4 weeks?you don't really need to write a letter. i just needed

to vent.

[Guest guest]

Dear Amber,

I started feeling better like 2 weeks after being off of treatment. Then it got better and better as I went along. I feel great for about 2 years after last treatment. Then Boom.

That is why I knew I had to treat again, because I just lost my zip my zing.

I have always been a hyper get it done now person. I knew that something was wrong when

I would pass out on the couch at 7:30 in the evening.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Re: Will someone please write my mother a letter?To: Hepatitis_C_Central Date: Sunday, April 5, 2009, 12:26 PM