Re: questions(Mellymelt)

[Guest guest]

Hi melt:

The other day I was looking at the " stills pictures " and you are right, " I

would have never thought that all of you guys have been through all this " and in

all the pictures even on the " prednisone days " you're smiling. I really admire

that. That's something I need to start doing. Thanks for the support and when

you say that your onset was almos 30 years ago, you mean that you feel better

know? (Just being curious, I still haven't heard about that somebody has getting

better, hope that has happened too).

Thanks again,

Jackie

26 (South Carolina)

mellymelt escribió:

Jackie;

I hate to say but yes, others have and do feel like you do. My onset was almost

thirty years ago now but I will never forget the struggle it was just to

function with the pain and swollen joints. It often times takes a while for the

worst part to go away (almost) For some people they have quick diagnoses and

little of this involvment and others I would say more typically can take a lot

longer.

Hang in there and we shall stay with you too. Write when you can and don't be

scared. I know not an easy thing but if you saw me today you would never know

what I've been going through for years. And I've had many years that were far

better than you feel now.

Always many hugs, Melt

P.S. Yes Stills and AOSD exact same thing

----- Original Message -----

From: Jaqueline Alvarez

I always read all the messages you guys write and I don't know if anybody

feels pain everyday like I do. I haven't had the rash and fevers since I left

the hospital (March 31/2006), but I have bad joint pain every single day since

then, especially in my kees and ankles and sometimes wrists.

[Guest guest]

Jackie I do feel much better than the early years of onset. I have many damaged

joints that give me pain but am no longer plagued by fevers and horrendous lab

work. The medicines today do go a long way in reducing the joint destruction I

think. Be easy with your body and rest I found to be totally necessary. My

doctor even hospitalized me several times to be in a quiet, calm, environment

because I was so very sick at the time. But as the years went on I was able to

work for a while and although painful my life is pretty good these days. I hope

any of this helps answer your questions. Feel free to personally email me any

time, I'm usually around the computer, lol.

Good day to you all, Melt

. Thanks for the support and when you say that your onset was almos 30 years

ago, you mean that you feel better know? (Just being curious, I still haven't

heard about that somebody has getting better, hope that has happened too).