Re: Jaqueline Alvarez questions

May 31, 2006

Jaqueline Alvarez,

Hi, my name is Burr Strader. I was diagnosed with JRA and Stills in 1986 when

I was 12 years old. When we got my medical history from my pediatritian it

showed that I was seen at leat 30 to 40 times a year for what they thought were

sprained ankles, bruised hips, hiper extended knees and so on. After finally

being diagnosed with the JRA and Stills we realized how far back my problems

actually went. Since then I have had good days and bad days. Now when I say

good days, It means I was able to actually walk and do things, Bad days

basically are like right now while I am in a flare up and in a wheelchair. This

flair up has lasted 2 years now gradually getting worse. I am new to this

group, and have been blessed to find others that go through the same thing that

I have been going through for so many years. And I still have a lot to learn.

But as far as your question goes, for 32 years, I have not known a single day

when I have not been in pain. After a while you get

used to it and can tolerate it. But be careful then because once you get used

to the pain and can tolerate it, you end up over extending yourself and getting

hurt. Then the pain worsens. So yes there are those of us that have the pain

every day and it never goes away. But we are still optomistic that a pain free

day will come. I hope this helps. If there is anything I can do for you or any

questions I can answer, feel free to ask. I am new to the membership here, but

I have dealt with this disease for 32 years.

Burr Strader

Newport, Tennessee

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