Guest guest Posted June 4, 2006 Report Posted June 4, 2006 Hi 23, I was diagnosed back in Nov. 05 and for the first 3 or 4 months I would get night sweats almost on a nightly basis. It still happens but not nearly as often. I also get what I call the day sweats, I will be chilled and just a matter of seconds, I would be drenched in sweat. You also mention fatigue, besides the pain, fatigue is what I hate most about this disease. I hope you get to feeling better soon. Brett, Tacoma, WA. Question for anybody.... Hey guys and girls, how is everybody today? Well not so good over here, I am just having another bad day. The fatigue is bad and I am having off and on fever, it is low grade but I can still feel it. It feel bad. I was going to ask, does anybody get bad night sweats, and if so is there anything you do for them? There are some days I go without them and then there are some days I get them so bad I don't know what to do with myself. Does anyone else go through this? Hugs 23 Corpus Christi Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote
Guest guest Posted June 4, 2006 Report Posted June 4, 2006 Hello the Sweats EH!! Havent gone through them in awhile but yes most do get them for sure.I was also like Brett one minute hot next deathly chilled but yet still sweating.Must be hot in Texas too huh,cant make it any easier.Hope your feeling alot better soon. d.Canada Question for anybody.... > Hey guys and girls, how is everybody today? Well not so good over > here, I am just having another bad day. The fatigue is bad and I am > having off and on fever, it is low grade but I can still feel it. It > feel bad. > I was going to ask, does anybody get bad night sweats, and if so is > there anything you do for them? There are some days I go without them > and then there are some days I get them so bad I don't know what to do > with myself. Does anyone else go through this? > > Hugs 23 > Corpus Christi > > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended > to replace the services of a trained health professional or to be a > substitute for medical advice of physicians and/or other health care > professionals. The International Still's Disease Foundation is not engaged > in rendering medical or professional medical services. You should consult > your physician on specific medical questions, particularly in matters > requiring diagnosis or medical attention. The International Still's > Disease Foundation makes no representations or warranties with respect to > any treatment, action, application, medication or preparation by any > person following the information offered or provided within this support > form. > > ion by any person following the information offered or provided within > this support form. > > > Quote
Guest guest Posted June 4, 2006 Report Posted June 4, 2006 Hi and every one; Boy I remember nights like that for a time I almost forgot we did not have a water bed any more as I would walk up as wet as when we had one and it leaked. I do not get them too much now days but not fully gone ether. The temp part that left me for a bout two years then back again at lest a few days a week low grade temps .when there up I hurt more but never high always below 100 or less. But as with most stills things your never alone some one some were normally has or has gone threw it. I live in calif central Valley were temps over a 110 are normal in the summer for days on end when it cools off were in the 90 to 100. I know it makes a big deference in how I feel. But for me one of the biggest hurts is a raise in humidity Hugs all Marty Question for anybody.... Hey guys and girls, how is everybody today? Well not so good over here, I am just having another bad day. The fatigue is bad and I am having off and on fever, it is low grade but I can still feel it. It feel bad. I was going to ask, does anybody get bad night sweats, and if so is there anything you do for them? There are some days I go without them and then there are some days I get them so bad I don't know what to do with myself. Does anyone else go through this? Hugs 23 Corpus Christi Quote
Guest guest Posted June 4, 2006 Report Posted June 4, 2006 Hi : Sorry you're not feeling well. I know what you mean with those " night sweats " . I experienced it when I had recently started on pred. They were horrible. I asked my doc. and he said they were going to get better and they really did. It needed a little bit of patience.I don't have those bad nights any more (at least not due to the sweats). I'm 26 and I know how sad it is not be able to do the things you used to do or feeling that fatigue all the time. I used to go to the gym every night, used to play tennis a lot, going to dance with friends and boyfriend and I haven't gone back to normal yet, I'm waiting for that moment to come, but right now I'm trying to focus on other things, like praying with a group of young quys and assisting to the church, watching movies, reading and last friday I went to the pool and I felt a lot better. Hope you can feel and sleep better Jackie I was going to ask, does anybody get bad night sweats, and if so is there anything you do for them? There are some days I go without them and then there are some days I get them so bad I don't know what to do with myself. Does anyone else go through this? Hugs 23 Corpus Christi Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote
Guest guest Posted June 4, 2006 Report Posted June 4, 2006 Hi , Even when I don't wake up with them, I know I'm still having them because my hair gets damp and curly. I only wake up once or twice a week now with them. The other five or six days they just perm my hair. I suppose I should be thankful... some people pay good money for that kind of beauty. in Maine > > Hey guys and girls, how is everybody today? Well not so good over > here, I am just having another bad day. The fatigue is bad and I am > having off and on fever, it is low grade but I can still feel it. It > feel bad. > I was going to ask, does anybody get bad night sweats, and if so is > there anything you do for them? There are some days I go without them > and then there are some days I get them so bad I don't know what to do > with myself. Does anyone else go through this? > > Hugs 23 > Corpus Christi > Quote
Guest guest Posted June 5, 2006 Report Posted June 5, 2006 *Hi ,* *I am sorry that you are not doing well at this time. I'm in the same boat with you.* *I have been having nonstop night sweats for close to 2 weeks now. It's another unwanted gift from the Dragon, I'm sure.* *I hope you have a low pain day and be able to find a bright moment in your day.* ** *, Oregon* > > I am just having another bad day. The fatigue is bad and I am > having off and on fever, it is low grade but I can still feel it. It > feel bad. > I was going to ask, does anybody get bad night sweats, and if so is > there anything you do for them? > Does anyone else go through this? > > Hugs 23 > Corpus Christi > > > > > > > -- > SPEEDY :-) > Meds: > MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg > Supporters: > MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit > B-12; > Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential > Minerals, AND cALCIUM 1500 mg > > " Love endures all things. " > Quote
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