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RE: Ann/MS

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Posted

Ann,

Welcome to the group, we will be here no matter which illness is bringing

you down the most. Take care and I wish you as many answers as can be given

to you.

Can I ask about your MS. We are currently concerned I might me adding it to

the mix?

In His Strength,

Faith Fights

1 4:1-2

>

>Reply-To: Stillsdisease

>To: Stillsdisease

>Subject: Intoducing myself

>Date: Sat, 13 May 2006 21:43:57 -0700 (PDT)

>

>Hi group,

>

>I aplogize for the below post. Not a good way to join a group :-( Was an

>accident.

>

>My name is Ann and live in Missouri. Was DX with MS in 84, then Stills

>back

>in 84-85. Can't remember now. Then MVP, then Fibro, Lupus, Reynauds..

>Since

>the net began, have been on several forums. Searching for answers. Had

>forgotten all about the DX of Stills. Drs here, don't have a clue to what

>it

>is. Blame the arthritic pain to the Fibro or MS. Always have had a high sed

>rate-since was a lab tech since age 15. Recently had a CBC done and HGB was

>16.0. Rather high. Was either an error in the lab, or I have a high Hgb.

>If

>so, has anyone else had this? Also eyesight has gotten bad. Can Stills

>cause

>this. Or is it some optic neurological inflammation? Am about deaf anyway.

>Am

>glad I decided to try and find old medical records. Just wish I had

>remembered/looked for medical records and came here to begin with.

>Happy Mothers Day!

>

>To more painfree, and less bad days!

>

>Regards,

>Ann

>

>--- " a.g.-ann " wrote:

>

> > Randi,

> > Just to clarify, I seldom ran high fevers. In DX of Stills it says the

>high

> > fevers don't always exist. It is common for people who have an

>inflammatory

> > or autoimmune disease to develop another autoimmune disease.

> > Drs sometime refer to this as overlapping with another autoimmune

>disease.

> > This means that they have symptoms of other diseases that do not fit

> > directly

> > within their main diagnosis. Sometimes they will develop a second

>disease,

> > such as fibromyalgia. When this happens, most doctors refer the

> > fibromyalgia

> > symptoms as being " secondary " to their main disease (Still's.. RA,

>Lupus,

> > APLS).

> >

> > One can't rule out one malady when others coexist. Forgot now where I

>read

> > about a person being ill for over ten years and Lyme always negative.

>Then

> > suddenly is positive. Did they have something else? Then exposed to

>lyme?

> > Then after all those years also a positive ANA. WHY? Oh well, like Drs

>have

> > always done me, blame it on MS, or fibro. I know all of us who are ill

>have

> > something! If not one main malady, perhaps a combination. Tis is why I

> > always

> > have said MS=multiple symtoms, and I have a combo platter.

> > Thought the information of Stills would be helpful. BTW: I was DX with

> > Stills

> > after MS. So in my case MS was the last resort.

> >

> > Best Regards,

> > Ann

> >

> > --- randi schulman wrote:

> > > I think you have to test positive for some of the autoimmune tests,

> > > like ANA that you dont test positive for with stills. For instance I

> > > dont have high spiking fevers or anything like that, but i dont have

> > > the confirmative ANA, so its stills. stills is always the diagnosis of

> > > last resort.

>

>

>__________________________________________________

>

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