Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Hi , Just wanted to add my welcome to the rest. Our son is 19 and doing quite well now. It can be a long road finding the right professionals, but when you do and your child starts doing the ERP actively, things start to shift. Once they have this tool they have the power to stop being under the control of the OCD. I see that others have already made clear that you need a psychologist who will do ERP based CBT. Other things may be helpful in general, but this is what is needed to truly treat OCD. I couldn't track all the posts you've received to see if books were mentioned. My favorites are by Tamar Chansky and Aureen Pinto Wagner (for parents), " What to do when your brain gets stuck " is for kids and has a workbook. Educating yourself so you understand how OCD works is your best defense. This group is great for that too! Here are some websites for information: www.ocdonline.com A treasure trove of information by Dr. on, Phd. Video conferencing, telephone consultations, a video, many articles on coping strategies, question and answers, explanation of CBT for OCD. Obsessive Compulsive Information Center http://www.miminc.org/aboutocic.asp Madison Institute of Medicine www.westsuffolkpsych.homestead or http://www.wsps.info A great resource for articles written by Dr.Penzel who specialize in OCD. www.ocdchicago.org (very comprehensive site and easy to navigate) www.anxietyBC.org www.ocduk.org Good explanations and practical suggestions. www.ocd.about.com/ Great articles written monthly by a psychologist. http://understanding_ocd.tripod.com/ocd_support.html How to support a loved one who has OCD - Do's and Don'ts Warmly, Barb Canada > > My name is and I am desperate to get some support because my 9 year old daughter is beginning to show more and more signs of OCD. she had mild symptoms that would go away for the past few years after school starts but this year it escalated and we began looking for therapy. We have been going to " play therapy " for a few months but I don't think it is helping much. When something gets better it is because my daughter decided to do something different and it doesn't always last. We are very stressed trying to figure out what the " rules " are each day and they are not consistent. The therapist says she will get over it when she chooses but all I see is the behaviors becomming permanent. Mostly she washes her hands a lot, can't go to bed without showering or come back out except to use the restroom after showering. She can't touch her toys without showering and she keeps many belongings separate like her school lunch from her backpack. Also different foods make her feel she is greasy so she cannot do homework after eating. She has ecema so all the washing is hurting her skin. If we try to change anything or put her in her room when she is acting out she becomes out of control like a wild animal and will literally claw her way out past us. Or she will have melt downs like a toddler. We never know how to handle any of this and are just told by the therapist to " be the parent " and that she should follow our rules but I cannot stand to see her hurting so I give in a lot. I also have anxiety/panic attacks and so this is very hard for me and it adding to my constant worrying. > I would really love to find a face to face support group in Orange County for parents of kids with OCD if there is one? I have felt very alone dealing with this and I am overwelmed and cannot afford for myself to get therapy but we sacrafice for my daughter to go. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Barb, Thanks for the welcome. I haven't been on here in a few days because I am just overwelmed with it all right now and I have my own health issues to deal with right now too. I will be calling some therapists this week to see who takes Tricare around here in Orange County, CA. I also need to put in a third call to my daughter's Dr re the allergy testing referral that I have been waiting for since last week. We are also very strapped for money so I will get some books as soon as I can in the next few weeks. Good news is one that I think you are referring to and that has been recommended on this thread the library has me on a waiting list for is " What to do when your child has Obsessive Compulsive Disorder:Strategies and Solutions " but who knows how long that will take to get. I am very interested in " What to do when your brain gets stuck " but like I said we won't have any money for a few weeks. I took my daughter off Zyrtec for three nights to see if it heled her behavior or at lease her hostility and I am not sure if it did but I had to put her back on a very small dose last night becuase her sneezing and allergies started acting up a lot. What I noticed was her excema was not worse without it. She has shifted one compulsion a little..she would only brush her teeth before or during her shower and I would have to brush for her in the morning but now she see the toothbrush as clean and brushed herself in the morning but not the evening when she sees herself as dirty from the day. ________________________________ To: Sent: Sun, February 6, 2011 12:47:56 PM Subject: Re: New to the Group/ Links to helpful websites  Hi , Just wanted to add my welcome to the rest. Our son is 19 and doing quite well now. It can be a long road finding the right professionals, but when you do and your child starts doing the ERP actively, things start to shift. Once they have this tool they have the power to stop being under the control of the OCD. I see that others have already made clear that you need a psychologist who will do ERP based CBT. Other things may be helpful in general, but this is what is needed to truly treat OCD. I couldn't track all the posts you've received to see if books were mentioned. My favorites are by Tamar Chansky and Aureen Pinto Wagner (for parents), " What to do when your brain gets stuck " is for kids and has a workbook. Educating yourself so you understand how OCD works is your best defense. This group is great for that too! Here are some websites for information: www.ocdonline.com A treasure trove of information by Dr. on, Phd. Video conferencing, telephone consultations, a video, many articles on coping strategies, question and answers, explanation of CBT for OCD. Obsessive Compulsive Information Center http://www.miminc.org/aboutocic.asp Madison Institute of Medicine www.westsuffolkpsych.homestead or http://www.wsps.info A great resource for articles written by Dr.Penzel who specialize in OCD. www.ocdchicago.org (very comprehensive site and easy to navigate) www.anxietyBC.org www.ocduk.org Good explanations and practical suggestions. www.ocd.about.com/ Great articles written monthly by a psychologist. http://understanding_ocd.tripod.com/ocd_support.html How to support a loved one who has OCD - Do's and Don'ts Warmly, Barb Canada > > My name is and I am desperate to get some support because my 9 year >old daughter is beginning to show more and more signs of OCD. she had mild >symptoms that would go away for the past few years after school starts but this >year it escalated and we began looking for therapy. We have been going to " play >therapy " for a few months but I don't think it is helping much. When something >gets better it is because my daughter decided to do something different >and it doesn't always last. We are very stressed trying to figure out what the > " rules " are each day and they are not consistent. The therapist says she will >get over it when she chooses but all I see is the behaviors becomming permanent. >Mostly she washes her hands a lot, can't go to bed without showering or come >back out except to use the restroom after showering. She can't touch her toys >without showering and she keeps many belongings separate like her school lunch >from her backpack. Also different foods make her feel she is greasy so she >cannot do homework after eating. She has ecema so all the washing is hurting her >skin. If we try to change anything or put her in her room when she is acting out >she becomes out of control like a wild animal and will literally claw her way >out past us. Or she will have melt downs like a toddler. We never know how to >handle any of this and are just told by the therapist to " be the parent " and >that she should follow our rules but I cannot stand to see her hurting so I give >in a lot. I also have anxiety/panic attacks and so this is very hard for me and >it adding to my constant worrying. > I would really love to find a face to face support group in Orange County for >parents of kids with OCD if there is one? I have felt very alone dealing with >this and I am overwelmed and cannot afford for myself to get therapy but we >sacrafice for my daughter to go. > Quote Link to comment Share on other sites More sharing options...
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