Re: Substitute for Melatonin??? PAM

[Guest guest]

My daughter never had sleep issues until she went on Zoloft, a couple of weeks

into it she started having problems. She goes to sleep quickly at night, she

will even just go get in bed and fall asleep when she is tired now but before

she could stay up late if we were out but not anymore. She appears to be

sleeping when I look at her but she moves alot now. She said she wakes up

throughout the night and now she cant sleep past 5 or 6 am and she says that she

feels like she hasnt slept in days.

 

Her autoimmune issues are hypothyroidism which is completely under control and

has been for many years (just saw the endocrinologist) and she has alopecia

areata. She also has Common Variable Immune Deficiency which has been under

control since she was a baby. This all started when she went on Zoloft.

 

I have discussed this with the psychiatrist, the answer I got was " maybe she is

getting her period " ....well the endocrinologist had just told me that she is

behind in that aspect and it would be more like 2 years before that happens.

Whenever I bring up a concern about the Zoloft I am completley shot down.....I

am not happy about this. On the other hand I want to give the medicine time to

work. We do not know what her dose of Zoloft is because she is in a medicine

study but I know it is less than 100mg.

 

It seems to me that she needs something to keep her asleep and to help her brain

rest at night. I am ready to call it quits on this medicine, there is only 6

weeks left of the study and all treatment is free until then so I wanted to

really give it a try. And as usual as soon as I want to call it quits she will

have a couple of good days where she isnt tired then I change my mind.

 

Before the zoloft she was completely healthy and a very happy kid that slept at

night and woke up with a smile at 7am on the dot.

 

I am not having a good day today...I just want my happy daughter back!

 

...mom to Sara " just right OCD "

 

 

 

 

 

>

>

> I read that Melatonin shouldnt be used by people with autoimmune diseases, my

daughter has two, then what is an alternative???

>

> I am not happy that the Dr told us to use it knowing her health history. She

sleeps but doesnt get any rest and she really needs something.

>

> Any ideas?

>

> ...mom to Sara.. " " just right OCD "

>

[Guest guest]

it certainly sounds like it is the zoloft from what you describe, if

nothing else has changed. In this case a change to another ssri would make

sense, but since you are in the study this is not an option unless you opt out.

I'm sorry I forget how long you've been in the study, how long she's been on the

zoloft? Is the research being done specific to zoloft or at some point can this

be changed? Do they allow the addition of any other medication, something to

help with sleep. Surely there must be some latitude to deal with this kind of

thing.

When there is research being done they are invested in keeping you in the study,

it sounds like this might be why you are " shot down " when you raise this

concern. I have had family members in similar situations, and it is a problem

with being part of a study.

Is the zoloft helping with the OCD at least???

Barb

> >

> >

> > I read that Melatonin shouldnt be used by people with autoimmune diseases,

my daughter has two, then what is an alternative???

> >

> > I am not happy that the Dr told us to use it knowing her health history. She

sleeps but doesnt get any rest and she really needs something.

> >

> > Any ideas?

> >

> > ...mom to Sara.. " " just right OCD "

> >

>

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[Guest guest]

. When I tried Zoloft, I had horrible insomnia. It lasted for months after

I stopped the stuff.

>

> My daughter never had sleep issues until she went on Zoloft, a couple of weeks

into it she started having problems. She goes to sleep quickly at night, she

will even just go get in bed and fall asleep when she is tired now but before

she could stay up late if we were out but not anymore. She appears to be

sleeping when I look at her but she moves alot now. She said she wakes up

throughout the night and now she cant sleep past 5 or 6 am and she says that she

feels like she hasnt slept in days.

>

> Her autoimmune issues are hypothyroidism which is completely under control and

has been for many years (just saw the endocrinologist) and she has alopecia

areata. She also has Common Variable Immune Deficiency which has been under

control since she was a baby. This all started when she went on Zoloft.

>

> I have discussed this with the psychiatrist, the answer I got was " maybe she

is getting her period " ....well the endocrinologist had just told me that she is

behind in that aspect and it would be more like 2 years before that happens.

Whenever I bring up a concern about the Zoloft I am completley shot down.....I

am not happy about this. On the other hand I want to give the medicine time to

work. We do not know what her dose of Zoloft is because she is in a medicine

study but I know it is less than 100mg.

>

> It seems to me that she needs something to keep her asleep and to help her

brain rest at night. I am ready to call it quits on this medicine, there is only

6 weeks left of the study and all treatment is free until then so I wanted to

really give it a try. And as usual as soon as I want to call it quits she will

have a couple of good days where she isnt tired then I change my mind.

>

> Before the zoloft she was completely healthy and a very happy kid that slept

at night and woke up with a smile at 7am on the dot.

>

> I am not having a good day today...I just want my happy daughter back!

>

> ...mom to Sara " just right OCD "

>

>

>

>

>

>

>

> >

> >

> > I read that Melatonin shouldnt be used by people with autoimmune diseases,

my daughter has two, then what is an alternative???

> >

> > I am not happy that the Dr told us to use it knowing her health history. She

sleeps but doesnt get any rest and she really needs something.

> >

> > Any ideas?

> >

> > ...mom to Sara.. " " just right OCD "

> >

>

>

[Guest guest]

If she was sleeping well and happy prior to the trial I

would slowly reduce the medication and get her off of it.

I do not like the idea that she got a dose of zoloft that

was not gradually increased. That concerns me. Problems

surface with big increases.

My daughter was getting up at night when she started

zoloft to go to the bathroom. She had never

done this prior. But her anxiety was so high

it was a reasonable trade off and she woke

up rested too. After about 7 months this stopped.

But I would have been concerned if her mood was

not improved on the zoloft.

We give her the zoloft in the morning. Some people

say zoloft makes them tired and they take it at night.

If there is any history of mood disorders in the family

I would be concerned too. Is it possible she is more

depressed since this trial began?

Pam

> >

> >

> > I read that Melatonin shouldnt be used by people with autoimmune diseases,

my daughter has two, then what is an alternative???

> >

> > I am not happy that the Dr told us to use it knowing her health history. She

sleeps but doesnt get any rest and she really needs something.

> >

> > Any ideas?

> >

> > ...mom to Sara.. " " just right OCD "

> >

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