Re: FLUID,SOB, DIZZINESS

[Guest guest]

*Hi ,*

*First off, I'm so sorry that you are going through this. And I'm sorry I

don't have a lot of advice for this. However, I see that you are taking

MIRAPEX. Did you know this is a drug for Parkinson's disease and it can make

you VERY dizzy? A Dr. I was seeing had me on this. It bothered me so bad I

stopped taking it. I was SO dizzy and I couldn't sleep--no matter what I

did. This may be some of the cause for your dizziness. Please see a Dr. and

if that refuses to investigate then see another until you find someone to

" listen " and investigate. *

*I hope you find some relief very soon.*

**

* in Oregon *

>

> HELLO EVERYONE! I HAVE BEEN THROUGH ALOT OF CHANGES LATELY AND WAS

> WONDERING IF ANYONE HAS EXPERIENCED THIS BEFORE. I AM 30YRS. OLD; DIAGNOSED

> 3 1/2 YRS AGO. I HAVE TRIED ALL MEDS AND FAILED, CURRENTLY ON

> KINERET,MIRAPEX(FOR MUSCLE PAIN),LEXAPRO,CELLCEPT,LOTENSIN,TOPROL,LASIX,

> POTASSIUM,PHENERGAN,VICODEN,ALEVE. I'VE BEEN OFF OF PREDNISONE FOR FEW

> WEEKS.I JUST STARTED THE ORENCIA (ABATACEPT) YESTERDAY AND OTHER THAN

> BEING IN FULL FLARE I'VE HAD A BIG PROBLEM WITH SWELLING IN MY ABDOMEN,

> SHORTNESS OF BREATH, AND DIZZINESS.

>

PLEASE LET ME KNOW IF ANYONE HAS ANY IDEAS. THANK YOU, MONIQUE

>

>

> ---------------------------------

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[Guest guest]

,

I am going throw a mean flare right now too. I have always been a small

person. I gained a lot of weight with the prednisone. High doses. I have not

been on prednisone for three years now. But I continue to have trouble with

edema and soft tissue swelling. It very quickly can add 30 lbs in a few days. It

affects my breathing too. When I first quit taking prednisone, it had caused my

abdomen to swell very much like being pregnant, and there were purple striations

running up my abdomen. I thought is was going to be permanent. I was also on

Lasix 40mg. daily and K-Dur 20mg. daily. I visited my pulmonologist/critical

care specialist. He put me on an additional diuretic called zaroxolyn. I

immediately began getting rid of all the edema and soft-tissue swelling. Within

2 months I had lost about 48lbs of fluid that had built up. That was 3 years

ago. I still have problems with the edema and s.t. swelling and daily take Lasix

and Zaroxolyn with K-Dur to replace the potassium. The doctor

has upped my dose of potassium to 40 mg daily to help. Maybe you can ask you

doctor if you need an additional diuretic. The zaroxolyn works differently than

the Lasix. It is more for the kidneys and lasix is for the heart from what I

understand from my doctors. I also no longer have the enlarged swelling in my

abdomen and no longer have the purple striations that were on it. I wish you

well with this. We are taking some of the same meds. Mandy

MONIQUE THIBODEAUX wrote:

HELLO EVERYONE! I HAVE BEEN THROUGH ALOT OF CHANGES LATELY AND WAS WONDERING

IF ANYONE HAS EXPERIENCED THIS BEFORE. I AM 30YRS. OLD; DIAGNOSED 3 1/2 YRS AGO.

I HAVE TRIED ALL MEDS AND FAILED, CURRENTLY ON KINERET,MIRAPEX(FOR MUSCLE

PAIN),LEXAPRO,CELLCEPT,LOTENSIN,TOPROL,LASIX, POTASSIUM,PHENERGAN,VICODEN,ALEVE.

I'VE BEEN OFF OF PREDNISONE FOR FEW WEEKS.I JUST STARTED THE ORENCIA (ABATACEPT)

YESTERDAY AND OTHER THAN BEING IN FULL FLARE I'VE HAD A BIG PROBLEM WITH

SWELLING IN MY ABDOMEN, SHORTNESS OF BREATH, AND DIZZINESS. THE DOCTORS ARE A

BIT CONFUSED.MY BLOOD PRESSURE AND HEARTRATE REMAIN PERFECT. I CONTINUE TO GAIN

ABOUT A POUND A DAY DESPITE BEING ON LASIX 80MG.I FEEL AND LOOK LIKE I'M NINE

MONTHS PREGNANT AND VERY MISERABLE. I KNOW PRED MAKES YOU SWELL AND GAIN WEIGHT

BUT THIS IS COMPLETELY DIFFERENT THAN ANY OTHER TIME I'VE TAKEN PRED (AND I'VE

BEEN ON HIGH DOSES OVER THE YEARS) I DID AND ECHO OF MY HEART MONDAY & IT'S

PERFECT.THANK GOD SOMETHING WORKS! I AM GETTING A CT OF MY

ABDOMEN AND CHEST TOMORROW TO SEE IF WE CAN FIGURE OUT SOMETHING. I WAS JUST

WONDERING IF THIS HAS HAPPENED TO ANYONE EVEN AFTER BEING OFF OF PRED THAT LONG.

I NORMALLY WEIGH 120LBS AND I NOW WEIGH 147LBS IN JUST OVER A FEW WEEKS. CRAZY!

PLEASE LET ME KNOW IF ANYONE HAS ANY IDEAS. THANK YOU, MONIQUE

---------------------------------

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[Guest guest]

> HELLO EVERYONE! I HAVE BEEN THROUGH ALOT OF CHANGES LATELY AND WAS

> WONDERING IF ANYONE HAS EXPERIENCED THIS BEFORE. I AM 30YRS. OLD;

> DIAGNOSED 3 1/2 YRS AGO. I HAVE TRIED ALL MEDS AND FAILED,

> CURRENTLY ON KINERET,MIRAPEX(FOR MUSCLE

> PAIN),LEXAPRO,CELLCEPT,LOTENSIN,TOPROL,LASIX,

> POTASSIUM,PHENERGAN,VICODEN,ALEVE. I'VE BEEN OFF OF PREDNISONE FOR

> FEW WEEKS.I JUST STARTED THE ORENCIA (ABATACEPT) YESTERDAY AND

> OTHER THAN BEING IN FULL FLARE I'VE HAD A BIG PROBLEM WITH SWELLING

> IN MY ABDOMEN, SHORTNESS OF BREATH, AND DIZZINESS. THE DOCTORS ARE

> A BIT CONFUSED.MY BLOOD PRESSURE AND HEARTRATE REMAIN PERFECT. I

> CONTINUE TO GAIN ABOUT A POUND A DAY DESPITE BEING ON LASIX 80MG.I

> FEEL AND LOOK LIKE I'M NINE MONTHS PREGNANT AND VERY MISERABLE. I

> KNOW PRED MAKES YOU SWELL AND GAIN WEIGHT BUT THIS IS COMPLETELY

> DIFFERENT THAN ANY OTHER TIME I'VE TAKEN PRED (AND I'VE BEEN ON

> HIGH DOSES OVER THE YEARS) I DID AND ECHO OF MY HEART MONDAY & IT'S

> PERFECT.THANK GOD SOMETHING WORKS! I AM GETTING A CT OF MY

> ABDOMEN AND CHEST TOMORROW TO SEE IF WE CAN FIGURE OUT SOMETHING.

> I WAS JUST WONDERING IF THIS HAS HAPPENED TO ANYONE EVEN AFTER

> BEING OFF OF PRED THAT LONG. I NORMALLY WEIGH 120LBS AND I NOW

> WEIGH 147LBS IN JUST OVER A FEW WEEKS. CRAZY! PLEASE LET ME KNOW IF

> ANYONE HAS ANY IDEAS. THANK YOU, MONIQUE

>

>

> ---------------------------------

> Yahoo! Mail

> Use Photomail to share photos without annoying attachments.

>

>

[Guest guest]

---hello,there this is very onusual,i was dx 5years ago,and i was on

pred for 4years.i bean up and down regarding my weith,average 10

pouns,after i stop my pred.but everybody is diferent,i hope that

youre body estabalase soon,it could be the coktale of medications,or

who nose what.hang in there youre not alone,iwill keep you in my

preyours.since 2000 i hat 5 totaol hip replacements 1 massive heart

attack,diabetis,high blood presure,etc,well,i hope that my litle

chat cherrs you up,god bless you,by benito robles In

Stillsdisease , Sam Rocci wrote:

>

>

>

>

> > HELLO EVERYONE! I HAVE BEEN THROUGH ALOT OF CHANGES LATELY AND

WAS

> > WONDERING IF ANYONE HAS EXPERIENCED THIS BEFORE. I AM 30YRS.

OLD;

> > DIAGNOSED 3 1/2 YRS AGO. I HAVE TRIED ALL MEDS AND FAILED,

> > CURRENTLY ON KINERET,MIRAPEX(FOR MUSCLE

> > PAIN),LEXAPRO,CELLCEPT,LOTENSIN,TOPROL,LASIX,

> > POTASSIUM,PHENERGAN,VICODEN,ALEVE. I'VE BEEN OFF OF PREDNISONE

FOR

> > FEW WEEKS.I JUST STARTED THE ORENCIA (ABATACEPT) YESTERDAY AND

> > OTHER THAN BEING IN FULL FLARE I'VE HAD A BIG PROBLEM WITH

SWELLING

> > IN MY ABDOMEN, SHORTNESS OF BREATH, AND DIZZINESS. THE DOCTORS

ARE

> > A BIT CONFUSED.MY BLOOD PRESSURE AND HEARTRATE REMAIN PERFECT.

I

> > CONTINUE TO GAIN ABOUT A POUND A DAY DESPITE BEING ON LASIX

80MG.I

> > FEEL AND LOOK LIKE I'M NINE MONTHS PREGNANT AND VERY MISERABLE.

I

> > KNOW PRED MAKES YOU SWELL AND GAIN WEIGHT BUT THIS IS

COMPLETELY

> > DIFFERENT THAN ANY OTHER TIME I'VE TAKEN PRED (AND I'VE BEEN ON

> > HIGH DOSES OVER THE YEARS) I DID AND ECHO OF MY HEART MONDAY &

IT'S

> > PERFECT.THANK GOD SOMETHING WORKS! I AM GETTING A CT OF MY

> > ABDOMEN AND CHEST TOMORROW TO SEE IF WE CAN FIGURE OUT

SOMETHING.

> > I WAS JUST WONDERING IF THIS HAS HAPPENED TO ANYONE EVEN AFTER

> > BEING OFF OF PRED THAT LONG. I NORMALLY WEIGH 120LBS AND I NOW

> > WEIGH 147LBS IN JUST OVER A FEW WEEKS. CRAZY! PLEASE LET ME KNOW

IF

> > ANYONE HAS ANY IDEAS. THANK YOU, MONIQUE

> >

> >

> > ---------------------------------

> > Yahoo! Mail

> > Use Photomail to share photos without annoying attachments.

> >

> >