Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 in the same ball park as I am? I can actually have such a blast of energy to do a karate class(1-11/2 hrs. of INTENSE physical training);and then be a limp dishcloth in agony, another day? So tired that my eyes close while reading? One thing I must admit;I am NOT superman in my class by any means. When my hands(My worst tissue damage so far)are swollen and red and blue;I do have to back off certain exercises a bit. I believe one reason that I am able to DO these Martial Arts classes Is because of the power of the mind...I LOVE doing them. My mind is stronger than ever now,and I WILL NOT GIVE IT UP. Any feedback will be VERY appreciated!! Sincerely;Bram. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 You might not want to hear this... and I DO believe in the power of the mind, also, but... I used to do Tae-Bo (I know it's not the same, but a lot of kicking and punching involved). Physcially, it was the best I've ever felt and I so enjoyed it. But it got to where it was too hard on my knees, shoulder and hips. I had to quit. One doctor told me at first it was great that I was doing it, another said it wasn't a good idea in someone w/any type of RA. Anyway, over the last few years, whenever I attempt to do anything physical for an hour or two, I pay for it big time for days, even up to a week. I hate that part, I'm too young to feel that old, but there it is. But I've learned that the pain and fatigue just aren't worth it since I have children to tend to. I joke around that I'm only 37 but feel 87, but in reality, that's really how I feel. I'm sure your situation's not the same... but that's my feedback... Take care of you, Gail Bramwell wrote: in the same ball park as I am? I can actually have such a blast of energy to do a karate class(1-11/2 hrs. of INTENSE physical training);and then be a limp dishcloth in agony, another day? So tired that my eyes close while reading? One thing I must admit;I am NOT superman in my class by any means. When my hands(My worst tissue damage so far)are swollen and red and blue;I do have to back off certain exercises a bit. I believe one reason that I am able to DO these Martial Arts classes Is because of the power of the mind...I LOVE doing them. My mind is stronger than ever now,and I WILL NOT GIVE IT UP. Any feedback will be VERY appreciated!! Sincerely;Bram. Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Hi, Gail, I have to agree. I am 34 and feel like I am 84. Since I have a very active three year old, I have to utilize my resources carefully and try to do stuff with her. I have wanted to go to the gym since dec but being in a middle of a never ending flare, I just can't. My mother keeps bugging me about how good it would be for me mentally. No kidding! She just doesn't understand the tiredness associated with the disease/flare. I don't know about the karate, each of us handle things differently. tatjana in germany --- Gail wrote: > You might not want to hear this... and I DO believe > in the power of the mind, also, but... I used to do > Tae-Bo (I know it's not the same, but a lot of > kicking and punching involved). Physcially, it was > the best I've ever felt and I so enjoyed it. But it > got to where it was too hard on my knees, shoulder > and hips. I had to quit. One doctor told me at > first it was great that I was doing it, another said > it wasn't a good idea in someone w/any type of RA. > > Anyway, over the last few years, whenever I > attempt to do anything physical for an hour or two, > I pay for it big time for days, even up to a week. > I hate that part, I'm too young to feel that old, > but there it is. But I've learned that the pain and > fatigue just aren't worth it since I have children > to tend to. I joke around that I'm only 37 but feel > 87, but in reality, that's really how I feel. > > I'm sure your situation's not the same... but > that's my feedback... > > Take care of you, > Gail > > Bramwell wrote: > in the same ball park as I am? I can actually have > such a blast of > energy to do a karate class(1-11/2 hrs. of INTENSE > physical > training);and then be a limp dishcloth in agony, > another day? So tired > that my eyes close while reading? > One thing I must admit;I am NOT superman in my class > by any means. When > my hands(My worst tissue damage so far)are swollen > and red and blue;I > do have to back off certain exercises a bit. > I believe one reason that I am able to DO these > Martial Arts classes Is > because of the power of the mind...I LOVE doing > them. My mind is > stronger than ever now,and I WILL NOT GIVE IT UP. > Any feedback will be VERY appreciated!! > Sincerely;Bram. > > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this > message are not intended to replace the services of > a trained health professional or to be a substitute > for medical advice of physicians and/or other health > care professionals. The International Still's > Disease Foundation is not engaged in rendering > medical or professional medical services. You should > consult your physician on specific medical > questions, particularly in matters requiring > diagnosis or medical attention. The International > Still's Disease Foundation makes no representations > or warranties with respect to any treatment, action, > application, medication or preparation by any person > following the information offered or provided within > this support form. > > ion by any person following the information offered > or provided within this support form. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Bram, I totally know where you are coming from. One day I will walk for 30 minutes and feel great, no after effects, a week later, 3 laps or 10 minutes is enough to send me to bed for days. I have asked my doctor numerous times and he just shakes his head. No one has been able to explain it. Right now I have been riding my exercise bike for 10-15 minutes a day. I started with 5 like they said I should and built up. No matter, on the days I do this, I fall asleep sitting up in my chair not for 10 or 15 minutes, but 4 or 6 hrs!! Then sleep an additional 10-11 at night. And yes, I feel like crap too. I totally don't understand it, and as yet cannot predict which outcome I will have. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 My sister used to scream at me like I was mental...What is wrong with you ????? Nice The other day she said everybody is tired at night,,, I said ni,,I am sick,,,I cannot stand up...she changed the subject. Both my parents are gone I am left with her and thank God a sweet brother. She screamed the other day too cause I did not ask her what she wanted to do on my 50th birthday ????? What a joy some people are Hugs Liz NJ Quote Link to comment Share on other sites More sharing options...
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