Re: Update (a little sensitive)

[Guest guest]

I know Kirk.it really does @#$#@#$#@#$#@ .Liz NJ

[Guest guest]

HI Kirk,

I am really sorry to hear you are still not doing well. I kind of feel like I

have a connection to you, since we both came into the group at about the same

time. And you were the first person with " Stills " that I really corresponded

with. I wish there was something I could do to ease some of your pain. This

disease is so strange and so different to all of us. I am praying that you get

some answers when you go to Hopkins tomorrow. Try to be strong for

yourself and for and the kids.

Good Luck,

Carey

[Guest guest]

Kirk,

I hate that you're going through this! Please know that you're in my thoughts

and prayers. 6 yrs ago, I was hospitalized for a couple of days here, then sent

to Louisville (b/c nobody here knew what to do with me). At the one in

Louisville, they tried their best, wanted to keep me but didn't know what to do,

so I told them, See ya, I'm outta here. They wanted to send me by ambulance

back to the ER here in my hometown, I told them no way, my husband will drive

me, thank you very much. Then, I was re-admitted back here for a week with no

more help than I started with.

It's bad enough to be this sick, but to be shuffled and have people scratch

their heads is just too much. Your anger is well justified, in my opinion. All

you want to do is feel better and it doesn't seem as if anybody has a clue.

I'm thinking of you, Kirk!

Gail

Kirk Bonanny wrote:

Hey everyone. I have just got back home from the resort about an hour ago so

I can go to my appointment down at s Hopkins tomorrow. I am almost laughing

at this shit already...released from one hospital to go to an appointment at

another......Man I wish someone would start a fight with me right now....I am in

that kind of ****** mood!

I got whacked again last week with more of the same on the headache front

still have the ******* thing!!!) I truly wish I would drop dead already!!! I

also have had shit loads of body & muscle pain. I have also felt nauseas the

whole time. That is about the only ******* positive in my life right now as I

need to lose some weight.

My Dr. is hoping they will admit me @ Hopkins, but if not I will probably be

back up here in the resort tomorrow night.

Hope everyone else is doing better than me, Kirk.

[Guest guest]

Hey man,

Sorry your not feeling well and try to have a relaxing night. I seem to be

getting sicker by the day myself and I too feel the anger when I ask myself what

in the f##k did I do to deserve this.

Get to feeling better, Brett

Update (a little sensitive)

Hey everyone. I have just got back home from the resort about an hour ago so

I can go to my appointment down at s Hopkins tomorrow. I am almost laughing

at this shit already...released from one hospital to go to an appointment at

another......Man I wish someone would start a fight with me right now....I am in

that kind of ****** mood!

I got whacked again last week with more of the same on the headache front

still have the ******* thing!!!) I truly wish I would drop dead already!!! I

also have had shit loads of body & muscle pain. I have also felt nauseas the

whole time. That is about the only ******* positive in my life right now as I

need to lose some weight.

My Dr. is hoping they will admit me @ Hopkins, but if not I will probably

be back up here in the resort tomorrow night.

Hope everyone else is doing better than me, Kirk.

[Guest guest]

Sorry you are going thru all of this. I know why you feel the way you

do. I try really hard to be positive, but after you get bad news from

every other doctor visit, it is really hard to be positive.

I think venting and freaking out are necessary just to feel a little

bit better and to get back up and fight some more. I am sending lots

of hugs and will keep you in my thoughts ..... I am glad to hear from

you

Love Sharon xxoo

> Hey everyone. I have just got back home from the resort about an

> hour ago so I can go to my appointment down at s Hopkins

> tomorrow. I am almost laughing at this shit already...released from

> one hospital to go to an appointment at another......Man I wish

> someone would start a fight with me right now....I am in that kind

> of ****** mood!

> I got whacked again last week with more of the same on the

> headache front still have the ******* thing!!!) I truly wish I

> would drop dead already!!! I also have had shit loads of body &

> muscle pain. I have also felt nauseas the whole time. That is about

> the only ******* positive in my life right now as I need to lose

> some weight.

> My Dr. is hoping they will admit me @ Hopkins, but if not I will

> probably be back up here in the resort tomorrow night.

> Hope everyone else is doing better than me, Kirk.

>

>

[Guest guest]

Kirk, you are definitely in my thoughts and prayers as well, I pray you

feel better very very soon!

Beth (Houston, teacher)

[Guest guest]

Good luck at the Hopkins tomorrow, Kirk. Why is that hospital any

different from the one you've been in? Are you seeing a different

specialist?

Love

Caroline no. 2 (UK)

> Hey everyone. I have just got back home from the resort about an

> hour ago so I can go to my appointment down at s Hopkins

> tomorrow. I am almost laughing at this shit already...released from

> one hospital to go to an appointment at another......Man I wish

> someone would start a fight with me right now....I am in that kind

> of ****** mood!

> I got whacked again last week with more of the same on the

> headache front still have the ******* thing!!!) I truly wish I

> would drop dead already!!! I also have had shit loads of body &

> muscle pain. I have also felt nauseas the whole time. That is about

> the only ******* positive in my life right now as I need to lose

> some weight.

> My Dr. is hoping they will admit me @ Hopkins, but if not I will

> probably be back up here in the resort tomorrow night.

> Hope everyone else is doing better than me, Kirk.

>

>

[Guest guest]

I went on the insistence of my Dr's & my family, as my Dr's wanted another

opinion as I haven't responded too well to meds and my family is convinced I

have something else that will magically vanish if I see the right Dr.

In my opinion, my Dr's are doing as good as they can but my body isn't. I

have told all of my Dr's I would sign away anything and would take anything that

would possibly help, but they are more cautious than I would be. As I told my

one Dr., I would eat a plate full of S*** if they thought it would help.

Being that Enbrel caused all kinds of problems for me and Gold shots were

useless, my Dr's are hesitant to guess.

Thanks for the reply, they all help.

Kirk

[Guest guest]

Hey man,

Sorry your not feeling well and try to have a relaxing night. I seem to be

getting sicker by the day myself and I too feel the anger when I ask myself what

in the f##k did I do to deserve this.

--------------------------------------------------------------------

What the **** did we do to deserve this....I would love to know also, but try

not to look at it that way, even though I always do when I feel like I am dying.

Adios, Kirk.