Re: the sameness

[Guest guest]

sorry you hads such a rough and challenging morning and yes as

had many of them when my childrens were of little and had of tears

too because of the expectations and the law says have to send of them

to school but how do a mom on spectrum get of 4 kids ready for school

that are of also on the spectrum and each having thier own issues. it

was like of a domino effect if one was upset it caused the rest to go

out of sync and by the time I to getted them all off to the school

buses and such I to locked ofmy doors and sat with my blankets and

just sat for a long time to recoup of the drained mental and

emotionals states of me. Sometimes I to worked it off by to clean and

clean and organize but mostly I to just say and rocked or watched of

my TV more for the noise than the actions of people but that was of

then. Now all of then can get of ready by of themselves with minimal

prompts and or cues and all are of in their teen years.

One day will just share of a one day of my life back then of the

kids. many will be of to read and relate to it all and some will be

to laugh and some will just wonder. but like jon and kate say this is

a crazy life but it of our life.

Sondra

[Guest guest]

--- Cassie Zupke wrote:

> Amnesty --

>

> Thanks for your explanation. I've seen a celebrity

> (not McCarthy,

> someone earlier who I don't remember her name now)

> tell everyone that

> her child had recovered from autism. But if you buy

> and read her book

> you'll see that he still needs an aide in the

> classroom. I'm sure that

> all her hard work has helped her child tremendously

> -- but I felt she

> was really misleading people by saying " If you do

> these things your

> child will recover too. " I would probably have

> hailed her as a real

> help if instead she'd said " Try these things -- a

> lot of autistic kids

> benefit from them. "

>

> Thanks also for reminding us (thanks to all of you

> who have recently)

> not to let autism be all we see in our kids -- for

> us to treasure them,

> autism and all. Some days that's harder than

> others!! :-> I've known

> many adults who now would have been diagnosed

> Asperger's or autistic who

> have gone on to have very successful lives. (Ever

> visited the engineers

> & computer programmers & scientists in NASA's space

> program? It's like

> Chucky Cheese's for adult aspies!) We all want to

> make our kids' lives

> easier. Thanks to you all for reiterating that we

> are all working to

> help our kids. I'd imagine folks who want to just

> sit on their behinds

> probably don't stay on this message board long --

> this place is all

> about " what can you do to help your kid " . That's

> one of the things I

> like about it!

>

> -- Cassie

>

> Amnesty wrote:

>

> > First of all, I have known many kids who are now

> indistinguishable in

> > a classroom full of typical peers...that doesn't

> mean they are not

> > autistic, just that you can't tell right away.

> Many of these kids

> > would no longer be diagnosed if they were tested

> today, but no one

> > knows what the future holds, and I don't know

> anyone who considers

> > them to be autism free. All of them had ABA (which

> is how I met them),

> > some had biomedical intervention and some did not.

> I also know many,

> > many more kids who have had every biomedical

> intervention under the

> > sun with little or no improvement.

> > I'm thrilled for your daughter that she is making

> so much progress.

> > That is wonderful news. However, I hope that you

> don't talk to her

> > like you talk about her here. You continually use

> words like " ruined "

> > and " damaged. " Just because she doesn't use the

> words doesn't mean she

> > doesn't understand the feelings behind them.

> > Also, there are many, many people with autism that

> grow up to live

> > independently, go to college, get married, and

> have families. There

> > are some on this board. I have an uncle with

> autism who is a

> > successful music therapist. He went to college and

> lives independently

> > and has since he was 20, just like all his

> siblings. He's not married,

> > but that's because he's gay...he has had long term

> relationships.

> > Being autistic does not prevent those things. It

> is perfectly possible

> > to accomplish all that without " recovery. "

> > I just hope that if your daughter does grow up to

> be a happy,

> > independent, and still autistic, adult, that you

> will be able to

> > accept her and be happy for her. In my experience,

> that is a much more

> > likely scenario than recovery.

> > Amnesty

> >

> >

> > > I suppose like all of you, I have put up with

> the angry,

> > disapproving stares of strangers when my princess

> is in a meltdown

> > because she was brushed up against. You know. Its

> the look of " Why

> > can't you control your child?' I've even been told

> by

=== message truncated ===

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

Amnesty --

Thanks for your explanation. I've seen a celebrity (not McCarthy,

someone earlier who I don't remember her name now) tell everyone that

her child had recovered from autism. But if you buy and read her book

you'll see that he still needs an aide in the classroom. I'm sure that

all her hard work has helped her child tremendously -- but I felt she

was really misleading people by saying " If you do these things your

child will recover too. " I would probably have hailed her as a real

help if instead she'd said " Try these things -- a lot of autistic kids

benefit from them. "

Thanks also for reminding us (thanks to all of you who have recently)

not to let autism be all we see in our kids -- for us to treasure them,

autism and all. Some days that's harder than others!! :-> I've known

many adults who now would have been diagnosed Asperger's or autistic who

have gone on to have very successful lives. (Ever visited the engineers

& computer programmers & scientists in NASA's space program? It's like

Chucky Cheese's for adult aspies!) We all want to make our kids' lives

easier. Thanks to you all for reiterating that we are all working to

help our kids. I'd imagine folks who want to just sit on their behinds

probably don't stay on this message board long -- this place is all

about " what can you do to help your kid " . That's one of the things I

like about it!

-- Cassie

Amnesty wrote:

> First of all, I have known many kids who are now indistinguishable in

> a classroom full of typical peers...that doesn't mean they are not

> autistic, just that you can't tell right away. Many of these kids

> would no longer be diagnosed if they were tested today, but no one

> knows what the future holds, and I don't know anyone who considers

> them to be autism free. All of them had ABA (which is how I met them),

> some had biomedical intervention and some did not. I also know many,

> many more kids who have had every biomedical intervention under the

> sun with little or no improvement.

> I'm thrilled for your daughter that she is making so much progress.

> That is wonderful news. However, I hope that you don't talk to her

> like you talk about her here. You continually use words like " ruined "

> and " damaged. " Just because she doesn't use the words doesn't mean she

> doesn't understand the feelings behind them.

> Also, there are many, many people with autism that grow up to live

> independently, go to college, get married, and have families. There

> are some on this board. I have an uncle with autism who is a

> successful music therapist. He went to college and lives independently

> and has since he was 20, just like all his siblings. He's not married,

> but that's because he's gay...he has had long term relationships.

> Being autistic does not prevent those things. It is perfectly possible

> to accomplish all that without " recovery. "

> I just hope that if your daughter does grow up to be a happy,

> independent, and still autistic, adult, that you will be able to

> accept her and be happy for her. In my experience, that is a much more

> likely scenario than recovery.

> Amnesty

>

>

> > I suppose like all of you, I have put up with the angry,

> disapproving stares of strangers when my princess is in a meltdown

> because she was brushed up against. You know. Its the look of " Why

> can't you control your child?' I've even been told by relatives (mark

> you, I do not call them family) not to come back any more because my

> childs unpredictability is " unfair to the other children. " I've even

> been told that " You are using your child's autism as an excuse for her

> behavior. "

> >

> > I choose not to be angry about this, because my emotions are my choice.

> >

> > I've wathed other parents drop their kids off at birthday parties,

> supervised by adults, when I know that my child needs my constant

> attention to prevent mayham.

> >

> > I've seen her entire class invited to birthday parties, and not my

> child, knowing that the parents just can't handle her behavior.

> >

> > So What!

> >

> > I spend my free time looking at clouds with Evalyn, with her seeing

> shapes that I can not imagine. I watch her while she gives unknown

> status to her dolls as we play family. Sometimes, I just cuddle her,

> when she permits, because like every parent should know, its not about

> me any more. Its about her.

> >

> > Some times, she talks, and sometimes she does not. Sometimes she

> growls and pushes me away, and that is okay, because when I chose to

> have a child, I chose to make her life about her, and not about me.

> >

> > I spent the first two years of her diagnosis studying every article

> I could. From pharmacology to nueroscience. Then it occured to me, she

> needs a daddy, not another doctor.

> >

> > Tomorrow I don't know what will happen. Maybe good and maybe bad,

> but I don't really care, because I will spend it with the greatest

> gift I have ever been given.

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

> >

[Guest guest]

Amnesty --

Thanks for your explanation. I've seen a celebrity (not McCarthy,

someone earlier who I don't remember her name now) tell everyone that

her child had recovered from autism. But if you buy and read her book

you'll see that he still needs an aide in the classroom. I'm sure that

all her hard work has helped her child tremendously -- but I felt she

was really misleading people by saying " If you do these things your

child will recover too. " I would probably have hailed her as a real

help if instead she'd said " Try these things -- a lot of autistic kids

benefit from them. "

Thanks also for reminding us (thanks to all of you who have recently)

not to let autism be all we see in our kids -- for us to treasure them,

autism and all. Some days that's harder than others!! :-> I've known

many adults who now would have been diagnosed Asperger's or autistic who

have gone on to have very successful lives. (Ever visited the engineers

& computer programmers & scientists in NASA's space program? It's like

Chucky Cheese's for adult aspies!) We all want to make our kids' lives

easier. Thanks to you all for reiterating that we are all working to

help our kids. I'd imagine folks who want to just sit on their behinds

probably don't stay on this message board long -- this place is all

about " what can you do to help your kid " . That's one of the things I

like about it!

-- Cassie

Amnesty wrote:

> First of all, I have known many kids who are now indistinguishable in

> a classroom full of typical peers...that doesn't mean they are not

> autistic, just that you can't tell right away. Many of these kids

> would no longer be diagnosed if they were tested today, but no one

> knows what the future holds, and I don't know anyone who considers

> them to be autism free. All of them had ABA (which is how I met them),

> some had biomedical intervention and some did not. I also know many,

> many more kids who have had every biomedical intervention under the

> sun with little or no improvement.

> I'm thrilled for your daughter that she is making so much progress.

> That is wonderful news. However, I hope that you don't talk to her

> like you talk about her here. You continually use words like " ruined "

> and " damaged. " Just because she doesn't use the words doesn't mean she

> doesn't understand the feelings behind them.

> Also, there are many, many people with autism that grow up to live

> independently, go to college, get married, and have families. There

> are some on this board. I have an uncle with autism who is a

> successful music therapist. He went to college and lives independently

> and has since he was 20, just like all his siblings. He's not married,

> but that's because he's gay...he has had long term relationships.

> Being autistic does not prevent those things. It is perfectly possible

> to accomplish all that without " recovery. "

> I just hope that if your daughter does grow up to be a happy,

> independent, and still autistic, adult, that you will be able to

> accept her and be happy for her. In my experience, that is a much more

> likely scenario than recovery.

> Amnesty

>

>

> > I suppose like all of you, I have put up with the angry,

> disapproving stares of strangers when my princess is in a meltdown

> because she was brushed up against. You know. Its the look of " Why

> can't you control your child?' I've even been told by relatives (mark

> you, I do not call them family) not to come back any more because my

> childs unpredictability is " unfair to the other children. " I've even

> been told that " You are using your child's autism as an excuse for her

> behavior. "

> >

> > I choose not to be angry about this, because my emotions are my choice.

> >

> > I've wathed other parents drop their kids off at birthday parties,

> supervised by adults, when I know that my child needs my constant

> attention to prevent mayham.

> >

> > I've seen her entire class invited to birthday parties, and not my

> child, knowing that the parents just can't handle her behavior.

> >

> > So What!

> >

> > I spend my free time looking at clouds with Evalyn, with her seeing

> shapes that I can not imagine. I watch her while she gives unknown

> status to her dolls as we play family. Sometimes, I just cuddle her,

> when she permits, because like every parent should know, its not about

> me any more. Its about her.

> >

> > Some times, she talks, and sometimes she does not. Sometimes she

> growls and pushes me away, and that is okay, because when I chose to

> have a child, I chose to make her life about her, and not about me.

> >

> > I spent the first two years of her diagnosis studying every article

> I could. From pharmacology to nueroscience. Then it occured to me, she

> needs a daddy, not another doctor.

> >

> > Tomorrow I don't know what will happen. Maybe good and maybe bad,

> but I don't really care, because I will spend it with the greatest

> gift I have ever been given.

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

> >

[Guest guest]

Amy I to mean of no disrespect but you say you see of recovcered kids

daily , can you share pictures and or names of all these recovered

kids. Because from my knowing there is of not a cure for autism and if

there were of kids recovering from autism daily, then I to think the

DAN conferences should stop all the research and begin to start doing

panels of nothing but the recovered kids. I to been to a few dan

conferences and do take of heed to the research but so far none of the

researches use the same protocals and each have of their theories and

such but there is not a cure yet that cures all autism. and if so many

were of being recovered then the truth be the number of autism willnot

be rising it would be decreasing due to these recovered kids no longer

being considered of autism.

Sondra

[Guest guest]

Amy I to mean of no disrespect but you say you see of recovcered kids

daily , can you share pictures and or names of all these recovered

kids. Because from my knowing there is of not a cure for autism and if

there were of kids recovering from autism daily, then I to think the

DAN conferences should stop all the research and begin to start doing

panels of nothing but the recovered kids. I to been to a few dan

conferences and do take of heed to the research but so far none of the

researches use the same protocals and each have of their theories and

such but there is not a cure yet that cures all autism. and if so many

were of being recovered then the truth be the number of autism willnot

be rising it would be decreasing due to these recovered kids no longer

being considered of autism.

Sondra

[Guest guest]

No, most of it is not covered by insurance.

I've seen absolutely no reaction with Bradstreet protocol. I gave her

a little DMSA twice with Cutler protocol, both times she got

pneumonia; I decided she was one of those who cannot tolerate DMSA,

she had never even had antibiotics prior to that. Yes, I contribute

metals to vaccination, but maybe not all.

Paxil is in the SSRI class of selective seratonin reuptake inhibitors.

It is also used with positive results of about 30% of those with

autism who have completed the ARI parent survey. No sluggishness at

all, in fact, she seems more alert and " with it " than without the med,

but I also give her a tiny dose, I believe for those who are

benefitted by meds, many are probably given too high a dose. I also do

not believe in medications until more natural approaches have been

exhausted.

Since I followed Cutler protocol, I've followed his suggestions. I

have given her some liver products, primarily milk thistle and

selenium, as he suggested. I think I prefer the IV method more because

Allie seems to prefer it and she has significant food aversions that

make regular oral administration of chelation products every 3-4 hrs

difficult; we also know exactly how much of what she's getting, and

when I was doing Cutler it was before I had DAN assistance to ensure

proper lab testing, that gives me mental relief.

Debi

>

> Is all of this covered by insurance? I know that we use every penny

to keep her doing what we are doing with her. What kind of reactions,

if any, is she having with chelation? Do you contribute the metals in

her body to vaccinations? Isn't Paxil for depression, anxiety, etc.?

Does it seem to make her sluggish...tired alot? Did they recommend

that you do a liver cleanse prior to chelation?

>

[Guest guest]

No, most of it is not covered by insurance.

I've seen absolutely no reaction with Bradstreet protocol. I gave her

a little DMSA twice with Cutler protocol, both times she got

pneumonia; I decided she was one of those who cannot tolerate DMSA,

she had never even had antibiotics prior to that. Yes, I contribute

metals to vaccination, but maybe not all.

Paxil is in the SSRI class of selective seratonin reuptake inhibitors.

It is also used with positive results of about 30% of those with

autism who have completed the ARI parent survey. No sluggishness at

all, in fact, she seems more alert and " with it " than without the med,

but I also give her a tiny dose, I believe for those who are

benefitted by meds, many are probably given too high a dose. I also do

not believe in medications until more natural approaches have been

exhausted.

Since I followed Cutler protocol, I've followed his suggestions. I

have given her some liver products, primarily milk thistle and

selenium, as he suggested. I think I prefer the IV method more because

Allie seems to prefer it and she has significant food aversions that

make regular oral administration of chelation products every 3-4 hrs

difficult; we also know exactly how much of what she's getting, and

when I was doing Cutler it was before I had DAN assistance to ensure

proper lab testing, that gives me mental relief.

Debi

>

> Is all of this covered by insurance? I know that we use every penny

to keep her doing what we are doing with her. What kind of reactions,

if any, is she having with chelation? Do you contribute the metals in

her body to vaccinations? Isn't Paxil for depression, anxiety, etc.?

Does it seem to make her sluggish...tired alot? Did they recommend

that you do a liver cleanse prior to chelation?

>

[Guest guest]

I don't post often. I homeschool and am a single parent and don't often have the

time.

BUT

I do have to say I PERSONALLY agree or believe that no one that has autism is

ever really " recovered " . I just don't believe it and perhaps thats my own

problem? I think many can learn and be able to live in the NT world. But thats

just my personal opinon and how I view autism in general.

My daughter is 6, homeschooled.

She potty trained at 3 1/2. She only recently began talking in sentences, maybe

its from what I do and maybe not. She wasn't fine and then got a vaccine and

became autistic. She academically is great. She can read, spell, add,

subtract, count, etc ( won't bore you with the details, I'm saying it to state

where she is at)

She shows affection and pretend plays. She has days I call 'autistic days " and

days she is less autistic. Some that have seen us in the community for a few

years never " KNEW " she had autism. I guess she doesn't always " appear " .

She couldn't always do these things. She continues to grow and change much like

many children. Every child with autism is different, things that work for my

daughter, probably won't work for a diff child the same way.

I think we need to step back and breathe.

[Guest guest]

I don't post often. I homeschool and am a single parent and don't often have the

time.

BUT

I do have to say I PERSONALLY agree or believe that no one that has autism is

ever really " recovered " . I just don't believe it and perhaps thats my own

problem? I think many can learn and be able to live in the NT world. But thats

just my personal opinon and how I view autism in general.

My daughter is 6, homeschooled.

She potty trained at 3 1/2. She only recently began talking in sentences, maybe

its from what I do and maybe not. She wasn't fine and then got a vaccine and

became autistic. She academically is great. She can read, spell, add,

subtract, count, etc ( won't bore you with the details, I'm saying it to state

where she is at)

She shows affection and pretend plays. She has days I call 'autistic days " and

days she is less autistic. Some that have seen us in the community for a few

years never " KNEW " she had autism. I guess she doesn't always " appear " .

She couldn't always do these things. She continues to grow and change much like

many children. Every child with autism is different, things that work for my

daughter, probably won't work for a diff child the same way.

I think we need to step back and breathe.

[Guest guest]

Amy maybe you and me have of different research but the things one

does to work the core is done though biomedical medicines and diets

and things , boimedical is not the same as medications but is of

repairing areas that are deficient and such it is of often many of

the things parents have pursued.

Medications too are of sometimes needed and yes are and can be

bandaides because the core biomedically has not been to found to

reduce that certain symptom that is of interferring with their daily

life.

You want of positive stories and if you really read you will find

this list is full of them. Because many of the kids here are not

recovered so to speak and so the families have come to a place in

life of celabraint their daughters success. Such if you just read of

Beth the little one in her potty training sucess. that was a great

success for that little girl and we other moms and dads here were

happy to be a part of that progress of reading of Beths success. This

list is of full of many success and real life things among autism. If

you do not find these as success then maybe you need to seek out the

recovered kids list and or other such lists as there are a few lists

like that . i to be of sorry to be of so blunt and I to tried of to

be of nice but I to feel anxiety building because it seems you are

not here to really learn or know of us but are of here to preach to

us and if we do not heed you are of upset to us for not seeking you

path . many of us had already been of you path for years..... we are

now on a new part of the journey. please try to respect where we are

at and not assume that we do not hear of you words it just comes off

to forceful and demanding , closed off and I to feel you are of not

hearing what many members here who have been in this joureny for many

years, and to those of us who do have of autism and were not of

recovered adults and we have learned much painful how to adpat to

this world and it hurts to see of words of ruined and broken or

damaged. soceity makes us feel that enough and for me this is of a

safe place and not like seeing clutter of painful words here that

seem to try to reflect a negative in regards to us here who are still

with autism. we are of here to help of the families from our

perspectives. we are not perfect humans, we are though human like all

the rest here are not perfect humans.

Sondra

Sondra

[Guest guest]

Don't believe the " deadlines. " Progress is ALWAYS possible, at any

age! Yes, early intervention is important, but intervention at ANY age

is important. Don't let anyone tell you otherwise. We are ALL

learning, developing, and progressing at every point of our lives, and

your daughter will too.

Amnesty

>

> You are very correct on alot of points Sondra. Since I just found

out that she has autism...6 months ago (knew something was wrong

because of her reaction to the shots but wasnt sure exactly) I hear

everyone talking about a timeframe on getting your child better. It

scares me that now that she is 5, I am running out of time. I feel

like I have one chance to correct this, and jumped in with both feet.

I truly know that in my heart, she will overcome this....if not as

expected, will still continue. Just like you Sondra, I too have dealt

with alot of serious issues in my life. I was told at the age of 24

that I would never see 25. I just turned 40 in June. I have dealt with

things that most people will never deal with in a lifetime. This has

made me a fighter. I have seen the impossible turn around, and this is

where I get my strength. So, I may be new to autism, but I'm not new

to fighting hard to get what you want. Before we moved 3 weeks ago, my

husband worked 4 jobs and

> went to school full-time so that I can stay home with my girls (my

2 little ones). We have made some serious sacrifices, but I guess that

is what you do as parents. I appreciate your realism...I think that

way also. But I know from the things that I have already been through

in my life....this will be another success story in my life. LOL...I

would love to take a day off from the world...what a great idea! I

also have an older daughter with Crohns disease from the vaccinations.

I have seen my oldest daughter very sick with this....it will

eventually shorten her life if not taken care of. I have an ice cream

truck....I am going to sell funnel cakes and gourmet coffees out of it

to raise money for their protocols. I can't lose any time...you surely

understand that I have been disappointed in the medical profession

(injury) and now in the school systems...seems like your on your own

sometimes. Thats ok though...we will get through this!

> Amy

>

[Guest guest]

Amy --

I used to feel the same way you do about time running out. Then I

started reading some of Temple Grandin's books. She talked about how

much she learned between 40 and 60 yrs old and I realized that our kids

are like everyone else -- they keep learning! Early intervention is

critical, but so is all the stuff that comes after it. Breathe. You're

going to be doing this stuff for many years -- don't wear yourself out.

Parents of NT kids get tired of taking care of their kids -- that's why

we're kinda happy when they grow up and move out, as much as we miss

'em. I often hear, though, of parents of kids with special needs who

end up absolutely physically and emotionally trashed. Then they're less

effective giving their kids the help they need then. I don't mean to

slow you down -- you're doing great stuff! Just don't feel like your

failing if she's not " cured " by the time she's 7 or 10 or 20. You're

obviously working as hard as you can to help your daughter -- good for

you! Don't bag on yourself though if and when she still has

difficulties. Instead focus on all the positive growth she's made.

That will give you the energy you need to support her throughout her

life -- just like parents of NT kids do.

Good job!

-- Cassie

Amy Wittman wrote:

> You are very correct on alot of points Sondra. Since I just found out

> that she has autism...6 months ago (knew something was wrong because

> of her reaction to the shots but wasnt sure exactly) I hear everyone

> talking about a timeframe on getting your child better. It scares me

> that now that she is 5, I am running out of time. I feel like I have

> one chance to correct this, and jumped in with both feet. I truly know

> that in my heart, she will overcome this....if not as expected, will

> still continue. Just like you Sondra, I too have dealt with alot of

> serious issues in my life. I was told at the age of 24 that I would

> never see 25. I just turned 40 in June. I have dealt with things that

> most people will never deal with in a lifetime. This has made me a

> fighter. I have seen the impossible turn around, and this is where I

> get my strength. So, I may be new to autism, but I'm not new to

> fighting hard to get what you want. Before we moved 3 weeks ago, my

> husband worked 4 jobs and

> went to school full-time so that I can stay home with my girls (my 2

> little ones). We have made some serious sacrifices, but I guess that

> is what you do as parents. I appreciate your realism...I think that

> way also. But I know from the things that I have already been through

> in my life....this will be another success story in my life. LOL...I

> would love to take a day off from the world...what a great idea! I

> also have an older daughter with Crohns disease from the vaccinations.

> I have seen my oldest daughter very sick with this....it will

> eventually shorten her life if not taken care of. I have an ice cream

> truck....I am going to sell funnel cakes and gourmet coffees out of it

> to raise money for their protocols. I can't lose any time...you surely

> understand that I have been disappointed in the medical profession

> (injury) and now in the school systems...seems like your on your own

> sometimes. Thats ok though...we will get through this!

> Amy

>

> sondra <hfa2@... <mailto:hfa2%40columbus.rr.com>> wrote:

>

> Amy no one is of disagreeing with what you chose for you daughter and

> many here are of doing the same.....seeking answers to make of their

> childs life better, some are of seeking to mend the medical

> infractions as what parent would not want of thier child to be of

> healthy.

>

> You are of new to this joureny and I to been in it all of the life of

> me and researched of it the last 10 years. You shared for every one

> that does not get a cure that one will and from that, that means you

> believe that 50% will recover, I to disagree as I to shared I to know

> many , mnay families who are or have done the same route and you and

> went bankrupt trying and the child did not recover. I to just want of

> to share to you because it fears me that the outcome may not be as

> you seek just as the many hundreds of families before you. I to also

> am not to say dont seek but do not do it to the exclusion of loving

> you and hte rest of you family. I to also know of some wonderful

> familes who seeked another route to teh exclusion and advocates so

> strongly for years for thier child but because they did not love of

> themselves and to excluded balancing out the life of them ended of

> themselves with cancers and such diseases and were of not able to

> live out long enough to see of thier child grow in adult life. I to

> say this not to discourage but to encourrage of you.

>

> Also in this one might benefit to research greif and its cycles and

> it is of healthy to cycle in and out of various staged but if one

> stays in one stage it is very unhealthy.

>

> hte gains you see are of good but also some have maked this same sort

> of developmental leaps without the use of any biomedical simply do to

> natural maturation but again not all will make of those gains without

> some sort of intervention. there are a number of kidos on the

> spectrum who maked of this same sorts of gains via ABA or RDI and

> other similar sorts of therapy.

>

> So whgile you are new to this journey and are of in the strong fix it

> stage of this journey please for you and you daughter take a nice

> break and enjoy a day out somewhere that isof mutally a calm and

> shared place for you both.

>

> Also to note if one seen of me as a child from all the little things

> shared to me from family and the birth mother of me, it was of very

> evident my life journey was of a classical presentaion of autism and

> over the life of me had growed and gained and got of marriage and

> kids and a life independent of the birth parents of me. there is

> quite a few of us who do again this is not the same outcome for all

> in autism, as some do not make the gains expected or seeked no matter

> what intervention was of used because no one tapped into the secret

> hidden code of sommunication for that individual person which left

> them misunderstood and isolated from getting their true inner needs

> met.

> Sondra

>

> Chef Amy

> Reel Thyme Cooking, LLC

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try

> it now.

>

>

[Guest guest]

I hope it works!

Debi

>

> Actually that is exactly what we are about to do. I have been

dealing with a man that seems to really know his stuff. He grew up

sick all of his life and into adulthood. He went to multipe doctors to

no avail. He finally took it upon himself to find a solution. He

turned hinself around. He became an atty, then decided that he wanted

to pursue helping others get well also. I am going to do his program

for both of the girls since they are both very familiar. He was

telling me about how important it is to cleanse your liver. He said

that our liver get congested and then malfunctions. It is like a

traffic jam, that no matter how fast you go, you will never get

through any faster. So he told me to cleanse both of their livers

first, then start chelation. My autistic child is already on the GFCF

diet, but he said that my oldest needs to be on it also..and he

designed a specific menu for her. Here is his info if anyone is

interested. We will see what happens shortly on how well it

> works.

> www.bioray2000.com

> www.createvibranthealth.com

>

[Guest guest]

In a message dated 1/8/08 5:48:17 PM Eastern Standard Time,

reelthymecooking@... writes:

So I got frustarted and moved 15 hours away to a wonderful system that

jumped right on her situation. That was only three weeks ago, so I haven't

actually got her into the school yet. That was the same with my girl...dada,

bye

bye, mama, etc....then it all went away...what a devasting ordeal for

everyone...especialSo I go

good for you for moving. doing what ever it takes. it is devasting.

knowing they hear and feel but cant express it nor now how to react. keep

loving them the way you do. they understand that weather they can show it or

not

eric abbys dad

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

In a message dated 1/8/08 7:57:43 PM Eastern Standard Time,

czupke@... writes:

this place is all

about " what can you do to help your kid " . That's one of the things I

like about it!

-- Cassie

very true

eric abbys dad

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

On the naltrexone thing debi - my husband and I have

both been on it for quite some time with no apparent

effects for good. I have had none for bad either, but

he had a horrible reation, while he was on naltrexone

and they introduced a new medacine to him while he was

in the hospital called Mercapetepurine(6mp for short).

When he had the reaction, they gave him Ativan to help

him calm down and regulate his heart and such and it

sent him into a terrible epesode. It was very scary.

He does not remember any of it, but it took nearly 24

hours for him to even know who he was or were he was

and to respond appropriately to questions asked of

him.

I almost had a heart attack, thinking of the

possibility of loosing my husband or almost worse yet,

having to care for him being crazy and not knowing who

I am in addition to raising my 3 with autism. Of

course I would do it, but I definately think I would

have needed some help. I am not that strong. I

honestly had 3 grey hairs the next morning and I am

only 27, he is only 27 too

Anyhow, not sure whether this epesode had anything to

do with anything other than mixing the wrong meds, but

it was very aweful!

The rest of your post was very nicely written, and I

could not have said this part better myself, " you

would find that many/most of us as well have

experienced what " most people will never deal with in

a lifetime. " Some of us here are sexual & physical

abuse survivors, cancer survivors, Crohn's Disease,

diabetes, other major health problems, divorced,

remarried, orphaned/given up for adoption,neglected,

drug addicted, bankrupt, etc. "

That was soooooooooo true and wonderfully stated, I

truly did used to feel uttely alone in this world and

like I had to fight the whole world and like NO ONE

could understand me, until I found this list and

realized that I was NOT alone and others have had to

walk in very similar shoes!

Esther

--- Debi wrote:

> If you would take the time to get to know everyone

> here before

> thinking you know us, you would find that many/most

> of us as well have

> experienced " most people will never deal with in a

> lifetime. " Some of

> us here are sexual & physical abuse survivors,

> cancer survivors,

> Crohn's Disease, diabetes, other major health

> problems, divorced,

> remarried, orphaned/given up for adoption,

> neglected, drug addicted,

> bankrupt, etc. It's common to think one has problems

> no one else has

> experienced until you take time to listen to others.

>

>

> There is no time frame!!! you do what you can do,

> when you can do it.

> My daughter was dxed at 23 mos; we've been doing all

> sorts of stuff

> since then, including therapy and biomed. She's now

> 8 1/2, doing

> better than ever and still improving. Like the

> cancer commercial,

> there are no expiration dates stamped on any child's

> foot that on a

> given date they stop progressing. It's a horrible

> myth. It's just not

> true. I'm 36 & learn new things every day, I come

> into new awarenesses

> about myself and my actions that I didn't comprehend

> before. It's

> human nature to grow and learn throughout life, even

> people with autism!!!

>

> You mentioned your want your daughter in a typical

> kindergarten. Guess

> what, she doesn't have to be typical to be in a

> typical

> kindergarten!!! The law requires that the child be

> in the least

> restrictive setting that is most appropriate. Have

> you attended any

> IDEIA workshops? I would highly recommend if you

> have not. In TN we

> have www.tnstep.org, they might be able to refer you

> to a similar

> program in NC. I know the Autism Society of NC has

> all sorts of stuff,

> I'd recommend you give them a call for sped

> workshops.

>

> have you tried any special diet like gfcf for your

> daughter with

> Crohn's? I don't know that much about it, but I have

> read that

> naltrexone is showing some benefit as an immune

> modulator. Have you

> tried vitamin A or D3 for it? I've read that can

> sometimes help those

> with Crohns, as well.

>

> HTH,

> Debi

>

>

>

>

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