Re: the sameness

[Guest guest]

No one is telling you that you should accept her physical illnesses. But

autism is part of her brain make up, it is who she is. Just because someone is

so called " recovered " doesn't mean that they no longer have autism. It seems

that you think that we that " accept " our kids do nothing to help them better

themselves or to give them a better way of life. We are all advocates for our

children, we can all write a better IEP then the schools can. Some here do

diets, some do ABA. We do what we do to suit each of our child's needs. We are

not telling you to sit back and do nothing. But do not make it sound like we

all sit on our butts while our girls suffer with gut issues or seizures or

whatever the problems may be. I am able to say that I accept my daughter for

who

she is and I will love her no matter what. Our kids sense our emotions, they

know if we think of them as broken. There is a difference in advocating for

someone and making her feel like she is damaged goods.

As for recovery I am not really sure what you mean. Abby started out with NO

language, tons of sensory issues and delays in many area's. After years of

hard work she is now an honor role student with straight A's. She plays viola

and has friends. But let me assure you this, her autism is still there and

ALWAYS will be. I see it every day. So because she can function in society does

that make her recovered? No, it means that she has learned to adapt to an NT

way of life. Abby will never be made to feel that her autism is a bad thing.

It is part of who she is and I will always accept her for that and be there

every step of the way to help her.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

No one is telling you that you should accept her physical illnesses. But

autism is part of her brain make up, it is who she is. Just because someone is

so called " recovered " doesn't mean that they no longer have autism. It seems

that you think that we that " accept " our kids do nothing to help them better

themselves or to give them a better way of life. We are all advocates for our

children, we can all write a better IEP then the schools can. Some here do

diets, some do ABA. We do what we do to suit each of our child's needs. We are

not telling you to sit back and do nothing. But do not make it sound like we

all sit on our butts while our girls suffer with gut issues or seizures or

whatever the problems may be. I am able to say that I accept my daughter for

who

she is and I will love her no matter what. Our kids sense our emotions, they

know if we think of them as broken. There is a difference in advocating for

someone and making her feel like she is damaged goods.

As for recovery I am not really sure what you mean. Abby started out with NO

language, tons of sensory issues and delays in many area's. After years of

hard work she is now an honor role student with straight A's. She plays viola

and has friends. But let me assure you this, her autism is still there and

ALWAYS will be. I see it every day. So because she can function in society does

that make her recovered? No, it means that she has learned to adapt to an NT

way of life. Abby will never be made to feel that her autism is a bad thing.

It is part of who she is and I will always accept her for that and be there

every step of the way to help her.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I guess we will just have to agree to disagree. You have said your take and

I have said mine. Our girls are what is important and we will each do what we

have to help our girls be all that they are capable of being.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I guess we will just have to agree to disagree. You have said your take and

I have said mine. Our girls are what is important and we will each do what we

have to help our girls be all that they are capable of being.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

That is beautiful and you are so right. My daughter Breanna has high

Functioning Autism. She is 9 years old. The other day she found me

on my laptop (yet again) and she said, " Why are you reading about

Autism again. I know I have Autism.... but Im just a kid. "

I vowed that from now on I will just be her mum.....of course I am

still an advocate, a researcher and at times it seems I am her

therapist but most of all I am mummy.

>

> I suppose like all of you, I have put up with the angry,

disapproving stares of strangers when my princess is in a meltdown

because she was brushed up against. You know. Its the look of " Why

can't you control your child?' I've even been told by relatives

(mark you, I do not call them family) not to come back any more

because my childs unpredictability is " unfair to the other

children. " I've even been told that " You are using your child's

autism as an excuse for her behavior. "

>

> I choose not to be angry about this, because my emotions are my

choice.

>

> I've wathed other parents drop their kids off at birthday

parties, supervised by adults, when I know that my child needs my

constant attention to prevent mayham.

>

> I've seen her entire class invited to birthday parties, and not

my child, knowing that the parents just can't handle her behavior.

>

> So What!

>

> I spend my free time looking at clouds with Evalyn, with her

seeing shapes that I can not imagine. I watch her while she gives

unknown status to her dolls as we play family. Sometimes, I just

cuddle her, when she permits, because like every parent should know,

its not about me any more. Its about her.

>

> Some times, she talks, and sometimes she does not. Sometimes she

growls and pushes me away, and that is okay, because when I chose to

have a child, I chose to make her life about her, and not about me.

>

> I spent the first two years of her diagnosis studying every

article I could. From pharmacology to nueroscience. Then it occured

to me, she needs a daddy, not another doctor.

>

> Tomorrow I don't know what will happen. Maybe good and maybe

bad, but I don't really care, because I will spend it with the

greatest gift I have ever been given.

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

That is beautiful and you are so right. My daughter Breanna has high

Functioning Autism. She is 9 years old. The other day she found me

on my laptop (yet again) and she said, " Why are you reading about

Autism again. I know I have Autism.... but Im just a kid. "

I vowed that from now on I will just be her mum.....of course I am

still an advocate, a researcher and at times it seems I am her

therapist but most of all I am mummy.

>

> I suppose like all of you, I have put up with the angry,

disapproving stares of strangers when my princess is in a meltdown

because she was brushed up against. You know. Its the look of " Why

can't you control your child?' I've even been told by relatives

(mark you, I do not call them family) not to come back any more

because my childs unpredictability is " unfair to the other

children. " I've even been told that " You are using your child's

autism as an excuse for her behavior. "

>

> I choose not to be angry about this, because my emotions are my

choice.

>

> I've wathed other parents drop their kids off at birthday

parties, supervised by adults, when I know that my child needs my

constant attention to prevent mayham.

>

> I've seen her entire class invited to birthday parties, and not

my child, knowing that the parents just can't handle her behavior.

>

> So What!

>

> I spend my free time looking at clouds with Evalyn, with her

seeing shapes that I can not imagine. I watch her while she gives

unknown status to her dolls as we play family. Sometimes, I just

cuddle her, when she permits, because like every parent should know,

its not about me any more. Its about her.

>

> Some times, she talks, and sometimes she does not. Sometimes she

growls and pushes me away, and that is okay, because when I chose to

have a child, I chose to make her life about her, and not about me.

>

> I spent the first two years of her diagnosis studying every

article I could. From pharmacology to nueroscience. Then it occured

to me, she needs a daddy, not another doctor.

>

> Tomorrow I don't know what will happen. Maybe good and maybe

bad, but I don't really care, because I will spend it with the

greatest gift I have ever been given.

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

You are so refreshing...this morning I am struggling, and to read this , it

really helps...I had the worst morning with Paisley...she goes to PPCD, and I

call mornings like these bad mornings..on these mornings, light is definitely

the enemy, so to appease my daughter, I get her dressed in the dark, but she

doesn't want me to touch her and begins having a meltdown of sorts, kicking

screaming hitting and just crying her heart out...and of course, I go to another

room to cry, because it is hard sometimes to deal with still for me..because I

don't know how else to react other than to let my emotions come to surface...so

I go back in..and I have her shoes and of course, she still doesn't want me to

get her dressed, so she is just crying and yelling no, and I just hold her and

hug her and love her no matter how many times she slams the back of her head

into me, or hits me or kicks me...because I am suppose to love her...and I do. I

know she has to get dressed and go to school so

no matter how big the meltdown, I have to get it done...but all morning has

been like this today, and we have them a few times a week...it's just today hit

me especially hard, because I have been searching for childcare for her and

haven't been able to find it because of her diagnosis, not that anyone has

blatantly said no..I get the run around, like, " I am not sure we have anything

to offer her, but we will try " , or " We will see if we can handle her. " So you

see I will not take her to these places...and then...yesterday I asked her PPCD

teacher if they had a lists of childcares who pick up at the school because I

was having a hard time finding daycare because of her having Autism...and she

says, don't you remember in the ARD that the school system dropped her dx???

And I said, yeah, but her doctors still haven't...so anyway...she just told me

to go look, and I am sorry I am rambling..but I am..It just got to me. If these

school diagnosticians saw what really goes on

with my child, they wouldn't drop the dx...and how can they??? The dx who did

her eval isn't a doctor...anyway...not to get to into stupid school

officials...I am just saying...how can they help if they can't see???

But anyway, Mr Belcher..I appreciate your sight into your child and not into

everyone else, sometimes it's hard to see the forest for the trees....

Belcher wrote:

I suppose like all of you, I have put up with the angry, disapproving

stares of strangers when my princess is in a meltdown because she was brushed up

against. You know. Its the look of " Why can't you control your child?' I've even

been told by relatives (mark you, I do not call them family) not to come back

any more because my childs unpredictability is " unfair to the other children. "

I've even been told that " You are using your child's autism as an excuse for her

behavior. "

I choose not to be angry about this, because my emotions are my choice.

I've wathed other parents drop their kids off at birthday parties, supervised by

adults, when I know that my child needs my constant attention to prevent mayham.

I've seen her entire class invited to birthday parties, and not my child,

knowing that the parents just can't handle her behavior.

So What!

I spend my free time looking at clouds with Evalyn, with her seeing shapes that

I can not imagine. I watch her while she gives unknown status to her dolls as we

play family. Sometimes, I just cuddle her, when she permits, because like every

parent should know, its not about me any more. Its about her.

Some times, she talks, and sometimes she does not. Sometimes she growls and

pushes me away, and that is okay, because when I chose to have a child, I chose

to make her life about her, and not about me.

I spent the first two years of her diagnosis studying every article I could.

From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not

another doctor.

Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't

really care, because I will spend it with the greatest gift I have ever been

given.

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

You are so refreshing...this morning I am struggling, and to read this , it

really helps...I had the worst morning with Paisley...she goes to PPCD, and I

call mornings like these bad mornings..on these mornings, light is definitely

the enemy, so to appease my daughter, I get her dressed in the dark, but she

doesn't want me to touch her and begins having a meltdown of sorts, kicking

screaming hitting and just crying her heart out...and of course, I go to another

room to cry, because it is hard sometimes to deal with still for me..because I

don't know how else to react other than to let my emotions come to surface...so

I go back in..and I have her shoes and of course, she still doesn't want me to

get her dressed, so she is just crying and yelling no, and I just hold her and

hug her and love her no matter how many times she slams the back of her head

into me, or hits me or kicks me...because I am suppose to love her...and I do. I

know she has to get dressed and go to school so

no matter how big the meltdown, I have to get it done...but all morning has

been like this today, and we have them a few times a week...it's just today hit

me especially hard, because I have been searching for childcare for her and

haven't been able to find it because of her diagnosis, not that anyone has

blatantly said no..I get the run around, like, " I am not sure we have anything

to offer her, but we will try " , or " We will see if we can handle her. " So you

see I will not take her to these places...and then...yesterday I asked her PPCD

teacher if they had a lists of childcares who pick up at the school because I

was having a hard time finding daycare because of her having Autism...and she

says, don't you remember in the ARD that the school system dropped her dx???

And I said, yeah, but her doctors still haven't...so anyway...she just told me

to go look, and I am sorry I am rambling..but I am..It just got to me. If these

school diagnosticians saw what really goes on

with my child, they wouldn't drop the dx...and how can they??? The dx who did

her eval isn't a doctor...anyway...not to get to into stupid school

officials...I am just saying...how can they help if they can't see???

But anyway, Mr Belcher..I appreciate your sight into your child and not into

everyone else, sometimes it's hard to see the forest for the trees....

Belcher wrote:

I suppose like all of you, I have put up with the angry, disapproving

stares of strangers when my princess is in a meltdown because she was brushed up

against. You know. Its the look of " Why can't you control your child?' I've even

been told by relatives (mark you, I do not call them family) not to come back

any more because my childs unpredictability is " unfair to the other children. "

I've even been told that " You are using your child's autism as an excuse for her

behavior. "

I choose not to be angry about this, because my emotions are my choice.

I've wathed other parents drop their kids off at birthday parties, supervised by

adults, when I know that my child needs my constant attention to prevent mayham.

I've seen her entire class invited to birthday parties, and not my child,

knowing that the parents just can't handle her behavior.

So What!

I spend my free time looking at clouds with Evalyn, with her seeing shapes that

I can not imagine. I watch her while she gives unknown status to her dolls as we

play family. Sometimes, I just cuddle her, when she permits, because like every

parent should know, its not about me any more. Its about her.

Some times, she talks, and sometimes she does not. Sometimes she growls and

pushes me away, and that is okay, because when I chose to have a child, I chose

to make her life about her, and not about me.

I spent the first two years of her diagnosis studying every article I could.

From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not

another doctor.

Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't

really care, because I will spend it with the greatest gift I have ever been

given.

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

First of all, I have known many kids who are now indistinguishable in

a classroom full of typical peers...that doesn't mean they are not

autistic, just that you can't tell right away. Many of these kids

would no longer be diagnosed if they were tested today, but no one

knows what the future holds, and I don't know anyone who considers

them to be autism free. All of them had ABA (which is how I met them),

some had biomedical intervention and some did not. I also know many,

many more kids who have had every biomedical intervention under the

sun with little or no improvement.

I'm thrilled for your daughter that she is making so much progress.

That is wonderful news. However, I hope that you don't talk to her

like you talk about her here. You continually use words like " ruined "

and " damaged. " Just because she doesn't use the words doesn't mean she

doesn't understand the feelings behind them.

Also, there are many, many people with autism that grow up to live

independently, go to college, get married, and have families. There

are some on this board. I have an uncle with autism who is a

successful music therapist. He went to college and lives independently

and has since he was 20, just like all his siblings. He's not married,

but that's because he's gay...he has had long term relationships.

Being autistic does not prevent those things. It is perfectly possible

to accomplish all that without " recovery. "

I just hope that if your daughter does grow up to be a happy,

independent, and still autistic, adult, that you will be able to

accept her and be happy for her. In my experience, that is a much more

likely scenario than recovery.

Amnesty

> I suppose like all of you, I have put up with the angry,

disapproving stares of strangers when my princess is in a meltdown

because she was brushed up against. You know. Its the look of " Why

can't you control your child?' I've even been told by relatives (mark

you, I do not call them family) not to come back any more because my

childs unpredictability is " unfair to the other children. " I've even

been told that " You are using your child's autism as an excuse for her

behavior. "

>

> I choose not to be angry about this, because my emotions are my choice.

>

> I've wathed other parents drop their kids off at birthday parties,

supervised by adults, when I know that my child needs my constant

attention to prevent mayham.

>

> I've seen her entire class invited to birthday parties, and not my

child, knowing that the parents just can't handle her behavior.

>

> So What!

>

> I spend my free time looking at clouds with Evalyn, with her seeing

shapes that I can not imagine. I watch her while she gives unknown

status to her dolls as we play family. Sometimes, I just cuddle her,

when she permits, because like every parent should know, its not about

me any more. Its about her.

>

> Some times, she talks, and sometimes she does not. Sometimes she

growls and pushes me away, and that is okay, because when I chose to

have a child, I chose to make her life about her, and not about me.

>

> I spent the first two years of her diagnosis studying every article

I could. From pharmacology to nueroscience. Then it occured to me, she

needs a daddy, not another doctor.

>

> Tomorrow I don't know what will happen. Maybe good and maybe bad,

but I don't really care, because I will spend it with the greatest

gift I have ever been given.

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

First of all, I have known many kids who are now indistinguishable in

a classroom full of typical peers...that doesn't mean they are not

autistic, just that you can't tell right away. Many of these kids

would no longer be diagnosed if they were tested today, but no one

knows what the future holds, and I don't know anyone who considers

them to be autism free. All of them had ABA (which is how I met them),

some had biomedical intervention and some did not. I also know many,

many more kids who have had every biomedical intervention under the

sun with little or no improvement.

I'm thrilled for your daughter that she is making so much progress.

That is wonderful news. However, I hope that you don't talk to her

like you talk about her here. You continually use words like " ruined "

and " damaged. " Just because she doesn't use the words doesn't mean she

doesn't understand the feelings behind them.

Also, there are many, many people with autism that grow up to live

independently, go to college, get married, and have families. There

are some on this board. I have an uncle with autism who is a

successful music therapist. He went to college and lives independently

and has since he was 20, just like all his siblings. He's not married,

but that's because he's gay...he has had long term relationships.

Being autistic does not prevent those things. It is perfectly possible

to accomplish all that without " recovery. "

I just hope that if your daughter does grow up to be a happy,

independent, and still autistic, adult, that you will be able to

accept her and be happy for her. In my experience, that is a much more

likely scenario than recovery.

Amnesty

> I suppose like all of you, I have put up with the angry,

disapproving stares of strangers when my princess is in a meltdown

because she was brushed up against. You know. Its the look of " Why

can't you control your child?' I've even been told by relatives (mark

you, I do not call them family) not to come back any more because my

childs unpredictability is " unfair to the other children. " I've even

been told that " You are using your child's autism as an excuse for her

behavior. "

>

> I choose not to be angry about this, because my emotions are my choice.

>

> I've wathed other parents drop their kids off at birthday parties,

supervised by adults, when I know that my child needs my constant

attention to prevent mayham.

>

> I've seen her entire class invited to birthday parties, and not my

child, knowing that the parents just can't handle her behavior.

>

> So What!

>

> I spend my free time looking at clouds with Evalyn, with her seeing

shapes that I can not imagine. I watch her while she gives unknown

status to her dolls as we play family. Sometimes, I just cuddle her,

when she permits, because like every parent should know, its not about

me any more. Its about her.

>

> Some times, she talks, and sometimes she does not. Sometimes she

growls and pushes me away, and that is okay, because when I chose to

have a child, I chose to make her life about her, and not about me.

>

> I spent the first two years of her diagnosis studying every article

I could. From pharmacology to nueroscience. Then it occured to me, she

needs a daddy, not another doctor.

>

> Tomorrow I don't know what will happen. Maybe good and maybe bad,

but I don't really care, because I will spend it with the greatest

gift I have ever been given.

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

I don't know what " biomedicine " is.

Amy, what you need to realize is that there are LOTS of people who

have done everything McCarthy has and then some; their kids are

not responders. It's very painful for those families to continually

hear how they could " cure " their kid if they just did biomedical. It's

just not true in most cases.

I'm a big believer in biomedical treatment for symptoms of autism.

Thankfully, Allie has responded physically to a lot of stuff we've

tried. In fact, we've done nearly everything McCarthy did years

before she did it. Allie still has autism. I think it's great that

's son is doing so well, but that just isn't the case for

everyone and some sensitivity is needed, IMO. I have a dear friend who

used to drive from TN to Bradstreet's clinic once/mo to get her

daughter IVs & other treatments. They helped some but not completely.

She did/does a lot of other stuff. She still has horrible behavior

problems. I cannot tell you how painful it is when she's told she

hasn't done enough for her daughter.

I would suggest you take time to get to know the parents on this board

before assuming the people have not tried anything to help their

kids/selves. Parents & those with autism need support and

encouragement, maybe it's just me, but I get the increasing feeling of

an offensive tone in your postings. If it's just me, I apologize.

Debi

[Guest guest]

I don't know what " biomedicine " is.

Amy, what you need to realize is that there are LOTS of people who

have done everything McCarthy has and then some; their kids are

not responders. It's very painful for those families to continually

hear how they could " cure " their kid if they just did biomedical. It's

just not true in most cases.

I'm a big believer in biomedical treatment for symptoms of autism.

Thankfully, Allie has responded physically to a lot of stuff we've

tried. In fact, we've done nearly everything McCarthy did years

before she did it. Allie still has autism. I think it's great that

's son is doing so well, but that just isn't the case for

everyone and some sensitivity is needed, IMO. I have a dear friend who

used to drive from TN to Bradstreet's clinic once/mo to get her

daughter IVs & other treatments. They helped some but not completely.

She did/does a lot of other stuff. She still has horrible behavior

problems. I cannot tell you how painful it is when she's told she

hasn't done enough for her daughter.

I would suggest you take time to get to know the parents on this board

before assuming the people have not tried anything to help their

kids/selves. Parents & those with autism need support and

encouragement, maybe it's just me, but I get the increasing feeling of

an offensive tone in your postings. If it's just me, I apologize.

Debi

[Guest guest]

One of the best things about this group has always been about celebrating

our girls accomplishments. This group is different because for the most part we

don't focus on any individual therapies or treatments. Do we discuss them at

times? Yes, But our focus always comes back to the accomplishments and life

skill needs that our girls have. Sometimes it's something small, sometimes

it's something big. I can only speak for myself here but I think that many

would agree with me when I say that I like to read about what makes up the

young

lady that is now part of our group. What are her dislikes and likes,

activities and whatever other info helps me to get a picture in my mind of what

she

may be like. I don't really care about what therapy or treatment has been

tried on her. When the treatments become our main focus then we have lost focus

on what is important and that is our girls and who they are inside. While

there is nothing wrong with seeking out therapies, autism should never consume

our lives. When it does, then there is a problem. A deep problem.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

One of the best things about this group has always been about celebrating

our girls accomplishments. This group is different because for the most part we

don't focus on any individual therapies or treatments. Do we discuss them at

times? Yes, But our focus always comes back to the accomplishments and life

skill needs that our girls have. Sometimes it's something small, sometimes

it's something big. I can only speak for myself here but I think that many

would agree with me when I say that I like to read about what makes up the

young

lady that is now part of our group. What are her dislikes and likes,

activities and whatever other info helps me to get a picture in my mind of what

she

may be like. I don't really care about what therapy or treatment has been

tried on her. When the treatments become our main focus then we have lost focus

on what is important and that is our girls and who they are inside. While

there is nothing wrong with seeking out therapies, autism should never consume

our lives. When it does, then there is a problem. A deep problem.

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

The school district has 30 days from the time you sign the consent form to

do a formal evaluation and then set up an IEP and get the ball rolling. What

state are you in now?

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

The school district has 30 days from the time you sign the consent form to

do a formal evaluation and then set up an IEP and get the ball rolling. What

state are you in now?

Pennie

Abby's Mom

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

My daughter was dx at 2, and since that time all she has had are

OT/PT/ST

She is 6 now, she is verbal, she reads, she writes, she understands.

She still does B/M in a pull up but she is Potty trained (for # 1).

Will she ever tie her shoes hmmm I don't know, but she can look at a

plant and say " The plant is wilting, in needs water. "

I have not done any biomedical treatments on her not because I have

not wanted to but because I don't have the money to.

I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY "

(Nevaeh's mom)

> I don't know what " biomedicine " is.

>

> Amy, what you need to realize is that there are LOTS of people who

> have done everything McCarthy has and then some; their kids

are

> not responders. It's very painful for those families to continually

> hear how they could " cure " their kid if they just did biomedical.

It's

> just not true in most cases.

>

> I'm a big believer in biomedical treatment for symptoms of autism.

> Thankfully, Allie has responded physically to a lot of stuff we've

> tried. In fact, we've done nearly everything McCarthy did

years

> before she did it. Allie still has autism. I think it's great that

> 's son is doing so well, but that just isn't the case for

> everyone and some sensitivity is needed, IMO. I have a dear friend

who

> used to drive from TN to Bradstreet's clinic once/mo to get her

> daughter IVs & other treatments. They helped some but not

completely.

> She did/does a lot of other stuff. She still has horrible behavior

> problems. I cannot tell you how painful it is when she's told she

> hasn't done enough for her daughter.

>

> I would suggest you take time to get to know the parents on this

board

> before assuming the people have not tried anything to help their

> kids/selves. Parents & those with autism need support and

> encouragement, maybe it's just me, but I get the increasing feeling

of

> an offensive tone in your postings. If it's just me, I apologize.

>

> Debi

>

>

>

>

>

>

> Chef Amy

> Reel Thyme Cooking, LLC

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

My daughter was dx at 2, and since that time all she has had are

OT/PT/ST

She is 6 now, she is verbal, she reads, she writes, she understands.

She still does B/M in a pull up but she is Potty trained (for # 1).

Will she ever tie her shoes hmmm I don't know, but she can look at a

plant and say " The plant is wilting, in needs water. "

I have not done any biomedical treatments on her not because I have

not wanted to but because I don't have the money to.

I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY "

(Nevaeh's mom)

> I don't know what " biomedicine " is.

>

> Amy, what you need to realize is that there are LOTS of people who

> have done everything McCarthy has and then some; their kids

are

> not responders. It's very painful for those families to continually

> hear how they could " cure " their kid if they just did biomedical.

It's

> just not true in most cases.

>

> I'm a big believer in biomedical treatment for symptoms of autism.

> Thankfully, Allie has responded physically to a lot of stuff we've

> tried. In fact, we've done nearly everything McCarthy did

years

> before she did it. Allie still has autism. I think it's great that

> 's son is doing so well, but that just isn't the case for

> everyone and some sensitivity is needed, IMO. I have a dear friend

who

> used to drive from TN to Bradstreet's clinic once/mo to get her

> daughter IVs & other treatments. They helped some but not

completely.

> She did/does a lot of other stuff. She still has horrible behavior

> problems. I cannot tell you how painful it is when she's told she

> hasn't done enough for her daughter.

>

> I would suggest you take time to get to know the parents on this

board

> before assuming the people have not tried anything to help their

> kids/selves. Parents & those with autism need support and

> encouragement, maybe it's just me, but I get the increasing feeling

of

> an offensive tone in your postings. If it's just me, I apologize.

>

> Debi

>

>

>

>

>

>

> Chef Amy

> Reel Thyme Cooking, LLC

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

>

> **Amnesty....since you work in the ABA field....in your

opinion....obviously speech, and other therapies help. Do you think

that since I have brought my daughter this far at home, would adding

those to her regimen bring about even greater change? My goal is to

have her enter a regular kindergarten this fall. Something to work

towards!

>

Yes. The more early intervention kids get, the more time they spend in

regular ed classrooms.

Amnesty

[Guest guest]

>

> **Amnesty....since you work in the ABA field....in your

opinion....obviously speech, and other therapies help. Do you think

that since I have brought my daughter this far at home, would adding

those to her regimen bring about even greater change? My goal is to

have her enter a regular kindergarten this fall. Something to work

towards!

>

Yes. The more early intervention kids get, the more time they spend in

regular ed classrooms.

Amnesty

[Guest guest]

Thank you for that story. Sometimes miracles come in five word packages.

nevaehlopez6 wrote: My daughter was dx at 2, and

since that time all she has had are

OT/PT/ST

She is 6 now, she is verbal, she reads, she writes, she understands.

She still does B/M in a pull up but she is Potty trained (for # 1).

Will she ever tie her shoes hmmm I don't know, but she can look at a

plant and say " The plant is wilting, in needs water. "

I have not done any biomedical treatments on her not because I have

not wanted to but because I don't have the money to.

I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY "

(Nevaeh's mom)

> I don't know what " biomedicine " is.

>

> Amy, what you need to realize is that there are LOTS of people who

> have done everything McCarthy has and then some; their kids

are

> not responders. It's very painful for those families to continually

> hear how they could " cure " their kid if they just did biomedical.

It's

> just not true in most cases.

>

> I'm a big believer in biomedical treatment for symptoms of autism.

> Thankfully, Allie has responded physically to a lot of stuff we've

> tried. In fact, we've done nearly everything McCarthy did

years

> before she did it. Allie still has autism. I think it's great that

> 's son is doing so well, but that just isn't the case for

> everyone and some sensitivity is needed, IMO. I have a dear friend

who

> used to drive from TN to Bradstreet's clinic once/mo to get her

> daughter IVs & other treatments. They helped some but not

completely.

> She did/does a lot of other stuff. She still has horrible behavior

> problems. I cannot tell you how painful it is when she's told she

> hasn't done enough for her daughter.

>

> I would suggest you take time to get to know the parents on this

board

> before assuming the people have not tried anything to help their

> kids/selves. Parents & those with autism need support and

> encouragement, maybe it's just me, but I get the increasing feeling

of

> an offensive tone in your postings. If it's just me, I apologize.

>

> Debi

>

>

>

>

>

>

> Chef Amy

> Reel Thyme Cooking, LLC

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

Thank you for that story. Sometimes miracles come in five word packages.

nevaehlopez6 wrote: My daughter was dx at 2, and

since that time all she has had are

OT/PT/ST

She is 6 now, she is verbal, she reads, she writes, she understands.

She still does B/M in a pull up but she is Potty trained (for # 1).

Will she ever tie her shoes hmmm I don't know, but she can look at a

plant and say " The plant is wilting, in needs water. "

I have not done any biomedical treatments on her not because I have

not wanted to but because I don't have the money to.

I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY "

(Nevaeh's mom)

> I don't know what " biomedicine " is.

>

> Amy, what you need to realize is that there are LOTS of people who

> have done everything McCarthy has and then some; their kids

are

> not responders. It's very painful for those families to continually

> hear how they could " cure " their kid if they just did biomedical.

It's

> just not true in most cases.

>

> I'm a big believer in biomedical treatment for symptoms of autism.

> Thankfully, Allie has responded physically to a lot of stuff we've

> tried. In fact, we've done nearly everything McCarthy did

years

> before she did it. Allie still has autism. I think it's great that

> 's son is doing so well, but that just isn't the case for

> everyone and some sensitivity is needed, IMO. I have a dear friend

who

> used to drive from TN to Bradstreet's clinic once/mo to get her

> daughter IVs & other treatments. They helped some but not

completely.

> She did/does a lot of other stuff. She still has horrible behavior

> problems. I cannot tell you how painful it is when she's told she

> hasn't done enough for her daughter.

>

> I would suggest you take time to get to know the parents on this

board

> before assuming the people have not tried anything to help their

> kids/selves. Parents & those with autism need support and

> encouragement, maybe it's just me, but I get the increasing feeling

of

> an offensive tone in your postings. If it's just me, I apologize.

>

> Debi

>

>

>

>

>

>

> Chef Amy

> Reel Thyme Cooking, LLC

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>

[Guest guest]

Thank you, I do feel blessed. Don't get me wrong she has her days but

just remembering the past. I really feel for te parents that are just

starting out.

My daughter said the basics " Bye Bye " , " MaMa " , " PaPa " . She waived

clapped hands.

But then right at around 18 months, she regressed. Stopped walking,

talking you know the usual.

But I really give a lot of credit to the Miami Dade County Early

Intervention and Public school system. They have a great program for

children with autism, and they helped us out a lot. I am a single

parent, worked all day and had no one to watch them at night. My

daughter was in the public school system at almost 3 and that is

where she has received all of her therapys. No GFCF Diet, biomedics,

just therapys.

Don't get me wrong I do want to try the GFCF Diet because she doesn't

eat anyhing healthy just pancakes, mac & cheese and jelly. Oh with

Strawberry milk. But she is above average on height and weight. I

don't get it.

> > I don't know what " biomedicine " is.

> >

> > Amy, what you need to realize is that there are LOTS of people who

> > have done everything McCarthy has and then some; their kids

> are

> > not responders. It's very painful for those families to

continually

> > hear how they could " cure " their kid if they just did biomedical.

> It's

> > just not true in most cases.

> >

> > I'm a big believer in biomedical treatment for symptoms of autism.

> > Thankfully, Allie has responded physically to a lot of stuff we've

> > tried. In fact, we've done nearly everything McCarthy did

> years

> > before she did it. Allie still has autism. I think it's great that

> > 's son is doing so well, but that just isn't the case for

> > everyone and some sensitivity is needed, IMO. I have a dear

friend

> who

> > used to drive from TN to Bradstreet's clinic once/mo to get her

> > daughter IVs & other treatments. They helped some but not

> completely.

> > She did/does a lot of other stuff. She still has horrible behavior

> > problems. I cannot tell you how painful it is when she's told she

> > hasn't done enough for her daughter.

> >

> > I would suggest you take time to get to know the parents on this

> board

> > before assuming the people have not tried anything to help their

> > kids/selves. Parents & those with autism need support and

> > encouragement, maybe it's just me, but I get the increasing

feeling

> of

> > an offensive tone in your postings. If it's just me, I apologize.

> >

> > Debi

> >

> >

> >

> >

> >

> >

> > Chef Amy

> > Reel Thyme Cooking, LLC

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with Yahoo!

Mobile.

> Try it now.

> >

> >

[Guest guest]

Thank you, I do feel blessed. Don't get me wrong she has her days but

just remembering the past. I really feel for te parents that are just

starting out.

My daughter said the basics " Bye Bye " , " MaMa " , " PaPa " . She waived

clapped hands.

But then right at around 18 months, she regressed. Stopped walking,

talking you know the usual.

But I really give a lot of credit to the Miami Dade County Early

Intervention and Public school system. They have a great program for

children with autism, and they helped us out a lot. I am a single

parent, worked all day and had no one to watch them at night. My

daughter was in the public school system at almost 3 and that is

where she has received all of her therapys. No GFCF Diet, biomedics,

just therapys.

Don't get me wrong I do want to try the GFCF Diet because she doesn't

eat anyhing healthy just pancakes, mac & cheese and jelly. Oh with

Strawberry milk. But she is above average on height and weight. I

don't get it.

> > I don't know what " biomedicine " is.

> >

> > Amy, what you need to realize is that there are LOTS of people who

> > have done everything McCarthy has and then some; their kids

> are

> > not responders. It's very painful for those families to

continually

> > hear how they could " cure " their kid if they just did biomedical.

> It's

> > just not true in most cases.

> >

> > I'm a big believer in biomedical treatment for symptoms of autism.

> > Thankfully, Allie has responded physically to a lot of stuff we've

> > tried. In fact, we've done nearly everything McCarthy did

> years

> > before she did it. Allie still has autism. I think it's great that

> > 's son is doing so well, but that just isn't the case for

> > everyone and some sensitivity is needed, IMO. I have a dear

friend

> who

> > used to drive from TN to Bradstreet's clinic once/mo to get her

> > daughter IVs & other treatments. They helped some but not

> completely.

> > She did/does a lot of other stuff. She still has horrible behavior

> > problems. I cannot tell you how painful it is when she's told she

> > hasn't done enough for her daughter.

> >

> > I would suggest you take time to get to know the parents on this

> board

> > before assuming the people have not tried anything to help their

> > kids/selves. Parents & those with autism need support and

> > encouragement, maybe it's just me, but I get the increasing

feeling

> of

> > an offensive tone in your postings. If it's just me, I apologize.

> >

> > Debi

> >

> >

> >

> >

> >

> >

> > Chef Amy

> > Reel Thyme Cooking, LLC

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with Yahoo!

Mobile.

> Try it now.

> >

> >

[Guest guest]

Has your daughter had ANY therapy??? Any early intervention of any

kind? Preschool? Are you in the US?

I'm just wondering, because it seems like for a mom who claims she

will do anything and everything to recover her daughter, you would

have at least started with the stuff that is actually proven (and

backed up with data) to help. Are services not available in your area?

Amnesty

> > I don't know what " biomedicine " is.

> >

> > Amy, what you need to realize is that there are LOTS of people who

> > have done everything McCarthy has and then some; their kids

> are

> > not responders. It's very painful for those families to continually

> > hear how they could " cure " their kid if they just did biomedical.

> It's

> > just not true in most cases.

> >

> > I'm a big believer in biomedical treatment for symptoms of autism.

> > Thankfully, Allie has responded physically to a lot of stuff we've

> > tried. In fact, we've done nearly everything McCarthy did

> years

> > before she did it. Allie still has autism. I think it's great that

> > 's son is doing so well, but that just isn't the case for

> > everyone and some sensitivity is needed, IMO. I have a dear friend

> who

> > used to drive from TN to Bradstreet's clinic once/mo to get her

> > daughter IVs & other treatments. They helped some but not

> completely.

> > She did/does a lot of other stuff. She still has horrible behavior

> > problems. I cannot tell you how painful it is when she's told she

> > hasn't done enough for her daughter.

> >

> > I would suggest you take time to get to know the parents on this

> board

> > before assuming the people have not tried anything to help their

> > kids/selves. Parents & those with autism need support and

> > encouragement, maybe it's just me, but I get the increasing feeling

> of

> > an offensive tone in your postings. If it's just me, I apologize.

> >

> > Debi

> >

> >

> >

> >

> >

> >

> > Chef Amy

> > Reel Thyme Cooking, LLC

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

> Try it now.

> >

> >