Re: Oprah Message Board-PLEASE WRITE THEM!

[Guest guest]

, yes you are of speaking over the medical side of autism the

yucky monster side of it the puzzle side of it the frustrating and

the painful side of it yes this part is of a strong desire to cure

for any parent who loves of thems child does not want of them to

suffer. so this is why some parents seek of the cure not so much for

the autism itself but the medical side as they have come to think of

the medical side as being autism alone. And while one can fix many of

hte medical sides it does nto always cure the true autism in the

child but does allow the child to feel better enough to learn and

gain. some very few are like to win the lottery and do get that cure

but the numbers are not great in cure over all. I to wish could cure

this medical side of health issues to me as well.

But like for example a person who is exiled from Cuba no matter how

americanized they become they still are not cured from begin cuban as

that is of the essence of their make ups and birth culture molded of

it in them and even if they no longer follow culture codes they still

ahve the physical characteristics of a cuban person that will never

go away ever. same with other cultrues even if acceptance comes for

the african american or the jews for example it will not cure them

from being black or jews for example but it will change hwo they feel

about themselves over all and that gives them the hope to be allt ehy

can be because they are now accpeted for hwo they are to be in life

and not seen as a negative anymore. Love will not change the color of

ones skin or any other ethinic markers or culture ways etc.... but

inside it will change the way they feel and see of selves to just be

accepted for who they are in life as a person.

But yes it is of good for parents to grieve as this is a HUMAN

process in life.... When one sees of their child not keeping up

developmentally, socially etc... it cycles the grief process over and

over and this should be of delat with in a sensitve fashions and

respected that ALL people are in very different places in this things

called autism..... While Kassi and a few others have come to a place

of complete acceptance and such to self many families might not be of

there yet or some may be there and not able to see the grief process

in others for what it is. Some with much more able and functioning

childrens on spectrum it is hard to understand the challenges some

with so felt LF kidos bring to the family and some with LF struggle

to understand the challenges that those with more able kids challenge

their family by and so the vicious cycme of why auitsm is still being

not heared with a unified voice because we within the own community

fight each other over what is of right, or wrong and what is of true

autism and not and who is most challenged and such and then cycle

keeps going and going and in many ways we are all impacting our own

childrens funding sources and services because of teh constant fight

we are causing those who could help to shut us out because it is hard

to know what to do to best serve all with autism. It causes me to

feel less hope in the future for us with autism and in my life time

would like to see a day when I can be to have good supports as an

adult with autism. right now I to not get that from my community. I

to get it from other source but not agency or community funds to

support of the needs I to have in life.

the life of me as a child, teen was of much cruel and I to fight each

day to be to break throu7gh from my world to you world to just be to

have some voice for todays kids and generations. I to be of grandma

too and my little delaney is of one now and each day I to be to watch

and listen and like a detective seek to see if the hidden luring

autism is there ready to battle if it is because of the way society

is not ready to cope or serve or support and I to not want of this

for my grand baby at all. so far she is of passing all developmental

things and so things are of looking well but if she does one things

similar to me it causes me to watchmore closely and get this sick

feel in the tummy of me if I to see of her flap and or do things

common to self. But if she is with autism this will be accepted as

this is who she is to be but as many moms here will fight

biomeidcally to make her as healthy as can and find her the best can

give of her for supports to be her best in life/

Sondra

[Guest guest]

, yes you are of speaking over the medical side of autism the

yucky monster side of it the puzzle side of it the frustrating and

the painful side of it yes this part is of a strong desire to cure

for any parent who loves of thems child does not want of them to

suffer. so this is why some parents seek of the cure not so much for

the autism itself but the medical side as they have come to think of

the medical side as being autism alone. And while one can fix many of

hte medical sides it does nto always cure the true autism in the

child but does allow the child to feel better enough to learn and

gain. some very few are like to win the lottery and do get that cure

but the numbers are not great in cure over all. I to wish could cure

this medical side of health issues to me as well.

But like for example a person who is exiled from Cuba no matter how

americanized they become they still are not cured from begin cuban as

that is of the essence of their make ups and birth culture molded of

it in them and even if they no longer follow culture codes they still

ahve the physical characteristics of a cuban person that will never

go away ever. same with other cultrues even if acceptance comes for

the african american or the jews for example it will not cure them

from being black or jews for example but it will change hwo they feel

about themselves over all and that gives them the hope to be allt ehy

can be because they are now accpeted for hwo they are to be in life

and not seen as a negative anymore. Love will not change the color of

ones skin or any other ethinic markers or culture ways etc.... but

inside it will change the way they feel and see of selves to just be

accepted for who they are in life as a person.

But yes it is of good for parents to grieve as this is a HUMAN

process in life.... When one sees of their child not keeping up

developmentally, socially etc... it cycles the grief process over and

over and this should be of delat with in a sensitve fashions and

respected that ALL people are in very different places in this things

called autism..... While Kassi and a few others have come to a place

of complete acceptance and such to self many families might not be of

there yet or some may be there and not able to see the grief process

in others for what it is. Some with much more able and functioning

childrens on spectrum it is hard to understand the challenges some

with so felt LF kidos bring to the family and some with LF struggle

to understand the challenges that those with more able kids challenge

their family by and so the vicious cycme of why auitsm is still being

not heared with a unified voice because we within the own community

fight each other over what is of right, or wrong and what is of true

autism and not and who is most challenged and such and then cycle

keeps going and going and in many ways we are all impacting our own

childrens funding sources and services because of teh constant fight

we are causing those who could help to shut us out because it is hard

to know what to do to best serve all with autism. It causes me to

feel less hope in the future for us with autism and in my life time

would like to see a day when I can be to have good supports as an

adult with autism. right now I to not get that from my community. I

to get it from other source but not agency or community funds to

support of the needs I to have in life.

the life of me as a child, teen was of much cruel and I to fight each

day to be to break throu7gh from my world to you world to just be to

have some voice for todays kids and generations. I to be of grandma

too and my little delaney is of one now and each day I to be to watch

and listen and like a detective seek to see if the hidden luring

autism is there ready to battle if it is because of the way society

is not ready to cope or serve or support and I to not want of this

for my grand baby at all. so far she is of passing all developmental

things and so things are of looking well but if she does one things

similar to me it causes me to watchmore closely and get this sick

feel in the tummy of me if I to see of her flap and or do things

common to self. But if she is with autism this will be accepted as

this is who she is to be but as many moms here will fight

biomeidcally to make her as healthy as can and find her the best can

give of her for supports to be her best in life/

Sondra

[Guest guest]

but not ALL with autism will speak or have verbal language, not

ALL will find an outlet that works for them to communicate. Not all

will make the same gains. Many do but not ALL. I to not be to had

words till was 3 1/2 but it was of echoing for a few years then

langauge came more so for me around age of 6 but not good at any

conversations of any back and forth turns until age of 9 and then

more better language came for as older teen young adult. Even as

young teen to maybe of 14 still did of pronoun reversals and still

get stuck on them if stressed and not able to think of my words good

before to make them verbal. Now as adult can do my speaking very well

and such because of using scripted and rehearsed phrases and words

over and over and so can present much like one who is more able in

words than in my natural ways in words. Many with autism can echo or

parent back and it can give off a false intellect to others because

some witll assume we are more advanced but if they get to know of

outside of the echoing or scripts they will find a different level of

being. it is of an illusion and some who appear quite challenged can

be very advanced intellectually. so one cant know or assume anythings

in regards to autism because it is all so individualized not a mold

but unique from one person to another.

Sondra

In Autism_in_Girls , " Penney "

wrote:

>

> You dont know that your daughter will -- never -- do ------- fill

in the

> blank.

>

> My daughter was in diapers and could not speak until she was 5. I

too

> remember the days when her eyes would fill up with tears as she

was not

> able to communicate with me what she wanted to express. She would

sit on

> the floor and scream, sneak out the doors and run down the

street...etc...

>

> No matter what anyone told me...I followed my instincts with her..

>

>

> I know today -- only two years later -- she speaks in full

sentances and has

> thousands of words. She uses the potty day and night with no

accidents.

> She is learning to read. She is learning to write. She is

learning to add

> and subtract. She is making friends in school and being invited to

parties

> with the other girls!

>

> Please do not say your daughter will never do something.

>

>

>

> >From: Tib3sis@...

> >Reply-To: Autism_in_Girls

> >To: Autism_in_Girls

> >Subject: Re: Re: Oprah Message Board-PLEASE

WRITE THEM!

> >Date: Thu, 12 Apr 2007 22:11:36 -0400

> >

> >I agree with the point that every human has a purpose in life. I

believe

> >that every good parent wants the best for their children. I for

one would

> >love for my daughter to speak. I say this because I see how she

gets when

> >she cannot tell me what it is that is hurting her. When she is

sick for

> >instance....she cannot tell me what is going on and it hurts me.

Or if

> >something has happened to her...she cannot tell me. Just a couple

of weeks

> >ago I found out that a teachers assistant was scaring her with a

spray

> >bottle of water to keep her " quiet " . My daughter vocalizes alot

and can

> >get loud. This teachers assistant made my daughter scared of

water by

> >spraying her in the face. It took me three years to help my

daughter to

> >not be afraid of water and now this person has done this to my

little girl.

> > My point is that I would have never known if it didn't come to

light. I

> >see the frustration in my daughter so much when she cannot

communicate. We

> >have tried switches, voice communication boxes, pictures, and now

a PECS

> >book. It just never seems to be enough. And this is just one of

the many

> >things that goes on with her. I have to say that I do not see her

living

> >her life fully. Its just not fair to her. She is so very

different than

> >she was prior to three years old.

> >

> >I don't think it is fair and I have to say that to me it seems

rude and

> >insensitive to make the comment that parents cry about what their

child

> >cannot do. I personally do cry....and as a great mother I don't

take

> >kindly to someone telling us parents to suck it up and look at

what your

> >child can do. I mean of course I celebrate what my Destiney can

do....but

> >she is functioning at a 18month and younger level....its not fair

to her.

> >And of course she is happy at times...I always try my best to make

her

> >happy...but of course I cannot let her stay in her ritualistic

> >patterns...they lead to overstimulation and then she goes off into

a full

> >blown overstimulated fit. I am only writing the tip of the

iceberg...no

> >one can ever know what her life is like and what our family life

is like

> >unless they lived here and went through it with us and even then

you really

> >cannot know it all. I want so much more for her and I am sure

that if she

> >had a choice she would chose the same. I know my daughter and no

one can

> >tell me any different. I do everything for her because she

cannot....I sit

> >with her and I see the look on her face at times when other

children are

> >engaged in different activities...she looks at me and its like she

is

> >yearning to break out.

> >

> >I think before people start to lash out, they need to be more

sensitive to

> >others feelings....this is our children you are talking about and

we as

> >parents...very good parents....take it to heart.

> >

> >It is very obvious to me...as I am reading what Kassianne is

writing, that

> >she is defiantly nothing like my daughter. I do not know who she

is and I

> >have never met her, but based on what I see with my eyes, that she

writes,

> >she is intelligent and she can use a computer and she can type and

she can

> >spell and she can probably do a million other things that my

Destiney will

> >NEVER do. Do not compare yourself with my daughter or anyone

else's...its

> >just not fair to do. Every single person in life is

different...no one is

> >the same...no one.

> >

> >No one has the right to tell someone else that their child is

happy and

> >that they are fine the way they are....that would be called " just

your

> >opinion " .

> >

> >

> >Everyone has the right to state their opinion...not the right to

tell

> >someone what to do or how to feel.

> >

> >

> >

> >

> >

> > Re: Re: Oprah Message Board-PLEASE

WRITE THEM!

> > >Date: Thu, 12 Apr 2007 12:39:43 -0700 (PDT)

> > >

> > >Oh like YOU know anything about me.

> > >

> > >Cure neurobigotry now.

> > >

> > >Kassiane,

> > >sick of people who are only her " friends " till this

> > >crap comes up, y'all know who you are

> > >

> > >--- " O. Boyd " wrote:

> > >

> > > > Here! Hear!!

> > > >

> > > >

> > > > Re: Oprah Message

> > > > Board-PLEASE WRITE THEM!

> > > >

> > > >

> > > > My point was that I don't think there can ever be

> > > > too much

> > > > awareness. As for the cancer comparison, don't

> > > > lecture me about it

> > > > killing. I know, my mother died from it a little

> > > > over a year ago.

> > > > For you, there may be enough awareness because

> > > > obviously you are able

> > > > to communicate and live a fulfilling life. I have

> > > > a child who still

> > > > wears diapers and has never said a word, so I'm

> > > > sorry but until she

> > > > has a chance at a somewhat normal and productive

> > > > life I will fight

> > > > for more funding and more awareness. Comparing

> > > > yourself to other

> > > > people with autism is like comparing apples to

> > > > carpet. They're all

> > > > totally different. I'm only addressing the

> > > > awareness, not anything

> > > > else.

> > > >

> > > > Amber

> > > >

> > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > > > Please flood this message

> > > > board

> > > > > > about what

> > > > > > > > > has

> > > > > > > > > > > > > > happened to your

> > > > > > > > > > > > > > child..illness

> > > > ...mercury/porphyri

> > > > > > ns,

> > > > > > > > > immune

> > > > > > > > > > > > > > issues/allergies,

> > > > > > > > > > > > > > inflammation. ...regression,

> > > > > > pain....GI

> > > > > > > > > > > > > issues..the

> > > > > > > > > > > > > > whole gamut-

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > The Faces of Autism

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > >

> > > > http://boards.oprah.com/WebX/.f151133!DYNID=

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

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> > > > > > > > > > > > >

> > > > ---------------------------------

> > > > > > > > > > > > > Food fight? Enjoy some healthy

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> > > > > > > > > > > > > [Non-text portions of this

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> > > > > > have been

> > > > > > > > > > > > > removed]

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> > > >__________________________________________________________

> > > > > > > > > > > > Food fight? Enjoy some healthy

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> >------------------------

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> >

[Guest guest]

but not ALL with autism will speak or have verbal language, not

ALL will find an outlet that works for them to communicate. Not all

will make the same gains. Many do but not ALL. I to not be to had

words till was 3 1/2 but it was of echoing for a few years then

langauge came more so for me around age of 6 but not good at any

conversations of any back and forth turns until age of 9 and then

more better language came for as older teen young adult. Even as

young teen to maybe of 14 still did of pronoun reversals and still

get stuck on them if stressed and not able to think of my words good

before to make them verbal. Now as adult can do my speaking very well

and such because of using scripted and rehearsed phrases and words

over and over and so can present much like one who is more able in

words than in my natural ways in words. Many with autism can echo or

parent back and it can give off a false intellect to others because

some witll assume we are more advanced but if they get to know of

outside of the echoing or scripts they will find a different level of

being. it is of an illusion and some who appear quite challenged can

be very advanced intellectually. so one cant know or assume anythings

in regards to autism because it is all so individualized not a mold

but unique from one person to another.

Sondra

In Autism_in_Girls , " Penney "

wrote:

>

> You dont know that your daughter will -- never -- do ------- fill

in the

> blank.

>

> My daughter was in diapers and could not speak until she was 5. I

too

> remember the days when her eyes would fill up with tears as she

was not

> able to communicate with me what she wanted to express. She would

sit on

> the floor and scream, sneak out the doors and run down the

street...etc...

>

> No matter what anyone told me...I followed my instincts with her..

>

>

> I know today -- only two years later -- she speaks in full

sentances and has

> thousands of words. She uses the potty day and night with no

accidents.

> She is learning to read. She is learning to write. She is

learning to add

> and subtract. She is making friends in school and being invited to

parties

> with the other girls!

>

> Please do not say your daughter will never do something.

>

>

>

> >From: Tib3sis@...

> >Reply-To: Autism_in_Girls

> >To: Autism_in_Girls

> >Subject: Re: Re: Oprah Message Board-PLEASE

WRITE THEM!

> >Date: Thu, 12 Apr 2007 22:11:36 -0400

> >

> >I agree with the point that every human has a purpose in life. I

believe

> >that every good parent wants the best for their children. I for

one would

> >love for my daughter to speak. I say this because I see how she

gets when

> >she cannot tell me what it is that is hurting her. When she is

sick for

> >instance....she cannot tell me what is going on and it hurts me.

Or if

> >something has happened to her...she cannot tell me. Just a couple

of weeks

> >ago I found out that a teachers assistant was scaring her with a

spray

> >bottle of water to keep her " quiet " . My daughter vocalizes alot

and can

> >get loud. This teachers assistant made my daughter scared of

water by

> >spraying her in the face. It took me three years to help my

daughter to

> >not be afraid of water and now this person has done this to my

little girl.

> > My point is that I would have never known if it didn't come to

light. I

> >see the frustration in my daughter so much when she cannot

communicate. We

> >have tried switches, voice communication boxes, pictures, and now

a PECS

> >book. It just never seems to be enough. And this is just one of

the many

> >things that goes on with her. I have to say that I do not see her

living

> >her life fully. Its just not fair to her. She is so very

different than

> >she was prior to three years old.

> >

> >I don't think it is fair and I have to say that to me it seems

rude and

> >insensitive to make the comment that parents cry about what their

child

> >cannot do. I personally do cry....and as a great mother I don't

take

> >kindly to someone telling us parents to suck it up and look at

what your

> >child can do. I mean of course I celebrate what my Destiney can

do....but

> >she is functioning at a 18month and younger level....its not fair

to her.

> >And of course she is happy at times...I always try my best to make

her

> >happy...but of course I cannot let her stay in her ritualistic

> >patterns...they lead to overstimulation and then she goes off into

a full

> >blown overstimulated fit. I am only writing the tip of the

iceberg...no

> >one can ever know what her life is like and what our family life

is like

> >unless they lived here and went through it with us and even then

you really

> >cannot know it all. I want so much more for her and I am sure

that if she

> >had a choice she would chose the same. I know my daughter and no

one can

> >tell me any different. I do everything for her because she

cannot....I sit

> >with her and I see the look on her face at times when other

children are

> >engaged in different activities...she looks at me and its like she

is

> >yearning to break out.

> >

> >I think before people start to lash out, they need to be more

sensitive to

> >others feelings....this is our children you are talking about and

we as

> >parents...very good parents....take it to heart.

> >

> >It is very obvious to me...as I am reading what Kassianne is

writing, that

> >she is defiantly nothing like my daughter. I do not know who she

is and I

> >have never met her, but based on what I see with my eyes, that she

writes,

> >she is intelligent and she can use a computer and she can type and

she can

> >spell and she can probably do a million other things that my

Destiney will

> >NEVER do. Do not compare yourself with my daughter or anyone

else's...its

> >just not fair to do. Every single person in life is

different...no one is

> >the same...no one.

> >

> >No one has the right to tell someone else that their child is

happy and

> >that they are fine the way they are....that would be called " just

your

> >opinion " .

> >

> >

> >Everyone has the right to state their opinion...not the right to

tell

> >someone what to do or how to feel.

> >

> >

> >

> >

> >

> > Re: Re: Oprah Message Board-PLEASE

WRITE THEM!

> > >Date: Thu, 12 Apr 2007 12:39:43 -0700 (PDT)

> > >

> > >Oh like YOU know anything about me.

> > >

> > >Cure neurobigotry now.

> > >

> > >Kassiane,

> > >sick of people who are only her " friends " till this

> > >crap comes up, y'all know who you are

> > >

> > >--- " O. Boyd " wrote:

> > >

> > > > Here! Hear!!

> > > >

> > > >

> > > > Re: Oprah Message

> > > > Board-PLEASE WRITE THEM!

> > > >

> > > >

> > > > My point was that I don't think there can ever be

> > > > too much

> > > > awareness. As for the cancer comparison, don't

> > > > lecture me about it

> > > > killing. I know, my mother died from it a little

> > > > over a year ago.

> > > > For you, there may be enough awareness because

> > > > obviously you are able

> > > > to communicate and live a fulfilling life. I have

> > > > a child who still

> > > > wears diapers and has never said a word, so I'm

> > > > sorry but until she

> > > > has a chance at a somewhat normal and productive

> > > > life I will fight

> > > > for more funding and more awareness. Comparing

> > > > yourself to other

> > > > people with autism is like comparing apples to

> > > > carpet. They're all

> > > > totally different. I'm only addressing the

> > > > awareness, not anything

> > > > else.

> > > >

> > > > Amber

> > > >

> > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > > > Please flood this message

> > > > board

> > > > > > about what

> > > > > > > > > has

> > > > > > > > > > > > > > happened to your

> > > > > > > > > > > > > > child..illness

> > > > ...mercury/porphyri

> > > > > > ns,

> > > > > > > > > immune

> > > > > > > > > > > > > > issues/allergies,

> > > > > > > > > > > > > > inflammation. ...regression,

> > > > > > pain....GI

> > > > > > > > > > > > > issues..the

> > > > > > > > > > > > > > whole gamut-

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > The Faces of Autism

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > >

> > > > http://boards.oprah.com/WebX/.f151133!DYNID=

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

> > > >__________________________________________________________

> > > > > > > > > > > > > 8:00? 8:25? 8:40? Find a flick

> > > > in no

> > > > > > time

> > > > > > > > > > > > > with the Yahoo! Search movie

> > > > showtime

> > > > > > > > > shortcut.

> > > > > > > > > > > > >

> > > > > > > > >

> > > > http://tools.search.yahoo.com/shortcuts/#news

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > ---------------------------------

> > > > > > > > > > > > > Food fight? Enjoy some healthy

> > > > debate

> > > > > > > > > > > > > in the Yahoo! Answers Food &

> > > > Drink

> > > > > > Q & A.

> > > > > > > > > > > > >

> > > > > > > > > > > > > [Non-text portions of this

> > > > message

> > > > > > have been

> > > > > > > > > > > > > removed]

> > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

> > > >__________________________________________________________

> > > > > > > > > > > > Food fight? Enjoy some healthy

> > > > debate

> > > > > > > > > > > > in the Yahoo! Answers Food & Drink

> > > > Q & A.

> > > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

> > > >http://answers.yahoo.com/dir/?link=list & sid=396545367

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > > > ---------------------------------

> > > > > > > > > > > > It's here! Your new message!

> > > > > > > > > > > > Get new email alerts with the free

> > > > > > Yahoo!

> > > > > > > > > Toolbar.

> > > > > > > > > > > >

> > > > > > > > > > > > [Non-text portions of this message

> > > > have

> > > > > > been

> > > > > > > > > > > > removed]

> > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

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> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >__________________________________________________________

> > > > > > > > > _______________

> > > > > > > > > > >Need Mail bonding?

> > > > > > > > > > >Go to the Yahoo! Mail Q & A for great

> > > > tips

> > > > > > from

> > > > > > > > > Yahoo! Answers users.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > >

> > > > >

> > > >

> > > >http://answers.yahoo.com/dir/?link=list & sid=396546091

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >__________________________________________________________

> > > > > > > > > > Exercise your brain! Try Flexicon.

> > > > > > > > > >

> > > > > > http://games.msn.com/en/flexicon/default.htm?

> > > > > > > > > icid=flexicon_hmemailtaglineapril07

> > > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >__________________________________________________________

> > > > > > _______________

> > > > > > > >Looking for earth-friendly autos?

> > > > > > > >Browse Top Cars by " Green Rating " at Yahoo!

> > > > > > Autos' Green Center.

> > > > > > > >http://autos.yahoo.com/green_center/

> > > > > > >

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> > > > > >

> > > > >

> > > >

> > >__________________________________________________________

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> > > > to

> > > > > > see yours: $0 by

> > > > > > Experian.

> > > > > > >

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> > > > > > sc=660600 & bcd=EMAILFOOTERAVERAGE

> > > > > > >

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> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > >__________________________________________________________

> > > > ______________

> > > > > Finding fabulous fares is fun.

> > > > > Let Yahoo! FareChase search your favorite travel

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> > > > flight and hotel bargains.

> > > > >

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> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > >

> > >

> >

>_____________________________________________________________________

_______________

> > >Need Mail bonding?

> > >Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers

users.

> > >http://answers.yahoo.com/dir/?link=list & sid=396546091

> >

> >_________________________________________________________________

> >MSN is giving away a trip to Vegas to see Elton . Enter to

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> >http://msnconcertcontest.com?icid-nceltontagline

> >

> >

> >

> >Autism_in_Girls-subscribe

> >------------------------

> >Autism_in_Girls-unsubscribe

> >

[Guest guest]

My name is le aand my daughter is autistic and is about medium

functionable. she is almost 4 and is still in diapers and spaeks at

a 18 month mentality. anyways i agree about the funding being

unavailable to us. She is going to school half day for the time

being and is about to go on summer break in about a month. then what

do i do with her. all the therapies will stop till the next year.

now the part about funding is that i will need to get her in some

where or to see some one and i cant afford. i am a single mother

with another child and he is ADD so what happens next. I am unab;e

to find a job with flexiblity to deal with my children let alone a

sitter that will deal with them or are qualified. i am at a lost i

am living with my mother at the time and one day would like to get

out. my ex is in complete denial about the children and dont think

the need help or special treatment from the other children. I do try

to treat them as normal as possible but i have faced the fact that

they are not normal adn i am dealing with ot day after day. it is

hard for me to be at this stand still and feelinf inadiquate to

support my children. i think that my biggest disadvantage because i

live in a very some community where there is little support for my

child. I am hopelessly unsure on what happens to me and my children

next. and I hope that some will hear this cry for help and let me

know that i am not the only one out there and tell me what they are

doing or would do in my situation.

le

> >

> > Hi everyone...I rarely post but I do read here and there when I

> can. I have

> > a 10 year old beautiful daughter who is autistic. She also has

> cerebral

> > palsey and mental retardation. I wanted to throw in my two cents

> as well and say

> > that no two situations are the same. My experience with autism

is

> that there

> > are good days and bad. My daughter is full of energy, and such a

> happy and

> > loving little girl! But on the flip side she can get very

> aggresive, can throw a

> > full blown violent fit and can paint up a room in mere seconds in

> feces!

> >

> > Two people can be put into the same situation in life and have

two

> totaly

> > different takes on it. I personnal wish that my daughter never

had

> autism. I

> > say this because I have seen her without having it and she was a

> totally

> > different person who loved to be around her family.....now she

> seeks isolation and we

> > fight to enter her world. Her sisters and relatives that are her

> age miss

> > her friendship so much. It is very different now....and again

this

> is MY

> > opinion on MY situation. It is also what I see in terms of our

> family. When we

> > watch home movies my older daughters always say they miss the way

> Destiney was.

> > I do explain and point out her current good qualities and I help

> them to see

> > how they can try to interact with her on her level and how to try

> to get into

> > her world. It works sometimes and then other times Destiney just

> wont allow

> > them in.

> >

> > There are so many levels of autism in this world and my daughter

> Destiney

> > happens to be a lower functioning autistic little girl, she does

> not speak and is

> > still in diapers as well. Before she turned three years old she

> was talking

> > and interacting and functioning just as the other girls. So you

> see there are

> > just so many different situations and to say that one person is

> wrong in

> > their opinion and another is right is just not correct. No one

has

> walked in the

> > other persons shoes and no one has the right to say another is

> wrong. We all

> > hold our own opinions and thats the way God created us....to

think

> for

> > ourselves and form our own opinions.

> >

> > So we as parents of autistic children or as individuals with

autism

> should be

> > sharing our experiences and learning from eachother.....isnt that

> what this

> > group was intended for? I myself gain insight from this group

that

> I could not

> > get elsewhere. If you dont agree with a person, then nicely say

> how you

> > feel....theres no need to shout back...we are all adults here.

My

> daughter, like

> > I said earlier, does not speak so I am grateful for this group.

I

> especially

> > would like to thank Sondra for all of her insight that she has

> shared with

> > us....you are truely a remarkable person.

> >

> > Cant we just all get along?

> >

> > Blessings

> >

> >

> > Mom to four beautiful children:)

> >

> >

> >

> > ************************************** See what's free at

> http://www.aol.com.

> >

> >

> >

[Guest guest]

My name is le aand my daughter is autistic and is about medium

functionable. she is almost 4 and is still in diapers and spaeks at

a 18 month mentality. anyways i agree about the funding being

unavailable to us. She is going to school half day for the time

being and is about to go on summer break in about a month. then what

do i do with her. all the therapies will stop till the next year.

now the part about funding is that i will need to get her in some

where or to see some one and i cant afford. i am a single mother

with another child and he is ADD so what happens next. I am unab;e

to find a job with flexiblity to deal with my children let alone a

sitter that will deal with them or are qualified. i am at a lost i

am living with my mother at the time and one day would like to get

out. my ex is in complete denial about the children and dont think

the need help or special treatment from the other children. I do try

to treat them as normal as possible but i have faced the fact that

they are not normal adn i am dealing with ot day after day. it is

hard for me to be at this stand still and feelinf inadiquate to

support my children. i think that my biggest disadvantage because i

live in a very some community where there is little support for my

child. I am hopelessly unsure on what happens to me and my children

next. and I hope that some will hear this cry for help and let me

know that i am not the only one out there and tell me what they are

doing or would do in my situation.

le

> >

> > Hi everyone...I rarely post but I do read here and there when I

> can. I have

> > a 10 year old beautiful daughter who is autistic. She also has

> cerebral

> > palsey and mental retardation. I wanted to throw in my two cents

> as well and say

> > that no two situations are the same. My experience with autism

is

> that there

> > are good days and bad. My daughter is full of energy, and such a

> happy and

> > loving little girl! But on the flip side she can get very

> aggresive, can throw a

> > full blown violent fit and can paint up a room in mere seconds in

> feces!

> >

> > Two people can be put into the same situation in life and have

two

> totaly

> > different takes on it. I personnal wish that my daughter never

had

> autism. I

> > say this because I have seen her without having it and she was a

> totally

> > different person who loved to be around her family.....now she

> seeks isolation and we

> > fight to enter her world. Her sisters and relatives that are her

> age miss

> > her friendship so much. It is very different now....and again

this

> is MY

> > opinion on MY situation. It is also what I see in terms of our

> family. When we

> > watch home movies my older daughters always say they miss the way

> Destiney was.

> > I do explain and point out her current good qualities and I help

> them to see

> > how they can try to interact with her on her level and how to try

> to get into

> > her world. It works sometimes and then other times Destiney just

> wont allow

> > them in.

> >

> > There are so many levels of autism in this world and my daughter

> Destiney

> > happens to be a lower functioning autistic little girl, she does

> not speak and is

> > still in diapers as well. Before she turned three years old she

> was talking

> > and interacting and functioning just as the other girls. So you

> see there are

> > just so many different situations and to say that one person is

> wrong in

> > their opinion and another is right is just not correct. No one

has

> walked in the

> > other persons shoes and no one has the right to say another is

> wrong. We all

> > hold our own opinions and thats the way God created us....to

think

> for

> > ourselves and form our own opinions.

> >

> > So we as parents of autistic children or as individuals with

autism

> should be

> > sharing our experiences and learning from eachother.....isnt that

> what this

> > group was intended for? I myself gain insight from this group

that

> I could not

> > get elsewhere. If you dont agree with a person, then nicely say

> how you

> > feel....theres no need to shout back...we are all adults here.

My

> daughter, like

> > I said earlier, does not speak so I am grateful for this group.

I

> especially

> > would like to thank Sondra for all of her insight that she has

> shared with

> > us....you are truely a remarkable person.

> >

> > Cant we just all get along?

> >

> > Blessings

> >

> >

> > Mom to four beautiful children:)

> >

> >

> >

> > ************************************** See what's free at

> http://www.aol.com.

> >

> >

> >

[Guest guest]

In my state the school HAS TO provide summer services because of

typical regression of learned skills that happens in the summer.

There is no law that states how much services, just that they have to

be provided if they are needed. I have been told by my daughter's

teacher that she has to document noted regression in my daughter

after a break from school, to show that my daughter experiences

regression and therefore needs summer services. Request an IEP before

school lets out in order to make the school answer your

question " What are you going to do for my son/daughter this summer? "

I have an IEP scheduled to reconvene June 1 for this very issue. Good

luck to you.

Mara H.

> > >

> > > Hi everyone...I rarely post but I do read here and there when I

> > can. I have

> > > a 10 year old beautiful daughter who is autistic. She also has

> > cerebral

> > > palsey and mental retardation. I wanted to throw in my two

cents

> > as well and say

> > > that no two situations are the same. My experience with autism

> is

> > that there

> > > are good days and bad. My daughter is full of energy, and such

a

> > happy and

> > > loving little girl! But on the flip side she can get very

> > aggresive, can throw a

> > > full blown violent fit and can paint up a room in mere seconds

in

> > feces!

> > >

> > > Two people can be put into the same situation in life and have

> two

> > totaly

> > > different takes on it. I personnal wish that my daughter never

> had

> > autism. I

> > > say this because I have seen her without having it and she was

a

> > totally

> > > different person who loved to be around her family.....now she

> > seeks isolation and we

> > > fight to enter her world. Her sisters and relatives that are

her

> > age miss

> > > her friendship so much. It is very different now....and again

> this

> > is MY

> > > opinion on MY situation. It is also what I see in terms of our

> > family. When we

> > > watch home movies my older daughters always say they miss the

way

> > Destiney was.

> > > I do explain and point out her current good qualities and I

help

> > them to see

> > > how they can try to interact with her on her level and how to

try

> > to get into

> > > her world. It works sometimes and then other times Destiney

just

> > wont allow

> > > them in.

> > >

> > > There are so many levels of autism in this world and my

daughter

> > Destiney

> > > happens to be a lower functioning autistic little girl, she

does

> > not speak and is

> > > still in diapers as well. Before she turned three years old

she

> > was talking

> > > and interacting and functioning just as the other girls. So

you

> > see there are

> > > just so many different situations and to say that one person is

> > wrong in

> > > their opinion and another is right is just not correct. No one

> has

> > walked in the

> > > other persons shoes and no one has the right to say another is

> > wrong. We all

> > > hold our own opinions and thats the way God created us....to

> think

> > for

> > > ourselves and form our own opinions.

> > >

> > > So we as parents of autistic children or as individuals with

> autism

> > should be

> > > sharing our experiences and learning from eachother.....isnt

that

> > what this

> > > group was intended for? I myself gain insight from this group

> that

> > I could not

> > > get elsewhere. If you dont agree with a person, then nicely

say

> > how you

> > > feel....theres no need to shout back...we are all adults here.

> My

> > daughter, like

> > > I said earlier, does not speak so I am grateful for this

group.

> I

> > especially

> > > would like to thank Sondra for all of her insight that she has

> > shared with

> > > us....you are truely a remarkable person.

> > >

> > > Cant we just all get along?

> > >

> > > Blessings

> > >

> > >

> > > Mom to four beautiful children:)

> > >

> > >

> > >

> > > ************************************** See what's free at

> > http://www.aol.com.

> > >

> > >

> > >

[Guest guest]

In my state the school HAS TO provide summer services because of

typical regression of learned skills that happens in the summer.

There is no law that states how much services, just that they have to

be provided if they are needed. I have been told by my daughter's

teacher that she has to document noted regression in my daughter

after a break from school, to show that my daughter experiences

regression and therefore needs summer services. Request an IEP before

school lets out in order to make the school answer your

question " What are you going to do for my son/daughter this summer? "

I have an IEP scheduled to reconvene June 1 for this very issue. Good

luck to you.

Mara H.

> > >

> > > Hi everyone...I rarely post but I do read here and there when I

> > can. I have

> > > a 10 year old beautiful daughter who is autistic. She also has

> > cerebral

> > > palsey and mental retardation. I wanted to throw in my two

cents

> > as well and say

> > > that no two situations are the same. My experience with autism

> is

> > that there

> > > are good days and bad. My daughter is full of energy, and such

a

> > happy and

> > > loving little girl! But on the flip side she can get very

> > aggresive, can throw a

> > > full blown violent fit and can paint up a room in mere seconds

in

> > feces!

> > >

> > > Two people can be put into the same situation in life and have

> two

> > totaly

> > > different takes on it. I personnal wish that my daughter never

> had

> > autism. I

> > > say this because I have seen her without having it and she was

a

> > totally

> > > different person who loved to be around her family.....now she

> > seeks isolation and we

> > > fight to enter her world. Her sisters and relatives that are

her

> > age miss

> > > her friendship so much. It is very different now....and again

> this

> > is MY

> > > opinion on MY situation. It is also what I see in terms of our

> > family. When we

> > > watch home movies my older daughters always say they miss the

way

> > Destiney was.

> > > I do explain and point out her current good qualities and I

help

> > them to see

> > > how they can try to interact with her on her level and how to

try

> > to get into

> > > her world. It works sometimes and then other times Destiney

just

> > wont allow

> > > them in.

> > >

> > > There are so many levels of autism in this world and my

daughter

> > Destiney

> > > happens to be a lower functioning autistic little girl, she

does

> > not speak and is

> > > still in diapers as well. Before she turned three years old

she

> > was talking

> > > and interacting and functioning just as the other girls. So

you

> > see there are

> > > just so many different situations and to say that one person is

> > wrong in

> > > their opinion and another is right is just not correct. No one

> has

> > walked in the

> > > other persons shoes and no one has the right to say another is

> > wrong. We all

> > > hold our own opinions and thats the way God created us....to

> think

> > for

> > > ourselves and form our own opinions.

> > >

> > > So we as parents of autistic children or as individuals with

> autism

> > should be

> > > sharing our experiences and learning from eachother.....isnt

that

> > what this

> > > group was intended for? I myself gain insight from this group

> that

> > I could not

> > > get elsewhere. If you dont agree with a person, then nicely

say

> > how you

> > > feel....theres no need to shout back...we are all adults here.

> My

> > daughter, like

> > > I said earlier, does not speak so I am grateful for this

group.

> I

> > especially

> > > would like to thank Sondra for all of her insight that she has

> > shared with

> > > us....you are truely a remarkable person.

> > >

> > > Cant we just all get along?

> > >

> > > Blessings

> > >

> > >

> > > Mom to four beautiful children:)

> > >

> > >

> > >

> > > ************************************** See what's free at

> > http://www.aol.com.

> > >

> > >

> > >

[Guest guest]

>

> PS....how did your daughter come to be able to speak? Was she

making any vocalizations before? And how did she become potty

trained? Sorry so many questions!

Missy has a year or so of sign language and slowly language just

began for her. It was a slow progress in the begin but by age of 4

1/2 or so she was very verbal. Not up to par with peers in

chronilogical age but speaking. Before the only vocalizations were of

ooohhh weee which was repeated much of the day over and over. she was

a toe walker, and a wrist flapper. Prolonged tantrums that lasted for

hours of her spinning self and head banging, or sitting in her day

dream world doing nothing but staring off into space.

the toileting was a slow progress too and even though she is of 13

she still is afected greatly by encopresis and smears and leaks out

stool so she wears a pad daily and changes if prompted but she often

carrys an odor of soiled mess because of the encopresis and we are of

still working on this with her due to social impacts it creates for

her. she is very developed for a 13 year old which is of also a great

concern for me with boys. One example of her auitsm issues still is

not relating to waht is present in front of her such as in group tey

kids all had to create an imaginary sea monster and the kids each had

to tell of the therapist of what they were to have seen or imagined

seeing, so when the picture was done it looked like a fat shark with

sharp teeth swimming in the ocean but when asked of missy what title

they should give the story she shared the happy penguin? not related

at all to teh picture of theme of a scary sea monster the kids as a

whole created. Also her therapy groups are called friendships club

and so we pasted a nursing retirment home like place called

friendship village and she noticed it and sahred mommy look Dr. Amigo

has a friendship village too and I to want to live of there when I

grow up t be near all my friends.She is of such a funny kid and

brings me much humor in her verbalized expressions of her real

thinking within her. She is into rap lately so trying to discourage

it but she telled me is there such things as a rich preppy ganster as

she wants to be one? LOL ( she lacks what a real ganster is she

things it is of a style of dress)

Sondra

[Guest guest]

>

> PS....how did your daughter come to be able to speak? Was she

making any vocalizations before? And how did she become potty

trained? Sorry so many questions!

Missy has a year or so of sign language and slowly language just

began for her. It was a slow progress in the begin but by age of 4

1/2 or so she was very verbal. Not up to par with peers in

chronilogical age but speaking. Before the only vocalizations were of

ooohhh weee which was repeated much of the day over and over. she was

a toe walker, and a wrist flapper. Prolonged tantrums that lasted for

hours of her spinning self and head banging, or sitting in her day

dream world doing nothing but staring off into space.

the toileting was a slow progress too and even though she is of 13

she still is afected greatly by encopresis and smears and leaks out

stool so she wears a pad daily and changes if prompted but she often

carrys an odor of soiled mess because of the encopresis and we are of

still working on this with her due to social impacts it creates for

her. she is very developed for a 13 year old which is of also a great

concern for me with boys. One example of her auitsm issues still is

not relating to waht is present in front of her such as in group tey

kids all had to create an imaginary sea monster and the kids each had

to tell of the therapist of what they were to have seen or imagined

seeing, so when the picture was done it looked like a fat shark with

sharp teeth swimming in the ocean but when asked of missy what title

they should give the story she shared the happy penguin? not related

at all to teh picture of theme of a scary sea monster the kids as a

whole created. Also her therapy groups are called friendships club

and so we pasted a nursing retirment home like place called

friendship village and she noticed it and sahred mommy look Dr. Amigo

has a friendship village too and I to want to live of there when I

grow up t be near all my friends.She is of such a funny kid and

brings me much humor in her verbalized expressions of her real

thinking within her. She is into rap lately so trying to discourage

it but she telled me is there such things as a rich preppy ganster as

she wants to be one? LOL ( she lacks what a real ganster is she

things it is of a style of dress)

Sondra

[Guest guest]

the things is Missy really does not have of strong friendships

as she claims to have yet eitehr. she invited kids over but wants them

to leave after an hour. she ignores phone calls and such from them too.

most of her friendships comes from kids on spectrum as well or siblings

of kids on the spectrum who are more patient with her and or help her

in various roles but in the same essence she is somewhat very popular

among her peers at her special school for kids on the spectrum. But she

does claim to have much friends when in true she has little of them in

reality .

Sondra

[Guest guest]

the things is Missy really does not have of strong friendships

as she claims to have yet eitehr. she invited kids over but wants them

to leave after an hour. she ignores phone calls and such from them too.

most of her friendships comes from kids on spectrum as well or siblings

of kids on the spectrum who are more patient with her and or help her

in various roles but in the same essence she is somewhat very popular

among her peers at her special school for kids on the spectrum. But she

does claim to have much friends when in true she has little of them in

reality .

Sondra