Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Hello my name is Leanne my son Isaac has CBPS we are not new members but i have not been able to write due to computer problems . Isaac is now five and has been going along very well , this time last year we took him to a DR in melbourne who has worked with DR Dobyns his name is Rick Laventer ,he is probable familiar to those of you who attend the conferences every two years , it was good for us to find somebody that knew what they were taking about For the past year his health has been good we have only been to hospital three times. Twice with pnumonia and one to see if he had an ulcer which he did. We went on our first big holiday since having him this year ,up through the center of Australia to Darwin he stayed healthy even though it was very cold in the desert at night . he loved it and so did the other children isaac will start school next year i would like to keep him home for one more year but children in Australia have to be enrolled in school the year they turn six which is silly if the child needs more help We are trying to get funding for a speech aid as he still only has the speech of about nine month old but thats ok he more than makes up for it in other ways he is signing quite well it gets hard when he makes up his own signs . hope to be able to write more now. Leanne mum to Isaac 5 Caitlin 12 Ethan 10 and Madeline 8 (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi Leanne, I tend to just read all messages posted to this site but was excited to see something from a fellow Australian! I live in Sydney with my two sons (5) and (6.5 with PMG). Joshy started school last year. I too was worried for him but he's at a wonderful school and he absolutely loves it. He's just thriving.He has the most amazing memory. He's quite mobile but has poor fine motor skills, is developmentally delayed, drools constantly and is non verbal (well, he says several words - but only a select few know what they are - he tends to speak out of his throat). He attends Jasper Rd Public School. It's a mainstream school with a support unit. He has 6 children in his class. They're all beautiful, happy little kids. 's teacher signs and the children are all encouraged to sign whilst they speak. This has been such a joy for Joshy - finally other children to communicate with! And the encouragement to talk as well as sign has been wonderful. Finally, he's making a myriad of sounds and is happy to verbalise. (He's been to many speech therapists but I had to give them all away because Joshy was simply not interested to make an effort - it was just too difficult for him so he spent an hour misbehaving instead!!!). The mainstream children are so accepting and give all the 'special' kids loads of encouragement. almost has superstar status - I can't go anywhere without someone yelling out hello to him!!! I looked at many schools to find somewhere that had the right atmosphere for Joshy and I'm just so glad I did. Where abouts do you live? Tara hi from Isaac Hello my name is Leanne my son Isaac has CBPS we are not new members but i have not been able to write due to computer problems . Isaac is now five and has been going along very well , this time last year we took him to a DR in melbourne who has worked with DR Dobyns his name is Rick Laventer ,he is probable familiar to those of you who attend the conferences every two years , it was good for us to find somebody that knew what they were taking about For the past year his health has been good we have only been to hospital three times. Twice with pnumonia and one to see if he had an ulcer which he did. We went on our first big holiday since having him this year ,up through the center of Australia to Darwin he stayed healthy even though it was very cold in the desert at night . he loved it and so did the other children isaac will start school next year i would like to keep him home for one more year but children in Australia have to be enrolled in school the year they turn six which is silly if the child needs more help We are trying to get funding for a speech aid as he still only has the speech of about nine month old but thats ok he more than makes up for it in other ways he is signing quite well it gets hard when he makes up his own signs . hope to be able to write more now. Leanne mum to Isaac 5 Caitlin 12 Ethan 10 and Madeline 8 (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 Tara: Thank you for sharing 's experience at school. Although we have a while until we need to look into schools for Owen, it is very much a concern of ours. I was glad to hear that the mainstream kids are supportive. That is one of my biggest concerns and had prompted me to think about private schools or homeschooling (which both would be hard financially-but if it was necessary we would do it.) We will just need to do a lot of research and hopefully we will find a school like yours! Trish and Owen Tara Kennedy wrote: Hi Leanne, I tend to just read all messages posted to this site but was excited to see something from a fellow Australian! I live in Sydney with my two sons (5) and (6.5 with PMG). Joshy started school last year. I too was worried for him but he's at a wonderful school and he absolutely loves it. He's just thriving.He has the most amazing memory. He's quite mobile but has poor fine motor skills, is developmentally delayed, drools constantly and is non verbal (well, he says several words - but only a select few know what they are - he tends to speak out of his throat). He attends Jasper Rd Public School. It's a mainstream school with a support unit. He has 6 children in his class. They're all beautiful, happy little kids. 's teacher signs and the children are all encouraged to sign whilst they speak. This has been such a joy for Joshy - finally other children to communicate with! And the encouragement to talk as well as sign has been wonderful. Finally, he's making a myriad of sounds and is happy to verbalise. (He's been to many speech therapists but I had to give them all away because Joshy was simply not interested to make an effort - it was just too difficult for him so he spent an hour misbehaving instead!!!). The mainstream children are so accepting and give all the 'special' kids loads of encouragement. almost has superstar status - I can't go anywhere without someone yelling out hello to him!!! I looked at many schools to find somewhere that had the right atmosphere for Joshy and I'm just so glad I did. Where abouts do you live? Tara hi from Isaac Hello my name is Leanne my son Isaac has CBPS we are not new members but i have not been able to write due to computer problems . Isaac is now five and has been going along very well , this time last year we took him to a DR in melbourne who has worked with DR Dobyns his name is Rick Laventer ,he is probable familiar to those of you who attend the conferences every two years , it was good for us to find somebody that knew what they were taking about For the past year his health has been good we have only been to hospital three times. Twice with pnumonia and one to see if he had an ulcer which he did. We went on our first big holiday since having him this year ,up through the center of Australia to Darwin he stayed healthy even though it was very cold in the desert at night . he loved it and so did the other children isaac will start school next year i would like to keep him home for one more year but children in Australia have to be enrolled in school the year they turn six which is silly if the child needs more help We are trying to get funding for a speech aid as he still only has the speech of about nine month old but thats ok he more than makes up for it in other ways he is signing quite well it gets hard when he makes up his own signs . hope to be able to write more now. Leanne mum to Isaac 5 Caitlin 12 Ethan 10 and Madeline 8 (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 Trish, I'm not sure what the system is like over there but certainly here, when it comes to special needs children, the public education system seems to offer way more - I guess because legally, they must! I looked into private schooling (I always wanted my children to go to private schools) but these schools seemed to spend all the money of things suitable for the majority. They did not want to 'waste' resources on the individual. Mind you, with my main concern was not to place him somewhere that offered the best education but rather somewhere that had the nicest, most caring teachers and staff. By finding a school that catered for both mainstream and disabled children I found the best of both worlds. The teachers are so wonderful, patient and caring and the students are so used to seeing children with disabilities that they're not different in a bad way but special in a good way. These days I only have to worry about the cruelty of the adults and parents outside of school!!! I looked at many schools and sought alot of help from disability services in my area in order to find the best school. I think if you can find somewhere that caters for 'special' children then you're halfway there. If you can find somewhere that caters for both - then you've most likely got a winner. I hope you have the same experience as I did. I accepted long ago that Joshy wasn't going to be a rocket scientist - I just want him to be happy and to be able to learn as much as he can. hi from Isaac Hello my name is Leanne my son Isaac has CBPS we are not new members but i have not been able to write due to computer problems . Isaac is now five and has been going along very well , this time last year we took him to a DR in melbourne who has worked with DR Dobyns his name is Rick Laventer ,he is probable familiar to those of you who attend the conferences every two years , it was good for us to find somebody that knew what they were taking about For the past year his health has been good we have only been to hospital three times. Twice with pnumonia and one to see if he had an ulcer which he did. We went on our first big holiday since having him this year ,up through the center of Australia to Darwin he stayed healthy even though it was very cold in the desert at night . he loved it and so did the other children isaac will start school next year i would like to keep him home for one more year but children in Australia have to be enrolled in school the year they turn six which is silly if the child needs more help We are trying to get funding for a speech aid as he still only has the speech of about nine month old but thats ok he more than makes up for it in other ways he is signing quite well it gets hard when he makes up his own signs . hope to be able to write more now. Leanne mum to Isaac 5 Caitlin 12 Ethan 10 and Madeline 8 (Australia) Quote Link to comment Share on other sites More sharing options...
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