New Member

[Guest guest]

I second the I HATE PRED. It is the most eveil drug known to mankind.

Thank you for the warm welcome. I get so frustrated not having

anyone that understands this conditoin around me. I have no one to

talk to about it, and at the moment I really need that. I know some

of it is the pred, it makes me emotional and extremely grumpy.

What is the difference (other than the one puff, twice day) between

taking Advair, or a combinatin of serevent and pulmicort? The one

inhalaation twice a day sounds delightful,but what happens if I have

to raise the dose? My action plan has me increasing my pulmicort to

4 puffs, every four hours after albuterol when I'm in my yellow

zone. If that doesn't work, I start on prednisone (yippy skippy).

The option I see w/ advair is to just start pred, since taking more

advair would mean taking to much of the serevent component? Or am I

not thinking about this correctly?

Thanks

Brittney

>

> I HATE pred. I now have diabetes from having to take that stuff.

It's the most evil drug known to mankind. That said, welcome to the

group Brittney. I try my best to stay away from pred now. My doctor

just put me back on Theophylline. I also take Advair, Singulair, and

use Albuterol in an inhaler and nebulizer, plus Claritin for

allergies. Could you ask your doctor about the Advair and maybe a

nebulizer. These help me real well most of the time. I can have

problems with weather changes, in winter, and during hot, humid

summer days, but most of the time I do ok. I try to be careful about

getting sick, because I almost always end up with bronchitis or at

least a nasty attack. This is a great group and we'll help all we

can. We do understand where you're coming from because most of us

are in the same boat.

> Take care,

>

>

>

[Guest guest]

> What is the difference (other than the one puff, twice day) between

> taking Advair, or a combinatin of serevent and pulmicort?

I do not know the difference. But advair does come in different

strengths, but as far as I know, it's only one puff/2 day regardless

of the strength.

[Guest guest]

It comes in 3 strengths 100/50 250/50 or 500/50 depending on how bad

you are.

Yes recommended dose is 1 puff twice a day but my hospital consultant

had me on 2 puffs twice daily when I was

really bad. Only to be done in extreme cases under specialist though.

You will find it quickly gets your asthma stable, it is the best asthma

drug on the market according to my doctor.

June

>> What is the difference (other than the one puff, twice day) between

>> taking Advair, or a combinatin of serevent and pulmicort?

>

> I do not know the difference. But advair does come in different

> strengths, but as far as I know, it's only one puff/2 day regardless

> of the strength.

>

>

[Guest guest]

Pulmicort is an inhaled corticosteroid. The Advair has Fluticasone as the steroid component along with the Salmeterol (Serevent). You would use it instead of the Pulmicort, maybe adding a puff or two of the Pulmicort only if you're in the yellow. The dosage for the Advair is, 1 puff twice a day, does make it nice. I remember my meds better when I don't have to take them so often. One thing that could help others in the group with that is if you have a cell phone with a calendar and alarm, you can set up daily reminder alarms. I did that and my alarm goes off at the times I need to take my meds.

I know if my asthma kicks up, I do not increase the dosage of my Advair. I am allowed to use more Albuterol if needed and if that doesn't help, I'm to call the doctor or go to the ER. My doctor will only use pred as an absolutely last resort now because I'm diabetic. Pred can cause the moodies, so I do understand how you feel. Anytime you need to talk or vent, we're here. All of us know what it's like to have asthma. It and diabetes are nasty diseases and we need all the support we can get. It's a shame when family and friends don't understand what we deal with daily. They can breathe so they don't know what it's like not being able to. I tell people to try breathing through a plastic bag for a few seconds or watch a fish flounder out of the water. That's what it feels like with asthma when you're in the middle of an attack. That usually helps them understand a little better.

Take care,

briley91782 wrote:

I second the I HATE PRED. It is the most eveil drug known to mankind.Thank you for the warm welcome. I get so frustrated not having anyone that understands this conditoin around me. I have no one to talk to about it, and at the moment I really need that. I know some of it is the pred, it makes me emotional and extremely grumpy. What is the difference (other than the one puff, twice day) between taking Advair, or a combinatin of serevent and pulmicort? The one inhalaation twice a day sounds delightful,but what happens if I have to raise the dose? My action plan has me increasing my pulmicort to 4 puffs, every four hours after albuterol when I'm in my yellow zone. If that doesn't work, I start on prednisone (yippy skippy).The option I see w/ advair is to just start pred, since taking more advair would mean taking to much of the

serevent component? Or am I not thinking about this correctly? ThanksBrittney>> I HATE pred. I now have diabetes from having to take that stuff. It's the most evil drug known to mankind. That said, welcome to the group Brittney. I try my best to stay away from pred now. My doctor just put me back on Theophylline. I also take Advair, Singulair, and use Albuterol in an inhaler and nebulizer, plus Claritin for allergies. Could you ask your doctor about the Advair and maybe a nebulizer. These help me real well most of the time. I can have problems with weather changes, in winter, and during hot, humid summer days, but most of the time I do ok. I try to be careful about getting sick, because I almost always end up with bronchitis or at least a nasty attack. This is a great group and we'll help all we can. We do understand

where you're coming from because most of us are in the same boat.> Take care,> > >God bless you!

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

My now I am so anxious its says on that site that mold can even kill a person, oh my I think i will hav eto move into a hotel and leave my family here!

[Guest guest]



Hi :

Do you sleep better on 2-3 pillows, or do you still wake up gasping?

Shortness of breath is sometimes caused by lungs and sometimes caused by heart.

What does your doctor say?

Do you take any medicines for it?

How clean an environment is your bedroom? No dogs or cats?

Carol

Medica wrote:

There would be days i would wake up in the middle of the night ormorning wheezing and gasping for breath.

[Guest guest]



Hi :

If your main problem is that you wake up short of breath, then much of your problem could be in your bedroom. Drapes can cause dust to settle, carpets can cause dust, there are allergy casings for mattresses and boxed springs, same for pillows, bedding should be washed weekly, room should be cleaned at least weekly, maybe more. All that will help you get rid of dust mites, dust, etc.

My reason for asking about the pillows is that if shortness of breath is caused by heart, you will be more comfortable with more pillows. If it's allergy, that probably won't make a difference.

If you are still short of breath at night, you need to see your doctor again so that he can give you a medicine that will carry you through the night and better control your symptoms. You might also consider allergy shots.

Good luck,

Carol

Medica wrote:

> Do you sleep better on 2-3 pillows, or do you still wake upgasping?Never tried that, this prob. 3rd episode> Shortness of breath is sometimes caused by lungs and sometimescaused by heart.> What does your doctor say?I might be asthmatic, i went for allergy test and a pulmonary functiontest. Turns out am allergic to dust, dust mites, moulds, feathers,cats, grass> Do you take any medicines for it?Doctor prescribed me blue inhailer for wheezing, and used it onlyonce so far.> How clean an environment is your bedroom?Pretty clean, other then vacuum once a week.No dogs or cats? None

[Guest guest]

Do you feel better after a few minutes of being awake? If you do,

you also may want to consider obstructive sleep apnea. Are you a

heavy guy/girl? Do you snore at night. Has anyone ever told you that

you stop breathing while sleeping? Do you wake up with a headache?

> > Do you sleep better on 2-3 pillows, or do you still wake

up

> gasping?

> Never tried that, this prob. 3rd episode

>

> > Shortness of breath is sometimes caused by lungs and

sometimes

> caused by heart.

>

> > What does your doctor say?

> I might be asthmatic, i went for allergy test and a pulmonary

function

> test. Turns out am allergic to dust, dust mites, moulds,

feathers,

> cats, grass

>

> > Do you take any medicines for it?

> Doctor prescribed me blue inhailer for wheezing, and used it only

> once so far.

>

> > How clean an environment is your bedroom?

> Pretty clean, other then vacuum once a week.

>

> No dogs or cats? None

>

[Guest guest]

> > > Do you sleep better on 2-3 pillows, or do you still wake

> up

> > gasping?

> > Never tried that, this prob. 3rd episode

> >

> > > Shortness of breath is sometimes caused by lungs and

> sometimes

> > caused by heart.

> >

> > > What does your doctor say?

> > I might be asthmatic, i went for allergy test and a pulmonary

> function

> > test. Turns out am allergic to dust, dust mites, moulds,

> feathers,

> > cats, grass

> >

> > > Do you take any medicines for it?

> > Doctor prescribed me blue inhailer for wheezing, and used it only

> > once so far.

> >

> > > How clean an environment is your bedroom?

> > Pretty clean, other then vacuum once a week.

> >

> > No dogs or cats? None

> >

>

[Guest guest]

Certain kinds of mold can harm a person. It can be harder on someone sensitive to it. I have a friend who is more sensitive to most molds than I am. If it hurts you that much, you may have to find another place for your whole family or try again to get rid of the mold in your house. melly@... wrote: My now I am so anxious its says on that site that mold can even kill a person, oh my I think i will hav eto move into a hotel and leave my family here! God bless you!__________________________________________________

[Guest guest]

Hi :

We are trying to narrow down what could be possibly causing your problem of waking up short of breath during the night. Matt, who is a respiratory therapist, brought up the possibility of sleep apnea, a frequent cause of night-time shortness of breath. But based on your answers to his questions, I think it's not a likely cause in your case. My advice would be to go back to your doctor and consider the approach of asthma caused by allergies and try to make your bedroom as allergen-free as possible.

Carol

Medica wrote:

Are you a heavy guy/girl? NODo you snore at night. NOHas anyone ever told you that you stop breathing while sleeping?Do you wake up with a headache? NOOk. where going with all this... hmmm

[Guest guest]

> Are you a heavy guy/girl? NO

> Do you snore at night. NO

> Has anyone ever told you that you stop breathing while sleeping?

> Do you wake up with a headache? NO

>

> Ok. where going with all this... hmmm

>

[Guest guest]

I agree, this does not sound like OSA.

> > Are you a heavy guy/girl? NO

> > Do you snore at night. NO

> > Has anyone ever told you that you stop breathing while

sleeping?

> > Do you wake up with a headache? NO

> >

> > Ok. where going with all this... hmmm

> >

>

[Guest guest]

hi i sleep om 3 pillows allergic to dogs cats birds neighbor has a a dog and bird i dont go to often but when i do i wash everything i wear and wash up really good one of our friends gave me a nice christmas pillow and i had it around in my bedroom i had to take it out and have it in the living room beacuse i was coughing and wheezing alot i had to neb a few times its not worth having the pillow in the room. josie Medica wrote: >> Hi :Hi Carol> Do you sleep better on 2-3 pillows, or do you still wake upgasping?Never tried that, this prob. 3rd episode> Shortness of breath is sometimes caused by lungs and sometimescaused

by heart.> What does your doctor say?I might be asthmatic, i went for allergy test and a pulmonary functiontest. Turns out am allergic to dust, dust mites, moulds, feathers,cats, grass> Do you take any medicines for it?Doctor prescribed me blue inhailer for wheezing, and used it onlyonce so far.> How clean an environment is your bedroom?Pretty clean, other then vacuum once a week.No dogs or cats? None> Carol

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

>

> oh am i ever mom knows every time we go out on trips we say no down

quilts or pillows we didnt once mom was listening tome so close i

was sleeping so sound josie

Can't say for sure if feather maybe the cause of the coughing/

wheezing. It could be possible dust mite cause too.

Have safe holiday. Medica

> Hi josie

> Are you allergic to feathers, reason am asking is

> pillows maybe feather pillows maybe cause of you coughing and

> wheezing.

>

[Guest guest]

Well, I think most of us have...

Jeanette French

new member

i have very painful fibro and chronic fatigue that has me in bed more

then i woild like to be,i have lived a very active life up until i gor

the fibro. i worked and and did what i wanted to. that life was 5

years ago. now i am in bed a lot and in pain every day. this has been

a difficult adjustment for me. i have still not accepted what has

happened to me. anyone else have this kind of experience?/

cinny

[Guest guest]

Cinny,

It's definitely a process. No one is prepared for this disease and it just

takes time to adjust. Hang in there, try to stay positive and keep us in the

loop......we can relate and there is comfort in that!

Jane

Jeanette French wrote:

Well, I think most of us have...

Jeanette French

[Guest guest]

Cinny,

It's definitely a process. No one is prepared for this disease and it just

takes time to adjust. Hang in there, try to stay positive and keep us in the

loop......we can relate and there is comfort in that!

Jane

Jeanette French wrote:

Well, I think most of us have...

Jeanette French

new member

i have very painful fibro and chronic fatigue that has me in bed more

then i woild like to be,i have lived a very active life up until i gor

the fibro. i worked and and did what i wanted to. that life was 5

years ago. now i am in bed a lot and in pain every day. this has been

a difficult adjustment for me. i have still not accepted what has

happened to me. anyone else have this kind of experience?/

cinny

[Guest guest]

Hi Peggy, I go to a Reumy, they seem to be the ones who have been dealing with

the fibro and stuff the most. It falls under the heading of Arthritis, also on

the ARTHRITIS foundation HOME PAGE IS INFO ABOUT IT,

thanks AND GOOD LUCK,

Jeanette French

new member

I'm Peggy, 61, diagnosed last Dec. with mononeuritis multiplex - secondary to

anticardiolipin antibody syndrome. The dr. who did the dx is a neurologist (and

his sign also says rhumatologist). The first part is an auto immune problem

that affects the nerves in my hands and is not common. I now have sensations in

my hands that I would have if I had carpel tunnel. This is certainly better

than the sudden onset where I felt like I had a boxing glove at the end of my

left wrist. The second one is an antibody problem that I have been told causes

blood clots.

[Guest guest]

Peggy, I don't see any doctors and haven't since I moved back to North

America 3 years ago from Germany. There I worked for and was treated

by an MD who was trained in Chinese Medicine and homeopathy. She was

getting to the root of the problem, not covering up symptoms with

pharmaceuticals which will work against your body.

I would suggest seeing a naturopath to find out why you have this

rather than a doctor. A naturopathic doctor goes to school for about

7 years and knows how the body works and will work in harmony with it.

There are many non-invasive ways to solve problems like auto-immune

diseases and tingling, etc.

It sounds to me like you have an energy imbalance. There are different

ways to solve this for example EFT, magnets, ionic baths, perhaps diet

(can't say without knowing how you eat now), acupuncture (if you can

find a good acupuncturist), etc. Just an idea. I don't think any

medical doctor can help you.

Sharon

My question for you all is what kind of dr. do you generally see?

Neurologist, rhumatologist, or immunologist?

Any insight you could give me will be greatly appreciated tho.

>

> Peggy in CA

[Guest guest]

Hi Peggy:

I don't have the pain really. Only sometimes I have minor FM. I have CFS

with debilitating fatigue. I only have two days left of work as I had to quit

my job because of CFS.

I go to Dr. Bell who is my CFS specialist. I have a regular doctor who

doesn't understand any of this. But Dr. Bell talks to her on the phone and

explains things to her.

I also have a rheumatologist but he doesn't understand about my CFS.

Lou

Peggy Taranenko wrote:

I'm Peggy, 61, diagnosed last Dec. with mononeuritis multiplex - secondary to

anticardiolipin antibody syndrome. The dr. who did the dx is a neurologist (and

his sign also says rhumatologist). The first part is an auto immune problem

that affects the nerves in my hands and is not common. I now have sensations in

my hands that I would have if I had carpel tunnel. This is certainly better

than the sudden onset where I felt like I had a boxing glove at the end of my

left wrist. The second one is an antibody problem that I have been told causes

blood clots. I did have blood clots 3 years ago when I was undergoing chemo and

have since found out that I did have the acl syndrome then - but no one was sure

if it was that or the chemo or the cancer or the combination that caused the

blood clots.

[Guest guest]

Hi Elaine,

I'm Ginny, and in NJ. I also have CFS and Fibro. Glad to see that you

have good doctor and that Guaifenesin works for you. I also take Guaifenesin

but for me it is not a crue all. I have been out of work since 1993. Give me

a yell...

(((Soft Hugs)))

Ginny

eknetzer wrote:

Hi , my name is Elaine and I have cfs and fibromyalgia. I live in the

Long Beach area. I have had very good luck treating the fibro with

guaifenesin. An expectorant medicine. I have been on disability

since 1999 because of the cfs. I would very much like to hear from

people with fibro and cfs. Sincerely, Elaine

[Guest guest]

Welcome Elaine,

I'm Jane, live in St. Louis and have CFIDS also. I'm now in the appeals for

my disability, don't know how that will go, but, wish me luck.

Everyone here is great and full of useful info.

Stay well,

Jane

eknetzer wrote:

Hi , my name is Elaine and I have cfs and fibromyalgia. I live in the

Long Beach area. I have had very good luck treating the fibro with

guaifenesin. An expectorant medicine. I have been on disability

since 1999 because of the cfs. I would very much like to hear from

people with fibro and cfs. Sincerely, Elaine

[Guest guest]

Hi /Elaine:

I am sorry to hear that you have to deal with Workman's Comp. I can imagine

they are just as bad as other social services. All they want to do is get

rid of us off their roster, and they don't care how.

I am not sure if Social Services in your area would help you anymore or not,

you could try.

Hi Elaine,

I am 47, 3 years ago DS with Fibro/CFS, recently Psoriatic Arthritis. I have

a SS hearing June 6, really scared about it. This is it, my only chance to

get it. I can't take expectorants as they make my heart race so never tried

this stuff. hope you have good luck with it, some do

Jeanette

[Guest guest]

Jeanette,

It took me 3 times to get SSDI, but I finally went before a judge and he

approved me. I also had an attorney to represent me at the hearing. If you don't

have one now, consider one if you go to arbitration. They know how to present

your case to the judge to get it approved. It won't cost anything out-of-pocket

because they are paid for when you are approved thru your settlement w/SSDI.

Keep fighting because I've done research that says that by the 3rd time you

usually get approved, especially with these diseases. I will pray for you and

keep good thoughts.

God Bless,

Jeanette French wrote:

Hi /Elaine:

I am sorry to hear that you have to deal with Workman's Comp. I can imagine

they are just as bad as other social services. All they want to do is get

rid of us off their roster, and they don't care how.