Guest guest Posted February 10, 2003 Report Posted February 10, 2003 In a message dated 2/10/2003 10:23:44 PM Pacific Standard Time, bgarland@... writes: > I'm not a qualified parent, but I am curious about some of the beliefs that > you're trying to work with. > Hey Bev...and if you *were* a qualified parent, what would that look like? Is that different from just being a plain ol' parent? Are the only people qualified to respond to his posts *parents*? Quote
Guest guest Posted February 11, 2003 Report Posted February 11, 2003 > -----Original Message----- > From: smilemona@... > > Hey Bev...and if you *were* a qualified parent, what would that > look like? Is > that different from just being a plain ol' parent? Are the only people > qualified to respond to his posts *parents*? Ed asked for responses from parents who'd done work on their children. I don't meet Ed's stated qualifications, and I so I let him know that, and I answered anyway. Love, Bev Quote
Guest guest Posted February 11, 2003 Report Posted February 11, 2003 hi ed- i am a parent and i have heard katie do the work with people on their children.....i have heard her suggest that people might say things like- " i understand you don't want to leave and we are leaving now. " i used some of that when i was an elementary principal.....sometimes there would be a student who needed to be removed from a classroom - i when they refused to leave, a teacher would call for me- i always gave them choices ( as april suggested) " we need to talk about what's going on here in private- so let's go to my office or in the hall.....would you rather walk or have me carry you.... " lovingly laurie new to group I just recently completed the book and while I am totally mesmorized and feel lighter than I have in years and know there is more work to be done because I don't understand how to apply this to practical situations. ie. as a parent i am constantly learning that the more that I try to control the kids actions, the more they control me. However, what to do if they are out somewhere in public and they won't leave with you if you ask them to ? I would have a problem with leaving them if they refused to come when asked. There are other examples but I'm looking for those of you out there that have done the work on these situations and can see where i'm going with this? thanks, ed Quote
Guest guest Posted May 18, 2004 Report Posted May 18, 2004 , You are definetly not alone - there are many of us here happy to share whatever we can or just to listen. So feel at home as there are so many wonderful, caring people on this loop who know just what your going thru! My son Max is almost 4(June). Max has spastic quad CP, seizures, vision impairment, and is non-verbal. He doesn't sit, roll, and even has trouble with head control. He has difficulty holding objects for very long, and has feeding issues. But here's what he can do: He can hold onto a hula hoop while being pulled around on a scooter board. He can light up a room with the greatest smile and beautiful eyes. He's learning switches for alternative communication - he can " all done " everytime. and many other small victories that mean alot. Glad you've joined us. Joanie ( & Max) Quote
Guest guest Posted February 24, 2005 Report Posted February 24, 2005 Hi, We have found that a neurodevelopment program works really well. You can check it out at: _www.hope-future.org_ (http://www.hope-future.org) _www.ican.org_ (http://www.ican.org) We have done just about everything with our son, so if you have any questions about a specific therapy, I will try to help. Quote
Guest guest Posted February 24, 2005 Report Posted February 24, 2005 Hi Serina and welcome, I have a son, 7, who has left unilateral PMG. We are participating in the Walsh Lab's research, but have not been to the clinic. Dr. Dobyns at U of Chicago is another expert in the field that you might want to consult. With PMG, the way it presents is different in every person. You will find that in this group there are kids that range from severely disabled to very mild physical problems and normal intelligence. For example, my son is in the normal range for intelligence, but has some learning disabilities and has hemiparesis. Some children are unable to walk or talk and have to have a G tube due to swallowing difficulties. The one thing you should be aware of is the possibility of seizures. For my son, , seizures have been the most debilitating aspect of the PMG. I am intersted in why they determined that you should be tested for CMV. Was is before she was born? I always wondered why my wife was never tested. -Steve --- lizziesmom2 wrote: > > Hello my name is Serina and I just joined the group > yesterday. I am > just looking for any information I can find on > Polymicrogyria. My > daughter was born on April 24 2004 and was > immeadiatley > sent to surgery to repair a bowl obstruction. We > knew in advance > that she would need surgery becuase the problem was > detected on a > ultrasound. We went throuh millions of test before > she was born and > all turned out okay. The only thing we were > expecting was the > surgery. The morning after the surnget the dr's > mentioned that she > had a small head (microcephely) and wanted to test > her for CMV. > First of all I didn;t notice her small head and > second I had been > tested for CMV and the test was negative so I was > not worried. 3 > days later we found out that the test was positive. > We spent 2 1/2 > months in the NICU at Eggleston in Atlanta and the > doctors ran > several more tests related to the CMV, all were > inconclusive. We > left the hospital being told that Lizzie would have > mild to severe > delays. (what does that mean?)... > > At six months she followed up with Neurologist, > Opthomologist, > Audiologist. The Neurologist diagnosed here with > Poloymicrogyria > (maybe) and left it at that. We found a website for > Dr. Walsh and > started to correspond with Adria in his office. We > ended up sending > them her MRI's and they confirmed that she had > polymicrogyria > (specifally in the Bilateral Temporal > Frontalpariatal areas). We > have an appointment in their clinic in boston on > Monday. Has anyone > ever delt with this group? > > Lizzie is now 10 months old and progress is very > slow. She smiles > and laughs all of the time. She is despratley > trying to crawl. She > is not sitting, because she is weak in her back. > She goes back and > forth from no tone to too much tone. She loves to > play with her 3 > year old brother. We take her to PT and OT once a > week. Some days I > think it is helping and others I wonder. > > I would appreciate any information you would like to > give. I am > always looking for new ways to stimulate Lizzie, so > if you have any > suggestions please pass those along as well. Thank > you for > listening. > > > > __________________________________________________ Quote
Guest guest Posted February 24, 2005 Report Posted February 24, 2005 Steve, Thank you for responding. In regards to the CMV. I was originally tested in the beginning of my second trimester when the doctors saw fluid in lizzies belly. They did two amnios and ran every blood test they could. I was told she had a million different problems (the doctors were certain) however when the results came back everything checked out. By that point they were able to see the obstruction. The CMV test was just something I was told they always ran where they were uncertain what the problem was. We had ultrasounds done almost weekly and no one ever said anything about a small head, but the morning after Lizzie was born the neonatologist said that lizzies head was abnormally small and that often times CMV can be the cause of Microcephely. I was recently tested for CMV again just for piece of mind and it came back that I have been infected at some point in my life but not recently. The doctors are really confused about that. I am hoping to learn more on Monday when we meet with Dr Walsh and Dr. Chang. I have been really concerned about seizures however to date we have not seen anything out of the ordinary. So far eats like a champ on her own, so no problems there. I just get frustrated some days not knowing...what tomorrow will bring. Right now her neurologist says she wants her in a Prone Stander ($5-6K) and AFO braces while she is in the stander. Her Peds doctor and P.T. are not sure she is ready for that at only 10 months. How do you know who to believe when they disagree ???? Is your only Child? My husband and I had pretty much decided we only wanted 2 children, this pretty much sealed the deal. Not knowing what lizzie will need and having an extreamly extreamly hyper, never stops, 3 year old. I don't think I could keep up with anymore. One more quick question. How old was when he had is first siezure? Did you know right away? Thanks Serina Steve Barr wrote: Hi Serina and welcome, I have a son, 7, who has left unilateral PMG. We are participating in the Walsh Lab's research, but have not been to the clinic. Dr. Dobyns at U of Chicago is another expert in the field that you might want to consult. With PMG, the way it presents is different in every person. You will find that in this group there are kids that range from severely disabled to very mild physical problems and normal intelligence. For example, my son is in the normal range for intelligence, but has some learning disabilities and has hemiparesis. Some children are unable to walk or talk and have to have a G tube due to swallowing difficulties. The one thing you should be aware of is the possibility of seizures. For my son, , seizures have been the most debilitating aspect of the PMG. I am intersted in why they determined that you should be tested for CMV. Was is before she was born? I always wondered why my wife was never tested. -Steve --- lizziesmom2 wrote: > > Hello my name is Serina and I just joined the group > yesterday. I am > just looking for any information I can find on > Polymicrogyria. My > daughter was born on April 24 2004 and was > immeadiatley > sent to surgery to repair a bowl obstruction. We > knew in advance > that she would need surgery becuase the problem was > detected on a > ultrasound. We went throuh millions of test before > she was born and > all turned out okay. The only thing we were > expecting was the > surgery. The morning after the surnget the dr's > mentioned that she > had a small head (microcephely) and wanted to test > her for CMV. > First of all I didn;t notice her small head and > second I had been > tested for CMV and the test was negative so I was > not worried. 3 > days later we found out that the test was positive. > We spent 2 1/2 > months in the NICU at Eggleston in Atlanta and the > doctors ran > several more tests related to the CMV, all were > inconclusive. We > left the hospital being told that Lizzie would have > mild to severe > delays. (what does that mean?)... > > At six months she followed up with Neurologist, > Opthomologist, > Audiologist. The Neurologist diagnosed here with > Poloymicrogyria > (maybe) and left it at that. We found a website for > Dr. Walsh and > started to correspond with Adria in his office. We > ended up sending > them her MRI's and they confirmed that she had > polymicrogyria > (specifally in the Bilateral Temporal > Frontalpariatal areas). We > have an appointment in their clinic in boston on > Monday. Has anyone > ever delt with this group? > > Lizzie is now 10 months old and progress is very > slow. She smiles > and laughs all of the time. She is despratley > trying to crawl. She > is not sitting, because she is weak in her back. > She goes back and > forth from no tone to too much tone. She loves to > play with her 3 > year old brother. We take her to PT and OT once a > week. Some days I > think it is helping and others I wonder. > > I would appreciate any information you would like to > give. I am > always looking for new ways to stimulate Lizzie, so > if you have any > suggestions please pass those along as well. Thank > you for > listening. > > > > __________________________________________________ Quote
Guest guest Posted February 27, 2005 Report Posted February 27, 2005 Steve, Could you please explain to me what the sighns of this seizure type is? Thanks, Kristie Steve Barr wrote: is the oldest. We have two others, Maggie and , 3 and 18m. never required too much extra care, just the PT and OT. He is pretty much a normal kid with a few mild disabilities. We were a little worried about having others since we have no idea why has PMG. The best guess now is a chemical fire that my wife was exposed to in her second trimester. The first seizure that we saw was when was 5 and it was a tonic-clonic. There was no mistaking what it was, but we thought he was choking on something. We thought that since he hasn't had any seizures up until then, that he wouldn't have them ever. So we weren't expecting a seizure. We think he might of had other previous seizures in his sleep. Now has a rare epilepsy disorder called CSWS. It turns out that it's common for kids with PMG. It is characterised by continuous spike and waves during sleep, accompanied by atypical absences, complex partials, and generalized tonic-clonics, mainly nocturnal, followed by a cognitive and developmental stagnation or regression. This has been the most handicapping aspect of the PMG. -Steve --- Serina McCoy wrote: > Steve, > > Thank you for responding. In regards to the CMV. I > was originally tested in the beginning of my second > trimester when the doctors saw fluid in lizzies > belly. They did two amnios and ran every blood test > they could. I was told she had a million different > problems (the doctors were certain) however when the > results came back everything checked out. By that > point they were able to see the obstruction. The > CMV test was just something I was told they always > ran where they were uncertain what the problem was. > We had ultrasounds done almost weekly and no one > ever said anything about a small head, but the > morning after Lizzie was born the neonatologist said > that lizzies head was abnormally small and that > often times CMV can be the cause of Microcephely. > I was recently tested for CMV again just for piece > of mind and it came back that I have been infected > at some point in my life but not recently. The > doctors are really confused about that. I am hoping > to learn more on Monday when we > meet with Dr Walsh and Dr. Chang. > > I have been really concerned about seizures however > to date we have not seen anything out of the > ordinary. So far eats like a champ on her > own, so no problems there. I just get frustrated > some days not knowing...what tomorrow will bring. > Right now her neurologist says she wants her in a > Prone Stander ($5-6K) and AFO braces while she is in > the stander. Her Peds doctor and P.T. are not sure > she is ready for that at only 10 months. How do you > know who to believe when they disagree ???? > > Is your only Child? My husband and I had > pretty much decided we only wanted 2 children, this > pretty much sealed the deal. Not knowing what > lizzie will need and having an extreamly extreamly > hyper, never stops, 3 year old. I don't think I > could keep up with anymore. > > One more quick question. How old was when he > had is first siezure? Did you know right away? > > Thanks > Serina > > Steve Barr wrote: > Hi Serina and welcome, > > I have a son, 7, who has left unilateral PMG. We are > participating in the Walsh Lab's research, but have > not been to the clinic. Dr. Dobyns at U of Chicago > is > another expert in the field that you might want to > consult. > > With PMG, the way it presents is different in every > person. You will find that in this group there are > kids that range from severely disabled to very mild > physical problems and normal intelligence. For > example, my son is in the normal range for > intelligence, but has some learning disabilities and > has hemiparesis. Some children are unable to walk or > talk and have to have a G tube due to swallowing > difficulties. The one thing you should be aware of > is > the possibility of seizures. For my son, , > seizures have been the most debilitating aspect of > the > PMG. > > I am intersted in why they determined that you > should > be tested for CMV. Was is before she was born? I > always wondered why my wife was never tested. > > -Steve > --- lizziesmom2 wrote: > > > > > Hello my name is Serina and I just joined the > group > > yesterday. I am > > just looking for any information I can find on > > Polymicrogyria. My > > daughter was born on April 24 2004 and > was > > immeadiatley > > sent to surgery to repair a bowl obstruction. We > > knew in advance > > that she would need surgery becuase the problem > was > > detected on a > > ultrasound. We went throuh millions of test > before > > she was born and > > all turned out okay. The only thing we were > > expecting was the > > surgery. The morning after the surnget the dr's > > mentioned that she > > had a small head (microcephely) and wanted to test > > her for CMV. > > First of all I didn;t notice her small head and > > second I had been > > tested for CMV and the test was negative so I was > > not worried. 3 > > days later we found out that the test was > positive. > > We spent 2 1/2 > > months in the NICU at Eggleston in Atlanta and the > > doctors ran > > several more tests related to the CMV, all were > > inconclusive. We > > left the hospital being told that Lizzie would > have > > mild to severe > > delays. (what does that mean?)... > > > > At six months she followed up with Neurologist, > > Opthomologist, > > Audiologist. The Neurologist diagnosed here with > > Poloymicrogyria > > (maybe) and left it at that. We found a website > for > > Dr. Walsh and > > started to correspond with Adria in his office. We > > ended up sending > > them her MRI's and they confirmed that she had > > polymicrogyria > > (specifally in the Bilateral Temporal > > Frontalpariatal areas). We > > have an appointment in their clinic in boston on > > Monday. Has anyone > > ever delt with this group? > > > > Lizzie is now 10 months old and progress is very > > slow. She smiles > > and laughs all of the time. She is despratley > > trying to crawl. She > > is not sitting, because she is weak in her back. > > She goes back and > > forth from no tone to too much tone. She loves to > > play with her 3 > > year old brother. We take her to PT and OT once a > > week. Some days I > > think it is helping and others I wonder. > > > > I would appreciate any information you would like > to > > give. I am > > always looking for new ways to stimulate Lizzie, > so > > if you have any > > suggestions please pass those along as well. > Thank > > you for > > listening. > > > > > > > > > > __________________________________________________ > Quote
Guest guest Posted February 28, 2005 Report Posted February 28, 2005 Dear Serina, I live in Georgia too and used Egleston for several years. I now use ish Rite. My youngest has Polymicrogyria too that was diagnosed at Egleston as a neuronal migration disorder (mild). She was in their NICU for 5 weeks until I brought her home. She turned 5 years old in October 2004. Where do you live in Georgia? Deborah Salter Leesburg, GA New to Group > > > Hello my name is Serina and I just joined the group yesterday. I am > just looking for any information I can find on Polymicrogyria. My > daughter was born on April 24 2004 and was immeadiatley > sent to surgery to repair a bowl obstruction. We knew in advance > that she would need surgery becuase the problem was detected on a > ultrasound. We went throuh millions of test before she was born and > all turned out okay. The only thing we were expecting was the > surgery. The morning after the surnget the dr's mentioned that she > had a small head (microcephely) and wanted to test her for CMV. > First of all I didn;t notice her small head and second I had been > tested for CMV and the test was negative so I was not worried. 3 > days later we found out that the test was positive. We spent 2 1/2 > months in the NICU at Eggleston in Atlanta and the doctors ran > several more tests related to the CMV, all were inconclusive. We > left the hospital being told that Lizzie would have mild to severe > delays. (what does that mean?)... > > At six months she followed up with Neurologist, Opthomologist, > Audiologist. The Neurologist diagnosed here with Poloymicrogyria > (maybe) and left it at that. We found a website for Dr. Walsh and > started to correspond with Adria in his office. We ended up sending > them her MRI's and they confirmed that she had polymicrogyria > (specifally in the Bilateral Temporal Frontalpariatal areas). We > have an appointment in their clinic in boston on Monday. Has anyone > ever delt with this group? > > Lizzie is now 10 months old and progress is very slow. She smiles > and laughs all of the time. She is despratley trying to crawl. She > is not sitting, because she is weak in her back. She goes back and > forth from no tone to too much tone. She loves to play with her 3 > year old brother. We take her to PT and OT once a week. Some days I > think it is helping and others I wonder. > > I would appreciate any information you would like to give. I am > always looking for new ways to stimulate Lizzie, so if you have any > suggestions please pass those along as well. Thank you for > listening. > > > > > > > > Quote
Guest guest Posted February 28, 2005 Report Posted February 28, 2005 Serina, Are you going to have to purchase the prone stander out of pocket or do you have insurance and/or Medicaid to cover it? I have Abigail's that is just like new here that I will sell you for less than you can buy a new one. If you are interested, let me know. I have appts in Atlanta near ish Rite on March 11th and April 11th for Abigail so I could bring it to you if you live in the Atlanta area. Deborah Salter Leesburg, GA. Re: New to Group > > Steve, > > Thank you for responding. In regards to the CMV. I was originally tested in the beginning of my second trimester when the doctors saw fluid in lizzies belly. They did two amnios and ran every blood test they could. I was told she had a million different problems (the doctors were certain) however when the results came back everything checked out. By that point they were able to see the obstruction. The CMV test was just something I was told they always ran where they were uncertain what the problem was. We had ultrasounds done almost weekly and no one ever said anything about a small head, but the morning after Lizzie was born the neonatologist said that lizzies head was abnormally small and that often times CMV can be the cause of Microcephely. I was recently tested for CMV again just for piece of mind and it came back that I have been infected at some point in my life but not recently. The doctors are really confused about that. I am hoping to learn more on Monday when we > meet with Dr Walsh and Dr. Chang. > > I have been really concerned about seizures however to date we have not seen anything out of the ordinary. So far eats like a champ on her own, so no problems there. I just get frustrated some days not knowing...what tomorrow will bring. Right now her neurologist says she wants her in a Prone Stander ($5-6K) and AFO braces while she is in the stander. Her Peds doctor and P.T. are not sure she is ready for that at only 10 months. How do you know who to believe when they disagree ???? > > Is your only Child? My husband and I had pretty much decided we only wanted 2 children, this pretty much sealed the deal. Not knowing what lizzie will need and having an extreamly extreamly hyper, never stops, 3 year old. I don't think I could keep up with anymore. > > One more quick question. How old was when he had is first siezure? Did you know right away? > > Thanks > Serina > > Steve Barr wrote: > Hi Serina and welcome, > > I have a son, 7, who has left unilateral PMG. We are > participating in the Walsh Lab's research, but have > not been to the clinic. Dr. Dobyns at U of Chicago is > another expert in the field that you might want to > consult. > > With PMG, the way it presents is different in every > person. You will find that in this group there are > kids that range from severely disabled to very mild > physical problems and normal intelligence. For > example, my son is in the normal range for > intelligence, but has some learning disabilities and > has hemiparesis. Some children are unable to walk or > talk and have to have a G tube due to swallowing > difficulties. The one thing you should be aware of is > the possibility of seizures. For my son, , > seizures have been the most debilitating aspect of the > PMG. > > I am intersted in why they determined that you should > be tested for CMV. Was is before she was born? I > always wondered why my wife was never tested. > > -Steve > --- lizziesmom2 wrote: > > > > > Hello my name is Serina and I just joined the group > > yesterday. I am > > just looking for any information I can find on > > Polymicrogyria. My > > daughter was born on April 24 2004 and was > > immeadiatley > > sent to surgery to repair a bowl obstruction. We > > knew in advance > > that she would need surgery becuase the problem was > > detected on a > > ultrasound. We went throuh millions of test before > > she was born and > > all turned out okay. The only thing we were > > expecting was the > > surgery. The morning after the surnget the dr's > > mentioned that she > > had a small head (microcephely) and wanted to test > > her for CMV. > > First of all I didn;t notice her small head and > > second I had been > > tested for CMV and the test was negative so I was > > not worried. 3 > > days later we found out that the test was positive. > > We spent 2 1/2 > > months in the NICU at Eggleston in Atlanta and the > > doctors ran > > several more tests related to the CMV, all were > > inconclusive. We > > left the hospital being told that Lizzie would have > > mild to severe > > delays. (what does that mean?)... > > > > At six months she followed up with Neurologist, > > Opthomologist, > > Audiologist. The Neurologist diagnosed here with > > Poloymicrogyria > > (maybe) and left it at that. We found a website for > > Dr. Walsh and > > started to correspond with Adria in his office. We > > ended up sending > > them her MRI's and they confirmed that she had > > polymicrogyria > > (specifally in the Bilateral Temporal > > Frontalpariatal areas). We > > have an appointment in their clinic in boston on > > Monday. Has anyone > > ever delt with this group? > > > > Lizzie is now 10 months old and progress is very > > slow. She smiles > > and laughs all of the time. She is despratley > > trying to crawl. She > > is not sitting, because she is weak in her back. > > She goes back and > > forth from no tone to too much tone. She loves to > > play with her 3 > > year old brother. We take her to PT and OT once a > > week. Some days I > > think it is helping and others I wonder. > > > > I would appreciate any information you would like to > > give. I am > > always looking for new ways to stimulate Lizzie, so > > if you have any > > suggestions please pass those along as well. Thank > > you for > > listening. > > > > > > > > > > __________________________________________________ > Quote
Guest guest Posted November 13, 2005 Report Posted November 13, 2005 Dear Welcome to the group...I am so sorry about your brother.. My asthma is worse is the winter also...Nothing really happen in the summer, I am thinking about moving somewhere warm..I dont know yet and I dont know where either. Good luck with the move..I was told Ga was very nice and hot there. My freind Ann is moving there next year...She get sick alot in the winter....She is so happy about the move thereDiamond wrote: Hello everyone my name is I have been an asthmatic for 15 years now and i have it really bad. I have been interbated four times and i find it to be very scared. I have lost my brother to his first asthma attack in 2002. I have been on just about every medication and the only thing that seems to help is the predisone. I suffer more in the winter than in the summer. I hoping to relocate to georgia to see if that will help me get in under control. I would like every to just pray and try to keep a postive mind. Lets support each other. I hope to be as much help as possible and make new friends.diamond332005@... Yahoo! FareChase - Search multiple travel sites in one click. Quote
Guest guest Posted November 13, 2005 Report Posted November 13, 2005 Hi , Sounds pretty serious being intubated 4 times. If you have a few minutes, check out http://www.asthmastory.com My story is posted there and I actually went into full respiratory and cardiac arrest in 1995 from an asthma attack. Like you, my asthma was worse in the winter and I even moved to Florida to see if it would help. Then I found research by Dr. Hahn relating asthma to a bacteria. Asthmastory.com is devoted to Dr. Hahn's research and is a non profit site. I haven't been on this message board in about a year and am just passing through. Jim > > Hello everyone my name is I have been an asthmatic for 15 > years now and i have it really bad. I have been interbated four times > and i find it to be very scared. I have lost my brother to his first > asthma attack in 2002. I have been on just about every medication and > the only thing that seems to help is the predisone. I suffer more in > the winter than in the summer. I hoping to relocate to georgia to see > if that will help me get in under control. > > I would like every to just pray and try to keep a postive mind. Lets > support each other. I hope to be as much help as possible and make > new friends. > > > diamond332005@y... > Quote
Guest guest Posted November 13, 2005 Report Posted November 13, 2005 Hi, My prayers go out to you in the hope that you will improve and find a doctor and medicine that will keep you stable. BarbB On Sunday, November 13, 2005, at 04:38PM, Diamond wrote: > ><<Original Attached>> Hello everyone my name is I have been an asthmatic for 15 years now and i have it really bad. I have been interbated four times and i find it to be very scared. I have lost my brother to his first asthma attack in 2002. I have been on just about every medication and the only thing that seems to help is the predisone. I suffer more in the winter than in the summer. I hoping to relocate to georgia to see if that will help me get in under control. I would like every to just pray and try to keep a postive mind. Lets support each other. I hope to be as much help as possible and make new friends. diamond332005@... Quote
Guest guest Posted May 23, 2006 Report Posted May 23, 2006 Hi everyone , my name is , I live in Caswell, Nc. I suffer from Asthma and Migranes for the last two years. I am married and coming up on our 1year on Sept. 1st, 06. For Asthma: I am currently on Advair and Singular daily. I take Alubertol for rescue inhailer, I also have a breathing Nebuliezer in my home fo rwhen it gets out of hand. For Migranes: I have tryed Etodolac 500mg, Imitrex 100mg, Bupap, Relpax 40mg, Zomig, all over the counter medicines, i have gone to the doctors to get shots for the pain but it comes back after the shot wears off, I live in NC and struggling to find someting to ease my pain. I don't know what to do. I have inscurance but its not that great. so with my husbands new job i will be swicting it but it is going to take a month, so i am going to fingure out what to do for a month any suggests? I am looking at going to the greensboro headache clinic or chapel hill, but any way i am always on the net sufing to find new informatiion. i had a mri done of my brain april 1, everything normally, i am thinking, could it be possible a pinch nerve in my neck or upper back? no, i havn't been tested for food allergies yet, i go back to my nueo. in two weeks, idon't know what todo until then thanks for everything, Lucky for me my husband is a Volunteer Fierfighter and Medical Responder. So he is understanding and really sweet about being being home and not being able to work. Becca Quote
Guest guest Posted May 28, 2006 Report Posted May 28, 2006 Becca: Hey, and welcome. I've not posted much to this group, but I also happen to suffer from migraines & asthma. I've had migraine disease for about 11 years, and asthma since college (I'm now 40.) I too have tried nearly every migraine medicine known to man, and had very little luck with it. Pure Oxygen 6-8 litres for about 10 minutes has had the effect of aborting one, for me..at least four times since I started using this therapy. My migraines begin as ocular ones and then usually progress to pain, nausea, increased sensitivity to light, etc. My " asthma " has been treated successfully (for the most part) with proventil & advair diskus 250/50's. I may discuss this in another post, but I've recently become aware I have a heart condition that might be causing me to have asthma-like symptoms. At any rate, ask your doctor about the O2 therapy - I've certainly had no side effects from it so far. > > Hi everyone , my name is , I live in Caswell, Nc. I > suffer from Asthma and Migranes for the last two years. I am married > and coming up on our 1year on Sept. 1st, 06. > > For Asthma: > I am currently on Advair and Singular daily. I take Alubertol for > rescue inhailer, I also have a breathing Nebuliezer in my home fo > rwhen it gets out of hand. > > For Migranes: > I have tryed Etodolac 500mg, Imitrex 100mg, Bupap, Relpax 40mg, > Zomig, all > over the counter medicines, > i have gone to the doctors to get shots for the pain but it comes > back after the shot wears off, > I live in NC and struggling to find someting to ease my pain. I don't > know what to do. > > I have inscurance but its not that great. so with my husbands new job > i will be swicting it but it is going to take a month, so i am going > to fingure out what to do for a month any suggests? > > I am looking at going to the greensboro headache clinic or chapel > hill, but any way i am always on the net sufing to find new > informatiion. > > i had a mri done of my brain april 1, everything normally, i am > thinking, could it be possible a pinch nerve in my neck or upper > back? no, i havn't been tested for food allergies yet, i go back to > my nueo. in two weeks, idon't know what todo until then > thanks for everything, > > Lucky for me my husband is a Volunteer Fierfighter and Medical > Responder. So he is understanding and really sweet about being being > home and not being able to work. > > Becca > Quote
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