Guest guest Posted June 17, 2006 Report Posted June 17, 2006 Hi, my name is Jen, and I'm new here. I've been lurking in the background for a little bit, trying to get a feel for the group. I'm 35, and was dx'ed with Fibro almost 4 years ago. It's gotten consistently worse over that time, going from being a nuisance I had to deal with, to being a part of my everyday life that I can't escape. The rheumatologist I just went to not very long ago classified it as " severe " FMS. I also have Bakers cysts on the backs of both knees, widespread chronic tendonitis, chronic lumbrosacral back pain, and bipolar II disorder. But that's not why I'm writing. In the last few months, I've been dealing with fatigue that is getting more progressive, much more than what I've ever dealt with having Fibro. It's almost impossible to drag myself out of bed in the morning, I have nodded off at work, and most days, HAVE to take a nap the minute I get home, if my schedule permits, which 3/4 of the time it does. Thankfully, my children are teenagers, so they aren't totally dependent on me. My naps, though, aren't the quick 30 minute refreshers...they're like two hours. Even after that, I still go to bed at 9 or 9:30, and go through the same cycle over and over again every day. A lot of times, I'm too tired to even think, and find myself constantly searching for the right word. It's like my brain went out to lunch and left me behind. I know that a lot of it is " fibro fog " , but the fatigue is starting to rival my pain. I always thought that to have CFS, you had to have the EBV virus, until someone with CFS told me you didn't...now I'm confused. What exactly is the criteria for CFS? I mean, with Fibro, you have to have the tender points, and generalized pain and all, but everything I have read about CFS has mentioned EBV. The fatigue I have now is debilitating me so much that I am too tired to do much of anything. Can you have Chronic Fatigue without having any viral markers? I would really appreciate any answers or guidance! Thanks, Jen Quote
Guest guest Posted June 19, 2006 Report Posted June 19, 2006 Hi Jen and Welcome! Wow - I think that may be the $64,000 question. It depends on what you read, some say viral markers (EBV) were required, but others say not. You can find a wealth of info on CFIDS/CFS/ME at www.iacfs.net www.ncf-net.org www.ncfsfa.org www.ahummingbirdsguide.com www.cfids.org I hope you find these helpful and you'll find everyone here terrific - very supportive! Hang in there and good luck! Jane Jen wrote: Hi, my name is Jen, and I'm new here. I've been lurking in the background for a little bit, trying to get a feel for the group. I'm 35, and was dx'ed with Fibro almost 4 years ago. It's gotten consistently worse over that time, going from being a nuisance I had to deal with, to being a part of my everyday life that I can't escape. The rheumatologist I just went to not very long ago classified it as " severe " FMS. I also have Bakers cysts on the backs of both knees, widespread chronic tendonitis, chronic lumbrosacral back pain, and bipolar II disorder. Quote
Guest guest Posted June 21, 2006 Report Posted June 21, 2006 Hi Jen, Welcome to the group! Even though I'm sure all of us wish that we didn't need to be here. Is it a possibility that part of it might be depression? Depression would worsen your fatigue, as well as cognitive problems. At least they may be able to help you with depression. As well as the criteria for CFS, check out the CDC's site. Sue > > Hi, my name is Jen, and I'm new here. I've been lurking in the > background for a little bit, trying to get a feel for the group. > > I'm 35, and was dx'ed with Fibro almost 4 years ago. It's gotten > consistently worse over that time, going from being a nuisance I had > to deal with, to being a part of my everyday life that I can't > escape. The rheumatologist I just went to not very long ago > classified it as " severe " FMS. I also have Bakers cysts on the > backs of both knees, widespread chronic tendonitis, chronic > lumbrosacral back pain, and bipolar II disorder. > > But that's not why I'm writing. In the last few months, I've been > dealing with fatigue that is getting more progressive, much more > than what I've ever dealt with having Fibro. It's almost impossible > to drag myself out of bed in the morning, I have nodded off at work, > and most days, HAVE to take a nap the minute I get home, if my > schedule permits, which 3/4 of the time it does. Thankfully, my > children are teenagers, so they aren't totally dependent on me. My > naps, though, aren't the quick 30 minute refreshers...they're like > two hours. > > Even after that, I still go to bed at 9 or 9:30, and go through the > same cycle over and over again every day. A lot of times, I'm too > tired to even think, and find myself constantly searching for the > right word. It's like my brain went out to lunch and left me > behind. I know that a lot of it is " fibro fog " , but the fatigue is > starting to rival my pain. > > I always thought that to have CFS, you had to have the EBV virus, > until someone with CFS told me you didn't...now I'm confused. What > exactly is the criteria for CFS? I mean, with Fibro, you have to > have the tender points, and generalized pain and all, but everything > I have read about CFS has mentioned EBV. The fatigue I have now is > debilitating me so much that I am too tired to do much of anything. > Can you have Chronic Fatigue without having any viral markers? I > would really appreciate any answers or guidance! > > Thanks, > > Jen > Quote
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