Hi to all that that have this horrific disease.....(Fibro.)

[Guest guest]

I just joined this site,...have had Fibro. for x yrs. now, maybe all my

life, along with my older sister. I live in MS, and the health care is

awful.I have been taking Dalmane for sleep, Ativan for my nerves,

trying to get off of Lortab,7.5 mg., sometimes Vicoden, or I try to go

to something not as strong, like Tylenol 3 .LOL....Let's seeI can't

take any antidepressents, and I do have a beautiful son, who is 10. I

am divorced, had to go back to living with my mom...that's another

story, but I'm grateful to have a place to live. Nobody asks me out

anymore,or runs when I tall them I have an illness!!! Is there someone

out there in this world that has something they can tell me that works

JUST alittle bit for pain and fatigue. I'm 42, and feeling like I'm

going on 60.Sorry to whine, but you all know exactly what we go

through, and I'd appreciate any info., if you have it. I'm on SSI, and

medicaid, so you also know that our health care is awful.AT least in

MS, it is. I hope to make friends on this site,...don't really have any

of those either, but try to go to church, when I can. Hope to start

cahatting with you soon, and God Bless to all of you:)

[Guest guest]

Hello, welcome to the group! I'm so glad that you

found us!!!! Sorry about the DX. I also have Fibro.

I am not familair with the Health care system in MS.

sorry that I can't help you there. I have never heard

of Dalmane? What is it? It is awesome however; that

you are able to get pain medication!!!! There are so

many of us including myself that cannot get anything

for pain, so you are lucky there! May I ask why you

are not able to take anti-depressents? Is it an

allergic reaction or just what? Sometimes several

people move back home regardless of age! I know that

I have on several occasions. I am glad though as you

mentioned that you are at least thankful to have a

home!!! You mentioned that nobody asks you out

anymore, are you single? If so, I hope that you will

find someone who is caring and considerate and is

willing to learn about your condition! I also am in my

40's and on several occasions feel like I am 103!!!

LOL

I certainly do not feel as if you are whinning at

all! If you were, BIG DEAL!!!! Feel free to come to

this site and vent anytime! I am also on SSI and

unfortunately I think, in every state we are treated

really sadly! I personally do not think that it is

just MS. I am in KS and having same ordeal! I am so

glad that you are giving us a whirl, try whatever!

Good for you! It is one of the best decisions that

you could of made for yourself! You will make lots of

friends and learn so much here! and/or a are

the bomb! The information that they provide is

awesome!!!! Please bare in mind though that several

of us flare from time to time and it can take a minute

or two to get back to you, so please be patient and

stick with us!!! I guarentee that you won't be

disappointed!!! I hope that today is a good day for

you! Wishing you the best! Take care. Kim

--- pinkitoz77 <pinkitoz77@...> wrote:

> I just joined this site,...have had Fibro. for x

> yrs. now, maybe all my

> life, along with my older sister. I live in MS, and

> the health care is

> awful.I have been taking Dalmane for sleep, Ativan

> for my nerves,

> trying to get off of Lortab,7.5 mg., sometimes

> Vicoden, or I try to go

> to something not as strong, like Tylenol 3

> .LOL....Let's seeI can't

> take any antidepressents, and I do have a beautiful

> son, who is 10. I

> am divorced, had to go back to living with my

> mom...that's another

> story, but I'm grateful to have a place to live.

> Nobody asks me out

> anymore,or runs when I tall them I have an

> illness!!! Is there someone

> out there in this world that has something they can

> tell me that works

> JUST alittle bit for pain and fatigue. I'm 42, and

> feeling like I'm

> going on 60.Sorry to whine, but you all know exactly

> what we go

> through, and I'd appreciate any info., if you have

> it. I'm on SSI, and

> medicaid, so you also know that our health care is

> awful.AT least in

> MS, it is. I hope to make friends on this

> site,...don't really have any

> of those either, but try to go to church, when I

> can. Hope to start

> cahatting with you soon, and God Bless to all of

> you:)

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

-hi pinki, and welcome

you will find this a very nice place with lot of encouragement and

information and new ways to look at things in a different way

sometimes...I find that helpful as when you are in the middle of a

flare you don't always see the whole picture and it is nice for

someone to say hey silly....its this/or that, when you ask a

question. And there are no stupid or silly questions. THis is a

learning process for everyone here....I learn something about Ra and

Fibro every day...just by reading everyone elses posts,nd the great

articles that posts for us. If there is a secret to fatigue and

exhaustion I wish that someone would share it with me too. It seems

that I hit a " wall " sometimes and then can go no further...that's

when I wind up in bed or on the couch for a couple of days. I try and

pace things out...do a little and rest a little. And sometimes when I

think I'm feeling good I do too much...and then I have to pay for it

by resting again to get some energy back...it's like a never ending

circle. I find that I can sometimes control the fatigue by what I do

and don't do, and other times it is completley out of my

contol...with no rhyme or reason. The easiest thing to do for me is

to just take one day at a time, and not to plan too much to close

together..and not to expect too much of myself sometimes....and get

as much rest as I can. Hope that helps! and again Welcome! jenna

-- In , " pinkitoz77 " <pinkitoz77@...> wrote:

>

> I just joined this site,...have had Fibro. for x yrs. now, maybe

all my

> life, along with my older sister. I live in MS, and the health care

is

> awful.I have been taking Dalmane for sleep, Ativan for my nerves,

> trying to get off of Lortab,7.5 mg., sometimes Vicoden, or I try to

go

> to something not as strong, like Tylenol 3 .LOL....Let's seeI can't

> take any antidepressents, and I do have a beautiful son, who is 10.

I

> am divorced, had to go back to living with my mom...that's another

> story, but I'm grateful to have a place to live. Nobody asks me out

> anymore,or runs when I tall them I have an illness!!! Is there

someone

> out there in this world that has something they can tell me that

works

> JUST alittle bit for pain and fatigue. I'm 42, and feeling like I'm

> going on 60.Sorry to whine, but you all know exactly what we go

> through, and I'd appreciate any info., if you have it. I'm on SSI,

and

> medicaid, so you also know that our health care is awful.AT least

in

> MS, it is. I hope to make friends on this site,...don't really have

any

> of those either, but try to go to church, when I can. Hope to start

> cahatting with you soon, and God Bless to all of you:)

>

[Guest guest]

>

> > I just joined this site,...have had Fibro. for x

> > yrs. now, maybe all my

> > life, along with my older sister. I live in MS, and

> > the health care is

> > awful.I have been taking Dalmane for sleep, Ativan

> > for my nerves,

> > trying to get off of Lortab,7.5 mg., sometimes

> > Vicoden, or I try to go

> > to something not as strong, like Tylenol 3

> > .LOL....Let's seeI can't

> > take any antidepressents, and I do have a beautiful

> > son, who is 10. I

> > am divorced, had to go back to living with my

> > mom...that's another

> > story, but I'm grateful to have a place to live.

> > Nobody asks me out

> > anymore,or runs when I tall them I have an

> > illness!!! Is there someone

> > out there in this world that has something they can

> > tell me that works

> > JUST alittle bit for pain and fatigue. I'm 42, and

> > feeling like I'm

> > going on 60.Sorry to whine, but you all know exactly

> > what we go

> > through, and I'd appreciate any info., if you have

> > it. I'm on SSI, and

> > medicaid, so you also know that our health care is

> > awful.AT least in

> > MS, it is. I hope to make friends on this

> > site,...don't really have any

> > of those either, but try to go to church, when I

> > can. Hope to start

> > cahatting with you soon, and God Bless to all of

> > you:)

> >

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Sorry don't know your name, but wanted to let you know what works for me for

fatigue.........Provigil. You can't take it every day but on the days when you

have to be able to function and you are dealing with the deep exhaustion, it

works very well.

As for pain, I'm still on a quest to get something that works. I'm on Ultram

now, but I can't take it with my Lyica as it makes me sick.

HTH

Hugs