Re: welcome ken!

[Guest guest]

hi ken

i SO know where you re coming from!!!!! i was having flashbacks when i

read your letter. it's hard to believe sometimes so many things can go

so wrong at once.a chain reaction.

i think my biggest disappointment was when my so called friends

abandoned me in my greatest time of need. guess they got sick of hearing

about my woes.not as sick as i was of myself! i lost it all too. my

business, car home etc. slowly but surely. as far as the irs went, i

wrote some letters to various people, and surprisingly, they were VERY

kind to me.

i too was pushed around and humiliated by doctors. i couldn't agree

with you more. if they can't fix you,they can't be bothered, AND I LIVE

IN 'THE CITY OF MEDICINE " ...oh brother. after 23 doctors, i was pushed

right into the hands of the specialist i REALLY needed. i've been with

him for 4 years. he , himself can not believe what his patients must go

through with ssd, worker's comp. camera's, bullying, callous doctors, on

and on. it took a long time, but i realise i am very fortunate to have

found a compassionate doctor, who is a human being first. my therapist

too has been with me all the way. thank God for her as well. the

rsd/crps has taken its toll on my family and their wallets as well.

i still try day to day , not to allow myself to let my thoughts stray.

it is a constant battle to find peace. i wish i could say i knew the

secret, but i only know there are few choices except to keep hanging in

there. i'm sure my inability to work plays a huge role in my distress,

but thats an ongoing search.

i wish you well and KNOW that things will get better for you. you WILL

find a doc, and once your feeling better, you'll get some fight in you

and get some of your other issues resolved. seems you have to do

everyone else's jobs these days. get all promises from the irs, ssd,

etc. on paper!!! i'm sure you already have experienced resolving

something on the phone only to have the problem arise again!

surprisingly, my senator did alot for me. i wrote him on a few different

issues and he acted strong, compassionate,and swiftly.

when i was getting pushed around and ignored at the hosp. by some " very

busy " residents(for a crucial but unrelated surgery) i was told by my

regular doc's nurse, to contact " patient relations " ....it worked like a

charm, and i was not black balled! also, once i became eligible for

medicaid and medicare, things went much easier than with my previous

insurance co. the poorer i got the more options i had.(crazy)

ok,i've said enough! hope my experiences may help just a little. welcome

and good luck.

lynnzee