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Re: Re: Neuroleptics

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I stand corrected...Mirtazapine (Remeron) is an anti-depressant. I know

my dad had a terrible time with it, and we had it stopped. Again,

another neuroleptic, but on the anti-depressant side. Thanks for

catching that !!

Sandie

Des Moines, IA

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It is my understanding that Remeron is an antidepressant. Also my

understanding that Ativan is an anxyolitic. Nowhere can I find information

that either comes under the umbrella of Neuroleptic.

Although I believe that both of these drugs should be used with caution as

any drug should be, there are instances where both drugs have been found

helpful.

I should add that neither drug helped my husband, but that may have been

because of the advanced stage of his illness.

There is so much confusion about this illness and about the drugs used in an

attempt to treat it, or at least to slow it down, that we as caregivers need

to be particularly careful about the kind of information we are disseminating

on a site such as this. And all the more so since much of the medical

community which should be leading us, has apparently abandoned us.

We need to get some of our facts straight, starting with definitions " What is

or is not a neuroleptic " ?

Where can such a site be found?

Can we find guidelines?

Can we find the North Star Sandie?

Chris

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INFORMATION ON DRUGS THAT CAN AND DO CAUSE DYSTONIA

" Some drugs in the neuroleptic category (psychiatric drugs) may cause acute

dystonic reactions: thorazine, Haldol, etc. Ten to twenty percent of

patients experience acute dystonic symptoms at the initiation on treatment.

Some drugs that are used for nausea and gastrointestinal problems are also

neuroleptic so they can cause the same problems - drugs like Reglan and

Stematil. These can induce acute dystonia. All of these drugs, when they're

used over long term, carry a 20 to 30 % risk of long-term abnormal movements

called tardive dyskinesia, and some people with tardive dyskinesia get a

form of dystonia, called tardive dystonia. It's an extremely difficult

problem to treat. "

For more information you can go to anyone of these sites. What I do when I

want information about ANYTHING is go to Yahoo.com and type in what I want

to know. I usuallly go to the Mayo Clinic website for medical questions, but

in this case I went to Yahoo.com and typed in " what is a Neuroleptic drug " ?

These are some of the sites that came up:

Your search: what is a Neuroleptic drug Search in: The Web | Directory |

News

--------------------------------------------------------------------------------

Sponsor Matches (What are Sponsor Matches?)

www.psychiatrymatters.md

www.heall.com/holistic_psychology/neuroleptic_drug_dangers.html search

within this site

Evidence of Neuroleptic Drug-Induced Brain Damage in Patients: A ... -

Evidence of Neuroleptic Drug-Induced Brain Damage in Patients: A partial,

Annotated Bibliography (CIRCARE). ... Rubral " tremor induced by a

neuroleptic drug. ...

www.networksplus.net/fhp/madnation/citations/circarebib.htm search within

this site

EXECUTIVE SUMMARY DEPOT NEUROLEPTIC DRUG ADMINISTRATION: To audit ... (PDF)

- EXECUTIVE SUMMARY DEPOT NEUROLEPTIC DRUG ADMINISTRATION: To audit the

current provision of Depot Neuroleptic medication with reference to the

recommendations ...

www.show.scot.nhs.uk/crag/pdf/dep9604/es_cover.pdf search within this site

Menninger Clinic Found Negligent by Jury after Patient Dies in ... - ...

Psychiatry: Drugs, Electroshock and the Role of the FDA (Springer Publishing

Company, 1997) for extensive scientific analyses of neuroleptic drug effects

and ...

www.breggin.com/menninger.html search within this site

Tardive Dyskinesia - ... The first step is generally to stop or minimize

the use of the neuroleptic drug. ... Replacing the neuroleptic drug with

substitute drugs may help some patients. ...

healthlink.mcw.edu/article/921990098.html search within this site

MindFreedom Online: SCI News - ... Two recent articles in mainstream

medical publications have linked neuroleptic drug use with structural brain

changes visible on CT (computer tomography) or ...

www.mindfreedom.org/mindfreedom/news/forced.shtml search within this site

Drug List - This drug list page is intended to provide information only!

.... Some drugs in the neuroleptic category (psychiatric drugs) may cause

acute dystonic reactions ...

www.dystonia-support.org/Drug%20List.htm

http://www.dystonia-support.org/Drug%20List.htm

>From: Tingwall1@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: Re: Neuroleptics

>Date: Wed, 29 Jan 2003 20:49:33 EST

>

>It is my understanding that Remeron is an antidepressant. Also my

>understanding that Ativan is an anxyolitic. Nowhere can I find information

>that either comes under the umbrella of Neuroleptic.

>Although I believe that both of these drugs should be used with caution

>as

>any drug should be, there are instances where both drugs have been found

>helpful.

>I should add that neither drug helped my husband, but that may have been

>because of the advanced stage of his illness.

>There is so much confusion about this illness and about the drugs used in

>an

>attempt to treat it, or at least to slow it down, that we as caregivers

>need

>to be particularly careful about the kind of information we are

>disseminating

>on a site such as this. And all the more so since much of the medical

>community which should be leading us, has apparently abandoned us.

>We need to get some of our facts straight, starting with definitions " What

>is

>or is not a neuroleptic " ?

>Where can such a site be found?

>Can we find guidelines?

>Can we find the North Star Sandie?

>Chris

>

>

>

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In a message dated 1/29/2003 9:00:25 PM Pacific Standard Time,

sanclown@... writes:

> Chris

> " Can we find the North Star Sandie? " Pardon me? Did I miss something

> here?

> Sandie

>

No, I did. I missed a comma. Meant to write " Can we find the North Star,

Sandie " ?

As when I am lost at sea, or anywhere, I look for the North Star for the

sense of direction and guidance it provides .It was a superfluous statement

meaning that I am lost in a fog of conflicting information.

The fog is clearing with the information on sites. Thank you.

Chris

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What is Dystonia?

Kath

Re: Re: Neuroleptics

>Date: Wed, 29 Jan 2003 20:49:33 EST

>

>It is my understanding that Remeron is an antidepressant. Also my

>understanding that Ativan is an anxyolitic. Nowhere can I find information

>that either comes under the umbrella of Neuroleptic.

>Although I believe that both of these drugs should be used with caution

>as

>any drug should be, there are instances where both drugs have been found

>helpful.

>I should add that neither drug helped my husband, but that may have been

>because of the advanced stage of his illness.

>There is so much confusion about this illness and about the drugs used in

>an

>attempt to treat it, or at least to slow it down, that we as caregivers

>need

>to be particularly careful about the kind of information we are

>disseminating

>on a site such as this. And all the more so since much of the medical

>community which should be leading us, has apparently abandoned us.

>We need to get some of our facts straight, starting with definitions " What

>is

>or is not a neuroleptic " ?

>Where can such a site be found?

>Can we find guidelines?

>Can we find the North Star Sandie?

>Chris

>

>

>

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Dystonia:

Abnormal tonicity of muscle, characterized by prolonged, repetitive

muscle contactions that may cause twisting or jerking movements of the

body or a body part.

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Kath,

I went to Yahoo and typed in " what is dystonia " this is one of the things

that came up. Hope it helps, Shirley

WHAT IS DYSTONIA?

Dystonia is the term used to describe a condition dominated by involuntary

sustained muscle spasms which can be extremely painful. These can affect

various parts of the body and cause abnormal movements and postures.

The condition is due to malfunction of the central nervous system, probably

in those parts of the brain called the basal ganglia. In primary (or

‘idiopathic’ torsion) dystonia no other functions of the brain are involved

and investigations reveal no identifiable cause. In a minority of cases,

specialised tests can identify known causes that damage the basal ganglia,

and the dystonia in these cases is called ‘secondary’ or ‘symptomatic’.

Dystonia is best classified according to the parts of the body affected. If

only one part of the body is affected, such as the eyes, neck or a limb, it

is called focal dystonia. If a larger region such as the neck and arms is

involved, it is called segmental dystonia. If the spasms affect the arm and

leg on the same side, it is known as hemidystonia. Finally, if the dystonia

is more widespread, the term ‘generalised dystonia’ is used.

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: Re: Neuroleptics

>Date: Thu, 30 Jan 2003 22:20:06 -0500

>

>What is Dystonia?

>

>Kath

> Re: Re: Neuroleptics

> >Date: Wed, 29 Jan 2003 20:49:33 EST

> >

> >It is my understanding that Remeron is an antidepressant. Also my

> >understanding that Ativan is an anxyolitic. Nowhere can I find

>information

> >that either comes under the umbrella of Neuroleptic.

> >Although I believe that both of these drugs should be used with

>caution

> >as

> >any drug should be, there are instances where both drugs have been

>found

> >helpful.

> >I should add that neither drug helped my husband, but that may have

>been

> >because of the advanced stage of his illness.

> >There is so much confusion about this illness and about the drugs used

>in

> >an

> >attempt to treat it, or at least to slow it down, that we as caregivers

> >need

> >to be particularly careful about the kind of information we are

> >disseminating

> >on a site such as this. And all the more so since much of the medical

> >community which should be leading us, has apparently abandoned us.

> >We need to get some of our facts straight, starting with

>definitions " What

> >is

> >or is not a neuroleptic " ?

> >Where can such a site be found?

> >Can we find guidelines?

> >Can we find the North Star Sandie?

> >Chris

> >

> >

> >

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Does Dystonia go along with LBD? Or, ALZ? What meds are given to a Dystonia

patient? Staying with meds -- what is given the LBD patient?

I have never been comfortable with the ALZ diagnosis, and while in the ALZ

chat/board room a caregiver told me about LBD. I looked it up in WebMD --

the symptoms I was reading about were the same symptoms my dad was struggling

with. I have already contacted his NH staff and asked them to look into LBD

and if they are OK with it to get him off the tranqs. I also Faxed info to

them.

I don't know if I'll be able to stay with you. I have a job that is very

stressful and will continue to be so for the foreseeable future. I'm also

looking at a knee replacement fairly soon. When I came home yesterday after

work I was dumbfounded to see 145 messages in my inbox. By then I was so

maxed out I could barely think. So, I deleted everything and went to bed.

Sorry about that -- I'm sure there were some really great messages.

Anyway, I will close for now and maybe " check you out later!)

Joni in Eugene, Oregon

In a message dated 1/30/2003 8:03:31 PM Pacific Standard Time,

sanclown@... writes:

> Dystonia:

> Abnormal tonicity of muscle, characterized by prolonged, repetitive

> muscle contactions that may cause twisting or jerking movements of the

> body or a body part.

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So we are talking muscle cramps? My mother complained of having a cramp so

bad in her leg. It was quite a while ago while she was at a " Lunch Bunch " .

A seniors group that eats lunch and has entertainment. The cramp came on so

strong, and she said she was so embarrassed. Someone there who runs the

program massaged her leg until it went away. She resisted going back

because of this. That was sometime last spring. Before I had ever heard of

LBD.

Kath

Re: Re: Neuroleptics

> > >Date: Wed, 29 Jan 2003 20:49:33 EST

> > >

> > >It is my understanding that Remeron is an antidepressant. Also my

> > >understanding that Ativan is an anxyolitic. Nowhere can I find

> >information

> > >that either comes under the umbrella of Neuroleptic.

> > >Although I believe that both of these drugs should be used with

> >caution

> > >as

> > >any drug should be, there are instances where both drugs have been

> >found

> > >helpful.

> > >I should add that neither drug helped my husband, but that may have

> >been

> > >because of the advanced stage of his illness.

> > >There is so much confusion about this illness and about the drugs

used

> >in

> > >an

> > >attempt to treat it, or at least to slow it down, that we as

caregivers

> > >need

> > >to be particularly careful about the kind of information we are

> > >disseminating

> > >on a site such as this. And all the more so since much of the

medical

> > >community which should be leading us, has apparently abandoned us.

> > >We need to get some of our facts straight, starting with

> >definitions " What

> > >is

> > >or is not a neuroleptic " ?

> > >Where can such a site be found?

> > >Can we find guidelines?

> > >Can we find the North Star Sandie?

> > >Chris

> > >

> > >

> > >

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