RE:

[Guest guest]

In a message dated 2/17/01 3:49:53 AM Eastern Standard Time, chronic_pain writes:

I am on ganeric soma and lorcet. for pain

Hi ,

Sorry about the botox treatments. The best med for pain in my opinion is oxycontin. I take 40mgs 3 Xs a day. I also have RSD though. Do you?

Hugs and a pain free minute,

Deb

"Hope is a thing with feathers that perches in the soul "

Listowner rsd-crps

Deb Genatossio (Debgena@...)

Massachusetts Charter Director and

Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

Ma. Charter Director PO Box 1397, Abingdon, MD  21009

Toll Free Hotline:  1-866-OUR-PAIN

Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

online membership: ASRSD_CRPS

http://www.americansocietyforrsd-crps.org

http://americansocietyforrsd-crps.org/societypages/handbook.html

[Guest guest]

!

You are a kid!!! not old at 53!!!!!!

Always,

pam / cloud

Hi Rin,

Welcome to the group, I am fairly new here myself...I am , 53 years old

and married for 30 years now.

[Guest guest]

Thank you . I will be studying up on this. My GP did say last week that

if I need another increase in pain meds anytime soon that maybe I would want

to try the TENS. She increased the hydrocodne to the highest and I actually

take about 7 of these in a 24 hour period, sometimes I can get by on 4 in 24

hours if I only sit around....judy

[Guest guest]

In a message dated 9/18/01 10:09:15 AM Pacific Daylight Time,

tmckee@... writes:

> Thank you . I will be studying up on this. My GP did say last week that

> if I need another increase in pain meds anytime soon that maybe I would want

> to try the TENS. She increased the hydrocodne to the highest and I actually

> take about 7 of these in a 24 hour period, sometimes I can get by on 4 in 24

> hours if I only sit around....judy

YIPES! Thats alot.

Meows, & headbutts,

& Viscious =^..^=

[Guest guest]

They Might, you'd have to get a doctors order for it. Your doc might know.

Meows, & headbutts,

& Viscious =^..^=

[Guest guest]

In a message dated 11/27/01 8:20:21 AM Pacific Standard Time,

tmckee@... writes:

>

>

>

>

>

> I would like to hear more about the liver and colon problems you were

> having. I'm at that same place now, with liver enzymes off the chart and

> colon problems....I'm suppose to have a surgical consult on

> Thursday....thanks...judy

> hi judy,

> i started out having morning sickness that's all i could think to describe

> it, it was worse than any morning sickness i had with my boys then i woke

> up one morning looking like i was ready to deliver, i was swollen that much

> then u couldn't touch my stomach anywhere, so i started taking heartburn

> pills over the counter kind and gas relief pills till i could pass it, then

> it would move to another location it was some of the worse pain i have ever

> had in my 52 yrs. i wouldn't want my worst enemy to go thru something like

> that.

> i kept the nausea for a month and the intermittent pain also, then it

> finally passed and went i went to the gatroliogist he siad it was my liver

> reacting to not having to take all the meds and he was very happy to know i

> was able to come off them, and i stand to inherit colon cancer due to my

> father dying from it at the age of 57 in 1972, so he had to do a

> colonoscopy but due to all the pain i had been thru he gave me something to

> help with the discomfort and it showed irritation was all and that it

> probbaly was like diverticulitis. i also have to watch what i eat that can

> cause more discomfort like fried foods, corn, oatmeal, eggs and not too

> many dairy products. i am doing much bvetter although i live in the

> bathroom right now but that too will pass, but since i already had ibs due

> to fibro, i can't eat salads, and i love salads. u need to see a

> gasdtrologist and he can order all the right tests, the liver they did by

> blood work and to the location of the pain. good luck and keep me posted.

>

[Guest guest]

You're welcome, Terry! I appreciate the confirmation that my post

was on point.

Ray

[Guest guest]

The herb Milk Thistle can be VERY useful in repairing damage done to your

liver(it's the only organ we have that can regenerate), no matter what the

cause. My liver values were through the roof, and just a few months of

Milk Thistle daily has them back down to normal. Now I take it every

couple or three days to help my liver stave off the effects of the

different medications that I'm on. I don't know if there's any real

solution for the colon problems that can come with long-term narcotic use

though - it's one of the reasons that some long-term narcotic users try

alternate painkillers such as cannabis so they can go off the narcotics for

a period of time (it doesn't work on my FMS pain - it just makes my skin &

nerves that much more sensitive, which is the last thing that I need). But

look into the Milk Thistle - your doctor may even know about it if he/she

is at all interested in alternative medicine.

-

At 10:17 AM 11/27/01 -0600, you wrote:

>I would like to hear more about the liver and colon problems you were

>having. I'm at that same place now, with liver enzymes off the chart and

>colon problems....I'm suppose to have a surgical consult on

>Thursday....thanks...judy

>

>

>

>

[Guest guest]

Terry,

you have to set that font size as your default which just means pick the

size you want and hit default and it will stay set

LiL Missy

>

>Reply-To: chronic_pain

>To: <chronic_pain >

>Subject:

>Date: Mon, 10 Dec 2001 07:29:52 -0400

>

>Dear

>Thank you for your frankness. It is difficult to expose ourselves so fully

>, a trait I really admire. As soon as I can figure it out I will increase

>my font size, I could use it to be larger for myself. When ever I think I

>have made the change it reverts. Thank you for your courage.

>Terrym

>

>

>

[Guest guest]

Terry,

Thank you for the info on leg pain at night. I do

notice that if I lay on one side too long the pain

starts in. I will try the vitamin k. I find that my

knees stiffen up really bad too. I,m sure thats the

arthritis. Have a great holiday. I am thankful to

everyone for all of their advice. Annie

--- Terry Melanson wrote:

> To One and all

> Morphine comes in pills and patch slow release can

> be either way but the MS contin is more effective.

> The names of the medication in a lot of meds are

> trade name depending on what company is producing

> it.But is basically the same med

> Vitamin K is a help with nite leg pain, I use

> Quinine

> If you haqve fibromyalgia, there is a chance that

> when you sleep you roll over or lay on the trigger

> point in your hip.

> Don't sweat Christmas gifts. Tell those who care for

> you that your gift is a pain free day because you

> did not stress geting gifts for them, I only concern

> myself with the children

> God Bless and keep you all

> May He hold you in the palm of His hand

> Happy Holidays

> Terrym

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Now I'm on disability and feel like I've really accomplished something if I

get a few things done at home over the course of a day.

I can certainly relate to your feelings . It's the same here and

Christmas day, I felt so many mixed emotions as my daughter fixed

dinnner...I was so proud of her and grateful yet I was so angry at

myself...judy

[Guest guest]

Terry:

I too have this problem sometimes and I have found a

unique solution. It is totally natural and works 100%

of the time for me without any need for going off any

of my meds. I am lactose intollerant and all I do is

have a glass of milk or eat something made with milk

and that gets things moving again. LOL

My solution is easy, cheap, and simple. :>) Hope it

works for you.

Tina W

--- Terry Melanson wrote:

> Dear Friends,

> My apologies for a very sensitive subject, but, I

> feel we are all close

> enough to ask it. I have a problem coping with

> constipation bought on by the

> MS Contin. Metamucil and the like do not agree with

> me and laxitives per se

> are much too harsh. I use prune juice and lots of

> roughage. At the moment I

> am forced to go off my medication for 24 hrs to

> relieve the problem. The

> downside is I am in intense pain during the time I

> am off. Any advice

> please??? again my apologies for the subject. By the

> way Melatonin is not

> available in Canada.

> Thanks TerryM

> God Bless

>

>

__________________________________________________

[Guest guest]

Terry,

Diet has a lot do do with the constipation too. (Did you post about this on MGH

recently?) Make sure you eat plenty of roughage. Taking 1 TBsp of mineral oil a

day helps, as does drinking plenty of water, close to a gallon a day if you can

do it,(water not something else), taking stool softeners and the occasional

enema. (With friends like us who needs enemas! hehehe!)

Hope it flows!

Jami

" Terry Melanson " wrote:

>Dear Friends,

>My apologies for a very sensitive subject, but, I feel we are all close

>enough to ask it. I have a problem coping with constipation bought on by the

>MS Contin. Metamucil and the like do not agree with me and laxitives per se

>are much too harsh. I use prune juice and lots of roughage. At the moment I

>am forced to go off my medication for 24 hrs to relieve the problem. The

>downside is I am in intense pain during the time I am off. Any advice

>please??? again my apologies for the subject. By the way Melatonin is not

>available in Canada.

>Thanks TerryM

>God Bless

>

>

--

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[Guest guest]

My condolences, Terry. I've had the same problems many times. For me, an

extra cup or two of coffee always takes care of the problem. I can handle

one cup but more than that sets the systems in motion.

BTW: No apologies needed. Most, if not all of us have had the same problem.

Hower

http://home.dejazzd.com/hower

[Guest guest]

Thank you everyone for all your imput and understanding, I have been on

stool softners for some time and managed very well while I was on M-eslon.

Since my graduation to MSContin the softners do not seem to be effected. I

have Osterarthritis, Fibromyalgia, Irritable Bowel and narrowing of the

Esophigus. My activity is severly restricted and am all but house bound. Due

to my digestion problem too much roughage is not possible. However, I will

read over all your suggestions and again thank you for all your imput.

Terry M

God Bless

[Guest guest]

,

I am so sorry about the confusion. I belong to another group and I

thought that I was responded to a member of that group when I

mentioned the State rep info on Skip's wbsite. Once again I am so

sorry for the confusion. I am fairly new to posting.

> I am brand spanking new and although you were answering ,

could you please share with me where I would find Skips website with

the state links to the reps?? I could VERY much use this information

since I seem to be forging new ground in this area of Washington

state.

>

> Thanks hon,

>

>

>

>

[Guest guest]

Congratulations!!!! I'm so excited for you. Enjoy girl

Marsha

[Guest guest]

You¹re certainly welcome , and I certainly understand where you¹re

coming from.

Most times it just helps to know that you¹re not alone in what you¹re

experiencing. That may sound strange to outsiders, but it does help to know

that other people have gone through what you¹re going through now, and come

out the other end, better for their fight.

It¹s sad that we have to fight at all.

BTW, I don¹t think you¹re impatient at all . I think you¹re just sick

and tired of getting the runaround, and want adequate medical care, and to

know what¹s wrong with your body.

Again, vent anytime, and do let me know if I can help you find information

or anything at all.

Robbie in FL, moderator chronic_pain.

AS, RS (ReA), FMS, CFS

feralelf@...

[Guest guest]

Did your doctor say they thought you could get 'high' from your pain

meds? My pain management doctor is really outspoken about that and I

agree. I have not been high from my meds, only had some temporary

memory interference but nothing worse than from the pain all the

time. I was woozy and dizzy at first from the pills and hard to focus

but that cleared up after awhile. I know that the dr. titrates the

meds up slowly because you can have a bad reaction if your body isn't

used to it. I posted earlier but it didn't work : ( Guess it's time

for bed. I hope everyone has a good nights sleep : )

> ,

> I JUST started on methadone the 22nd of last month and they are

just starting to raise my doses, as I understand that it has to be

titirated (sp) and started out very low and brought up slowly to the

optimal level of pain relief without drug effect.. .ie... being high.

>

>

[Guest guest]

> ,

> My doctor hasnt used the word high, but there is always the

opportunity and possibility of abuse of pain pills....if you are

stabelized at 40mg doses 3 times a day, then there is always the

possibility that you could get high if you popped 60 right??

>

>

> Hugs,

>

>

> I dunno, the only thing I concern myself with in regards to my

medication is relief, how much the medication is relieving my pain,

if it isn't and what side effects I'm experiencing. I haven't ever

considered myself to be high at any time on my medication. I have

heard people say they were 'high' from taking allergy medication, but

all I ever experienced were unpleasant side effects like being unable

to pay attention. I never considered that being 'high' because I

didn't find it pleasant in any way. Time to do laundry ack.

Hugs to you

>

[Guest guest]

Having a tolerance to a medicine is not the same as having an

addiction. Having unpleasant side effects is not being high. If it

is, I don't get why anyone attempts to 'get high' from the medicine I

take. It's really not my concern though.I think if you page back

through the posts, there is a detailed explanation of the difference

between addiction and tolerance. It's up to you to educate yourself,

because not all doctors are even educated on this topic. Hoping you

get adequate effective relief,

> ,

> My doctor hasnt used the word high, but there is always the

opportunity and possibility of abuse of pain pills....if you are

stabelized at 40mg doses 3 times a day, then there is always the

possibility that you could get high if you popped 60 right??

>

>

> Hugs,

>

>

>

>

[Guest guest]

OK sorry but there is no comparison to a person who is obviously faking an

injury to several doctors just to get drugs and those of us who have

legitimate injuries and diseases.

As a matter of fact every time one of these scum bags pulls a stunt like

this is makes it harder for a true chronic pain patient to get the help we

need.

In this case I blame the doctors as much as I do the idiot who pulled this

off. Where the tests to back his complaints up? Where the mri's, the

x-rays the other tests?

How could these doctors actually prescribe this fool opiate pain medication

without anything to back it up but his word? What was this moron saying his

problem was to be able to get these opiates?

There are test's, check, and fail safes in place to prevent just such a

thing from happening and I find it hard to believe that this guy could fool

3 doctors into doing this without all 3 doctors being on the take,

completely stupid or for this guy to have some faked tests results, mri's

and other things to back up his complaints! there has to be MUCH more to

the story than what you're saying!

> ,

>

> I know that in theory you are right, but I also know hon, that in the real

world, there are those that abuse the meds and do become addicted thru

excessive usage. My mother had an employee who is now going to jail for just

such abuse thru the Workers Comp program. If we as educated and honest

patients follow the guidelines and are honest with the doctors and ourselves

then yes, this matter of non addiction is absolutely true. Unfortunately

though, there are those who are less true to both who have laid many

obstacles in our way. Especially in the state of Washington where the

attitude of opiod therapy seems to be in the stone ages. As a matter of

fact, I found it very interesting how the WCI stated that the ONLY

appropriate use for opiod threapy is for bone cancer patinets, and unless

they could prove that this man had such that they would be turned over to

the appropriate authorities, because he had indeed been seeing at least 3

doctors who were each perscribing him Vicodin that the state had been paying

for for 1 year before they put it all together for his sole purpose being

for abuse, and getting high on the medicine.

>

> Hugs hon,

>

>

>

>

[Guest guest]

Well if you're prescribed 40 and you " POP " (your word) 60 then your abusing

your meds and should then have your prescription revoked and be turned over

to the authorities as a drug abuser.

See that's why we have doctors and what is supposed to make us different

from a drug seeker or addict, we go to our doctor and tell him/her what is

wrong and they prescribe us the proper medication at the proper dose for us.

if it's not working we're not supposed to just take more of it, we're

supposed to get back with our doctor either by phone or by another office

visit and tell them and they will adjust accordingly.

Taking more than is prescribed is going to make you run out quicker, make

you can in your refill sooner and send a flag to your pharmacist who will

then send a warning to your doctor. They don;t mess around when it comes to

schedule II narcotic pain medication and I agree they shouldn't, you abuse

it you lose bye bye!

Other warning signs are using words like: pop, high, candy, jonsing, M & M's

etc.

One last thing everyone needs to know, if you have a medical problem and

need pain meds to help you then by all means go out and get a doc and get

the help you deserve. If you are abusing your meds or are a drug seeker,

addict or whatever you WILL be caught because you're not that smart and

everyone screws up eventually!

> ,

> My doctor hasnt used the word high, but there is always the opportunity

and possibility of abuse of pain pills....if you are stabelized at 40mg

doses 3 times a day, then there is always the possibility that you could get

high if you popped 60 right??

>

>

> Hugs,

>

>

>

>

[Guest guest]

Where the tests to back his complaints up? Where the mri's, the

x-rays the other tests?

I agree with EVERYTHING you said Rob Except, the problem is

sometimes someone's pain doesn't neccessarily 'show' up in tests! If

I had a dime for every time some doctor said my injuries 'shouldn't

be causing me pain' I'd be a rich woman. It had to get much worse

before anyone would even acknowledge it. I was told my my neurologist

that peripheral nerve irritation does not 'show' up on an mri or on

nerve conduction tests.

It's 'invisible' pain which is what makes treating pain so

challenging. I had chronic pain my entire childhood from a kidney

infection nobody could 'see' because they weren't looking in the

right place.

It's dangerous to undertreat some people because other people

are 'faking' it. I heard from my dr. that people will actually SLAM

their foot in a door and other such stunts to get the pain meds! A

doctor can see a fracture or a swollen foot. (When I broke my toe

years ago, I only took a few ibuprofen and called it a day).

The only way the extent of my problems would really screaming 'show'

would be am myelogram which as you highlighted earlier can cause it's

own problems. They can see certain things wrong but not everyone may

have pain whereas I do.

Gotta get up off 'puter again, man my back hurts, just from folding

laundry! Atleast I've got some clean clothes to wear.If I ever hit

the lottery I'll pay someone to pick up my laundry lol Peace,

[Guest guest]

Washington where the attitude of opiod therapy seems

to be in the stone ages.

It is in PA, in NY and in FL...it is in every state of our

nation. There are doctors within each who bother to be educated about

what constitutes abuse and what does not. There will always be

individuals who do abuse their medicines and those who are CONSTRUED

to be abusing their medicine even when they are not. In the future

hopefully this will not always be the case.

Night Hon

> ,

>

> I know that in theory you are right, but I also know hon, that in

the real world, there are those that abuse the meds and do become

addicted thru excessive usage. My mother had an employee who is now

going to jail for just such abuse thru the Workers Comp program. If

we as educated and honest patients follow the guidelines and are

honest with the doctors and ourselves then yes, this matter of non

addiction is absolutely true. Unfortunately though, there are those

who are less true to both who have laid many obstacles in our way.

Especially in the state of Washington where the attitude of opiod

therapy seems to be in the stone ages. As a matter of fact, I found

it very interesting how the WCI stated that the ONLY appropriate use

for opiod threapy is for bone cancer patinets, and unless they could

prove that this man had such that they would be turned over to the

appropriate authorities, because he had indeed been seeing at least 3

doctors who were each perscribing him Vicodin that the state had been

paying for for 1 year before they put it all together for his sole

purpose being for abuse, and getting high on the medicine.

>

> Hugs hon,

>

>

>

>