Celeste

[Guest guest]

I know this is a long shot, but...

Did you ever live in Alabama? I worked with a wonderful lady about 10 years

ago at country club in Montgomery named Celeste. She also had Fibro and

managed to put out some of the tastey-est things from the bakery.

Love & Peace from Ozark, Alabama

@}-}-Trudie L. & Laptop ^..^

Trudie's Theme

Sing like only God can hear you!

Work like you're serving Jesus!

Love like you've never been hurt!

And dance like no one's watching!

[Guest guest]

> > This morning I really didn't feel like getting up but I trudged through

> and did The Firm Maximum Cardio Burn.

good goin' celeste!! the first thing that i think of every morning

when i wake up, is going back to sleep... so i can sympathize...lol

:*carolyn.

[Guest guest]

Great news about Chloe being able to maintain in her series of EDF/mehta

casts! Enjoy her cast free summer!

HRH

> Hi Meredith.

>

> Welcome! i don't know if you remember me but we used to be on the

> Chromosome 4,5,6 group. my daughter Chloe has a Chromosome 6

> deletion. she will be 5 in july.

>

> Chloe also has scoliosis. Was casted from 20 months to 4.5 years. we

> didn't get much correction but she did not get worse which is a good thing

> because it had been progressing rapidly.

>

> We are taking a break right now in a brace to address some issues and then

> enjoy the summer but then she will go back into a cast in september. we

> are trying to put off surgery as long as possible but for chloe it is

> inevitable.

>

> she tolerated the cast remarkably well. the first few days she was

> confused and a little angry to have woken up to be wearing this big

> plaster thing! once she got used to it, it was no big deal she also was

> able to do more and it was so nice to see her sitting so straigh. i was

> worried too that becasue she couldn't really understand what was happening

> that it would make it harder but she really adapted quite quickly!

>

> when will olivia be casted? how are you all doing?

>

> xo

> Celeste (mom to Chloe 4.5, 13 casts at chicago shriners, brace break,

> chromosome 6q deletion syndrome and connor, 3, no issues but a lot of

> attitude!)

>

>

>>

>> Hi,  my name is Meredith and I am new to this site. My daughter Olivia

>> is 8 and has a degree of 86.  My daughter has a genetic disorder called

>> Cri Du Chat and is in the severe/profound category.  She is small and is

>> basically the size of a typical 4 year old.  We are going to attempt to

>> cast her for the next three years and then do the fusion surgery.  Are

>> there any families out there that have a child who is somewhat involved

>> that have had the casting done?  Also, how long have many of you done

>> the casting for?  I do not mean to sound naive, but do they correct it

>> with a gradual straightening?  Is that why the casts are changed every

>> five months?  We will be going to Riley in Indianapolis.

>> Meredith

>>

> hi

>

>