Update and prayers please

[Guest guest]

Hi everyone,

I haven't been on here for a while, but I needed to

let everyone know how things are for us and plead for

your prayers. I have come here so many times and asked

for that, as I know so many of you are religeous. I

know that we may not be able to accomplish much by our

selves to bless and benefit others lives when we are

so worn with our crazy and hectic lives, but as a

group of faithful and loving people, I believe that we

make one heck of a plea and cry unto the Lord. And

That is what I need from you guys now if that is

possible. I do not care what denomination you belong

to, I just ask that you please ask God in whatever way

you wish, to bless my family right now if you would.

I honestly do not even have the time to tell you all

the aweful things going on in our lives right now, but

I will say that thankfully this time it is not to do

with our children and their Autism, and that they are

actually doing very very well right now, but it has to

do with my husband and my health and finances and how

we can care for and handle everything we need to at

this point with our health and such.

To save time for myself and still update you all I

have just coied and pasted a letter I just sent to my

family and my husbands family updating them of some

things and the most recent ones from today. It is a

little more personal than I would probably share

maybe, but I have shared a lot with you all and hope

you don't mind. SO here is is. May the Lord bless all

of you and please ask him to bless me and mine.

Thanks, Esther

Here is the e-mail update:

Hi guys,

I am sorry that I do not have much time to write right

now. I am so worn down. I have some maybe good news

and maybe not, so I guess it is serious prayer time

again. We desperately need the prayers on our family's

behalf.

There are so many things going on right now that I do

not have time to even touch on all of them right now,

and we are overwhelmed and at our breaking point. But

since there is still no relief we must go on and pray

there will be soon, and know that God must think that

our breaking point is not quite yet

The main things that I know many of you are concerned

about and that we both had our appointments for today

was my mammogram results, Both of our Arthritis

appointments, and Mikes Crohn's appointment. So that

is all I will make the time for in this letter. So

sorry, but I barely have the strength right now to

respond to everyone.

We went to Mike's apptmt first and were so excited

about the things the doctor was telling us, at first.

He was saying that they could do this surgery and

remove his colon and that he would never have problems

again and he got all down to the nitty gritty of who

the surgeon was and everything. Mike's parents had

taken off work and come to the appointment with us and

Mike's Brother's wife Jen came all the way from

Kennewick (abt. 4 hours away) and watched all our kids

plus her own three for us because she knows how ill

Mike is right now, and that he has missed going into

his 3rd week from work due to his Crohn's.

So we were extatic, why did we not hear of this

surgery before? We wondered... and then the Dr. told

us of how wonderful all the new technologies are, and

we thought that that must be the reason. Well just as

we got all finished with all our questions and the Dr.

was scheduling 's appointment with the surgeon,

the Dr. said you are so lucky that you have Ulcerative

Colitis and not Crohn's, those poor guys don't have an

option, they are stuck with this life of misery.

We suddenly realised he wasn't remembering that Mike

has Crohn's. We asked him about it, and he froze and

said, Oh my gosh, I got you mixed up with another

patient of mine, I am so sorry. So then there were a

million other questions and they had to go back over

the diagnosis and look and recal Mike's case to see

what they can do. The Dr. finally said, well you know

our records our not conclusive, we told Mike that he

has Crohn's disease, based off of a questional

colonoscopy that was vague and done back in 1999.

There is a slight chance that he actually could have

Ulcerative colitis instead. They are almost identical,

but UC affects only the large intestine and Crohn's

affects both. If he has UC we can cure him and the

rest of his life he will be happy and fine, if we find

he has Crohn's we have one more somewhat risky

medication he can try and that is it, he will basicly

have to suffer.

So, My desperate prayer and plea to all of you is to

pray your hardest that he was originally misdiagnosed

and that he has UC and can get the sugery and be done

with this horrible chapter in our lives and that if

that is not God's will, that his Crohn's can ease up

and let his body have a break, so that he can heal and

not be in such constant and excrutiating pain.

So then we rushed off to our Arthritis appointments

and Mike's parents went back and watched our kids so

that Jen could drive back to Kennewick.

I have a bit of good news with my appointment because

the first time in a long while my Glucosamine kicked

in and though I take 8 of them a day, as long as I

remember to take 4 in the morning and at night, I can

get through the day pretty well, but if I miss a dose,

I can barely walk and really hurt so badly I want to

go hide and cry, but don't have time for it, and need

to be the strong one of the family as no one else has

been able to right now. But at least I have something

that can help me as the Immune sepressants and other

things the doctors had me on were not helping.

As for Mike's Arthritis appointment the doctor

confirmed that Mike too, has Arthritis, but he needs

to be sure on the type of it, so he ordered a bunch of

tests. The doctor seems to think that he also has the

Genetic kind called Ankylosing Spondalitis like me,

but he has to do a test. The good news though is that

they did x rays and though things needed adjustments

from a chiropractor, none of them were fused together

yet, like some of mine are. So that was very posative,

but he thinks it may be because Mike has already been

on Immune sapressants for 7 years now, and I haven't

so even though he did not know he was being treated

for this, the treatment for Crohn's and AS (Ankylosing

Spondalitis) is very much the same.

Then my appointment, well they did find something on

the mammogram, unlike I was told earlier. They found

something that they considdered to be too vague and

blurry to tell, but this new Dr. was not satisfied

with that, so she set me up for an Ultrasound now as

well. She says she doesn't think it is any big deal.

Probably just an inflamed Milk duct, which she says

you can get for up to a year after you stop nursing,

but she does not think it is cancer, as the technician

scared me about before. She said that if the

Ultrasound shows nothing then we could do a biopsy, if

that would make me feel better, but she thinks that if

it shows nothing that most likely the pain is coming

from my PolyCistic Ovary syndrome (PCOS) being all

messed up and not properly cared for, because I keep

having Dr.s who don't believe I have it. So since she

is a specialist in that department she put me on 2 new

medacines to help that and said, " Give me 6 months and

even if I can't fix all of you, you'll be feeling 10

times better " . So hopefully?!

Anyways, some good, some bad news, but we figured we

would update everyone, since I know many of you are

worried for us. We appreciate the love and concern you

all have for us and all the many things you each do

for us. Thank you all!

Love, Esther and family* Good night

__________________________________________________