Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Sam”www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Sue, does Sam have sleep issues? If so does this help with sleeping also? Beverly Mom to Noah age 10 Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 does it taste better than ginkgo?Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57 Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Hi Beverly, Sam hasn’t had many sleep issues besides a restlessness or pain issues at times. For the restlessness I have used melatonin but he has not required it since he has been on his new vitamin protocol. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of bal93@...Sent: Monday, July 30, 2012 5:48 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Sue, does Sam have sleep issues? If so does this help with sleeping also?Beverly Mom to Noah age 10 Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Sam takes it in capsule form with applesauce so he does not taste it. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of AlmeidaSent: Monday, July 30, 2012 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS does it taste better than ginkgo?Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 But Sue, do you think it helps with behavior or cognition?? From: Sue Mayer ; To: <DownSyndromeInfoExchange >; Subject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Sent: Tue, Jul 31, 2012 2:57:09 AM Sam takes it in capsule form with applesauce so he does not taste it. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of AlmeidaSent: Monday, July 30, 2012 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS does it taste better than ginkgo?Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 It's really rare for 5-HTP to cause seizures. I think the old study you're referring to was an infant that had a seizure on the 5-HTP. I often recommend testing serotonin levels to my patients with DS before starting any supplement that will alter neurotransmitter levels. It's a urine test and only costs $47 to test one neurotransmitter. Serotonin is important for moderating appetite, mood and sleep, among others. Low serotonin can lead to sleep problems, behavior problems and carbohydrate cravings. It's also the precursor to melatonin, which is how it helps with sleep. It's definitely a helpful supplement for those with DS. -a Peirson, ND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 With Sam being on as many supplements as he is it is hard to say what is doing what at this point. My main concern was growing bone, second concern immune system issues but I have to say with his new protocol we have seen better speech, less repetition, less frustration in listening and working on school work. We are also meeting our original goals of bone growth and better IG numbers. It’s often hard to tell with Sam because changes in behavior could be supplement, food related, yeast picking up or dying out, or pain related. Sam’s cognition is not only affected by Down syndrome, he also has a brain injury so I’m never sure if his cognition is more affected by the brain injury or by the oxidative stress. He’s a puzzle but I do feel like we are moving in the right direction. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Tuesday, July 31, 2012 1:59 PMTo: List Ds; List DsSubject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS But Sue, do you think it helps with behavior or cognition?? ; To: <DownSyndromeInfoExchange >; Subject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Sent: Tue, Jul 31, 2012 2:57:09 AM Sam takes it in capsule form with applesauce so he does not taste it. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of AlmeidaSent: Monday, July 30, 2012 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS does it taste better than ginkgo?Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Samâ€www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Thank you, Sue! To: DownSyndromeInfoExchange Sent: Tuesday, July 31, 2012 11:06 PMSubject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS With Sam being on as many supplements as he is it is hard to say what is doing what at this point. My main concern was growing bone, second concern immune system issues but I have to say with his new protocol we have seen better speech, less repetition, less frustration in listening and working on school work. We are also meeting our original goals of bone growth and better IG numbers. It’s often hard to tell with Sam because changes in behavior could be supplement, food related, yeast picking up or dying out, or pain related. Sam’s cognition is not only affected by Down syndrome, he also has a brain injury so I’m never sure if his cognition is more affected by the brain injury or by the oxidative stress. He’s a puzzle but I do feel like we are moving in the right direction. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Tuesday, July 31, 2012 1:59 PMTo: List Ds; List DsSubject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS But Sue, do you think it helps with behavior or cognition?? ; To: <DownSyndromeInfoExchange >; Subject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Sent: Tue, Jul 31, 2012 2:57:09 AM Sam takes it in capsule form with applesauce so he does not taste it. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†http://www.suemayer-specialneedsmom.blogspot.com/ From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of AlmeidaSent: Monday, July 30, 2012 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS does it taste better than ginkgo? Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†http://www.suemayer-specialneedsmom.blogspot.com/ From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Where do you get 5HTP? Thanks, Lori To: "DownSyndromeInfoExchange " <DownSyndromeInfoExchange > Sent: Thursday, August 2, 2012 11:47 AMSubject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Thank you, Sue! To: DownSyndromeInfoExchange Sent: Tuesday, July 31, 2012 11:06 PMSubject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS With Sam being on as many supplements as he is it is hard to say what is doing what at this point. My main concern was growing bone, second concern immune system issues but I have to say with his new protocol we have seen better speech, less repetition, less frustration in listening and working on school work. We are also meeting our original goals of bone growth and better IG numbers. It’s often hard to tell with Sam because changes in behavior could be supplement, food related, yeast picking up or dying out, or pain related. Sam’s cognition is not only affected by Down syndrome, he also has a brain injury so I’m never sure if his cognition is more affected by the brain injury or by the oxidative stress. He’s a puzzle but I do feel like we are moving in the right direction. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†www.suemayer-specialneedsmom.blogspot.com From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Tuesday, July 31, 2012 1:59 PMTo: List Ds; List DsSubject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS But Sue, do you think it helps with behavior or cognition?? ; To: <DownSyndromeInfoExchange >; Subject: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Sent: Tue, Jul 31, 2012 2:57:09 AM Sam takes it in capsule form with applesauce so he does not taste it. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†http://www.suemayer-specialneedsmom.blogspot.com/ From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of AlmeidaSent: Monday, July 30, 2012 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS does it taste better than ginkgo? Pat De: Sue Mayer Para: DownSyndromeInfoExchange Enviadas: Segunda-feira, 30 de Julho de 2012 17:57Assunto: RE: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Yes, we give Sam 5HTP, 2 capsules, twice a day. Sam does not react well to gingko but seems to tolerate this supplement fine. Sue Mayer Mom to Sam (11) who is genuine, unique and perfectly “Sam†http://www.suemayer-specialneedsmom.blogspot.com/ From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Christiane aquinoSent: Monday, July 30, 2012 4:41 PMTo: List DsSubject: [DownSyndromeInfoExchange] 5HTP and serotonin levels in DS Dear fellow moms, Have any of you tried to give 5-hydroxytryptophan (5-HTP) to help increase the levels of serotonin (and thus help neurogeneses and brain development) of our children naturally? It may help with cognition and also constipation: http://www.ceri.com/q_v6n8q3.htm I found also an old study that suggests that it may cause seizures in 5% of our kids. Is it worth a shot? Have any of you tried?? Thanks, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2012 Report Share Posted August 7, 2012 we got it off Iherb.com i believe. country life brand liora > > Where do you get 5HTP? > Thanks, > Lori > Quote Link to comment Share on other sites More sharing options...
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