Re: kathe/ Marina

March 30, 2006

Hi ,

Phoned my Rheumy this morning and couldn't get past the secretary she said she

would pass the message on (that pain was unberable since lowering Celebrex) and

he would ring inbetween patients. Late this afternoon she rain back and said

that he said had I tried Panadine (paracetamol and codine over the counter

stuff), and that if that was not enough, to return to the original dose of

Celebrex!!!!

I asked if there was something that could be used instead of the Celebrex and

she said no.

I am now at my wits end and really upset one minute he lectures me to the side

effects of the dosage of Celebrex and that it needs to be lowered hopefully

stopped and the next he says return to the dose..

The worst of it for me is I can't tell where the Fibro starts and the RA ends or

visvera.

I hate my life!!!!

Thanks for listening

in oz

Re: [ ] Thankyou for your intro's--long

:

As long as your doctor is telling you that there is

nothing to replace the Celebrex and there is nothing

that he can give for pain, he won't do you any good.

You need a new doctor, who will get you the proper

treatments. Actually, your rheumy should be the one

prescribing you NSAIDs and pain medication, as well as

a DMARD (disease modifying drug). There are meds to

replace Celebrex - I replaced it with Mobic which is

also a NSAID. It does not work as well as Celebrex,

but I feel it is safer for me. There is no reason

that you should continue to suffer in pain for the

next three months when you see your rheumy again.

Call his office, bug his office, whatever it takes,

get in sooner, or have him prescribe you some meds to

help you in the meantime.

Best of luck - Kathe in CA

--- oneoften71 <oneoften71@...> wrote:

> Hi everyone,

> Firstly Thankyou so much for those of you who gave

> me an intro, we all have so much in common and yet

> each of us have our only daily struggles that are

> only our own.

>

> Now if I may can I ask some advice?? Two weeks ago I

> saw my new Rheumy for the first time and after one

> visit.... all I can say is he seems ok. But I have

> one big problem, I was taking celebrex 200mg three

> times a day and have been for the past three years.

> He does not want me to continue on this and asked

> that I drop it back to one a day in the morning,

> which I have done. He also requested xrays of my

> hands and feet and will see me again in three

> months.

> Well I went in to see my new GP today as the effects

> of dropping the celebrex has been huge, I am aching

> all over, with extreme pain in my hands (left one

> has now swollen) feet, neck and across my shoulders.

> GP says there is nothing he can do about increased

> pain other than to continue taking paracetamol (

> which isn't touching it) . I asked about anything to

> replace celebrex...answer there is nothing!! Asked

> about a stronger pain med again....there's nothing

> he can give.

> I am I feel quiet a strong person, but this level of

> pain is really getting to me and I am so angry,

> upset that there is nothing further to offer. When

> we moved here six weeks ago I had a hard time just

> getting a GP to take us as a family on so I don't

> like my chances of finding another GP.

> I also am really worried as my disabilty pension is

> up for review in May and I don't think this GP is

> going to help me one little bit with that also, he

> hasn't said that I just get the feeling......

> My big question is is there really nothing he can

> do????

> scared, angry and in pain

> in Oz

>

> [Non-text portions of this message have been

> removed]

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

March 30, 2006

, what DMARD are you on? I was taking Celebrex, but my

insurance company removed it from their formulary, making it very

expensive to continue taking it. I am taking arthritis-strength

Tylenol, two tablets twice a day. I had a bleeding ulcer from OTC

Aleve, so I'm afraid to take another NSAID. Enbrel works so well for me

that the Tylenol is just about enough for me right now. I do have some

Tramadol for breakthrough pain. But if you're not on a DMARD, you need

to be.

Sue

On Thursday, March 30, 2006, at 04:23 AM, oneoften71 wrote:

> I am now at my wits end and really upset one minute he lectures me to

> the side effects of the dosage of Celebrex and that it needs to be

> lowered hopefully stopped and the

March 30, 2006

Hi Sue,

I am on Arava 20 mg and methotrexate 20mg weekly, I think its getting close to

time to look at a bio med,, dunno if my Rheumy would agree though.....

Take care

in oz

Re: [ ] kathe/ Marina

, what DMARD are you on? I was taking Celebrex, but my

insurance company removed it from their formulary, making it very

expensive to continue taking it. I am taking arthritis-strength

Tylenol, two tablets twice a day. I had a bleeding ulcer from OTC

Aleve, so I'm afraid to take another NSAID. Enbrel works so well for me

that the Tylenol is just about enough for me right now. I do have some

Tramadol for breakthrough pain. But if you're not on a DMARD, you need

to be.

Sue

On Thursday, March 30, 2006, at 04:23 AM, oneoften71 wrote:

> I am now at my wits end and really upset one minute he lectures me to

> the side effects of the dosage of Celebrex and that it needs to be

> lowered hopefully stopped and the

March 30, 2006

, regardless, it sucks for you. They just play those stupi

mind games. Make an appointment and go talk to him personally. When

offices play relay with messages, the results suck. You are in pain,

real pain, that needs more than just an OTC fix. Until you get some

control, the other meds may/may not be effective. Go see him. If

that doesn't work for you, go to someone else. If the pain, in the

meantime, gets too bad, then go to the ER to be treated. They can

give you intravenous doses of steroids (usually Soul-Medrol or Solu-

Cortef). This is very very helpful they can also give you a narcotic

to get the rest of your pain under control. Go see him!!,,,,Gentle

Hugs and Prayers, Marina

March 31, 2006

Hi Marina,

yes it does suck!!!!

I am just going to lie low for the weekend and enjoy my boys being home, before

putting my mind back into thinking mode about this whole mess when there back at

school on Monday.

Take care

in oz

[ ] Re: kathe/ Marina