Re: Question for all of you

[Guest guest]

HI a

Sorry to hear your having a lot of pain still, sometimes it can take up to

3-4 months before you feel any improvement some people are lucky and

feel great after there first shots but most of have taken about 12-16 weeks

before the med kick in.

.

a <aN829@...> wrote: Hi everyone,

I've had 3 shots now of Enbrel. Last night we went to friends house

to play cards...they don't keep their house as warm as I keep mine, not

knowing this I dressed like I do to be in my house..well as the night

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[Guest guest]

a,

In spite of being on Enbrel, being subjected to the cold will ALWAYS

result in extreme pain for me.

When I get cold, my muscles tense, which causes me pain. That is the

reason we moved to Florida.

Enbrel doesn't help my muscle pain. I know it's discouraging. Hang

in there.

a

On Mar 19, 2006, at 6:49 PM, a wrote:

> Hi everyone,

>

> I've had 3 shots now of Enbrel. Last night we went to friends house

> to play cards...they don't keep their house as warm as I keep mine,

> not

> knowing this I dressed like I do to be in my house..well as the night

> went on, I got really cold and my hands, shoulders and neck really

> started to hurt, so bad that someone else had to deal for me and I

> then

> couldn't take anymore and had to ask hubby to take me home without

> devulging what was wrong to our hosts (didn't want them to feel bad).

> My question is, I thought enbrel was supposed to stop this kind of

> pain..am I expecting to much to soon? Am I wrong in what enbrel is

> supposed to be doing?

>

> Thanks for any help. I'm ready to just give up darn it all..

>

> a

>

>

>

>

>

>

>

>

>

[Guest guest]

My rheummy told me Enbrel can take up to three months to reach its

maximum effectiveness. But yes I get the same thing if I go into a

too cold or too hot enviroment. More problems when its too cold!

I stood outside talking to a friend last night here in texas in t-

shirt, jeans and no shoes. It was about 65 outside but it had been

raining so it was wet and damp. I was very stiff and painful for a

few hours until I warmed up.

I would be a little more patient with Enbrel. ALso keep in mind that

some people need MTX to help the Enbrel work better. I am not on

Enbrel right now but I have in the past. I am on Humira.

Toni

>

> Hi everyone,

>

> I've had 3 shots now of Enbrel. Last night we went to friends

house

> to play cards...they don't keep their house as warm as I keep mine,

not

> knowing this I dressed like I do to be in my house..well as the

night

> went on, I got really cold and my hands, shoulders and neck really

> started to hurt, so bad that someone else had to deal for me and I

then

> couldn't take anymore and had to ask hubby to take me home without

> devulging what was wrong to our hosts (didn't want them to feel

bad).

> My question is, I thought enbrel was supposed to stop this kind of

> pain..am I expecting to much to soon? Am I wrong in what enbrel is

> supposed to be doing?

>

> Thanks for any help. I'm ready to just give up darn it all..

>

> a

>

[Guest guest]

a,

First of all, I am sorry about you having so much pain. I

understand, I have been there and still there at times. However, it

really depends. It may be that it is too early to tell. Although, I

knew the first injection of Enbrel that I would be helped by it and I

was for 9 months. I stayed on it for years then it stopped working

little by little until it was more trouble than it was worth.

Give it a little more time. I think the docs say 6 weeks but ask

again to be sure. You will still have to dress to stay warm. Take a

sweater always. It is always freezing in my house. I have a jacket

on as I type this letter. I have a blanket in the car and keep a

sweater with me. Also Remicade might be a better option for you.

Some people swear by it. I was just the opposite. We all react so

differently to these meds for some reason. I have no idea why. It

woud be nice if one thing worked for everyone. It would cut down on

the confusion anyway. I am sure the doctors' jobs would be a lot

easier.

Hang in there.

peace,

Ebony

>

> Hi everyone,

>

> I've had 3 shots now of Enbrel. Last night we went to friends

house

> to play cards...they don't keep their house as warm as I keep mine,

not

> knowing this I dressed like I do to be in my house..well as the

night

> went on, I got really cold and my hands, shoulders and neck really

> started to hurt, so bad that someone else had to deal for me and I

then

> couldn't take anymore and had to ask hubby to take me home without

> devulging what was wrong to our hosts (didn't want them to feel

bad).

> My question is, I thought enbrel was supposed to stop this kind of

> pain..am I expecting to much to soon? Am I wrong in what enbrel is

> supposed to be doing?

>

> Thanks for any help. I'm ready to just give up darn it all..

>

> a

>