Re: Teen Supposed to be having fun in senior year, diaginosed with RA

December 27, 2005

Hi , I have a daughter your age but she's a freshman in

college now. Talk to your doc, tell him that you're having such a

hard time! Can you get those little gel packs,the blue kind, and

microwave them? I have some little bitty ones that fit inside my

wrist brace. Talk to your school nurse about some kind of

accomodations for you, they're usually super sweet in my experience.

We use rice socks a lot too- take an all cotton sock, put rice in it,

tie or sew it up, and microwave it for 2 to 3 minutes depending on

your microwave, just watch it cos burnt rice is a truly nasty

smell...but it stays warm for longer than you'd think. Also if you

know a chiropractor, see if they sell Biofreeze, I find that it

helps. So you're engaged-how exciting! I have 3 daughters, 2 married,

one single son and the youngest daughter is in college but has a

steady bf. E me anytime you need to rant or whatever, we all

understand what you're going through.I hate it that your senior year

has been so tough. Hoping you have pain free days ahead and the rest

of your sr. year is awesome.

Hugs

jane

-- In , " " <daveschick8786@y...>

wrote:

>

> Hey everyone,

>

> ok, im 18 1/2 and a senior. I found out recently that I have RA. I

> have it mostly in my right wrist and hands, but all my other joints

> are stiff, and my back and wrist and fingers bother me the most. I

get

> inflammation so much sometimes i cry and have to wear my splint at

> school, and im supposed to be enjoying my rest of senior year, and

im

> getting married in 2 years to my bf (weve been dating for over 3

> years) and i cant enjoy it. I have terrible fatigue, and hurting

all

> the time. pain medicane wont work, and know im getting to the point

of

> being depressed all the time. any suggestions, or any teens out

there

> in school, what r ur suggestions for dealing with it in school? i

have

> a little ball i roll around with my hand and have my splint but i

wish

> i could bring my heating pad or anything thats warm.

>

> please reply back

>

> melissa

>

December 27, 2005

You may try those portable heating pads that hunters use to keep their hands and

feet warm. My husband and son use them on outings with 4 wheelers.

Hang tuff ok,,,,just remember you can do anything and try to keep that outlook

ok,I am just 32 and I refuse to be in a wheel chair. Today I went to the Dr only

for him to say I am in a remission stage!!!!!!!!!1 Woo

hoooooooooooooooooooo!!!!!!!!! Thank GOD

Thoughts are with ya kiddo

Loucretia

<daveschick8786@...> wrote:

Hey everyone,

ok, im 18 1/2 and a senior. I found out recently that I have RA. I

have it mostly in my right wrist and hands, but all my other joints

are stiff, and my back and wrist and fingers bother me the most. I get

inflammation so much sometimes i cry and have to wear my splint at

school, and im supposed to be enjoying my rest of senior year, and im

getting married in 2 years to my bf (weve been dating for over 3

years) and i cant enjoy it. I have terrible fatigue, and hurting all

the time. pain medicane wont work, and know im getting to the point of

being depressed all the time. any suggestions, or any teens out there

in school, what r ur suggestions for dealing with it in school? i have

a little ball i roll around with my hand and have my splint but i wish

i could bring my heating pad or anything thats warm.

please reply back

melissa

December 28, 2005

,

I have a special needs teenager..though she does not have RA she has

sickle cell anemia. There is something called a 504 accomodation for

special needs. It will require some documentation from your doc.

But since you are 18 yrs old you can do all the paperwork yourself.

You need to state your needs...like access to heating pad...longer

time to comeplete assignments due to fatigue. Half or short school

days. Whatever you feel is reasonable to help you finish out the

school year. See your school counselor when you return back to

school. Once you request 504 the school has so many days to schedule

an appnt with your counselor the coordinator of special ed, your

teachers and you.

I have had to do this for both my children...but the 18yr who is also

a senior is the only one due to her health issues that still has a

current one in effect. I don't know where you are in the country,

but I am in Texas and they take this paperwork very serious because

the federal government will fine them if they fail to follow

procedure as well as they get extra money fo each child they educate

under the special ed rules...and if that child is a military

dependent or federal government emloyee dependent they get even more

money.

Good luck

toni

--- In , " " <daveschick8786@y...>

wrote:

>

> Hey everyone,

>

> ok, im 18 1/2 and a senior. I found out recently that I have RA. I

> have it mostly in my right wrist and hands, but all my other joints

> are stiff, and my back and wrist and fingers bother me the most. I

get

> inflammation so much sometimes i cry and have to wear my splint at

> school, and im supposed to be enjoying my rest of senior year, and

im

> getting married in 2 years to my bf (weve been dating for over 3

> years) and i cant enjoy it. I have terrible fatigue, and hurting

all

> the time. pain medicane wont work, and know im getting to the point

of

> being depressed all the time. any suggestions, or any teens out

there

> in school, what r ur suggestions for dealing with it in school? i

have

> a little ball i roll around with my hand and have my splint but i

wish

> i could bring my heating pad or anything thats warm.

>

> please reply back

>

> melissa

>

December 28, 2005

I can tell ya, I have a special needs child as well. I have a little boy with

an unknown neuromuscular disorder. I have been though the whole rigmarole with

IEPS and so on and I can tell ya it is pretty much the same here in Mass as it

is where you are in Texas. I always assumed it was the same no matter where you

are.

Good luck

Beannu Si

Nash

[ ] Re: Teen Supposed to be having fun in senior year,

diaginosed with RA