Re: Suggestion/Request

[Guest guest]

If her child's OCD just appeared one day, there's a chance it's PANDAS. PANDAS

is caused by strep antibodies attacking the brain and the treatment it high

doses of antibiotics for awhile. Here is a good link to learn about it. It's

footage of Dr. Swedo, the leading expert in PANDAS research. You will need

to have Quicktime installed to watch it and it takes about 40 minutes. WELL

worth the viewing for any mom of an OCD kiddo.

http://media.mindinstitute.org/video/toxconf/mov/swedo_2006_toxconf_hi.mov I

emailed Dr. Swedo and she said they are treating PANDAS with Penicillin or

Keflex for those allergic to penicillin.

It's not easy to find a doctor who knows how to treat PANDAS so Beth Mahoney is

preparing a list at www.savingsammy.net. of doctors who know how. Please send

your friend there to look over the footage too. It might be of interest to her.

Not many doctors are familiar and most hesitate to give antibiotics for such a

long period of time. Funny thought, they treat rheumatic fever exactly that way,

long term antibiotics, so it stops attacking the heart. Beth's son was treated

with the antibiotic Augmentin for 1 year at 2000 mg and then 2 years at 1000 mg

but he is symptom free now.

The best place to read about PANDAS is at www.latitudes.org Click on forums

and choose either OCD or Pandas. Great Reading from Mom's

I have started my 2 OCD babes on Keflex yesterday. I'm convinced it's PANDAS.

Wish us luck!I had received Keflex from another doctor before but the dosing was

wrong. Not enough for long enough so here we go. I'm optimistic.

>

> Hi all

> I don't post a lot-I mainly just lurk. But recently I have been going back and

forth off of the group with someone who is new to OCD.

> It isn't in the family-the kid just showed up with it one day.

> The person I am emailing back and forth with is just being to deal withit and

doesn't see that things can and will get better. The fact that we all post that

there are real ups and downs with OCD is hard because like all of us, this

parent just wants it gone. Don't we all wish we had a magic wand or magic

supplement to make it all go away?

>

> I was thinking that maybe it would be helpful for this parent and others to

hear some sucess stories-that OCD is not the end of the world, with work and

meds it can be on the back burner. Also, this parent is going through the stages

of grief like all of us did and maye it would help to share how we worked

through it.

> Just an idea-I hope some of you see the value in it.

> I know whhen I was a newbie " sucess " stories helped and it helped to share

them with my child

> Ydati

>

[Guest guest]

Hi - our daughter's OCD also " appeared out of the blue " , literally - I can

remember the day both times this happened. She has done extremely well with ERP

(Exposure & Ritual Prevention) therapy, but along the way, we learned that she

has PANDAS. We still use ERP therapy, but we also treat it with anti-biotics,

and very rarely, steriods. She may want to check out a PANDAS diagnosis - there

are a lot of posts about this lately, but let us know if you need more info.

Our dd8, went from being nearly crippled from severe OCD (spitting 100's of

times a day, washing 50+ x a day, constant fear of throwing up, unable to wear

most clothes, play with certain toys etc) to back to being a happy, smart, wild

little girl. For us, it really helped to read a ton, research as much as

possible, and to talk about it with everyone we could. Meeting other parents

(and kids!) was very theraputic for our family. Tell them we are all rooting

for their daughter!

>

> Hi all

> I don't post a lot-I mainly just lurk. But recently I have been going back and

forth off of the group with someone who is new to OCD.

> It isn't in the family-the kid just showed up with it one day.

> The person I am emailing back and forth with is just being to deal withit and

doesn't see that things can and will get better. The fact that we all post that

there are real ups and downs with OCD is hard because like all of us, this

parent just wants it gone. Don't we all wish we had a magic wand or magic

supplement to make it all go away?

>

> I was thinking that maybe it would be helpful for this parent and others to

hear some sucess stories-that OCD is not the end of the world, with work and

meds it can be on the back burner. Also, this parent is going through the stages

of grief like all of us did and maye it would help to share how we worked

through it.

> Just an idea-I hope some of you see the value in it.

> I know whhen I was a newbie " sucess " stories helped and it helped to share

them with my child

> Ydati

>