Re: Re: New- Saving Sammy: Curing the boy who caught OCD

[Guest guest]

I am glad to hear that some doctors are more receptive to the PANDAS diagnosis

and are beginning to find treatments that work for those children who have

PANDAS OCD. I did want to point out that not all children with OCD have PANDAS;

I am sure mine does not, given family history. Also, although Zoloft does

improve mood, it does also decrease anxiety and the strength of obsessions for

some children/adults, thus decreasing their OCD symptoms and allowing them to

fight back harder. Zoloft has given us back our daughter and not just because

she is happier (although she definitely is). I guess the moral of the story is

there is no one size fits all treatment, and you know your own child best.

Best wishes to all,

(mom with OCD, 9 yo daughter w/ OCD)

>

> Subject: Re: New- Saving Sammy: Curing the boy who caught

OCD

> To:

> Date: Friday, October 16, 2009, 7:12 AM

> I had the pleasure of meeting Beth,

> the author last night at a book reading for " Saving Sammy "

> last night here in Maine. Sammy had no symptoms of a strep

> infection ever, but it was in his body. Also, strep

> antibodies need to only be over 100 to be a possible strep

> infection, or the presence of antibodies long after an

> infection, for a positive PANDAS diagnosis. A simple dose of

> anti biotics was not enough. Sammy was on the powerful

> anti-biotic Augmentin for one year at 2000 mg strength and 3

> more years at 1000 mg. The anti biotic is a more powerful

> form of penicillin with an additive.

>

>   This book is amazing. You'll laugh and cry right

> with Beth. She'll give you the tools to show your doctor why

> this is a very important treatment to consider. Doctors

> often hesitate to give one course of anti-biotics. When they

> would treat rheumatic fever, the course of anti-biotics was

> years as well, to fully remove the anti bodies from

> attacking the heart. Those are strep anti bodies too. The

> diagnosis which was the cause of Sammy's OCD and Tourette's

> was a disease called PANDAS. You can read what other mothers

> say helped their children at www.latitudes.org, clicking on

> forums, then Choosing PANDAS. Sammy's original pediatrician

> tried to cure him with Zoloft, increasing the dose over and

> over again. This almost killed him. He didn't need to be

> happier, he needed to strep to stop attacking his basel

> ganglia in his brain. 

>

>   Amazon.com has great prices on this book. We have

> our doctors appointment all ready. At Beth's Facebook

> page,she's listing PANDAS receptive doctors in each state.

> Sixteen so far. You can go there from www.savingsammy.net

> Look at all the interviews, you'll be amazed. We as mom's

> need to remind doctors often that WE know our children best,

> and if they are not doing better, we need to find a doctor

> that will help them.

>

>

>

>

> >

> > I recently read the book Saving Sammy: The boy who

> caught OCD. I thought it was excellent and it will hopefully

> save many children.

> >

> > It was surprising to me that the boy was treated with

> Augmentin XR based on the rise and fall of the strep

> antibodies rather than testing for an active strep

> infection. The antibiotics were used for their possible

> anti-inflammatory effects rather than anti-bacterial.

> >

> > The author, Beth Alison Maloney has a website at

> > www.savingsammy.net

> >

> > Watch the videos there from TODAY show and other

> interviews.

> >

> > Facebook page:

> >

http://www.facebook.com/home.php?#/pages/Beth-Alison-Maloney/233696275037?ref=nf

> >

> >

> >

>

>

>

>

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