Re: Neurological problems and arthritis question?

[Guest guest]

Hi Maureen,

The only neruo problems I have are my constantly numb & tingling feet

and local sciatic pain. When my calcium is low then my hands and mouth

area tingle. I don't have RA but am a long term fibro patient. Have you

been checked for chronic fatigue also? How about low thyroid hormone

which can make you tired and achy? I do have a family history of ALS.

hugs,

Debbie L

>

> I've been diagnosed with inflamatory arthritis. I had a positive RA

> test but retesting was negative. My symptoms include swollen and

> disfigured joints, carpal tunnel etc. but I also have many

> neurological symptoms. Foot drag, foot kicking out, pins and needles

> feeling in face, arms, legs. Very tired, too. Does anyone else get

the

> weird neurological symptoms. ALS, thankfully, has been ruled out.

> Thank you for your help...Maureen

>

[Guest guest]

I have these same problems. When you find out let me

know. I will let you know if I find out anything as

well. Tami

Tami -Dossey

[Guest guest]

Me too! I have the same problems -- in fact just

had yet another Nerve conduction test to rule out

carpal and tarsal tunnel -- I have neither of these!

Back to square one -- yeah -- if anybody finds out

what they have let us know! I have RA, Fibro, Lupus,

Diabetes, and HI -- so it could be all that is why I am

having such a problem?!

Hollye

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

--- In , " adell01864 " <adell01864@...>

wrote:

>

> I've been diagnosed with inflamatory arthritis. I had a positive

RA

> test but retesting was negative. My symptoms include swollen and

> disfigured joints, carpal tunnel etc. but I also have many

> neurological symptoms. Foot drag, foot kicking out, pins and

needles

> feeling in face, arms, legs. Very tired, too. Does anyone else get

the

> weird neurological symptoms. Maureen

>

Maureen, I do have similar symptoms, even to forgetting how to spell

many words! RA is dancer. It dances from one place to another, it

seems at its own disgresion. It seems to flare just when you think

you

are improving and usually for no apparent reason. I get by on as low

a

doses of pred, plaquenil and Naproven as possible, and though in

almost

constant pain, at various levels, I am doing this to protect my

stomach

and other organs that are adversly effected by NSAIDS.

I cracked a rib about 6 inches below my left coller bone here awhile

back trying to move a large chest of drawers out from the wall. I

thought it was doing well, but2 weeks ago began to have chest pains

over my

heart. Went to emergency and heart and lungs were in good condition.

It was the RA pickin' on my weakend rib.

Mostly I depend on blood tests my DR takes quarterly as they can

tell

pretty much if there are any kidney, cholesterol, sugar, urine or

what

ever problems. I drink at least 3 quarts of fluids, including juices

and pure water. Try to water walk at least 3 times a week; do all my

gardening, hedge triming, etc as I need the exercise and can't

afford

to have anyone else do it. When I awaken at night is pain, I stretch

and exercise and deep breath to help aleviate the discomfort. Like

you, and like the Dr said, being very tired a lot is part of RA and

the other auto-immune problems like the fibro, gout, Lupus, and

perhaps periferal neurotomy.

I also watch what I eat and go by the RA foundation suggestions of

what to eat and what not to eat and eat mostly whole grains,

legumes,

vegetables, fruits and nuts; also, white meats like chicken, turkey,

and fish, no fats other than about a TBS of Virgin first cold press

Olive oil daily, a bit of ginger and cinnamon, and multi-vitamins

daily, calsium+D, a bit of ground celery seed and parsley leaves

daily. Google

these to learn more about them.

You probably already know these things to do, but I am sharing in

case

there are those just beginning the RA syndroms. It probably will not

cure the RA but it will keep your body strong in order to hold out

against it. But who knows? My right hand and wrist were wretchedly

twisted, swollen, inflamed, very painful and while there is still

inner pain, they look almost normal now! My right foot was drawing

to

the right and it has not gotten any worse for some time. I feel so

lucky to be no worse off than I am.

I hope this is not too long and has not been a boring read.

God bless--- Lee

[Guest guest]

Maureen,

Did you see a rheumatologist? Was rheumatoid vasculitis considered?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Neurological problems and arthritis question?

> I've been diagnosed with inflamatory arthritis. I had a positive RA

> test but retesting was negative. My symptoms include swollen and

> disfigured joints, carpal tunnel etc. but I also have many

> neurological symptoms. Foot drag, foot kicking out, pins and needles

> feeling in face, arms, legs. Very tired, too. Does anyone else get the

> weird neurological symptoms. ALS, thankfully, has been ruled out.

> Thank you for your help...Maureen