Re: Re: another new person to the group~Sandy

[Guest guest]

In a message dated 3/3/2006 10:33:32 PM Central Standard Time,

mrssdaniels2@... writes:

Hi Everyone,

My name is Sandy and I have just been reading up on some of the posts

here, and feel that I could have written many. I am (in 2 days I will

be) 43 and have had RA for about 8 years now. I have just recently

changed Rhum. Drs. because my Dr. had to quit, and I love this new Dr.

I started out as many here have, with the initial diagnosis, which

scared the living daylights out of me. I was sure I was going to either

A. Die or B. Become a cripple in a wheelchair. At first it hurt

soooooooooo bad, but in time, the Dr. tried and found the correct

medications for me to be 'comfortable.' I am never without pain, but at

times it is manageable at best. I have been on Prednisone for about 6

years now...that and Diclofonec, aka Voltaran (I think that is the

spelling). My new Dr. has me off the Diclofonec, down to 5 mg. of

Prednisone (Gosh I love that stuff!) and I have just finished my first

injection of Humira. (That was scary, but I did it!) I was wondering

if anyone else here is on Humira, and how it is helping them, if it is.

My own Dr. is on it as she has some pretty wicked RA herself.

I also want to tell those who have been recently diagnosed, especially

those with small childeren who depend on them, to HANG IN THERE and work

closely with your Dr. to get on the right meds. It takes time, and

patience to say the least. If you feel like your meds aren't working,

call the Nurse, they are (usually) very understanding and caring, and

they know what you are going through. I remember wanting to die, and I

would get soooooooo bad, then I would call the Drs office and the nurse

would listen to me crying, and we would work on another solution. It is

a trial and error disease, but it can become 'liveable' if you stay on

top of it.

One more thing...Don't listen to the horror stories...they will just

intensify your fear and for nothing!

Sorry this became a novel, but I soooooooooo feel the pain here. And

let me know about the Humira thing please.

Sandy

Welcome Sandy Sorry i havent responded till now. Happy early birthday in

case i miss it! HUGS! My name is , i'm 27yrs old with RA. Young i know

but nothing i can do about it. My two kids keep me on my toes wether i want to

be or not. (ages 2 and 7) Yes i am on humira, been for about 6 months now.

The shot gets easier once you get into a routine. The medicine has helped

quite a bit, but i think i may need to up the doseage or change meds since it

isnt working as well as i'd like lately.

These are a great group of people you just have to give them time and

eventually they will reply. and a search for info for us on

everthing

disease related~THANK YOU GALS! Hope you have a pain free day. HUGS

from PA