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Posted

a, I may be starting to get somewhere on Monday. I never did get a report

from the ortho re my specific bone scans done on July 11 and 13. Apparently my

file was misplaced and it turns out I should have seen ortho by the end of July.

I assumed, since the fractures healed and swelling in my foot ended, there was

nothing else to report. I should know by now not to assume anything. Last Sat.

my family were taking me out for dinner and casino and when I got up in the am I

couldn't put weight on my right leg (same one) and my foot was puffed up. By

the time they came to pick us up I had to resort to my wheelchair (good news is

I won $1000 on 25 cent machine). By Monday it was worse so went to my GP and he

started me on antibiotic and pee pills. Still can't put weight on my leg but

swelling is reduced somewhat. The strange thing is that the ,longer I walk

(stiff legged) the better it feels but as soon as I sit for any length of time,

the pain starts up again. As for my eye, it is not good news. It would appear

that I am a candidate for a cornea transplant. My eye doctor is hoping the

specialist I am seeing in November can come up with something new in treatment.

Presently, I have a contact lens in that eye to hold up the tissue but I have

very little sight. My eye doctor believes that continually wearing a faced mask

for oxygen that was too big for me allowed the oxygen to completely dry out the

cornea. I complained ten times a day every day to the nurses that I could feel

air blowing in my eye, to no avail. Apparently, this would be a hard thing to

prove so I am left with this eye problem caused by their neglect. On Monday I

see the ortho at the Fracture Clinic so maybe I will have an answer to my leg

problem.

Now, are you not sorry you asked LOL

Hugs

June

----- Original Message -----

From: a

You're welcome June. I've never seen a chart show the shins, but the

shins are listed as an area affected with FM. I'm guessing that is

because these charts are for diagnosis reference of the most common

tender points, although many other areas may be tender. How are you

feeling? I hope your recovery is progressing.

Hugs,

a

On Sep 22, 2005, at 8:06 PM, June Dixon wrote:

> Thanks a, I knew I could count on you as usual. I was looking

> at the picture and realized it doesn't show the shins atall. When

> my rheumy touches my shins I jump and she told the resident, this

> was a typical fibro site.

>

> Hugs

> June

Posted

No NOT sorry I asked, but wish you didn't have this setback. It must

have been all the excitement of winning all that money!

Congratulations to you and I hope you do something special with it.

It doesn't seem strange to me that it feels better when you walk on

it. When my joints are swollen, exercising them makes them feel better.

When you're walking, your muscles are pumping the fluids which keeps

them from accumulating. Having had phlebitis, I've learned that when

I stand for any length of time I do exercises to keep the fluids

pumping in my legs. I must look like I have ants in my pants rocking

back on my toes to my heals LOL!

Did your doctor tell you to keep your leg elevated above your heart?

Please let us know what happens on Monday.

Hugs,

a

On Sep 23, 2005, at 11:28 AM, June Dixon wrote:

> a, I may be starting to get somewhere on Monday. I never did

> get a report from the ortho re my specific bone scans done on July

> 11 and 13. Apparently my file was misplaced and it turns out I

> should have seen ortho by the end of July. I assumed, since the

> fractures healed and swelling in my foot ended, there was nothing

> else to report. I should know by now not to assume anything. Last

> Sat. my family were taking me out for dinner and casino and when I

> got up in the am I couldn't put weight on my right leg (same one)

> and my foot was puffed up. By the time they came to pick us up I

> had to resort to my wheelchair (good news is I won $1000 on 25 cent

> machine). By Monday it was worse so went to my GP and he started

> me on antibiotic and pee pills. Still can't put weight on my leg

> but swelling is reduced somewhat. The strange thing is that

> the ,longer I walk (stiff legged) the better it feels but as soon

> as I sit for any length of time

> Now, are you not sorry you asked LOL

>

> Hugs

> June

Posted

Hi June:

Like you, my shins are sometimes quite painful, and

burn. My doctor has never pressed there, but does

check all the other trigger points. I think that the

Fibro causes pain over the entire body, and you could

probably press odd areas of our bodies and elicit pain

response much of the time just about anywhere.

Kathe in CA

--- June Dixon <juner24@...> wrote:

> Thanks a, I knew I could count on you as usual.

> I was looking at the picture and realized it doesn't

> show the shins atall. When my rheumy touches my

> shins I jump and she told the resident, this was a

> typical fibro site.

>

> Hugs

> June

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

Posted

Oh, June, that is really terrible about your eye and your leg. You've

received terrible care. I wonder why some people go into healthcare.

I wish you didn't have to wait until November for your eye.

Hoping and praying for speedier and better solutions for you,

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Fibro

> a, I may be starting to get somewhere on Monday. I never did get a

> report from the ortho re my specific bone scans done on July 11 and 13.

> Apparently my file was misplaced and it turns out I should have seen ortho

> by the end of July. I assumed, since the fractures healed and swelling in

> my foot ended, there was nothing else to report. I should know by now not

> to assume anything. Last Sat. my family were taking me out for dinner and

> casino and when I got up in the am I couldn't put weight on my right leg

> (same one) and my foot was puffed up. By the time they came to pick us up

> I had to resort to my wheelchair (good news is I won $1000 on 25 cent

> machine). By Monday it was worse so went to my GP and he started me on

> antibiotic and pee pills. Still can't put weight on my leg but swelling

> is reduced somewhat. The strange thing is that the ,longer I walk (stiff

> legged) the better it feels but as soon as I sit for any length of time,

> the pain starts up again. As for my eye, it is not good news. It would

> appear that I am a candidate for a cornea transplant. My eye doctor is

> hoping the specialist I am seeing in November can come up with something

> new in treatment. Presently, I have a contact lens in that eye to hold up

> the tissue but I have very little sight. My eye doctor believes that

> continually wearing a faced mask for oxygen that was too big for me

> allowed the oxygen to completely dry out the cornea. I complained ten

> times a day every day to the nurses that I could feel air blowing in my

> eye, to no avail. Apparently, this would be a hard thing to prove so I am

> left with this eye problem caused by their neglect. On Monday I see the

> ortho at the Fracture Clinic so maybe I will have an answer to my leg

> problem.

>

> Now, are you not sorry you asked LOL

>

> Hugs

> June

Posted

Thanks . We used to have the best health care, unfortunately because of so

many cut-backs, to see any specialist you are looking at 4 to 6 months. My eye

appt was made in June.

Hugs

June

Re: [ ] Fibro

> a, I may be starting to get somewhere on Monday. I never did get a

> report from the ortho re my specific bone scans done on July 11 and 13.

> Apparently my file was misplaced and it turns out I should have seen ortho

> by the end of July. I assumed, since the fractures healed and swelling in

> my foot ended, there was nothing else to report. I should know by now not

> to assume anything. Last Sat. my family were taking me out for dinner and

> casino and when I got up in the am I couldn't put weight on my right leg

> (same one) and my foot was puffed up. By the time they came to pick us up

> I had to resort to my wheelchair (good news is I won $1000 on 25 cent

> machine). By Monday it was worse so went to my GP and he started me on

> antibiotic and pee pills. Still can't put weight on my leg but swelling

> is reduced somewhat. The strange thing is that the ,longer I walk (stiff

> legged) the better it feels but as soon as I sit for any length of time,

> the pain starts up again. As for my eye, it is not good news. It would

> appear that I am a candidate for a cornea transplant. My eye doctor is

> hoping the specialist I am seeing in November can come up with something

> new in treatment. Presently, I have a contact lens in that eye to hold up

> the tissue but I have very little sight. My eye doctor believes that

> continually wearing a faced mask for oxygen that was too big for me

> allowed the oxygen to completely dry out the cornea. I complained ten

> times a day every day to the nurses that I could feel air blowing in my

> eye, to no avail. Apparently, this would be a hard thing to prove so I am

> left with this eye problem caused by their neglect. On Monday I see the

> ortho at the Fracture Clinic so maybe I will have an answer to my leg

> problem.

>

> Now, are you not sorry you asked LOL

>

> Hugs

> June

Posted

Now this is wierd. The email that you wrote to me told about your leg

and casino, but nothing about your eye. I was scratching my head

wondering what was talking about, so I read the post attached to

's email and the one you replied to me, and it they are the same

except for the part about your eye!

Is really loosing it? I'm not sure how could drop a

paragraph like that. At least I know my mind isn't COMPLETELY gone.

(yet)

How awful that the nurses did nothing to prevent this eye damage, in

spite of your complaints. Maybe a complaint to the hospital would

help prevent this from happening to someone else?

a

>

> From:

>

>

> Oh, June, that is really terrible about your eye and your leg.

> You've

> received terrible care. I wonder why some people go into healthcare.

>

> I wish you didn't have to wait until November for your eye.

>

> Hoping and praying for speedier and better solutions for you,

>

>

>

>

> Not an MD

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> Re: [ ] Fibro

>

>

> > a, I may be starting to get somewhere on Monday. I never

> did get a

> > report from the ortho re my specific bone scans done on July 11

> and 13.

> > Apparently my file was misplaced and it turns out I should have

> seen ortho

> > by the end of July. I assumed, since the fractures healed and

> swelling in

> > my foot ended, there was nothing else to report. I should know

> by now not

> > to assume anything. Last Sat. my family were taking me out for

> dinner and

> > casino and when I got up in the am I couldn't put weight on my

> right leg

> > (same one) and my foot was puffed up. By the time they came to

> pick us up

> > I had to resort to my wheelchair (good news is I won $1000 on

> 25 cent

> > machine). By Monday it was worse so went to my GP and he

> started me on

> > antibiotic and pee pills. Still can't put weight on my leg

> but swelling

> > is reduced somewhat. The strange thing is that the ,longer I

> walk (stiff

> > legged) the better it feels but as soon as I sit for any length

> of time,

> > the pain starts up again. As for my eye, it is not good news.

> It would

> > appear that I am a candidate for a cornea transplant. My eye

> doctor is

> > hoping the specialist I am seeing in November can come up with

> something

> > new in treatment. Presently, I have a contact lens in that eye

> to hold up

> > the tissue but I have very little sight. My eye doctor

> believes that

> > continually wearing a faced mask for oxygen that was too big

> for me

> > allowed the oxygen to completely dry out the cornea. I

> complained ten

> > times a day every day to the nurses that I could feel air

> blowing in my

> > eye, to no avail. Apparently, this would be a hard thing to

> prove so I am

> > left with this eye problem caused by their neglect. On Monday I

> see the

> > ortho at the Fracture Clinic so maybe I will have an answer to

> my leg

> > problem.

> >

> > Now, are you not sorry you asked LOL

> >

> > Hugs

> > June

>

>

>

Posted

a, that is really weird indeed. Not being very computer savvy, I couldn't

even guess what happened. I did complain the hospital administrator about my

eye and he said he would need some facts to take this any further. Apparently

there are many ways, according to him, that could cause damage to the cornea.

In January I have an appt with the doctor that ordered the oxygen and I intend

to ask him some questions. All I know is that I have proof that when I entered

the hospital my eyes were perfect, just having had cataracts removed a year

previous and I didn't even need glasses. What I need is an eye doctor to say

that it was using an oxygen mask that didn't fit on me, allowing the oxygen to

blow in my eye and dried out the cornea As I am sure you know, it is next to

impossible to get any professional to speak out against one of their own.

Hugs

June

Re: [ ] Fibro

>

>

> > a, I may be starting to get somewhere on Monday. I never

> did get a

> > report from the ortho re my specific bone scans done on July 11

> and 13.

> > Apparently my file was misplaced and it turns out I should have

> seen ortho

> > by the end of July. I assumed, since the fractures healed and

> swelling in

> > my foot ended, there was nothing else to report. I should know

> by now not

> > to assume anything. Last Sat. my family were taking me out for

> dinner and

> > casino and when I got up in the am I couldn't put weight on my

> right leg

> > (same one) and my foot was puffed up. By the time they came to

> pick us up

> > I had to resort to my wheelchair (good news is I won $1000 on

> 25 cent

> > machine). By Monday it was worse so went to my GP and he

> started me on

> > antibiotic and pee pills. Still can't put weight on my leg

> but swelling

> > is reduced somewhat. The strange thing is that the ,longer I

> walk (stiff

> > legged) the better it feels but as soon as I sit for any length

> of time,

> > the pain starts up again. As for my eye, it is not good news.

> It would

> > appear that I am a candidate for a cornea transplant. My eye

> doctor is

> > hoping the specialist I am seeing in November can come up with

> something

> > new in treatment. Presently, I have a contact lens in that eye

> to hold up

> > the tissue but I have very little sight. My eye doctor

> believes that

> > continually wearing a faced mask for oxygen that was too big

> for me

> > allowed the oxygen to completely dry out the cornea. I

> complained ten

> > times a day every day to the nurses that I could feel air

> blowing in my

> > eye, to no avail. Apparently, this would be a hard thing to

> prove so I am

> > left with this eye problem caused by their neglect. On Monday I

> see the

> > ortho at the Fracture Clinic so maybe I will have an answer to

> my leg

> > problem.

> >

> > Now, are you not sorry you asked LOL

> >

> > Hugs

> > June

>

>

>

  • 11 months later...
  • 8 months later...
Guest guest
Posted

((((((((((Chris))))))))))))))))

Have you tried a hot steam shower with maybe a bit of lavender? I use lavender

and rub it on my chest and that seems to help me when it is the fibro that is

acting up....

I used to be on all sorts of pain meds when I had insurance, but now I do what I

can with what I can get without a RX - - so anyway, I thought I'd offer that

suggestion to you...

Also, my Mother in Law once told me to put my head over a steaming bowl of water

with a towel over my head - like they did in the old days - and I found that

also helped - in fact my kids will get the bowl and put me in front of it if I

get bad enough they notice - or I complain, which I seem to do a lot of

latley....

I hope you are better soon, hon...

Rose

Barbara Boatwright <jessicasmammaw_2005@...> wrote:

Some tomorrows are better for me, but they are few and far between. A

lot of people are not familiar with fibro and they think just because

we look ok, they can't understand how bad we feel.

>

> I know how you feel. My pain pills don't last long either,

and my activities are very limited because of the pain of fibro and

the fatigue of CFS. Someone told me just to hang in there today and

maybe tomorrow will be better. That's the best advice anyone has

given me. I understand the depression, too. I'll hang in there if

you will. Bev

> [ ] Fibro

>

>

> Hey all. It's been awhile since I last wrote. I am tired of being

in

> pain everyday. I take Loritabs for the pain but they wear off

after

> two hours. Sometimes it takes everything I have just to get out

of bed

> each day. The pain is centered in my chest. It feels like a heart

> attack everytime. I don't want to rely on pain pills all my

life , but

> nothing else is working right now. Sometimes I get real depressed

> about having fibromyalgia. My activities are very limited now. I

hope

> this gets better with time.

>

> Chris

>

>

>

>

>

>

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