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Re: Scary Symptom

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Posted

Holly, please call your rheumatologist ASAP.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Scary Symptom

I have been experiencing tingling and numbness in my legs on and off

for years. Lately my legs have been completely falling asleep even

when I am standing up. I just drop to the floor. It starts off like

my legs are falling asleep even more so when I am standing and

walking. Then they just go completely numb. Is this something I need

to tell my doctor now, or should I bring it up at my next appointment?

Has anyone else experienced this? Best wishes, HOlly

  • 8 months later...
Posted

maybe you were sleeping on it?

I remember the first time I had that after starting LDN. I said "I REMEMBER these feelings, this is a NORMAL persons response".

Now my limbs get pins and needles, as a normal person would, as I do remember having YEARS ago, but not in the 11 years prior to starting LDN.

Personally, I think one should go to 3.0 MG and let the healing powers flow.

I find issues don't go beyond 3 weeks from noticeable start to finish, with the tougher ones. Some have only lasted 3-4 days. The body knows what it's doing -- it's US who get worried we're doing something wrong.

Good luck to ya

[low dose naltrexone] Scary Symptom

Hi everyone. I have been taking 1.5mg of LDN for a week now. I had been feeling pretty good with just a minor return of a few symptoms which were desensation in all my finger tips and slight left facial/lip numbness. But......this morning I awoke around 5am with pins and needles in my right arm and I could not move it until I picked it up with my left and shook it and then the feeling came back and it was better. Scary! Has anyone had this symptom? I have had it before in the past even when I first had MS in 1988. I don't know why for me some of my worst symptoms a lot of times are when I first awake. Is it because my blood flow or brain activity is slower? I don't know. Anyway I was wondering if this is LDN bringing out old symptoms and how long does that last? Otherwise I have been feeling pretty good. I do notice a difference with less stiffness and cramping.Any advice on this symptom or how long I should expect return of old ones would be appreciated.Thank you!

Posted

>

> Hi everyone. I have been taking 1.5mg of LDN for a week now. I had

> been feeling pretty good with just a minor return of a few symptoms

> which were desensation in all my finger tips and slight left

> facial/lip numbness. But......this morning I awoke around 5am with

> pins and needles in my right arm and I could not move it until I

> picked it up with my left and shook it and then the feeling came

back

> and it was better. Scary! Has anyone had this symptom? I have had

it

> before in the past even when I first had MS in 1988. I don't know

why

> for me some of my worst symptoms a lot of times are when I first

> awake. Is it because my blood flow or brain activity is slower? I

> don't know. Anyway I was wondering if this is LDN bringing out old

> symptoms and how long does that last? Otherwise I have been feeling

> pretty good. I do notice a difference with less stiffness and

cramping.

> Any advice on this symptom or how long I should expect return of

old

> ones would be appreciated.

> Thank you!

>

I've had this happen to my arm but I think it's because of the

position I was in while sleeping. Don't think it's related to MS nor

the LDN.

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