Re: Hello all (((((((((((Marina))))))))))))

[Guest guest]

Oh, Marina, I had been hoping that things were going

better for you. I am so sorry that this is not the

case. Since you can't keep meds down orally, have you

asked your doctor for any suppositories for the

nausea? If you are on Methotrexate for the RA, can

you find the injectible form? The constant nausea

must be so draining on your entire system, and sure

can't be helping your body to resist the infection. I

pray for you, and all in this group, nightly, and can

only hope that the doctors will be able to really help

you soon. (((((hugs))))) to you, and prayers

Kathe in CA

--- marina_troi <marina_troi@...> wrote:

> Just wanted to write a note to say hello to everyone

> and to welcome

> all the new members.

>

> I've been batteling a bad case of pyleonephritis for

> about 3 months

> now. I've been on IV antibiotics for the majority

> of that time.

> Well, with my hospital discharge of January 27th, I

> thought I had

> finally licked it. My lab work was all back to

> normal, for the most

> part, anyway. The urinalysis came back clean. I

> thought, " sweet, I

> can finally get my life back " . Well, my doc wanted

> me to keep the

> groshong in until I had my 2 week follow-up

> appointment with him.

> He knows how much trouble I was having with my veins

> at this point

> so we thought this would also help ward off the evil

> spirits!! Well,

> I went home on a Friday. Did ok that weekend. The

> following week I

> had some issues with itching from the adhesive that

> is on the

> groshong dressing, and nasuea. Well, he called in

> some IV benadryl

> and IV phenergan. It helped. I took it as needed.

> But, I started

> to have some major issues that following weekend. I

> held off going

> to the ER. I knew what ws happening, but I thought

> that if I

> ignored it, the problem would go away. Wishful

> thinking!!

>

> I stuck it out. Things got worse. I had my

> appointment with him.

> Ok, maybe things wouldn't be too bad. My white

> count was up a

> little. He wasn't worried. I was. Then, Tuesday

> afternoon, his

> office calls and tells me that my cultures are

> positive and they

> were waiting for the sensitivity report to come back

> so they would

> know which antibiotic to put me on. I knew

> something was up because

> when he called my temperature was up to 102.

>

> Well, back to the ER for me. Surprisingly, I got

> there and only

> waited about 30 minutes, from the time I registered

> to the time they

> took me back!! I expected to have to wait for at

> LEAST 5 hours.

> That's how it had been everytime I went in during

> the last 3

> months. Well, My cultures had come in by this time.

> They were

> positive with the same damn bug. Only difference

> being that it is

> now RESISTANT to the antibiotic they had been

> treating it with.

>

> So, back into the hospital, for the 5th time. I am

> so tired of

> this. NOW the doctor says he thinks that the kidney

> stones that are

> enbedded into my kidneys is where the infection

> keeps coming from.

> HELLO!!!! I said that before. They thought that

> the one stone that

> was floating around freely before was the culprit.

> They took care

> of that on my 2nd admission back in January. They

> insisted that the

> other stones just HAD to be sterile because they

> were contained

> behind kidney tissue.

>

> So, I was discharged Friday afternoon and went home

> on IV

> Gentamycin. I am having some major trouble with it.

> The doc

> knows. It makes my head hurt, my chest hurt, my

> abdomen hurt and it

> takes my underlining nausea to a whole new level of

> upchucking!!

> The treatment is worse than the infection, at this

> point, anyway.

>

> I'm having such a difficult time with the adhesive

> dressing. My

> skin is broke down with rash and blisters. It hurts

> and itches at

> the same time. I can't go without a dressing, an

> occlusive

> dressing, because I can't risk it getting infected.

> The nausea from

> the infection is bad enough, with the antibiotic it

> is so awful. I

> can't even take my RA meds because I can't keep

> anything down. My

> pain levels are through the roof. I waws taking IV

> benadryl and IV

> phenergan both in the hospital and at home. Only

> thing is, my doc

> will not prescribe them for me now. He had trouble

> with past

> patients over dosing themselves. So, I get to

> suffer. I can't take

> this any longer. I have an appointment with my

> rheumy on Monday.

> After that, I'm going to call the surgeon and have

> him remove this

> groshong. I can't take this itching and the pain it

> is causing. I

> know I need the antibiotics, but I am worried about

> getting

> septicemia (infection in the blood). There is

> drainage coming from

> around the groshong insertion site. My blood

> cultures on this last

> admission were clean. So, I at least know I'm good

> to go there.

>

> If the surgeon won't take it out, I will. I wish he

> would give me

> the benadryl and phenergan. There wouldn't be too

> big of an issue

> then. It helped keep the side effects to a minimum

> before, but I

> didn't realize just HOW much it was doing until I

> now. I was trying

> the benadryl by mouth before this last admission.

> If I was able to

> tolerate it by mouth, then I took it that way istead

> of the IV

> version. I only took it about 6 to 8 hours apart,

> and was ALWAYS

> below the maximum recommended dose. But, right now

> I can't take

> anything by mouth. I try and drink water, when the

> nausea is low

> enough. I just sip on it all day and try not to

> over do it. But,

> as I said before, I can't even get my meds down, and

> that isn't

> helping matters.

>

> My frustration levels are so high right now. I'm

> also worried about

> my job. I have to get back to work soon or I will

> lose my job.

> Lose my job and I have no insurance. No insurance

> and I can't

> afford to treat this problem. So, you can see where

> this IS going!!

>

> Sorry to rattle on like this. If you have read this

> far, I thank

> you. I think I just needed to get this out an off

> my chest. I feel

> a little better already!! I pray that everyone is

> well and has a

> painfree, or lower than normal, weekend. Take care,

> and thanks for

> listening...........Hugs and prayers to all, Marina

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

I am new to this. I have sent a couple of messages. Are they coming through?

Thank you

Kathe Sabetzadeh <lv2ryd@...> wrote:

Oh, Marina, I had been hoping that things were going

better for you. I am so sorry that this is not the

case. Since you can't keep meds down orally, have you

asked your doctor for any suppositories for the

nausea? If you are on Methotrexate for the RA, can

you find the injectible form? The constant nausea

must be so draining on your entire system, and sure

can't be helping your body to resist the infection. I

pray for you, and all in this group, nightly, and can

only hope that the doctors will be able to really help

you soon. (((((hugs))))) to you, and prayers

Kathe in CA

--- marina_troi <marina_troi@...> wrote:

> Just wanted to write a note to say hello to everyone

> and to welcome

> all the new members.

>

> I've been batteling a bad case of pyleonephritis for

> about 3 months

> now. I've been on IV antibiotics for the majority

> of that time.

> Well, with my hospital discharge of January 27th, I

> thought I had

> finally licked it. My lab work was all back to

> normal, for the most

> part, anyway. The urinalysis came back clean. I

> thought, " sweet, I

> can finally get my life back " . Well, my doc wanted

> me to keep the

> groshong in until I had my 2 week follow-up

> appointment with him.

> He knows how much trouble I was having with my veins

> at this point

> so we thought this would also help ward off the evil

> spirits!! Well,

> I went home on a Friday. Did ok that weekend. The

> following week I

> had some issues with itching from the adhesive that

> is on the

> groshong dressing, and nasuea. Well, he called in

> some IV benadryl

> and IV phenergan. It helped. I took it as needed.

> But, I started

> to have some major issues that following weekend. I

> held off going

> to the ER. I knew what ws happening, but I thought

> that if I

> ignored it, the problem would go away. Wishful

> thinking!!

>

> I stuck it out. Things got worse. I had my

> appointment with him.

> Ok, maybe things wouldn't be too bad. My white

> count was up a

> little. He wasn't worried. I was. Then, Tuesday

> afternoon, his

> office calls and tells me that my cultures are

> positive and they

> were waiting for the sensitivity report to come back

> so they would

> know which antibiotic to put me on. I knew

> something was up because

> when he called my temperature was up to 102.

>

> Well, back to the ER for me. Surprisingly, I got

> there and only

> waited about 30 minutes, from the time I registered

> to the time they

> took me back!! I expected to have to wait for at

> LEAST 5 hours.

> That's how it had been everytime I went in during

> the last 3

> months. Well, My cultures had come in by this time.

> They were

> positive with the same damn bug. Only difference

> being that it is

> now RESISTANT to the antibiotic they had been

> treating it with.

>

> So, back into the hospital, for the 5th time. I am

> so tired of

> this. NOW the doctor says he thinks that the kidney

> stones that are

> enbedded into my kidneys is where the infection

> keeps coming from.

> HELLO!!!! I said that before. They thought that

> the one stone that

> was floating around freely before was the culprit.

> They took care

> of that on my 2nd admission back in January. They

> insisted that the

> other stones just HAD to be sterile because they

> were contained

> behind kidney tissue.

>

> So, I was discharged Friday afternoon and went home

> on IV

> Gentamycin. I am having some major trouble with it.

> The doc

> knows. It makes my head hurt, my chest hurt, my

> abdomen hurt and it

> takes my underlining nausea to a whole new level of

> upchucking!!

> The treatment is worse than the infection, at this

> point, anyway.

>

> I'm having such a difficult time with the adhesive

> dressing. My

> skin is broke down with rash and blisters. It hurts

> and itches at

> the same time. I can't go without a dressing, an

> occlusive

> dressing, because I can't risk it getting infected.

> The nausea from

> the infection is bad enough, with the antibiotic it

> is so awful. I

> can't even take my RA meds because I can't keep

> anything down. My

> pain levels are through the roof. I waws taking IV

> benadryl and IV

> phenergan both in the hospital and at home. Only

> thing is, my doc

> will not prescribe them for me now. He had trouble

> with past

> patients over dosing themselves. So, I get to

> suffer. I can't take

> this any longer. I have an appointment with my

> rheumy on Monday.

> After that, I'm going to call the surgeon and have

> him remove this

> groshong. I can't take this itching and the pain it

> is causing. I

> know I need the antibiotics, but I am worried about

> getting

> septicemia (infection in the blood). There is

> drainage coming from

> around the groshong insertion site. My blood

> cultures on this last

> admission were clean. So, I at least know I'm good

> to go there.

>

> If the surgeon won't take it out, I will. I wish he

> would give me

> the benadryl and phenergan. There wouldn't be too

> big of an issue

> then. It helped keep the side effects to a minimum

> before, but I

> didn't realize just HOW much it was doing until I

> now. I was trying

> the benadryl by mouth before this last admission.

> If I was able to

> tolerate it by mouth, then I took it that way istead

> of the IV

> version. I only took it about 6 to 8 hours apart,

> and was ALWAYS

> below the maximum recommended dose. But, right now

> I can't take

> anything by mouth. I try and drink water, when the

> nausea is low

> enough. I just sip on it all day and try not to

> over do it. But,

> as I said before, I can't even get my meds down, and

> that isn't

> helping matters.

>

> My frustration levels are so high right now. I'm

> also worried about

> my job. I have to get back to work soon or I will

> lose my job.

> Lose my job and I have no insurance. No insurance

> and I can't

> afford to treat this problem. So, you can see where

> this IS going!!

>

> Sorry to rattle on like this. If you have read this

> far, I thank

> you. I think I just needed to get this out an off

> my chest. I feel

> a little better already!! I pray that everyone is

> well and has a

> painfree, or lower than normal, weekend. Take care,

> and thanks for

> listening...........Hugs and prayers to all, Marina

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Your emails are comming through the group just fine. All you have to do

is hit reply and answer your emails.

Whitaker wrote:

> I am new to this. I have sent a couple of messages. Are they coming

> through?

> Thank you

>

>

> Kathe Sabetzadeh <lv2ryd@...> wrote:

> Oh, Marina, I had been hoping that things were going

> better for you. I am so sorry that this is not the

> case. Since you can't keep meds down orally, have you

> asked your doctor for any suppositories for the

> nausea? If you are on Methotrexate for the RA, can

> you find the injectible form? The constant nausea

> must be so draining on your entire system, and sure

> can't be helping your body to resist the infection. I

> pray for you, and all in this group, nightly, and can

> only hope that the doctors will be able to really help

> you soon. (((((hugs))))) to you, and prayers

>

> Kathe in CA

>

> --- marina_troi <marina_troi@...> wrote:

>

> > Just wanted to write a note to say hello to everyone

> > and to welcome

> > all the new members.

> >

> > I've been batteling a bad case of pyleonephritis for

> > about 3 months

> > now. I've been on IV antibiotics for the majority

> > of that time.

> > Well, with my hospital discharge of January 27th, I

> > thought I had

> > finally licked it. My lab work was all back to

> > normal, for the most

> > part, anyway. The urinalysis came back clean. I

> > thought, " sweet, I

> > can finally get my life back " . Well, my doc wanted

> > me to keep the

> > groshong in until I had my 2 week follow-up

> > appointment with him.

> > He knows how much trouble I was having with my veins

> > at this point

> > so we thought this would also help ward off the evil

> > spirits!! Well,

> > I went home on a Friday. Did ok that weekend. The

> > following week I

> > had some issues with itching from the adhesive that

> > is on the

> > groshong dressing, and nasuea. Well, he called in

> > some IV benadryl

> > and IV phenergan. It helped. I took it as needed.

> > But, I started

> > to have some major issues that following weekend. I

> > held off going

> > to the ER. I knew what ws happening, but I thought

> > that if I

> > ignored it, the problem would go away. Wishful

> > thinking!!

> >

> > I stuck it out. Things got worse. I had my

> > appointment with him.

> > Ok, maybe things wouldn't be too bad. My white

> > count was up a

> > little. He wasn't worried. I was. Then, Tuesday

> > afternoon, his

> > office calls and tells me that my cultures are

> > positive and they

> > were waiting for the sensitivity report to come back

> > so they would

> > know which antibiotic to put me on. I knew

> > something was up because

> > when he called my temperature was up to 102.

> >

> > Well, back to the ER for me. Surprisingly, I got

> > there and only

> > waited about 30 minutes, from the time I registered

> > to the time they

> > took me back!! I expected to have to wait for at

> > LEAST 5 hours.

> > That's how it had been everytime I went in during

> > the last 3

> > months. Well, My cultures had come in by this time.

> > They were

> > positive with the same damn bug. Only difference

> > being that it is

> > now RESISTANT to the antibiotic they had been

> > treating it with.

> >

> > So, back into the hospital, for the 5th time. I am

> > so tired of

> > this. NOW the doctor says he thinks that the kidney

> > stones that are

> > enbedded into my kidneys is where the infection

> > keeps coming from.

> > HELLO!!!! I said that before. They thought that

> > the one stone that

> > was floating around freely before was the culprit.

> > They took care

> > of that on my 2nd admission back in January. They

> > insisted that the

> > other stones just HAD to be sterile because they

> > were contained

> > behind kidney tissue.

> >

> > So, I was discharged Friday afternoon and went home

> > on IV

> > Gentamycin. I am having some major trouble with it.

> > The doc

> > knows. It makes my head hurt, my chest hurt, my

> > abdomen hurt and it

> > takes my underlining nausea to a whole new level of

> > upchucking!!

> > The treatment is worse than the infection, at this

> > point, anyway.

> >

> > I'm having such a difficult time with the adhesive

> > dressing. My

> > skin is broke down with rash and blisters. It hurts

> > and itches at

> > the same time. I can't go without a dressing, an

> > occlusive

> > dressing, because I can't risk it getting infected.

> > The nausea from

> > the infection is bad enough, with the antibiotic it

> > is so awful. I

> > can't even take my RA meds because I can't keep

> > anything down. My

> > pain levels are through the roof. I waws taking IV

> > benadryl and IV

> > phenergan both in the hospital and at home. Only

> > thing is, my doc

> > will not prescribe them for me now. He had trouble

> > with past

> > patients over dosing themselves. So, I get to

> > suffer. I can't take

> > this any longer. I have an appointment with my

> > rheumy on Monday.

> > After that, I'm going to call the surgeon and have

> > him remove this

> > groshong. I can't take this itching and the pain it

> > is causing. I

> > know I need the antibiotics, but I am worried about

> > getting

> > septicemia (infection in the blood). There is

> > drainage coming from

> > around the groshong insertion site. My blood

> > cultures on this last

> > admission were clean. So, I at least know I'm good

> > to go there.

> >

> > If the surgeon won't take it out, I will. I wish he

> > would give me

> > the benadryl and phenergan. There wouldn't be too

> > big of an issue

> > then. It helped keep the side effects to a minimum

> > before, but I

> > didn't realize just HOW much it was doing until I

> > now. I was trying

> > the benadryl by mouth before this last admission.

> > If I was able to

> > tolerate it by mouth, then I took it that way istead

> > of the IV

> > version. I only took it about 6 to 8 hours apart,

> > and was ALWAYS

> > below the maximum recommended dose. But, right now

> > I can't take

> > anything by mouth. I try and drink water, when the

> > nausea is low

> > enough. I just sip on it all day and try not to

> > over do it. But,

> > as I said before, I can't even get my meds down, and

> > that isn't

> > helping matters.

> >

> > My frustration levels are so high right now. I'm

> > also worried about

> > my job. I have to get back to work soon or I will

> > lose my job.

> > Lose my job and I have no insurance. No insurance

> > and I can't

> > afford to treat this problem. So, you can see where

> > this IS going!!

> >

> > Sorry to rattle on like this. If you have read this

> > far, I thank

> > you. I think I just needed to get this out an off

> > my chest. I feel

> > a little better already!! I pray that everyone is

> > well and has a

> > painfree, or lower than normal, weekend. Take care,

> > and thanks for

> > listening...........Hugs and prayers to all, Marina

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>

[Guest guest]

Thank you Corinne,

Honestly I didn't used to be this stupid, I feel all the medications I am

taking is affecting my memory and concentration.

Corinne Drover <Corinne@...> wrote:

Your emails are comming through the group just fine. All you have to do

is hit reply and answer your emails.

Whitaker wrote:

> I am new to this. I have sent a couple of messages. Are they coming

> through?

> Thank you

>

>

> Kathe Sabetzadeh <lv2ryd@...> wrote:

> Oh, Marina, I had been hoping that things were going

> better for you. I am so sorry that this is not the

> case. Since you can't keep meds down orally, have you

> asked your doctor for any suppositories for the

> nausea? If you are on Methotrexate for the RA, can

> you find the injectible form? The constant nausea

> must be so draining on your entire system, and sure

> can't be helping your body to resist the infection. I

> pray for you, and all in this group, nightly, and can

> only hope that the doctors will be able to really help

> you soon. (((((hugs))))) to you, and prayers

>

> Kathe in CA

>

> --- marina_troi <marina_troi@...> wrote:

>

> > Just wanted to write a note to say hello to everyone

> > and to welcome

> > all the new members.

> >

> > I've been batteling a bad case of pyleonephritis for

> > about 3 months

> > now. I've been on IV antibiotics for the majority

> > of that time.

> > Well, with my hospital discharge of January 27th, I

> > thought I had

> > finally licked it. My lab work was all back to

> > normal, for the most

> > part, anyway. The urinalysis came back clean. I

> > thought, " sweet, I

> > can finally get my life back " . Well, my doc wanted

> > me to keep the

> > groshong in until I had my 2 week follow-up

> > appointment with him.

> > He knows how much trouble I was having with my veins

> > at this point

> > so we thought this would also help ward off the evil

> > spirits!! Well,

> > I went home on a Friday. Did ok that weekend. The

> > following week I

> > had some issues with itching from the adhesive that

> > is on the

> > groshong dressing, and nasuea. Well, he called in

> > some IV benadryl

> > and IV phenergan. It helped. I took it as needed.

> > But, I started

> > to have some major issues that following weekend. I

> > held off going

> > to the ER. I knew what ws happening, but I thought

> > that if I

> > ignored it, the problem would go away. Wishful

> > thinking!!

> >

> > I stuck it out. Things got worse. I had my

> > appointment with him.

> > Ok, maybe things wouldn't be too bad. My white

> > count was up a

> > little. He wasn't worried. I was. Then, Tuesday

> > afternoon, his

> > office calls and tells me that my cultures are

> > positive and they

> > were waiting for the sensitivity report to come back

> > so they would

> > know which antibiotic to put me on. I knew

> > something was up because

> > when he called my temperature was up to 102.

> >

> > Well, back to the ER for me. Surprisingly, I got

> > there and only

> > waited about 30 minutes, from the time I registered

> > to the time they

> > took me back!! I expected to have to wait for at

> > LEAST 5 hours.

> > That's how it had been everytime I went in during

> > the last 3

> > months. Well, My cultures had come in by this time.

> > They were

> > positive with the same damn bug. Only difference

> > being that it is

> > now RESISTANT to the antibiotic they had been

> > treating it with.

> >

> > So, back into the hospital, for the 5th time. I am

> > so tired of

> > this. NOW the doctor says he thinks that the kidney

> > stones that are

> > enbedded into my kidneys is where the infection

> > keeps coming from.

> > HELLO!!!! I said that before. They thought that

> > the one stone that

> > was floating around freely before was the culprit.

> > They took care

> > of that on my 2nd admission back in January. They

> > insisted that the

> > other stones just HAD to be sterile because they

> > were contained

> > behind kidney tissue.

> >

> > So, I was discharged Friday afternoon and went home

> > on IV

> > Gentamycin. I am having some major trouble with it.

> > The doc

> > knows. It makes my head hurt, my chest hurt, my

> > abdomen hurt and it

> > takes my underlining nausea to a whole new level of

> > upchucking!!

> > The treatment is worse than the infection, at this

> > point, anyway.

> >

> > I'm having such a difficult time with the adhesive

> > dressing. My

> > skin is broke down with rash and blisters. It hurts

> > and itches at

> > the same time. I can't go without a dressing, an

> > occlusive

> > dressing, because I can't risk it getting infected.

> > The nausea from

> > the infection is bad enough, with the antibiotic it

> > is so awful. I

> > can't even take my RA meds because I can't keep

> > anything down. My

> > pain levels are through the roof. I waws taking IV

> > benadryl and IV

> > phenergan both in the hospital and at home. Only

> > thing is, my doc

> > will not prescribe them for me now. He had trouble

> > with past

> > patients over dosing themselves. So, I get to

> > suffer. I can't take

> > this any longer. I have an appointment with my

> > rheumy on Monday.

> > After that, I'm going to call the surgeon and have

> > him remove this

> > groshong. I can't take this itching and the pain it

> > is causing. I

> > know I need the antibiotics, but I am worried about

> > getting

> > septicemia (infection in the blood). There is

> > drainage coming from

> > around the groshong insertion site. My blood

> > cultures on this last

> > admission were clean. So, I at least know I'm good

> > to go there.

> >

> > If the surgeon won't take it out, I will. I wish he

> > would give me

> > the benadryl and phenergan. There wouldn't be too

> > big of an issue

> > then. It helped keep the side effects to a minimum

> > before, but I

> > didn't realize just HOW much it was doing until I

> > now. I was trying

> > the benadryl by mouth before this last admission.

> > If I was able to

> > tolerate it by mouth, then I took it that way istead

> > of the IV

> > version. I only took it about 6 to 8 hours apart,

> > and was ALWAYS

> > below the maximum recommended dose. But, right now

> > I can't take

> > anything by mouth. I try and drink water, when the

> > nausea is low

> > enough. I just sip on it all day and try not to

> > over do it. But,

> > as I said before, I can't even get my meds down, and

> > that isn't

> > helping matters.

> >

> > My frustration levels are so high right now. I'm

> > also worried about

> > my job. I have to get back to work soon or I will

> > lose my job.

> > Lose my job and I have no insurance. No insurance

> > and I can't

> > afford to treat this problem. So, you can see where

> > this IS going!!

> >

> > Sorry to rattle on like this. If you have read this

> > far, I thank

> > you. I think I just needed to get this out an off

> > my chest. I feel

> > a little better already!! I pray that everyone is

> > well and has a

> > painfree, or lower than normal, weekend. Take care,

> > and thanks for

> > listening...........Hugs and prayers to all, Marina

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>

[Guest guest]

Yes I know how you feel, Seems since RA for me my memory is fading...hehe

but your right the meds would effect you.

Hopefully we can chat on msn sometime.

Whitaker wrote:

> Thank you Corinne,

>

> Honestly I didn't used to be this stupid, I feel all the medications

> I am taking is affecting my memory and concentration.

>

>

> Corinne Drover <Corinne@...> wrote:

>

> Your emails are comming through the group just fine. All you have to do

> is hit reply and answer your emails.

>

>

>

> Whitaker wrote:

>

> > I am new to this. I have sent a couple of messages. Are they coming

> > through?

> > Thank you

> >

> >

> > Kathe Sabetzadeh <lv2ryd@...> wrote:

> > Oh, Marina, I had been hoping that things were going

> > better for you. I am so sorry that this is not the

> > case. Since you can't keep meds down orally, have you

> > asked your doctor for any suppositories for the

> > nausea? If you are on Methotrexate for the RA, can

> > you find the injectible form? The constant nausea

> > must be so draining on your entire system, and sure

> > can't be helping your body to resist the infection. I

> > pray for you, and all in this group, nightly, and can

> > only hope that the doctors will be able to really help

> > you soon. (((((hugs))))) to you, and prayers

> >

> > Kathe in CA

> >

> > --- marina_troi <marina_troi@...> wrote:

> >

> > > Just wanted to write a note to say hello to everyone

> > > and to welcome

> > > all the new members.

> > >

> > > I've been batteling a bad case of pyleonephritis for

> > > about 3 months

> > > now. I've been on IV antibiotics for the majority

> > > of that time.

> > > Well, with my hospital discharge of January 27th, I

> > > thought I had

> > > finally licked it. My lab work was all back to

> > > normal, for the most

> > > part, anyway. The urinalysis came back clean. I

> > > thought, " sweet, I

> > > can finally get my life back " . Well, my doc wanted

> > > me to keep the

> > > groshong in until I had my 2 week follow-up

> > > appointment with him.

> > > He knows how much trouble I was having with my veins

> > > at this point

> > > so we thought this would also help ward off the evil

> > > spirits!! Well,

> > > I went home on a Friday. Did ok that weekend. The

> > > following week I

> > > had some issues with itching from the adhesive that

> > > is on the

> > > groshong dressing, and nasuea. Well, he called in

> > > some IV benadryl

> > > and IV phenergan. It helped. I took it as needed.

> > > But, I started

> > > to have some major issues that following weekend. I

> > > held off going

> > > to the ER. I knew what ws happening, but I thought

> > > that if I

> > > ignored it, the problem would go away. Wishful

> > > thinking!!

> > >

> > > I stuck it out. Things got worse. I had my

> > > appointment with him.

> > > Ok, maybe things wouldn't be too bad. My white

> > > count was up a

> > > little. He wasn't worried. I was. Then, Tuesday

> > > afternoon, his

> > > office calls and tells me that my cultures are

> > > positive and they

> > > were waiting for the sensitivity report to come back

> > > so they would

> > > know which antibiotic to put me on. I knew

> > > something was up because

> > > when he called my temperature was up to 102.

> > >

> > > Well, back to the ER for me. Surprisingly, I got

> > > there and only

> > > waited about 30 minutes, from the time I registered

> > > to the time they

> > > took me back!! I expected to have to wait for at

> > > LEAST 5 hours.

> > > That's how it had been everytime I went in during

> > > the last 3

> > > months. Well, My cultures had come in by this time.

> > > They were

> > > positive with the same damn bug. Only difference

> > > being that it is

> > > now RESISTANT to the antibiotic they had been

> > > treating it with.

> > >

> > > So, back into the hospital, for the 5th time. I am

> > > so tired of

> > > this. NOW the doctor says he thinks that the kidney

> > > stones that are

> > > enbedded into my kidneys is where the infection

> > > keeps coming from.

> > > HELLO!!!! I said that before. They thought that

> > > the one stone that

> > > was floating around freely before was the culprit.

> > > They took care

> > > of that on my 2nd admission back in January. They

> > > insisted that the

> > > other stones just HAD to be sterile because they

> > > were contained

> > > behind kidney tissue.

> > >

> > > So, I was discharged Friday afternoon and went home

> > > on IV

> > > Gentamycin. I am having some major trouble with it.

> > > The doc

> > > knows. It makes my head hurt, my chest hurt, my

> > > abdomen hurt and it

> > > takes my underlining nausea to a whole new level of

> > > upchucking!!

> > > The treatment is worse than the infection, at this

> > > point, anyway.

> > >

> > > I'm having such a difficult time with the adhesive

> > > dressing. My

> > > skin is broke down with rash and blisters. It hurts

> > > and itches at

> > > the same time. I can't go without a dressing, an

> > > occlusive

> > > dressing, because I can't risk it getting infected.

> > > The nausea from

> > > the infection is bad enough, with the antibiotic it

> > > is so awful. I

> > > can't even take my RA meds because I can't keep

> > > anything down. My

> > > pain levels are through the roof. I waws taking IV

> > > benadryl and IV

> > > phenergan both in the hospital and at home. Only

> > > thing is, my doc

> > > will not prescribe them for me now. He had trouble

> > > with past

> > > patients over dosing themselves. So, I get to

> > > suffer. I can't take

> > > this any longer. I have an appointment with my

> > > rheumy on Monday.

> > > After that, I'm going to call the surgeon and have

> > > him remove this

> > > groshong. I can't take this itching and the pain it

> > > is causing. I

> > > know I need the antibiotics, but I am worried about

> > > getting

> > > septicemia (infection in the blood). There is

> > > drainage coming from

> > > around the groshong insertion site. My blood

> > > cultures on this last

> > > admission were clean. So, I at least know I'm good

> > > to go there.

> > >

> > > If the surgeon won't take it out, I will. I wish he

> > > would give me

> > > the benadryl and phenergan. There wouldn't be too

> > > big of an issue

> > > then. It helped keep the side effects to a minimum

> > > before, but I

> > > didn't realize just HOW much it was doing until I

> > > now. I was trying

> > > the benadryl by mouth before this last admission.

> > > If I was able to

> > > tolerate it by mouth, then I took it that way istead

> > > of the IV

> > > version. I only took it about 6 to 8 hours apart,

> > > and was ALWAYS

> > > below the maximum recommended dose. But, right now

> > > I can't take

> > > anything by mouth. I try and drink water, when the

> > > nausea is low

> > > enough. I just sip on it all day and try not to

> > > over do it. But,

> > > as I said before, I can't even get my meds down, and

> > > that isn't

> > > helping matters.

> > >

> > > My frustration levels are so high right now. I'm

> > > also worried about

> > > my job. I have to get back to work soon or I will

> > > lose my job.

> > > Lose my job and I have no insurance. No insurance

> > > and I can't

> > > afford to treat this problem. So, you can see where

> > > this IS going!!

> > >

> > > Sorry to rattle on like this. If you have read this

> > > far, I thank

> > > you. I think I just needed to get this out an off

> > > my chest. I feel

> > > a little better already!! I pray that everyone is

> > > well and has a

> > > painfree, or lower than normal, weekend. Take care,

> > > and thanks for

> > > listening...........Hugs and prayers to all, Marina

> > >

> > >

> > >

> > >

> > >

> >

> >

> > Kathe

> >

> > " To ride a horse is to borrow freedom. "

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Sometimes, just the stress you are under can affect your memory and

concertation. Try to ease up on yourself. You are going to have what you are

going to have, with or without stress. But it is easier to deal with any bad

situation and/or diseases if you can let go of the stress.

Whitaker <missy.1979@...> wrote:

Thank you Corinne,

Honestly I didn't used to be this stupid, I feel all the medications I am

taking is affecting my memory and concentration.

Corinne Drover <Corinne@...> wrote:

Your emails are comming through the group just fine. All you have to do

is hit reply and answer your emails.

Whitaker wrote:

> I am new to this. I have sent a couple of messages. Are they coming

> through?

> Thank you

>

>

> Kathe Sabetzadeh <lv2ryd@...> wrote:

> Oh, Marina, I had been hoping that things were going

> better for you. I am so sorry that this is not the

> case. Since you can't keep meds down orally, have you

> asked your doctor for any suppositories for the

> nausea? If you are on Methotrexate for the RA, can

> you find the injectible form? The constant nausea

> must be so draining on your entire system, and sure

> can't be helping your body to resist the infection. I

> pray for you, and all in this group, nightly, and can

> only hope that the doctors will be able to really help

> you soon. (((((hugs))))) to you, and prayers

>

> Kathe in CA

>

> --- marina_troi <marina_troi@...> wrote:

>

> > Just wanted to write a note to say hello to everyone

> > and to welcome

> > all the new members.

> >

> > I've been batteling a bad case of pyleonephritis for

> > about 3 months

> > now. I've been on IV antibiotics for the majority

> > of that time.

> > Well, with my hospital discharge of January 27th, I

> > thought I had

> > finally licked it. My lab work was all back to

> > normal, for the most

> > part, anyway. The urinalysis came back clean. I

> > thought, " sweet, I

> > can finally get my life back " . Well, my doc wanted

> > me to keep the

> > groshong in until I had my 2 week follow-up

> > appointment with him.

> > He knows how much trouble I was having with my veins

> > at this point

> > so we thought this would also help ward off the evil

> > spirits!! Well,

> > I went home on a Friday. Did ok that weekend. The

> > following week I

> > had some issues with itching from the adhesive that

> > is on the

> > groshong dressing, and nasuea. Well, he called in

> > some IV benadryl

> > and IV phenergan. It helped. I took it as needed.

> > But, I started

> > to have some major issues that following weekend. I

> > held off going

> > to the ER. I knew what ws happening, but I thought

> > that if I

> > ignored it, the problem would go away. Wishful

> > thinking!!

> >

> > I stuck it out. Things got worse. I had my

> > appointment with him.

> > Ok, maybe things wouldn't be too bad. My white

> > count was up a

> > little. He wasn't worried. I was. Then, Tuesday

> > afternoon, his

> > office calls and tells me that my cultures are

> > positive and they

> > were waiting for the sensitivity report to come back

> > so they would

> > know which antibiotic to put me on. I knew

> > something was up because

> > when he called my temperature was up to 102.

> >

> > Well, back to the ER for me. Surprisingly, I got

> > there and only

> > waited about 30 minutes, from the time I registered

> > to the time they

> > took me back!! I expected to have to wait for at

> > LEAST 5 hours.

> > That's how it had been everytime I went in during

> > the last 3

> > months. Well, My cultures had come in by this time.

> > They were

> > positive with the same damn bug. Only difference

> > being that it is

> > now RESISTANT to the antibiotic they had been

> > treating it with.

> >

> > So, back into the hospital, for the 5th time. I am

> > so tired of

> > this. NOW the doctor says he thinks that the kidney

> > stones that are

> > enbedded into my kidneys is where the infection

> > keeps coming from.

> > HELLO!!!! I said that before. They thought that

> > the one stone that

> > was floating around freely before was the culprit.

> > They took care

> > of that on my 2nd admission back in January. They

> > insisted that the

> > other stones just HAD to be sterile because they

> > were contained

> > behind kidney tissue.

> >

> > So, I was discharged Friday afternoon and went home

> > on IV

> > Gentamycin. I am having some major trouble with it.

> > The doc

> > knows. It makes my head hurt, my chest hurt, my

> > abdomen hurt and it

> > takes my underlining nausea to a whole new level of

> > upchucking!!

> > The treatment is worse than the infection, at this

> > point, anyway.

> >

> > I'm having such a difficult time with the adhesive

> > dressing. My

> > skin is broke down with rash and blisters. It hurts

> > and itches at

> > the same time. I can't go without a dressing, an

> > occlusive

> > dressing, because I can't risk it getting infected.

> > The nausea from

> > the infection is bad enough, with the antibiotic it

> > is so awful. I

> > can't even take my RA meds because I can't keep

> > anything down. My

> > pain levels are through the roof. I waws taking IV

> > benadryl and IV

> > phenergan both in the hospital and at home. Only

> > thing is, my doc

> > will not prescribe them for me now. He had trouble

> > with past

> > patients over dosing themselves. So, I get to

> > suffer. I can't take

> > this any longer. I have an appointment with my

> > rheumy on Monday.

> > After that, I'm going to call the surgeon and have

> > him remove this

> > groshong. I can't take this itching and the pain it

> > is causing. I

> > know I need the antibiotics, but I am worried about

> > getting

> > septicemia (infection in the blood). There is

> > drainage coming from

> > around the groshong insertion site. My blood

> > cultures on this last

> > admission were clean. So, I at least know I'm good

> > to go there.

> >

> > If the surgeon won't take it out, I will. I wish he

> > would give me

> > the benadryl and phenergan. There wouldn't be too

> > big of an issue

> > then. It helped keep the side effects to a minimum

> > before, but I

> > didn't realize just HOW much it was doing until I

> > now. I was trying

> > the benadryl by mouth before this last admission.

> > If I was able to

> > tolerate it by mouth, then I took it that way istead

> > of the IV

> > version. I only took it about 6 to 8 hours apart,

> > and was ALWAYS

> > below the maximum recommended dose. But, right now

> > I can't take

> > anything by mouth. I try and drink water, when the

> > nausea is low

> > enough. I just sip on it all day and try not to

> > over do it. But,

> > as I said before, I can't even get my meds down, and

> > that isn't

> > helping matters.

> >

> > My frustration levels are so high right now. I'm

> > also worried about

> > my job. I have to get back to work soon or I will

> > lose my job.

> > Lose my job and I have no insurance. No insurance

> > and I can't

> > afford to treat this problem. So, you can see where

> > this IS going!!

> >

> > Sorry to rattle on like this. If you have read this

> > far, I thank

> > you. I think I just needed to get this out an off

> > my chest. I feel

> > a little better already!! I pray that everyone is

> > well and has a

> > painfree, or lower than normal, weekend. Take care,

> > and thanks for

> > listening...........Hugs and prayers to all, Marina

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>