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, No they had to completely put to sleep for that. Now he had an EKG

and they did not have any problems. However putting those electrodes on his head

they tried and he took them off with his feet. Literally took them off with his

feet. The Dr. ordered to be put to sleep but when we got to the hospital

some nurse in anesthesia got the bright idea they could do this without putting

him to sleep. They were wrong. Cyndi B

>

> Has anyone's kiddo been given a muscle relaxant for a test? We have to do to

> Angie's EEG and they want me to give her Tizanidine for the whole 24 hours

> while she is hooked up. I feel really uneasy about this. NOT a good feeling

> at all. Wondering if anyone else has used it? I talk to my mom and she

> always thinks doctors know best, but I disagree.

>

> DS-ASD 7 years

>

>

>

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It sounds strange to me. I always say to listen to that little still

voice inside of you. You obviously have a doubt about this. " When in

doubt, don't. " I have never heard of this before for a 24 hour EEG. [=;]

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My son had a sleep-deprived EEG, but I was right there beside him. There

was a mirror in front of him and he watched them put the electrodes on

his head. Granted, I thought he would protest more than he did, but he

was ok. Now, a 24 hour EEG, I doubt they would stay on his head that

long. But remember, if you give ANY meds, then the EEG won't be accurate

anyway. (You know that right?)

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I was reading about the 24hr EEG. It's common diagnostic for autism. The

article I read was not clear on what it finds with Autism as opposed to other

syndromes. I don't think they will want one on my kid when the autism Dx comes

back. He barely made it through a 1 hr EEG. He kept ripping those suckers off

his head. I would think sedation would change the results and give them

sleeping brain results. Maybe that is why they suggest the muscle relaxants.

I'm a minimalist with meds though. I'd question it too.

http://thekitchenexperiments.blogspot.com/

>

>

> It sounds strange to me. I always say to listen to that little still

> voice inside of you. You obviously have a doubt about this. " When in

> doubt, don't. " I have never heard of this before for a 24 hour EEG. [=;]

>

>

>

>

>

>

>

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We've had our share of tests and lots of different drugs. If the test is really

necessary then the drugs can be worth it - even though it goes against our

instincts. Darwyn (6) did NOT do well on something called methazadazaline (or

something like that). He was knocked out for an hour for an echocardiogram and

woke up miserable and biting and yelling in loud bursts for the rest of the day.

He also took a really long time to wake up when morphine was used (that was 5

years ago - I think it was morphine) when he was under for a cardio probe.

Chloral hydrate we used for a 2 hour EEG but his oxygen levels got a little low

and the nurses and resident dr got anxious. We've been through much lower Oxygen

numbers so for us the worst part was that we had to wait extra time before they

let us leave the hospital. (And yes Dar had blue goo on his head for weeks

after, I'd forgotten that part). His last echocardiogram we gave him melatonin

and he watched a video all mellow and that was a nice change. But 24 hours is a

loooong time. I can't remember if you already explained, but what is the 24 hour

eeg for?

I've found I have to remember to tell medical staff that he really reacts

differently to many meds as they tend to assume all will go well and that's not

always the case.

Best of luck.

,

Mom to Dar (DS ASD and a few heart surgeries)

, Canada

muscle relaxant

Has anyone's kiddo been given a muscle relaxant for a test? We have to do to

Angie's EEG and they want me to give her Tizanidine for the whole 24 hours

while she is hooked up. I feel really uneasy about this. NOT a good feeling

at all. Wondering if anyone else has used it? I talk to my mom and she

always thinks doctors know best, but I disagree.

DS-ASD 7 years

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Any of you having to have tests with drugs or drugs for anesthesia, I

wouldencourage STRONGLY that

you keep a drug notebook and WRITE DOWN the drug- chemical name, generic

name, used name and then check it out. Also record your child's reaction to

it. Our children react very differently to meds than other kids.

IE: Elie was given Chloryl Hyddrate once for a dental procedure. HE was a

wild drunk man with one red eye but NEVER was sedated. IT is on the list of

no-no drugs for him. Melatonin has never worked for him - not the natural

kind, the exten tabs, the liquid - nada. But Benedryl works great . Versed

works FANTASTIC. Ativan is good for a starter for anesthesia.

>

>

> We've had our share of tests and lots of different drugs. If the test is

> really necessary then the drugs can be worth it - even though it goes

> against our instincts. Darwyn (6) did NOT do well on something called

> methazadazaline (or something like that). He was knocked out for an hour for

> an echocardiogram and woke up miserable and biting and yelling in loud

> bursts for the rest of the day. He also took a really long time to wake up

> when morphine was used (that was 5 years ago - I think it was morphine) when

> he was under for a cardio probe.

> Chloral hydrate we used for a 2 hour EEG but his oxygen levels got a little

> low and the nurses and resident dr got anxious. We've been through much

> lower Oxygen numbers so for us the worst part was that we had to wait extra

> time before they let us leave the hospital. (And yes Dar had blue goo on his

> head for weeks after, I'd forgotten that part). His last echocardiogram we

> gave him melatonin and he watched a video all mellow and that was a nice

> change. But 24 hours is a loooong time. I can't remember if you already

> explained, but what is the 24 hour eeg for?

> I've found I have to remember to tell medical staff that he really reacts

> differently to many meds as they tend to assume all will go well and that's

> not always the case.

> Best of luck.

> ,

> Mom to Dar (DS ASD and a few heart surgeries)

> , Canada

> muscle relaxant

>

> Has anyone's kiddo been given a muscle relaxant for a test? We have to do

> to

> Angie's EEG and they want me to give her Tizanidine for the whole 24 hours

> while she is hooked up. I feel really uneasy about this. NOT a good feeling

>

> at all. Wondering if anyone else has used it? I talk to my mom and she

> always thinks doctors know best, but I disagree.

>

> DS-ASD 7 years

>

>

>

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We used the Versed for Jake's tooth extractions and it was great. He recovered

easily and we did not see any side effects. We never were able to do a sleep

study cause the local hospital could not handle him (after they assured me they

could). We opted to walk out of the procedure when the person trying to put the

probs on him stated " you as the parent have to be firm. They learn they can get

away with things when you give him. " F'n witch! sorry! She honestly expected

him to lay on the bed while she placed on the probs on him. Even after I

explained that once he was in his halo (at 18 months) he never again liked to

lie down at the doctors office. I think he knew it would not be good! ha!

Smart little booger.

Holl

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More like D.A. (Dumb A..). Some people! maybe you should have recommended he

stay with her for a day. HAHA!

For those who have dye allergies, Versed has red dye (just thought I would throw

that in)

>

> We used the Versed for Jake's tooth extractions and it was great. He

recovered easily and we did not see any side effects. We never were able to do

a sleep study cause the local hospital could not handle him (after they assured

me they could). We opted to walk out of the procedure when the person trying to

put the probs on him stated " you as the parent have to be firm. They learn they

can get away with things when you give him. " F'n witch! sorry! She honestly

expected him to lay on the bed while she placed on the probs on him. Even after

I explained that once he was in his halo (at 18 months) he never again liked to

lie down at the doctors office. I think he knew it would not be good! ha!

Smart little booger.

>

> Holl

>

>

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can't handle Versed. His big brother has a huge sensitivity to red and

yellow dye...ugh. I had no idea that it had dye. had the worst

emergence delirium with that stuff!

Sent from my iPhone

On Jul 26, 2010, at 8:04 PM, " agirlnamedsuess21 "

wrote:

More like D.A. (Dumb A..). Some people! maybe you should have recommended he

stay with her for a day. HAHA!

For those who have dye allergies, Versed has red dye (just thought I would throw

that in)

>

> We used the Versed for Jake's tooth extractions and it was great. He recovered

easily and we did not see any side effects. We never were able to do a sleep

study cause the local hospital could not handle him (after they assured me they

could). We opted to walk out of the procedure when the person trying to put the

probs on him stated " you as the parent have to be firm. They learn they can get

away with things when you give him. " F'n witch! sorry! She honestly expected him

to lay on the bed while she placed on the probs on him. Even after I explained

that once he was in his halo (at 18 months) he never again liked to lie down at

the doctors office. I think he knew it would not be good! ha! Smart little

booger.

>

> Holl

>

>

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BE CAREFUL and check, double check ANY DYES used for radio opaque testing.

When my husband had his cardiac cath, the dye for that shut down his

kidney function for 2 days. HE cannot tolerate the dye for any radio-opaque

procedure. Be aware. If a person has ANY reduced kidney function, crimps

in the ureter, any kind of malformation, ASK QUESTIONS of a nephrologist or

urinary doc. My dh has a big note in his record that 1/2 amount dye only

and only in dire emergency.

>

>

> can't handle Versed. His big brother has a huge sensitivity to red

> and yellow dye...ugh. I had no idea that it had dye. had the worst

> emergence delirium with that stuff!

>

> Sent from my iPhone

>

> On Jul 26, 2010, at 8:04 PM, " agirlnamedsuess21 " <

> agirlnamedsuess@... <agirlnamedsuess%40hotmail.com>> wrote:

>

> More like D.A. (Dumb A..). Some people! maybe you should have recommended

> he stay with her for a day. HAHA!

> For those who have dye allergies, Versed has red dye (just thought I would

> throw that in)

>

>

>

> >

> > We used the Versed for Jake's tooth extractions and it was great. He

> recovered easily and we did not see any side effects. We never were able to

> do a sleep study cause the local hospital could not handle him (after they

> assured me they could). We opted to walk out of the procedure when the

> person trying to put the probs on him stated " you as the parent have to be

> firm. They learn they can get away with things when you give him. " F'n

> witch! sorry! She honestly expected him to lay on the bed while she placed

> on the probs on him. Even after I explained that once he was in his halo (at

> 18 months) he never again liked to lie down at the doctors office. I think

> he knew it would not be good! ha! Smart little booger.

> >

> > Holl

> >

> >

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