Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 , No they had to completely put to sleep for that. Now he had an EKG and they did not have any problems. However putting those electrodes on his head they tried and he took them off with his feet. Literally took them off with his feet. The Dr. ordered to be put to sleep but when we got to the hospital some nurse in anesthesia got the bright idea they could do this without putting him to sleep. They were wrong. Cyndi B > > Has anyone's kiddo been given a muscle relaxant for a test? We have to do to > Angie's EEG and they want me to give her Tizanidine for the whole 24 hours > while she is hooked up. I feel really uneasy about this. NOT a good feeling > at all. Wondering if anyone else has used it? I talk to my mom and she > always thinks doctors know best, but I disagree. > > DS-ASD 7 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 It sounds strange to me. I always say to listen to that little still voice inside of you. You obviously have a doubt about this. " When in doubt, don't. " I have never heard of this before for a 24 hour EEG. [=;] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 My son had a sleep-deprived EEG, but I was right there beside him. There was a mirror in front of him and he watched them put the electrodes on his head. Granted, I thought he would protest more than he did, but he was ok. Now, a 24 hour EEG, I doubt they would stay on his head that long. But remember, if you give ANY meds, then the EEG won't be accurate anyway. (You know that right?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 I was reading about the 24hr EEG. It's common diagnostic for autism. The article I read was not clear on what it finds with Autism as opposed to other syndromes. I don't think they will want one on my kid when the autism Dx comes back. He barely made it through a 1 hr EEG. He kept ripping those suckers off his head. I would think sedation would change the results and give them sleeping brain results. Maybe that is why they suggest the muscle relaxants. I'm a minimalist with meds though. I'd question it too. http://thekitchenexperiments.blogspot.com/ > > > It sounds strange to me. I always say to listen to that little still > voice inside of you. You obviously have a doubt about this. " When in > doubt, don't. " I have never heard of this before for a 24 hour EEG. [=;] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 We've had our share of tests and lots of different drugs. If the test is really necessary then the drugs can be worth it - even though it goes against our instincts. Darwyn (6) did NOT do well on something called methazadazaline (or something like that). He was knocked out for an hour for an echocardiogram and woke up miserable and biting and yelling in loud bursts for the rest of the day. He also took a really long time to wake up when morphine was used (that was 5 years ago - I think it was morphine) when he was under for a cardio probe. Chloral hydrate we used for a 2 hour EEG but his oxygen levels got a little low and the nurses and resident dr got anxious. We've been through much lower Oxygen numbers so for us the worst part was that we had to wait extra time before they let us leave the hospital. (And yes Dar had blue goo on his head for weeks after, I'd forgotten that part). His last echocardiogram we gave him melatonin and he watched a video all mellow and that was a nice change. But 24 hours is a loooong time. I can't remember if you already explained, but what is the 24 hour eeg for? I've found I have to remember to tell medical staff that he really reacts differently to many meds as they tend to assume all will go well and that's not always the case. Best of luck. , Mom to Dar (DS ASD and a few heart surgeries) , Canada muscle relaxant Has anyone's kiddo been given a muscle relaxant for a test? We have to do to Angie's EEG and they want me to give her Tizanidine for the whole 24 hours while she is hooked up. I feel really uneasy about this. NOT a good feeling at all. Wondering if anyone else has used it? I talk to my mom and she always thinks doctors know best, but I disagree. DS-ASD 7 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 Any of you having to have tests with drugs or drugs for anesthesia, I wouldencourage STRONGLY that you keep a drug notebook and WRITE DOWN the drug- chemical name, generic name, used name and then check it out. Also record your child's reaction to it. Our children react very differently to meds than other kids. IE: Elie was given Chloryl Hyddrate once for a dental procedure. HE was a wild drunk man with one red eye but NEVER was sedated. IT is on the list of no-no drugs for him. Melatonin has never worked for him - not the natural kind, the exten tabs, the liquid - nada. But Benedryl works great . Versed works FANTASTIC. Ativan is good for a starter for anesthesia. > > > We've had our share of tests and lots of different drugs. If the test is > really necessary then the drugs can be worth it - even though it goes > against our instincts. Darwyn (6) did NOT do well on something called > methazadazaline (or something like that). He was knocked out for an hour for > an echocardiogram and woke up miserable and biting and yelling in loud > bursts for the rest of the day. He also took a really long time to wake up > when morphine was used (that was 5 years ago - I think it was morphine) when > he was under for a cardio probe. > Chloral hydrate we used for a 2 hour EEG but his oxygen levels got a little > low and the nurses and resident dr got anxious. We've been through much > lower Oxygen numbers so for us the worst part was that we had to wait extra > time before they let us leave the hospital. (And yes Dar had blue goo on his > head for weeks after, I'd forgotten that part). His last echocardiogram we > gave him melatonin and he watched a video all mellow and that was a nice > change. But 24 hours is a loooong time. I can't remember if you already > explained, but what is the 24 hour eeg for? > I've found I have to remember to tell medical staff that he really reacts > differently to many meds as they tend to assume all will go well and that's > not always the case. > Best of luck. > , > Mom to Dar (DS ASD and a few heart surgeries) > , Canada > muscle relaxant > > Has anyone's kiddo been given a muscle relaxant for a test? We have to do > to > Angie's EEG and they want me to give her Tizanidine for the whole 24 hours > while she is hooked up. I feel really uneasy about this. NOT a good feeling > > at all. Wondering if anyone else has used it? I talk to my mom and she > always thinks doctors know best, but I disagree. > > DS-ASD 7 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 We used the Versed for Jake's tooth extractions and it was great. He recovered easily and we did not see any side effects. We never were able to do a sleep study cause the local hospital could not handle him (after they assured me they could). We opted to walk out of the procedure when the person trying to put the probs on him stated " you as the parent have to be firm. They learn they can get away with things when you give him. " F'n witch! sorry! She honestly expected him to lay on the bed while she placed on the probs on him. Even after I explained that once he was in his halo (at 18 months) he never again liked to lie down at the doctors office. I think he knew it would not be good! ha! Smart little booger. Holl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 More like D.A. (Dumb A..). Some people! maybe you should have recommended he stay with her for a day. HAHA! For those who have dye allergies, Versed has red dye (just thought I would throw that in) > > We used the Versed for Jake's tooth extractions and it was great. He recovered easily and we did not see any side effects. We never were able to do a sleep study cause the local hospital could not handle him (after they assured me they could). We opted to walk out of the procedure when the person trying to put the probs on him stated " you as the parent have to be firm. They learn they can get away with things when you give him. " F'n witch! sorry! She honestly expected him to lay on the bed while she placed on the probs on him. Even after I explained that once he was in his halo (at 18 months) he never again liked to lie down at the doctors office. I think he knew it would not be good! ha! Smart little booger. > > Holl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 can't handle Versed. His big brother has a huge sensitivity to red and yellow dye...ugh. I had no idea that it had dye. had the worst emergence delirium with that stuff! Sent from my iPhone On Jul 26, 2010, at 8:04 PM, " agirlnamedsuess21 " wrote: More like D.A. (Dumb A..). Some people! maybe you should have recommended he stay with her for a day. HAHA! For those who have dye allergies, Versed has red dye (just thought I would throw that in) > > We used the Versed for Jake's tooth extractions and it was great. He recovered easily and we did not see any side effects. We never were able to do a sleep study cause the local hospital could not handle him (after they assured me they could). We opted to walk out of the procedure when the person trying to put the probs on him stated " you as the parent have to be firm. They learn they can get away with things when you give him. " F'n witch! sorry! She honestly expected him to lay on the bed while she placed on the probs on him. Even after I explained that once he was in his halo (at 18 months) he never again liked to lie down at the doctors office. I think he knew it would not be good! ha! Smart little booger. > > Holl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 BE CAREFUL and check, double check ANY DYES used for radio opaque testing. When my husband had his cardiac cath, the dye for that shut down his kidney function for 2 days. HE cannot tolerate the dye for any radio-opaque procedure. Be aware. If a person has ANY reduced kidney function, crimps in the ureter, any kind of malformation, ASK QUESTIONS of a nephrologist or urinary doc. My dh has a big note in his record that 1/2 amount dye only and only in dire emergency. > > > can't handle Versed. His big brother has a huge sensitivity to red > and yellow dye...ugh. I had no idea that it had dye. had the worst > emergence delirium with that stuff! > > Sent from my iPhone > > On Jul 26, 2010, at 8:04 PM, " agirlnamedsuess21 " < > agirlnamedsuess@... <agirlnamedsuess%40hotmail.com>> wrote: > > More like D.A. (Dumb A..). Some people! maybe you should have recommended > he stay with her for a day. HAHA! > For those who have dye allergies, Versed has red dye (just thought I would > throw that in) > > > > > > > We used the Versed for Jake's tooth extractions and it was great. He > recovered easily and we did not see any side effects. We never were able to > do a sleep study cause the local hospital could not handle him (after they > assured me they could). We opted to walk out of the procedure when the > person trying to put the probs on him stated " you as the parent have to be > firm. They learn they can get away with things when you give him. " F'n > witch! sorry! She honestly expected him to lay on the bed while she placed > on the probs on him. Even after I explained that once he was in his halo (at > 18 months) he never again liked to lie down at the doctors office. I think > he knew it would not be good! ha! Smart little booger. > > > > Holl > > > > Quote Link to comment Share on other sites More sharing options...
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