surgery

[Guest guest]

Hi,

I just want to give some response on your paragraph about surgery.

I had my entire thryoid gland removed, one month ago and I DO NOT regret it

for a moment. Of course, the beginning was hard. There were complications, I

had difficulties with my breathing AND I lost my voice completely. But now

it's back ! Not really sounding like I used to do but it's surely coming

back !! I felt very weak in the first weeks after surgery but now I feeling

loads better and I'm sure that everything is going to be alright ! It's

amazing how much I improved in such a short time !

I don't understand why doctors (I'm living in Belgium) are so negative about

surgery. I talked to a woman who was suffering for 20 years !!!!! and she

still had it removed and she is feeling great ! She said : if I would have

known I would have done it years ago ! I know that a lot of the people on

this newsgroup are also suffering for years and years .... I don't

understand why NOT having surgery ?????

I will keep you posted on how I am feeling but I'm sure I'm going to feel

great in a couple of weeks !

All of you, take care of yourselves,

Mieke

------------------------------------------------------------------------

[Guest guest]

Mieke:

Thank you for saying a mouths full. I could have not said it better myself.

As a fellow sufferer, I too had the surgery on 2/25/99 and I am so happy that

I did. My right side goiter was huge and it was suffocating me when I tried

to sleep plus other symptoms that were too much to bear. We all have to

realize that as much as surgey does not

seem appealing and often dreadful, it may be the only way to improve the

quality of one's life. Mieke and are witnesses to that. Of course, an

important piece to the surgery part is getting a good surgeon. Mine was

excellent. Could not have asked for a better one.

Best of health to everyone.

------------------------------------------------------------------------

[Guest guest]

Thank you for another surgical testimony. Your success is important

as we dispell the notion that surgery is so horrific. It is the furthest

thing from the truth and three of us can attest to that.

With Sincerest Regards,

------------------------------------------------------------------------

[Guest guest]

Hi everyone,

I also wanted to comment on the paragraph about surgery. In July I had a

total thyroidectomy for Grave's disease and I do not regret it. I was

originally scheduled to have radioactive iodine treatment but my goiter grew

and I was starting to have trouble breathing. My endocrinologists decided

that surgery was the route to take. Well, it wasn't as bad as I expected. I

didn't lose my voice...although it did sound a little funny for the first

few days and although one of the four parathyroid glands was also removed I

haven't had any problems with Calcium.The recovery was also very speedy and

not too painful. I was actually released from the hospital after 24 hours

even though my doctors had originally told me I would kept in the hospital

for 3 or 4 days. I just remember having a sore neck for a few days, and that

was simply a result of the position of my neck during surgery. The actual

thyroid area felt numb and didn't hurt....it just felt a little tender when

touched. I think the worst part of it was coming out from the full

anesthetic, I was VERY dizzy (and thirsty). But to this day I don't know if

the dizziness was due to the anesthetic itself or the pain killers....for

the first 12 hours I was on morphine and Demerol....they really make you

feel out of it.

Anyway, I think if any of you are given the option of surgery,

definitely consider it! The scar has basically disappeared (I have a

necklace that covered it up) and I'm feeling great! Like Mieke said, I don't

think you guys have to suffer for years and years. I was actually diagnosed

with Graves last March and was then put on PTU and a B-blocker until the

surgery in July. Those 5 months were very difficult but now my life is

completely back to normal.

Take care everyone and Mieke, I'm sure you'll be feeling great very

soon! It took some time for my doctors to find the appropriate dose of

thyroid hormone replacement (Eltroxin - it's like Synthroid) but like I said

things are back to normal. Good Luck!

(from Canada)

Re: surgery

>Hi,

>

>I just want to give some response on your paragraph about surgery.

>

>I had my entire thryoid gland removed, one month ago and I DO NOT regret it

>for a moment. Of course, the beginning was hard. There were complications,

I

>had difficulties with my breathing AND I lost my voice completely. But now

>it's back ! Not really sounding like I used to do but it's surely coming

>back !! I felt very weak in the first weeks after surgery but now I feeling

>loads better and I'm sure that everything is going to be alright ! It's

>amazing how much I improved in such a short time !

>

>I don't understand why doctors (I'm living in Belgium) are so negative

about

>surgery. I talked to a woman who was suffering for 20 years !!!!! and she

>still had it removed and she is feeling great ! She said : if I would have

>known I would have done it years ago ! I know that a lot of the people on

>this newsgroup are also suffering for years and years .... I don't

>understand why NOT having surgery ?????

>

>I will keep you posted on how I am feeling but I'm sure I'm going to feel

>great in a couple of weeks !

>All of you, take care of yourselves,

>Mieke

>

>

>

>------------------------------------------------------------------------

>Too much effort to find the stock info you want each day? StockMaster

>lets you enter a company name and quickly shows you a daily quote,

>chart, and news all on one page. Free!

http://clickhere./click/71

>

>

[Guest guest]

Hi! i have to agree with Meike--i had a total thyroidectomy in March and am

doing so much better now!...Barbara

------------------------------------------------------------------------

[Guest guest]

TRY

www.dwarfism.org

surgery

>From: Ruth Clepper <providence@...>

>

>I was wondering where i could find on the internet all the precautions

>that we are supposed to take before our son has surgery. We have a book

>called little of this,little of that but it only has a page about what

>to ask the anethesiologist. Is there an internet site that has more

>information?

>Thank you,

>Ruth Clepper

>

>

>

[Guest guest]

On 11/07/99 11:52:27 you wrote:

>

>From: " Mailman " <ladydiana@...>

>

>Hi Everyone,

>

>I am going to have back surgery this coming Wednesday, and I was wondering

if anybody ever

>solve the problem of getting in and out of the hospital bed. I had

surgeries before, and

>the way I did it was the nurses always had to help me down, usually with a

stool. So, I

>was wondering, if there was a better way, or is that the way everybody does

it.

>

>

>

>>

Hi ,

When I had my surgery about 5 years ago at Baylor Medical in Dallas I found

that having something solid under my feet while sitting on the edge of the

bed was the most secure way to go " feeling wise " . If only a small stool is

offered there is still a long way down before your feet make contact with

something solid. Even with one person helping this did not give me much

comfort.

I would suggest something multi-leveled and/or something with solid

handrails allowing you to participate in gradually letting your own weight

down. This helped me feel much more secure. A walker over or in front of the

stool I believe is what I found most useful to hold on to. And don't be

ashamed to ask for a second person to assist you...i.e. one on each side of

you.

I insisted on having furniture and potty (this is really important) that fit

me. At one point I had the staff sawing chair legs off. When it comes to

your comfort and safety ....you are the expert in a made-for-big-people

world.

By the way, regarding your walker. Make sure they cut it down to your size.

You should be able to press down with your hands and lift some of the weight

of your body easily. If the arms are too high it is difficult to do this

trick. My walker fit to me was a very important and secure feeling.

If you have any trouble getting these things done, get yourself an advocate

who will support your demands. Many hospitals have such representatives

available to patients.

If you have any more questions ... fire away and I'll do my best to help.

Good luck and hang tough!

Bill Howe

San , TX

[Guest guest]

Hospital beds weren't made for lp's..........that's foresure, but ask the nurses

if they can

to lower the bed, as low as it will go. It's a pain for the hospital staff, but

it will make

it a 'bit' easier on you. I said 'bit'. I always had the problem that I felt

like I was

sinking in the middle of the bed and it's mostly because our short limbs, aren't

made for

hospital beds. One way for the nurses to actually help you ambulate from the

bed without

having to climb down, is to get one nurse on each side of you and lift you from

the bed to the

chair with a sheet and underneath you. If I was a nurse, I would know what the

technical term

for that maneuvering method is called........but I'm not. Missed my

calling.........hehe

Best wishes on your surgery Wednesday, .

Ann

Mailman wrote:

> From: " Mailman " <ladydiana@...>

>

> Hi Everyone,

>

> I am going to have back surgery this coming Wednesday, and I was wondering if

anybody ever

> solve the problem of getting in and out of the hospital bed. I had surgeries

before, and

> the way I did it was the nurses always had to help me down, usually with a

stool. So, I

> was wondering, if there was a better way, or is that the way everybody does

it.

>

>

>

>

[Guest guest]

I am going into the hospital in December for surgery. I, along with Dr.

Beals nurse, are working on having a pediatric bed put into my room. It is

low and I should not need a stool (although with my legs, I may still end up

needing a small one). Contact your Dr. and see if they can bring in a

pediatric bed for you.

karin

Surgery

>From: " Mailman " <ladydiana@...>

>

>Hi Everyone,

>

>I am going to have back surgery this coming Wednesday, and I was wondering

if anybody ever

>solve the problem of getting in and out of the hospital bed. I had

surgeries before, and

>the way I did it was the nurses always had to help me down, usually with a

stool. So, I

>was wondering, if there was a better way, or is that the way everybody does

it.

>

>

>

>>

[Guest guest]

Hi Karin,

Your suggestion about using a pediatric bed is a good one. I will talk to my

doctor's

nurse about it, and see what happens.

[Guest guest]

Dear ,

When I've been in the hospital hooked up to IV's I

request a step stool and a commode by my bedside. I

also insist that they leave the railing down on the

side of the bed that the commode is on so I don't have

to wait for the nurse to go to potty. It saves the

sheets and the nurses mileage since I can go several

times within hours even mintues of going. I ask the

nurse to place one hand under the back of my head

where the neck meets it, when raising me into an

upright postion it's easier on both my neck and my

back. I'd inch my way to the edge then slide slowly

down until my toes touched the stool. I can usually

get out of the bed without help though you may not

since you are having spine surgery. But this is how I

did it while in ICU within 24hrs. of abdonimal

surgery! Hope you recovery quickly and can e-mail me

soon. I just sent you an e-mail greeting card hope you

got in your mailbox.

Love,

Sharon

--- Mailman <ladydiana@...> wrote:

> Hi Everyone,

>

> I am going to have back surgery this coming

> Wednesday, and I was wondering if anybody ever

> solve the problem of getting in and out of the

> hospital bed. I had surgeries before, and

> the way I did it was the nurses always had to help

> me down, usually with a stool. So, I

> was wondering, if there was a better way, or is that

> the way everybody does it.

>

>

>

>

>

<HR>

<html>

>

[Guest guest]

Yes , we'll be thinking of you today as you go to surgery. I hope that

your stay there is as comfortable as can be, with your bedding situation.

Hang in there girlie!

Ann

> From: " S. A.. " <squeakya@...>

>

> Dear ,

> When I've been in the hospital hooked up to IV's I

> request a step stool and a commode by my bedside. I

> also insist that they leave the railing down on the

> side of the bed that the commode is on so I don't have

> to wait for the nurse to go to potty. It saves the

> sheets and the nurses mileage since I can go several

> times within hours even mintues of going. I ask the

> nurse to place one hand under the back of my head

> where the neck meets it, when raising me into an

> upright postion it's easier on both my neck and my

> back. I'd inch my way to the edge then slide slowly

> down until my toes touched the stool. I can usually

> get out of the bed without help though you may not

> since you are having spine surgery. But this is how I

> did it while in ICU within 24hrs. of abdonimal

> surgery! Hope you recovery quickly and can e-mail me

> soon. I just sent you an e-mail greeting card hope you

> got in your mailbox.

> Love,

> Sharon

>

> --- Mailman <ladydiana@...> wrote:

> > Hi Everyone,

> >

> > I am going to have back surgery this coming

> > Wednesday, and I was wondering if anybody ever

> > solve the problem of getting in and out of the

> > hospital bed. I had surgeries before, and

> > the way I did it was the nurses always had to help

> > me down, usually with a stool. So, I

> > was wondering, if there was a better way, or is that

> > the way everybody does it.

> >

> >

> >

> >

> >

> <HR>

> <html>

> >

>

>

[Guest guest]

Hi Ann,

Thank you Ann for your thoughts. I will hang in there.

I will be shutting down soon, so this is probably my last message for awhile to

the

ListService.

Talk to you all when I get back.

[Guest guest]

, our thoughts and our prayers are with you as you leave for surgery.

Please know we care deeply, and are here for you if you need us. We have

your home phone and etc, but the addy of the hospital would be great too!

Love The Entire Hoggan Clan

Re: Surgery

> From: " Mailman " <ladydiana@...>

>

> Hi Ann,

>

> Thank you Ann for your thoughts. I will hang in there.

>

> I will be shutting down soon, so this is probably my last message for

awhile to the

> ListService.

>

> Talk to you all when I get back.

>

>

>

> >

[Guest guest]

All the best Gwen , hope everything goes well for you. Looks like, I'll

be having a neck fusion with bone graft in about two weeks so we can

compare notes!

Hugs

Barbara

Gwen Armstrong wrote:

> Hi Group

> Well I'm off again for more surgery.This time for a lumbar

> laminectomy, foramenotomy and

> possible bone graft. This will be the third major operation in a year

> and I hope the LAST

> for awhile.

> Will sign back on post surgery.

> Please keep me in your thoughts and send some positive vibes this way.

>

> Best wishes for good health to all

> Gwen

>

> ----

> -------------------------------------------------------------------

> Get paid for the stuff you know!

> Get answers for the stuff you don’t. And get $10 to spend on the site!

>

> 1/2200/0/_/532797/_/955466259/

>

> -----------------------------------------------------------------------

[Guest guest]

Hi Jim,

I just got your e-mail. I just joined the group yesterday and I've gotten some real good advice from the ones who have written...I don't think any of us can tell you if you are right or wrong in this surgery. But I do know about the pain. I am beginning to get the toe thing and I know it hurts so bad you don't even want to walk or move or have anything touch them. My ankle on the same foot(right) hurts and stiffens up sometimes but it is still tolerable. My meds are beginning not to work either, and finding a shoe that doesn't kill to wear them is next to impossible. I am also beginning to have problems with my left hand. So I understand the pain and surffering.

At age 30 you have so much of your life to go through yet... If you feel that havng the ankle fused is going to help you live a better life and be more active then why not? Are you married, have a family or not. I am 54 and I find the limitations forced on me intolerable. I want to hike and do all those neat things with my husband and grandkids and can't. It is frustrating and painful in many ways.

I need my knees replaced already and I'm trying to hold off because of my age...they say they only last 10 years. I don't want to do it more than once. Or hope to only have to do it once. Do you have Psoriasis now or are you in remission? I am in full bloom...everywhere except my scalp and face. By the way I live in mid-Michigan, about 45 min. north of Grand Rapids. If the decision came down to whether to have a stiff ankle & not have pain over a flexable ankle with pain...I personally would probably go with the surgery. You are on your feet for long periods of time so you have to have some kind of relief.

I will be praying for you during the surgery. For the surgeon to know what he is doing and that the good Lord will heal you quickly and without any complications...keep in touch...Donna

jimshell@... wrote:

Hello,My name is Jim and I am from Western Pa. I am having surgery in two weeks to fuse my left ankle because of all the pain I am having. Also all of my toes on my left foot are dislocated. I am going to have the doctor make them straight again. I am a General Manager of the worlds largest Pizza Chain. I am unable to take the pain anymore. Do you think I am doing the right thing. I am only 30 years old. The medication I am on is not good for me. Please let me know.------------------------------------------------------------------------Your high school sweetheart-where is he now? With 4.4 million alumnialready registered at Classmates.com, there's a good chance you'llfind her here. Visit your online high school class reunion at:1/3139/2/_/494167/_/956283890/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paand attend our weekly chat on Dr Koop at7 PM EST on Monday evenings!!Go to the www.Dr.Koop.com website ahead of time and register as a user that way you can come right in on Monday nights. Hope to see you thereat the chat!!!

[Guest guest]

Hello Jim,

Welcome. My foot had been fused twice on its own. the pain is incredible.

I had to quit my job a 30. I was a bank teller and always on my feet.

The feet got better on Methotrexate and rest. Oh did I forget the

orthotics. I wear them as soon as I get out of bed until I go to bed at

night.

I'm not sure about the surgery my R'ist told me to hold off on anything

perminent.

.

----Original Message Follows----

From: jimshell@...

Reply- egroups

egroups

Subject: [ ] Surgery

Date: Fri, 21 Apr 2000 01:38:36 -0000

Hello,

My name is Jim and I am from Western Pa. I am having surgery in two

weeks to fuse my left ankle because of all the pain I am having. Also

all of my toes on my left foot are dislocated. I am going to have the

doctor make them straight again. I am a General Manager of the worlds

largest Pizza Chain. I am unable to take the pain anymore. Do you

think I am doing the right thing. I am only 30 years old. The

medication I am on is not good for me. Please let me know.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Allayne - I have not had any carpal tunnel or joint surgery since being

diagnosed. However, I did have surgery for a kidney stone right before being

diagnosed. Unfortunately, the urologist broke one of the instruments while

it was in me as my stone was so hard to get at - either that possibly causing

bacteria to enter my bloodstream, or some other unsterile situation - left me

with a pseudomonis (bacterial) blood infection ( I was hospitalized for

several days with I.V. antibiotics for 104-105 degree fevers) which brought

on all my PA symptoms with a vengence! - Since then, I've had another stone

surgery - no infection this time - so I'm wondering now if it's just the

trauma to the body of anethesia and surgery - and this surgery again brought

on quite a relapse, although not quite as devasting as the first.

I suppose everyone is different, but be careful about having the surgery. My

opinion is that any stress like that to my system will bring on a MAJOR

flare. Maybe others are different, but be sure you are prepared as best you

can.

Good luck,

[Guest guest]

n, did you have a thyroid nodule which needed to be removed, or did you

doctor tell you that your thyroid needed to be removed to control the

symptoms of HyperT instead of subjecting you to RAI or trying ATDs to " calm "

the thyroid gland? Surgery is an invasive treatment and should only be

considered when there are no other alternatives. I HAD to have surgery

because there were indications that my nodule was cancerous. However, I

went into surgery with the understanding that ONLY that portion of the gland

which was impacted would be removed, unless the nodule was cancerous.

Actually, I may still have more than half of my thyroid gland, but the

nodule was over 4 centimeters, so probably not. However, it's still enough

to achieve normal thyroid function and that's my goal! I know several

people who manage fine with Synthroid, but I do hope you're seeing an

endocrinologist, not a GP or internist. Proper endocrine balance is REALLY

important!

=====

Bonner

[Guest guest]

((hugs)) so glad you are doing well... will be interested to hear further report on what they took out?

wendy

SurgeryJust an update on my surgery this morning on my breast, the Dr. took it out said it was deep & he thought it was cancerous but we will know in a few days. i told him i didn't think so. i did tell the nurse who was helping if they see any parasites while in there to save them, but evidently they didn't. now how can the biopsy come back " they didn't know what the mass was " to this being cancer? this is the same mass he did the biopsy on! & get this i woke up while they were stitching me up & i figured i better start talking to the Dr. to let him know i could feel it!!!!! Oh well!!!! i'm doing fine & i'll let you know what the lab says later with the report. Mog Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

Mog,

This sounds scary! Cancer? If I were you I'd be

chewing my nails off! How reliable are biopsys? Would

a lump from parasites resemble cancer? I once remember

reading that a breast cancer drug, tamoxifen, was

anti-fungal. Are the two linked somehow??

***

***

--- mogdrmom@... wrote:

> Just an update on my surgery this morning on my

> breast, the Dr. took it out

> said it was deep & he thought it was cancerous but

> we will know in a few

> days. i told him i didn't think so. i did tell the

> nurse who was helping if

> they see any parasites while in there to save them,

> but evidently they

> didn't. now how can the biopsy come back " they

> didn't know what the mass was "

> to this being cancer? this is the same mass he did

> the biopsy on! & get this

> i woke up while they were stitching me up & i

> figured i better start talking

> to the Dr. to let him know i could feel it!!!!! Oh

> well!!!! i'm doing fine &

> i'll let you know what the lab says later with the

> report. Mog

>

__________________________________________________

[Guest guest]

Cancer is linked with candida because a lot of the toxins that candida

releases into our systems cause cancer (fermaldehyde,etc.)

~

> > Just an update on my surgery this morning on my

> > breast, the Dr. took it out

> > said it was deep & he thought it was cancerous but

> > we will know in a few

> > days. i told him i didn't think so. i did tell the

> > nurse who was helping if

> > they see any parasites while in there to save them,

> > but evidently they

> > didn't. now how can the biopsy come back " they

> > didn't know what the mass was "

> > to this being cancer? this is the same mass he did

> > the biopsy on! & get this

> > i woke up while they were stitching me up & i

> > figured i better start talking

> > to the Dr. to let him know i could feel it!!!!! Oh

> > well!!!! i'm doing fine &

> > i'll let you know what the lab says later with the

> > report. Mog

> >

>

>

> __________________________________________________

>

[Guest guest]

Mog,

I wish you a speedy recovery !! Take care of yourself!

moons

[Guest guest]

> i woke up while they were stitching me up & i figured i better

> start talking

> to the Dr. to let him know i could feel it!!!!! Oh well!!!!

Mog, it's brilliant that you're so calm about this, I'd be terrible.

I'm sure it will help you. I really wish you well and hope that

you're feeling much better soon.

Take care

Debs

[Guest guest]

I hesitated to respond to this because I didn't want to put fear in

you. But I too think it is a waste of good health. One lady here had

it done in the early days of this procedure. She has spent a minimum of

a month in hospital each year since then!!! Her daughter had it done as

well, lost weight, gained it all back. She is now at 5'4, close to 300

lbs. Unless your life is at risk right now from the weight, don't do

it. Work hard at other alternatives.

Re: surgery

>

> Listen, I do not know the details for the reason the doctor wants

> to do this surgery but my " gut " instinct says don't do it!!! This

> can be beaten!! And it is done by eating right and wisely along

> with " natural " fugulsides. I know 2 people who have had surgeries,

> one had 3/4 of her stomach removed and another who had what you

> are talking about she is under 5 feet and still about 200 lbs, she

> still doesn' t make wise food choises she just thinks there is

> nothing that will work.

>