Re: it seems like things are going backwards/Etc

[Guest guest]

Hi ,

I am so sorry reading your post. I would stay home than try to bring 3 kids to

hear Dr. Capone. I can't remember what state you are in but I would give Dr.

Capone a phone call and ask if he recommends a dr in your area to see .

It's worth a try. I am not certain will learn any more from Dr.Capone that you

already know that there is something else going on.

 

,

I hope Nate gets some relief soon and his ear is ok.

 

I am in the middle of my busy work season and when home I can't seem to stay

connected to the net. I have issues with the DSL line. Zeb attended a leadership

forum at our state university this week. It was the first time that I have been

without kids for longer than a day in 35 yrs. Dh and I enjoyed every moment. Zeb

had never been away overnight. I picked him up today. He did great and had the

time of his life. He really needed a break after this past year. He told me that

he met a girl but couldn't remember her name,LOL.

Charlyne

Subject: it seems like things are going backwards

To: " DS-Autism " < >

Date: Thursday, July 30, 2009, 2:44 PM

 

Whenever , 6, makes a tiny, miniscule, amount of progress, she falls

millions of miles behind. I am just so depressed and saddened by this. The

crappy Autism is kicking my a*# and I just wish it wasn't so.

She is non-verbal, no signing, no PECS, will not self feed, does not drink,

not potty trained and it goes on. I know that it all is negative, but when I

sit and think, what CAN she do, I come up empty. About the only thing is,

she can walk, kinda. She has to be held, or else she will wander off. She

will sit in the dirt, or bark chips at the park, and eat them. She takes off

her poopy diaper and eats it. I just am miserable.

We go to the down syndrome convention this weekend, oh how I wish Dr. Capone

would be able to see Angie and tell us if this is normal. Her neuro says

there is more going on here than Down syndrome, but that doesn't help. The

Aricept is not helping language, the Depakote is not stopping the tics. I

just do not know what to do.

I feel so helpless and physically ill with all of this. Not to mention my 4

year old, Josh, is massively energenic. And has constipation, not really

potty trained and holds his BM's so much he has rectal prolapse. My 5 month

old nurses constantly and only wants to be held.

Hubby still has no job in sight, and its just stressful.

Sorry for venting.

Maybe we will get something out of hearing Dr Capone speak. Although, we

have to take all 3 kids, and they said there is no childcare there, no

family can help watch, and they said if the kids get restless during

workshops, we have to leave.