Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Welcome to the list. We found the list in 1997 when our son was dx at age 12. It has been a great support to our family. We are a family of 6 children - Elie, our 22 yo son is the youngest and has the dual dx. Our other children range from 40 yo twins daughter and son, 37 daught, 33 son, 25 yo son. Is your daughter an only child? > > I was looking over the messages, and it looks like the group is > really " personal " , so I thought I would introduce ourselves. My name > is s, and my husband, , and I have a 4 year old > girl with ds and autism. We knew at 7 to 8 months old, but we live > in East Texas, and the resources here are limited with for ds alone, > but the dual diagnosis was impossible. We ended up going to see Dr. > Capone in land at Kennedy Kreiger to finally get the > diagnosis. It was funny...they all kept saying " You drove all the > way to land for us to tell you she has autism? " The Downs clinic > in Dallas all agreed a couple of years ago that she did, but we could > not get a neurologist to commit to it... we had the " autistic traits > and characteristics " label for two years. > Anyway, I am the Vice President of our Down syndrome group here in > East Texas, but again, Kirsten is different from 99% of the kids in > our group. She does not enjoy the outings and the parties... I > really can't even take her to the meetings because of the > stimulation...so I was really excited when Dr. Capone told us of this > listserv. > We look forward to visiting with this group... > Blessings > and s > > > -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
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