hi

[Guest guest]

Oh no I wonder how many others were returned. When I signed on this

morning it said I had to delete some I'd reached the limit 1,000 but

I figured it would just send them to me when I deleted some. Not good

I use this for work too. I better keep up with them more. You'd

think it would take a long time to get to 1,000 but not for me.

If you want to resend it it's ok now I'm only at 810 (ha ha)

I'll let you know about April. If I forget please remind me!

Sherry

> > > >

> > > > Hi I called today to get a sooner appointment for the ped.

> > > > Ophthalmologist and they told me the next one was May, even

later

> > than

> > > > I had. So I figured I'd keep calling till there's a

cancellation.

> > I

> > > > told her I'd come anytime. So then she calls back in 5

minutes

> > and

> > > > said she didn't know he was a new patient that he can come in

on

> > Fri.!

> > > > So we have both the head CT scan and the eyes Fri. So as

usual it

> > pays

> > > > to be persistent and follow-up. I'm so happy that I don't

have to

> > > > suffer wondering what's wrong. The Ped. did tell me though

that

> > some of

> > > > the people who do the CT scan don't tell you the results.

> > > >

> > > > Does anyone know how they do baby eye exams? Chase is really

> > active

> > > > now and hates being restrained in any way.

> > > >

> > > > Sherry

> > > > Chase (7 1/2 months) (I have to remember to keep changing

this

> > (ha ha)

> > > > it was 6 months for about 2 months)

> > > > tort.

> > > > DOCband 2/15

> > > >

> > >

> >

>

[Guest guest]

Oh no I wonder how many others were returned. When I signed on this

morning it said I had to delete some I'd reached the limit 1,000 but

I figured it would just send them to me when I deleted some. Not good

I use this for work too. I better keep up with them more. You'd

think it would take a long time to get to 1,000 but not for me.

If you want to resend it it's ok now I'm only at 810 (ha ha)

I'll let you know about April. If I forget please remind me!

Sherry

> > > >

> > > > Hi I called today to get a sooner appointment for the ped.

> > > > Ophthalmologist and they told me the next one was May, even

later

> > than

> > > > I had. So I figured I'd keep calling till there's a

cancellation.

> > I

> > > > told her I'd come anytime. So then she calls back in 5

minutes

> > and

> > > > said she didn't know he was a new patient that he can come in

on

> > Fri.!

> > > > So we have both the head CT scan and the eyes Fri. So as

usual it

> > pays

> > > > to be persistent and follow-up. I'm so happy that I don't

have to

> > > > suffer wondering what's wrong. The Ped. did tell me though

that

> > some of

> > > > the people who do the CT scan don't tell you the results.

> > > >

> > > > Does anyone know how they do baby eye exams? Chase is really

> > active

> > > > now and hates being restrained in any way.

> > > >

> > > > Sherry

> > > > Chase (7 1/2 months) (I have to remember to keep changing

this

> > (ha ha)

> > > > it was 6 months for about 2 months)

> > > > tort.

> > > > DOCband 2/15

> > > >

> > >

> >

>

[Guest guest]

Hi Lynn,

That's wonderful, Oh how I would love to be able to live on my own, I miss my

independence so much, enjoy yours !!

Jeanette French

[ ] Hi

I haven't been on for a while as I've been busy getting my new flat

ready. Just over a week to go and no more stairs woo hoo. I also had a

hospital appoint with my rheumy went ok but i have got so bad she has

put up my methotrexate and also gave me a steroid injection. Just

catching up on all the posts and was so pleased to find everyone still

sharing as i also learned a few things. Mainly that it's not just me

who has a problem with my ankle suddenly giving way. My family have

been great has to be said. My nrother has done all the decorating in

my new flat. Man am getting so excited mainly because i can then buy

me a computer and stop coming to my mums to use hers or work. Well

i'll go as i've gibbered enoughhope to hear from you all soon. Love and

best wishes to you all.

[Guest guest]

jeanette ' where are you from ?? I grew up in lynn,mass. and knew a girl

named jeanette french! cathy from massachusetts

[Guest guest]

Hi :

I was born in Wash. DC, grew up in Md, lived in Va., Fl., Az, and now

West Va. but never in Mass.

Thanks,

Jeanette

Quoting pretzelb3@...:

> jeanette ' where are you from ?? I grew up in lynn,mass. and knew a

> girl

> named jeanette french! cathy from massachusetts

>

[Guest guest]

well if I did't know ya before ..now I do ! cathy from ma.

[Guest guest]

Hi :

yep: glad to meet ya !!!

Jeanette

Quoting pretzelb3@...:

> well if I did't know ya before ..now I do ! cathy from ma.

>

>

[Guest guest]

Hi, I am wondering if anyone out there has similar symptoms to me. I have pa in

my left ankle which I am about to have operated on, putting pins in as the ankle

has deteriorated very badly. During the past 2 weeks I have developed pain and

inflammation on the front of my right leg, between knee and ankle at the front,

very painful to touch and skin looks red. I know pa only affects the joints but

somebody out there wrote that you can get inflammation of the nerve endings. I

dont know if this is what I have. My Dr said it was because I couldnt walk on

left leg and was putting more strain on the right leg but I know that it isnt

that as it is the same pain. I am on 20mg methrotrexate once a week, anti

inflammatories and also sulphasazine but none of thesemedications has given me

any relief.

I have learnt more from this web site than I have been told by my Doctors. I

honestly think that in this part of the world, they are not sure how to deal

with pa if it doesnt respond to methotrexate. Enbrel hasnt been passed for use

in England, unless you pass the criteria. Dont know how bad you have to feel to

pass that.

Anyway, any thoughts would be appreciated.

Geraldine

[Guest guest]

Geraldine,

I hear you. I know exactly what you mean having the feeling most PA

sufferers eventually end up MTX at some point in their course of treatment.

My doc explained to me insurance requires they try less expensive medicines

first when you're first diagnosed. She said, I know what it will take to

put your PA into remission if I could do that now. She is a very

understanding doctor. The best one I've been so far. She is the third

Rhemamatologist I've gone to in 2 1/2 years. Doc said her hands are tied so

to speak on treatment options for her patients. I told her I've been on

other NSAID'S and couldn't taken them because I was allergic to them. So I

was leary of trying MTX. So far so good.

My doc attempts to treat every patient by their individual symptoms and

personal needs, one for all. She looks at the whole picture on her patients

She looks at labs results and symptoms overall for each patient.

However, she explained the guidelines she has to follow in treating her

patients due to insurance. They will not allow her to give patients

biologics as the first line of treatment. She has to try several NSAID'S on

patients before proceeding to the next line of treatment for them.

Sometimes MTX works alone for some people. I asked what percentage of

patients improve with MTX alone. She said about 50/50. My other

Rhuematologists did not communicate this to me. Even though I asked them to

This disease is so crippling, I get so frustrated with insurance guidelines.

It's almost like they don't care what we go through to get pain relief.

Yesterday, I ran into a lady at the grocery store. She gave me perspective

on my gripping about insurance. Well some people do not have insurance, for

whatever reason.

I didn't realize that became my obsession. The added stress helped my PA.

I feel God allowed me to meet this woman in order to get perspective on

insurance. Thank God I have insurance.

There will always be someone worse off than you, no matter how bad you feel.

I needed to hear that. I take insurance for granted and let it get to me

this week. I've fretted over fretted over insurance all week. I do not

think I've gone through the grieving process of being diagnosed with this

disease. I've tried to count my blessings through my diagnosis. Especially,

when my fellow friends here have gone through surgeries with their PA.

I hope this helps, not to mention letting me vent,

We are in this together for support.

Thanks!

Rhonda

-- Re: [ ] Hi

Hi, I am wondering if anyone out there has similar symptoms to me. I have

pa in my left ankle which I am about to have operated on, putting pins in as

the ankle has deteriorated very badly. During the past 2 weeks I have

developed pain and inflammation on the front of my right leg, between knee

and ankle at the front, very painful to touch and skin looks red. I know pa

only affects the joints but somebody out there wrote that you can get

inflammation of the nerve endings. I dont know if this is what I have. My

Dr said it was because I couldnt walk on left leg and was putting more

strain on the right leg but I know that it isnt that as it is the same pain.

I am on 20mg methrotrexate once a week, anti inflammatories and also

sulphasazine but none of thesemedications has given me any relief.

I have learnt more from this web site than I have been told by my Doctors.

I honestly think that in this part of the world, they are not sure how to

deal with pa if it doesnt respond to methotrexate. Enbrel hasnt been passed

for use in England, unless you pass the criteria. Dont know how bad you

have to feel to pass that.

Anyway, any thoughts would be appreciated.

Geraldine

[Guest guest]

Hi Geraldine,

I have simular anke and leg problems. I used to think the pain in

the front of my leg, the shin area was down to football injuries,

but apparently not. I live just outside Huddersfield an have been

offered Enbrel. So it is certified for use with PsA in the UK. See

the website for the National Institute For Health and Clinical

Excellance (NICE). It seems to be quite new in the UK and I feel

that I am a guinue pig. It sounds like fibromyalgia to me but I am

not an expert. I too have learned more from this website than

anywhere else. But hey, we are the sufferers and we probably know

best. The medical profession are still learning as much as we are.

You are not alone.

Keep the light shining,

Ian.

>

> Hi, I am wondering if anyone out there has similar symptoms to

me. I have pa in my left ankle which I am about to have operated

on, putting pins in as the ankle has deteriorated very badly.

During the past 2 weeks I have developed pain and inflammation on

the front of my right leg, between knee and ankle at the front, very

painful to touch and skin looks red. I know pa only affects the

joints but somebody out there wrote that you can get inflammation of

the nerve endings. I dont know if this is what I have. My Dr said

it was because I couldnt walk on left leg and was putting more

strain on the right leg but I know that it isnt that as it is the

same pain. I am on 20mg methrotrexate once a week, anti

inflammatories and also sulphasazine but none of thesemedications

has given me any relief.

>

> I have learnt more from this web site than I have been told by my

Doctors. I honestly think that in this part of the world, they are

not sure how to deal with pa if it doesnt respond to methotrexate.

Enbrel hasnt been passed for use in England, unless you pass the

criteria. Dont know how bad you have to feel to pass that.

>

> Anyway, any thoughts would be appreciated.

>

> Geraldine

>

[Guest guest]

4 months is a good age for repo. In simplest terms, you must stop

your child from resting on the flat part of the head. When your

child is lying down, do this by putting something comfortable under

your child's shoulder on the same side as the flat spot. This will

make the baby rest on the round side. Aslo let your child sit up as

much as you can, use an exersaucer, activity center, or Bumbo chair

(www.bumboseat.com). Also give your child qas much time as possible

playing on her tummy. If she doesn't like it now, she will grow to

like it in time. How flat do you estimate your child's flat spot to

be?

Becky

> > >

> >

> === message truncated ===

>

>

> __________________________________________________

>

[Guest guest]

Hello Tamil

It depends on the growth of your child. At 4 months you should see

correction pretty quick. Keep your child off the flat side at all

times. Take pictures so you know how much correction you are

getting.

Where are you from?

Sandy Willow's Mom (6-2-2003)

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

> > >

> >

> === message truncated ===

>

>

> __________________________________________________

>

[Guest guest]

I can't really tell you how long it will take. It all depends on

how aggressive and dilligent you are in your repositioning. It also

depends on your child's growth (how quickly or slowly she is

growing). And finally, it also depends on the severity of your

child's flat spot. How flat is she? If it is a very mild flat

spot, you may see results fairly soon. If the flattening is

moderate or severe, it may take longer to see correction. How flat

would you say her head is? Look at these charts

http://www.cranialtech.com/MedicalInfo/identify.html to determine

the severity of your child's headshape. Just because I am curious,

what part of the country do you live in?

Becky

> > >

> >

> === message truncated ===

>

>

> __________________________________________________

>

[Guest guest]

Hi, Rhonda,

I work for an insurance administration company. I know how frustrating the red

tape is. However, we the people have allowed the drug companies to charge such

high prices that one of the solutions is to make certain a less expensive med

doesn't work before approving the newer, more expensive ones are used.

Previously, many MD's would prescribe new, more expensive meds (often with no

knowledge of how much the drug costs) just because a good drug company salesman

wined and dined him. And now that these meds can be advertized on TV, patients

often request them. Personally, I think all advertising of drugs should be

banned. It adds to the cost for all of us.

And you're right. There are people with no insurance, or whose coverage is

limited. They have no choice except to throw themselves on the mercy of the drug

company's outreach program. And Medicare-D pays only 25% of the cost of drugs

like Embrel. That's about $1000 for the patient to pick up, until a total of

5,100 dollars has been spent out-of-pocket.

Why are we the richest country in the world, and yet we won't make life as

comfortable as possible for a generation that lived through the Great Depression

and fought in WWII? I'm ashamed of what we've become.

Sorry! I just had to rant. And while the following is off-topic, I m going to

share it in hopes that it save another woman from the trauma of rape.

I live in what I thought was a safe condo complex. One of my friends, a

65-year-old woman who stand 5 feet tall weighs about 98 pounds, went shopping.

When she came home--through the gates--she took some things into the house, put

her purse down, and walked out to get the rest of her packages. When she came

in, a rapist threw a pillowcase over her head, tied her up and raped her. He got

in while she was getting her packages. I leave my door unlocked all the

time...I'm going next door for a moment, I'm going to the mailbox, whatever.

Just be on guard ALL the time. It's a pity women are still so vulnerable, and

that crimes of rape aren't treated as seriously as attempted murder. Because my

friend's life is changed forever. She is afraid to go home, and has moved in

with a friend. A lifetime of independence was shaken in a few minutes.

Ruth

Crane Family <cranefamily6@...> wrote:

Geraldine,

I hear you. I know exactly what you mean having the feeling most PA

sufferers eventually end up MTX at some point in their course of treatment.

My doc explained to me insurance requires they try less expensive medicines

first when you're first diagnosed. She said, I know what it will take to

put your PA into remission if I could do that now. She is a very

understanding doctor. The best one I've been so far. She is the third

Rhemamatologist I've gone to in 2 1/2 years. Doc said her hands are tied so

to speak on treatment options for her patients. I told her I've been on

other NSAID'S and couldn't taken them because I was allergic to them. So I

was leary of trying MTX. So far so good.

My doc attempts to treat every patient by their individual symptoms and

personal needs, one for all. She looks at the whole picture on her patients

She looks at labs results and symptoms overall for each patient.

However, she explained the guidelines she has to follow in treating her

patients due to insurance. They will not allow her to give patients

biologics as the first line of treatment. She has to try several NSAID'S on

patients before proceeding to the next line of treatment for them.

Sometimes MTX works alone for some people. I asked what percentage of

patients improve with MTX alone. She said about 50/50. My other

Rhuematologists did not communicate this to me. Even though I asked them to

This disease is so crippling, I get so frustrated with insurance guidelines.

It's almost like they don't care what we go through to get pain relief.

Yesterday, I ran into a lady at the grocery store. She gave me perspective

on my gripping about insurance. Well some people do not have insurance, for

whatever reason.

I didn't realize that became my obsession. The added stress helped my PA.

I feel God allowed me to meet this woman in order to get perspective on

insurance. Thank God I have insurance.

There will always be someone worse off than you, no matter how bad you feel.

I needed to hear that. I take insurance for granted and let it get to me

this week. I've fretted over fretted over insurance all week. I do not

think I've gone through the grieving process of being diagnosed with this

disease. I've tried to count my blessings through my diagnosis. Especially,

when my fellow friends here have gone through surgeries with their PA.

I hope this helps, not to mention letting me vent,

We are in this together for support.

Thanks!

Rhonda

[Guest guest]

hi Sandy

thanks a lot.iam in dubai.i look my baby ear was shift

slightly so iam worried .she forehead just in front.

is it corrct for a repo tech.iam so much worried about

it.daily iam crying and prayer.god will help to me.

Bye

Tamil

--- Sandy <samipa74@...> wrote:

> Hello Tamil

> It depends on the growth of your child. At 4 months

> you should see

> correction pretty quick. Keep your child off the

> flat side at all

> times. Take pictures so you know how much

> correction you are

> getting.

> Where are you from?

> Sandy Willow's Mom (6-2-2003)

> Torticollis resolved (02-2004)

> Cranio Germany Grad (02-2004)

> www.geocities.com/samipa74/Willow_Lanette.html

> www.palmerfamily.armedforcesfamilies.com

> www.drmy.net/spalmer

>

>

>

> >

> > > Hi Tamil. Your child is at such a great age to

> do

> > > repo. If done

> > > agressively, you will be surprised and pleased

> at

> > > the preogress you

> > > will see. I repositioned my dd startign at

> about

> > > the same age as

> > > your child is and now, almost 2 years later, I

> can't

> > > see even a hint

> > > of flatness.

> > >

> > > The methods I am recounting for you are from my

> > > experience with a

> > > baby with a flat SIDE of the head. My dd had

> > > left-side plagio. Is

> > > your child's flat spo on the side or right

> across

> > > the back?

> > >

> > > My first move was to turn around in the

> > > bassinette so that she

> > > had to look towards the rounded side of her head

> to

> > > see what was

> > > going on in the room or to look for me. At this

> time

> > > she was about

> > > 3.5 months old.

> > >

> > > There are a number of things you can do in an

> > > attempt to keep them

> > > off of their flat spot. Again, turn them around

> in

> > > the crib so that

> > > they have to roll to the round side to see the

> room.

> > > Also hang the

> > > toys in the front of the crib o that your child

> has

> > > to look away

> > > from his/her flat spot to see the toys. You may

> > > also put something

> > > in the crib under your dc's shoulder so that

> they

> > > are propped to one

> > > side and can't easily roll onto the flat side of

> > > their head. Some

> > > mothers sue a rolled up towel or receiving

> blanket.

> > > This works but

> > > then you have the possibility, with a restless

> > > sleeper, of it coming

> > > unrolled and then you have a loose blanket in

> the

> > > bed which your dc

> > > can get wrapped up in. Some women have sewed the

> > > roll to their dc's

> > > sleeper. They have also sewed fabric tubes

> filled

> > > with rice or poly-

> > > fil. ONe mother used, in her dc's crib, a

> gel-filled

> > > wrist support

> > > like for typing. It is heavy so it won't slide

> or

> > > roll around the

> > > crib, but it is soft so it won't be too

> > > uncomfortable for the baby.

> > >

> > > 's bouncy chair was not my friend. Nor was

> her

> > > swing. If your

> > > child has a nice strong round head, no flat

> spot,

> > > and gets a lot of

> > > tummy time, bouncy chairs are a great, great

> thing.

> > > For us Plagio

> > > moms, nope. However, if your child is addicted

> to

> > > the bouncy chair

> > > or the swing, you can keep them off their flat

> spot

> > > by using a small

> > > wedge of foam behind their neck. This keeps them

> > > comfortable and yet

> > > keeps their head raised up off the back of the

> > > bouncy seat or swing.

> > > For a flat spot on the side of your dc's head

> you

> > > can tuck a small

> > > rolled up towel or receiving blanket behind the

> > > shoulder on the side

> > > where the flat spot is. This will cause them to

> roll

> > > towards the

> > > other side and help keep them off the flat spot.

> A

> > > small gel wrist

> > > support like the one mentioned above can do the

> > > trick. It is soft,

> > > but it doesn't slip when the baby shifts.

> > >

> > > During the day, she used to spend a lot of time

> in a

> > > bouncy chair

> > > because she was not a great fan of tummy time.

> Let

> > > me tell you now,

> > > I am as guilty as the next one of using that as

> an

> > > excuse not to do

> > > it, but " she hates tummy time " is no excuse. You

> can

> > > encourage your

> > > baby to tolerate and even like tummy time by

> simply

> > > forcing the

> > > issue. With , I put her down just for as

> long

> > > as she would

> > > tolerate it, which was sometimes only a minute

> or

> > > two. Then I picked

> > > her up. No need to torture her. But a little

> later

> > > when she was calm

> > > again, I put her down again, and we repeated the

> > > process. We

> > > repeated the process over and over and over

> again

> > > each day until the

> > > times she spent on the floor got longer and

> > > eventually she preferred

> > > tummy time to everything else. It was fun for

> her to

> > > be down there

> > > and play with her brother and sister.

> > >

> > > For times when she wasn't on the floor she used

> an

> > > exersaucer.

> > > Sometimes a very young baby (3 or 4 months old)

> > > won't tolerate an

> > > exersaucer very long, but then you can put them

> down

> > > for tummy time

> > > or whatever. Don't leave your dc unattended in

> an

> > > exersaucer,

> > > though. No matter what you are doing with them,

> keep

> > > them in sight.

> > > ny Jump-Up worked well as an alternative

> too,

> > > for a while.

> > > liked it, but the kids thought it was an indoor

> > > swingset and tried

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi Tamil

No one can tell you how long it will take. It depends on how fast

your child grows and how aggressive you are doing the repo. Take

pictures every wk so you can keep up with the correction.

Sandy Willow's Mom (6-2-2003)

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

> > >

> > > > Hi Tamil. Your child is at such a great age to

> > do

> > > > repo. If done

> > > > agressively, you will be surprised and pleased

> > at

> > > > the preogress you

> > > > will see. I repositioned my dd startign at

> > about

> > > > the same age as

> > > > your child is and now, almost 2 years later, I

> > can't

> > > > see even a hint

> > > > of flatness.

> > > >

> > > > The methods I am recounting for you are from my

> > > > experience with a

> > > > baby with a flat SIDE of the head. My dd had

> > > > left-side plagio. Is

> > > > your child's flat spo on the side or right

> > across

> > > > the back?

> > > >

> > > > My first move was to turn around in the

> > > > bassinette so that she

> > > > had to look towards the rounded side of her head

> > to

> > > > see what was

> > > > going on in the room or to look for me. At this

> > time

> > > > she was about

> > > > 3.5 months old.

> > > >

> > > > There are a number of things you can do in an

> > > > attempt to keep them

> > > > off of their flat spot. Again, turn them around

> > in

> > > > the crib so that

> > > > they have to roll to the round side to see the

> > room.

> > > > Also hang the

> > > > toys in the front of the crib o that your child

> > has

> > > > to look away

> > > > from his/her flat spot to see the toys. You may

> > > > also put something

> > > > in the crib under your dc's shoulder so that

> > they

> > > > are propped to one

> > > > side and can't easily roll onto the flat side of

> > > > their head. Some

> > > > mothers sue a rolled up towel or receiving

> > blanket.

> > > > This works but

> > > > then you have the possibility, with a restless

> > > > sleeper, of it coming

> > > > unrolled and then you have a loose blanket in

> > the

> > > > bed which your dc

> > > > can get wrapped up in. Some women have sewed the

> > > > roll to their dc's

> > > > sleeper. They have also sewed fabric tubes

> > filled

> > > > with rice or poly-

> > > > fil. ONe mother used, in her dc's crib, a

> > gel-filled

> > > > wrist support

> > > > like for typing. It is heavy so it won't slide

> > or

> > > > roll around the

> > > > crib, but it is soft so it won't be too

> > > > uncomfortable for the baby.

> > > >

> > > > 's bouncy chair was not my friend. Nor was

> > her

> > > > swing. If your

> > > > child has a nice strong round head, no flat

> > spot,

> > > > and gets a lot of

> > > > tummy time, bouncy chairs are a great, great

> > thing.

> > > > For us Plagio

> > > > moms, nope. However, if your child is addicted

> > to

> > > > the bouncy chair

> > > > or the swing, you can keep them off their flat

> > spot

> > > > by using a small

> > > > wedge of foam behind their neck. This keeps them

> > > > comfortable and yet

> > > > keeps their head raised up off the back of the

> > > > bouncy seat or swing.

> > > > For a flat spot on the side of your dc's head

> > you

> > > > can tuck a small

> > > > rolled up towel or receiving blanket behind the

> > > > shoulder on the side

> > > > where the flat spot is. This will cause them to

> > roll

> > > > towards the

> > > > other side and help keep them off the flat spot.

> > A

> > > > small gel wrist

> > > > support like the one mentioned above can do the

> > > > trick. It is soft,

> > > > but it doesn't slip when the baby shifts.

> > > >

> > > > During the day, she used to spend a lot of time

> > in a

> > > > bouncy chair

> > > > because she was not a great fan of tummy time.

> > Let

> > > > me tell you now,

> > > > I am as guilty as the next one of using that as

> > an

> > > > excuse not to do

> > > > it, but " she hates tummy time " is no excuse. You

> > can

> > > > encourage your

> > > > baby to tolerate and even like tummy time by

> > simply

> > > > forcing the

> > > > issue. With , I put her down just for as

> > long

> > > > as she would

> > > > tolerate it, which was sometimes only a minute

> > or

> > > > two. Then I picked

> > > > her up. No need to torture her. But a little

> > later

> > > > when she was calm

> > > > again, I put her down again, and we repeated the

> > > > process. We

> > > > repeated the process over and over and over

> > again

> > > > each day until the

> > > > times she spent on the floor got longer and

> > > > eventually she preferred

> > > > tummy time to everything else. It was fun for

> > her to

> > > > be down there

> > > > and play with her brother and sister.

> > > >

> > > > For times when she wasn't on the floor she used

> > an

> > > > exersaucer.

> > > > Sometimes a very young baby (3 or 4 months old)

> > > > won't tolerate an

> > > > exersaucer very long, but then you can put them

> > down

> > > > for tummy time

> > > > or whatever. Don't leave your dc unattended in

> > an

> > > > exersaucer,

> > > > though. No matter what you are doing with them,

> > keep

> > > > them in sight.

> > > > ny Jump-Up worked well as an alternative

> > too,

> > > > for a while.

> > > > liked it, but the kids thought it was an indoor

> > > > swingset and tried

> >

> === message truncated ===

>

>

> __________________________________________________

>

[Guest guest]

Geraldine,

You might want to consider Fibromyalgia, shin pain and rash are one of the

symptoms. Swelling of the ankles is also. Check web sites _www.myalgia.com_

(http://www.myalgia.com) for some insight on this disease. Good luck to you.

Be sure you read the drug info that comes with your methotrexate about what

nsaids you can take safely.

Janet in Ca

[Guest guest]

thanks

--- canta79leslie <canta79@...> wrote:

> Tamil, it will be ok. Aggressive repositioning

> should really help or

> at least keep it from getting any worse. Can you get

> some kind of

> sleep positioner for her? We had Phoebe on a " sleep

> wedge " , it's

> contour/memory foam where her head lies, so it kept

> her head from

> having as much pressure on it. I really believe that

> it's the only

> reason that her head wasn't worse. Try not to worry,

> just work hard

> at your repositioning. Does she have torticollis as

> well (where she

> tends to want to look over one particular shoulder

> or her head tilts

> to one side)? That could be part of the problem too.

> If that is the

> case, you need to be doing stretches for her neck.

> Good luck and God

> bless!

> (mom of Phoebe, STARlight band 4-13-06, 5

> months old)

>

>

> > > >

> > > > > Hi Tamil. Your child is at such a great age

> to

> > > do

> > > > > repo. If done

> > > > > agressively, you will be surprised and

> pleased

> > > at

> > > > > the preogress you

> > > > > will see. I repositioned my dd startign at

> > > about

> > > > > the same age as

> > > > > your child is and now, almost 2 years later,

> I

> > > can't

> > > > > see even a hint

> > > > > of flatness.

> > > > >

> > > > > The methods I am recounting for you are from

> my

> > > > > experience with a

> > > > > baby with a flat SIDE of the head. My dd had

> > > > > left-side plagio. Is

> > > > > your child's flat spo on the side or right

> > > across

> > > > > the back?

> > > > >

> > > > > My first move was to turn around in

> the

> > > > > bassinette so that she

> > > > > had to look towards the rounded side of her

> head

> > > to

> > > > > see what was

> > > > > going on in the room or to look for me. At

> this

> > > time

> > > > > she was about

> > > > > 3.5 months old.

> > > > >

> > > > > There are a number of things you can do in

> an

> > > > > attempt to keep them

> > > > > off of their flat spot. Again, turn them

> around

> > > in

> > > > > the crib so that

> > > > > they have to roll to the round side to see

> the

> > > room.

> > > > > Also hang the

> > > > > toys in the front of the crib o that your

> child

> > > has

> > > > > to look away

> > > > > from his/her flat spot to see the toys. You

> may

> > > > > also put something

> > > > > in the crib under your dc's shoulder so that

> > > they

> > > > > are propped to one

> > > > > side and can't easily roll onto the flat

> side of

> > > > > their head. Some

> > > > > mothers sue a rolled up towel or receiving

> > > blanket.

> > > > > This works but

> > > > > then you have the possibility, with a

> restless

> > > > > sleeper, of it coming

> > > > > unrolled and then you have a loose blanket

> in

> > > the

> > > > > bed which your dc

> > > > > can get wrapped up in. Some women have sewed

> the

> > > > > roll to their dc's

> > > > > sleeper. They have also sewed fabric tubes

> > > filled

> > > > > with rice or poly-

> > > > > fil. ONe mother used, in her dc's crib, a

> > > gel-filled

> > > > > wrist support

> > > > > like for typing. It is heavy so it won't

> slide

> > > or

> > > > > roll around the

> > > > > crib, but it is soft so it won't be too

> > > > > uncomfortable for the baby.

> > > > >

> > > > > 's bouncy chair was not my friend. Nor

> was

> > > her

> > > > > swing. If your

> > > > > child has a nice strong round head, no flat

> > > spot,

> > > > > and gets a lot of

> > > > > tummy time, bouncy chairs are a great, great

> > > thing.

> > > > > For us Plagio

> > > > > moms, nope. However, if your child is

> addicted

> > > to

> > > > > the bouncy chair

> > > > > or the swing, you can keep them off their

> flat

> > > spot

> > > > > by using a small

> > > > > wedge of foam behind their neck. This keeps

> them

> > > > > comfortable and yet

> > > > > keeps their head raised up off the back of

> the

>

=== message truncated ===

__________________________________________________

[Guest guest]

Ruth,

I'm so sorry to hear about your friend. I'm a mother of 3 girls and I think of

these things all the time. I will pray for your friend, I am so so sorry that

she has been violated in this way.

~

Ruth <ruthjay2002@...> wrote:

Hi, Rhonda,

I work for an insurance administration company. I know how frustrating the red

tape is. However, we the people have allowed the drug companies to charge such

high prices that one of the solutions is to make certain a less expensive med

doesn't work before approving the newer, more expensive ones are used.

Previously, many MD's would prescribe new, more expensive meds (often with no

knowledge of how much the drug costs) just because a good drug company salesman

wined and dined him. And now that these meds can be advertized on TV, patients

often request them. Personally, I think all advertising of drugs should be

banned. It adds to the cost for all of us.

And you're right. There are people with no insurance, or whose coverage is

limited. They have no choice except to throw themselves on the mercy of the drug

company's outreach program. And Medicare-D pays only 25% of the cost of drugs

like Embrel. That's about $1000 for the patient to pick up, until a total of

5,100 dollars has been spent out-of-pocket.

Why are we the richest country in the world, and yet we won't make life as

comfortable as possible for a generation that lived through the Great Depression

and fought in WWII? I'm ashamed of what we've become.

Sorry! I just had to rant. And while the following is off-topic, I m going to

share it in hopes that it save another woman from the trauma of rape.

I live in what I thought was a safe condo complex. One of my friends, a

65-year-old woman who stand 5 feet tall weighs about 98 pounds, went shopping.

When she came home--through the gates--she took some things into the house, put

her purse down, and walked out to get the rest of her packages. When she came

in, a rapist threw a pillowcase over her head, tied her up and raped her. He got

in while she was getting her packages. I leave my door unlocked all the

time...I'm going next door for a moment, I'm going to the mailbox, whatever.

Just be on guard ALL the time. It's a pity women are still so vulnerable, and

that crimes of rape aren't treated as seriously as attempted murder. Because my

friend's life is changed forever. She is afraid to go home, and has moved in

with a friend. A lifetime of independence was shaken in a few minutes.

Ruth

[Guest guest]

Hey everyone this is Josh and he is a really kool guy..He just wants to say hi and get to meet everyone.I told him how everyone here was so helpful..WELCOME JOSH!!heartside76 <JOSHUA_PELTON@...> wrote: hi everyone my name is josh i havent posted before although ive been a member a while, so i thought i'd give it a try, i may be starting treatment soon , i am 29 yearsold and i have had hep for about 4 years, i have type 1b which is resistant to treatment but my doctor has decided to try and see if it will work Jan

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice.

[Guest guest]

I was also

dx with type 1b and I had it about 18 years before I found out. I completed the

treatment successfully in 2001 and had my last pcr test 3 years after the end

of my tx and was still found undetectable. I am now just doing regular

physicals and watching for any alt/ast elevations. It can be done! Good luck to

you.

-----Original

Message-----

From:

[mailto: ]On

Behalf Of heartside76

Sent: Tuesday, April 18, 2006 9:08

PM

To:

Subject: [ ] hi

hi everyone my name is josh i havent posted before although ive

been a

member a while, so i thought i'd give it a try, i may be starting

treatment soon , i am 29 yearsold and i have had hep for about 4

years, i have type 1b which is resistant to treatment but my doctor

has decided to try and see if it will work

[Guest guest]

Hi Josh, welcome to the group. I have known some with type I that have responded to treatment. So thank posative & hang in there, we are here for you. Terryheartside76 <JOSHUA_PELTON@...> wrote: hi everyone my name is josh i havent posted before although ive been a member a while, so i thought i'd give it a try, i may be starting treatment soon , i am 29 yearsold and i have had hep for about 4 years, i have type 1b which is resistant to treatment but my doctor has decided to try and see if it will work

[Guest guest]

Welcome Josh, it worked for me but I am a 2b. We'll be

here for support and to try to answer questions.

Sharon

--- heartside76 <JOSHUA_PELTON@...> wrote:

> hi everyone my name is josh i havent posted before

> although ive been a

> member a while, so i thought i'd give it a try, i

> may be starting

> treatment soon , i am 29 yearsold and i have had hep

> for about 4

> years, i have type 1b which is resistant to

> treatment but my doctor

> has decided to try and see if it will work

>

>

>

>

__________________________________________________

[Guest guest]

Hey Josh, welcome. I am on treatments now and i am a

type 1a, the hardest to treat and i am now on my 6th

month and there is no sign of the virus. Please keep

inh touch and i will always be here for support!!

--- Sharon Zeis <szeis_1@...> wrote:

> Welcome Josh, it worked for me but I am a 2b. We'll

> be

> here for support and to try to answer questions.

> Sharon

>

> --- heartside76 <JOSHUA_PELTON@...> wrote:

>

> > hi everyone my name is josh i havent posted before

> > although ive been a

> > member a while, so i thought i'd give it a try, i

> > may be starting

> > treatment soon , i am 29 yearsold and i have had

> hep

> > for about 4

> > years, i have type 1b which is resistant to

> > treatment but my doctor

> > has decided to try and see if it will work

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

In a message dated 15/04/2006 13:08:37 GMT Daylight Time,

geraldinedullaway@... writes:

I have learnt more from this web site than I have been told by my Doctors. I

honestly think that in this part of the world, they are not sure how to deal

with pa if it doesnt respond to methotrexate. Enbrel hasnt been passed for

use in England, unless you pass the criteria. Dont know how bad you have to

feel to pass that.

Hi Geraldine,

I am on Enbrel and I'm in Scotland. Basically the criteria is that you have

to fail on the other more common meds before they can justify putting you on to

it. I was on MTX and they later added Ciclosporin. This mix didn't work so

the then started me on Enbrel while keeping the MTX going and dropping the

Ciclosporin. Have you asked your Rheumy outright what the chances are of them

pushing it for you? If not it would be worth a try.

Good luck,

PS: Sorry about the two week delay in answering. Its really unusual for me to

be so far

behind..........................................................................\

..........NOT! lol