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Hi My name is Lynn I am also in Scotland. I had never heard of enbrel

untill i came on this site so i mentioned it to my doctor and he asked me how to

spell it as he hadnever heard of it himself which supprised me. My mtx is

constantly being put up and to be honest i also feel no relief. It's good to

hear everyones experiences. Thanks for listening Lynn

---------------------------------

Win tickets to the 2006 FIFA World Cup Germany with Messenger.

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  • 3 weeks later...
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In a message dated 16/04/2006 02:19:22 GMT Daylight Time,

viking_warlock@... writes:

It seems to be quite new in the UK and I feel

that I am a guinue pig.

Hi Geraldine and Ian,

I have been on it since January of last year. I'm in Scotland. I think

basically you have to fail on everything else for them to be able to justify

putting

you on it.

PS Ian...............How long are you going to keep that light shining? I

can't sleep with the light on. lol Only kidding. Just wanted to say that I love

your posts. They are full of humour. Its important, in my opinion, to be able

to smile through this.

Keep up the good work.

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i am in dayton.

meg

>From: " Ben " <triston_a_97@...>

>Reply-

>

>Subject: ( ) HI

>Date: Sat, 27 May 2006 02:24:35 -0000

>

>ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER

>WITH AUTISM

>

>

>

>

>

>

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Hi i am new to this group. I am from Milford, OH. I have a 12 son who is

asperger's/adhd.

LJL <laura6307@...> wrote: near Cleveland and Akron.

>

> ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND

ANOTHER

> WITH AUTISM

>

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I have an 8 yr old son with aspergers.....we live in a suburb West of

Cleveland

>

> ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER

> WITH AUTISM

>

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Hi Shell,

I have three children in the spectrum, two with Asperger's and one with low

functioning autism. My husband is from the UK and we have been wanting to

return their for some time now. I love England and Nigel's family is there.

One question I have is how is the special education in the UK? I have been

in contact with the NAS and have an idea of where some good schools are for

Autism and Asperger's. This is of course mine and Nigel's main concerns

about returning to the Norfolk area. Any information that you have will be

helpful.

Thank you,

Janelle

-- ( ) hi

hi i am shell mum of 6 my youngest 3 as classic autism my 4 year old as

aspergers we are in the uk

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I HAVE 6 KIDS 1 WITH CLASSIC AUTISM 1 WITH ASPERGERS IN MY OPINION FROM MY AREA

THE SEN IS NOT VERY GOOD I HAD TO FIGHT CONSTANTLY AND ONLY RECANTLY HAVE THINGS

BEGUN TO HAPPEN SORRY TO DISSAPOINT YOU BERKSHIRE AND KENT NEAR THE NAS HAVE

EXCELLENT SCHOOLS RUN BY THE NAS LOVE SHELL

yours faithfully michelle

---------------------------------

All new " The new Interface is stunning in its simplicity and ease

of use. " - PC Magazine

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Hi, Shell! How are you doing? Nice to meet you! Tami

( ) hi

hi i am shell mum of 6 my youngest 3 as classic autism my 4 year old as

aspergers we are in the uk

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We have a 9 1/2 year old with AS, live in a suburb of Youngstown.

Suzanne

-- ( ) HI

ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER

WITH AUTISM

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Welcome to the group.

If a person is 47xxy then they have had it all their life. Most of

us in that group only discovered it recently, but many are now tested

for it in pregnancy or at birth.

Their are several varations of it. I am Mosaic, I have the extra X

mostly in the upper body. Some sperm, small testicles, short penis,

no facial or upper body hair, extra fat layer, low muscle definition,

poor language skills, & boobs. Now that I take HRT I am growing

upper body hair & some muscle.

>

> Hi im new on here i have xxy klinefelters

> i am usually on the other xxy websites but seems as though not much

> is going on as it use to be,i mean sometimes its really going off

> other times its quiet ,anyway thought ill broaden my horizons

>

> anyway im dvid im from australia although im not actually an

> australian like with blonde hair etc bu t ive had xxy for my entire

> life but only found out 5 years or so back,hmmm its been hecket but

i

> guess thats life, i take injection of T 250 which is a real roller

> coaster

> and i have osteoporosis too which is another specail gift , so

where

> are you xxys from how long have you had xxy what do u think about

it

> and isnt it cool how us xxy can really talk sometimes , i guess i

can

> talk a leg off a chair any day ,but i guess that must be because of

> this xrta x which i think makes me more sensitive then xy males

> although i have met a lot of other xy males that talk more then i

> do,ahhhh so much to say,im actually at the libarary using thier

> computer coz i dont have the net at home i mean i did but i have a

> problem when i have the net back home,not a positive problem so

thats

> why i dont have it,..well i better go ill hope to meet some of you

> later ...bye and have fun ...davo

>

> " god bless:

>

> oh are any of you on here christians i really like talking about

this

> subject..anyway bye

>

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> " god bless:

>

> oh are any of you on here christians i really like talking about this

> subject..anyway bye

----------------------------

Hello and a big welcome to you! I think you will like this group as

there are a lot of very informed and helpful people here.

However, can I just personally request that you stay away from

attempting to introduce your religious views into this forum? I happen

to be a hard core evangelical atheist and I do not believe it is proper

to discuss my convictions on this hormone forum. I hope you will feel

the same way about keeping to the subject of Hypo issues.

Good to have you join us,

Norton

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Hello david and welcome. I understand all too well about hypgonadism side

effects. It's complicated to explain to someone what this diease can cause and

have and how that effect alters a persons life. I got checked twice for

klinefelters and its cousins. I actually cried in 03 when I started taking

numerous test. After researching klinefelters and indentifing with the side

effects I thought for sure I had it and when I didn't I just broke down because

I didn't have a medical term for why I was me and importantly, I didn't have

anyway of trying to explain why I was me toward others i.e family and toward

myself.

I know the feeling about living your WHOLE life unhealthy and never feeling

normal and then test results proves what was the cause. Even with a cause and

treatment, that doesnt expel what you have been thru nor does that make all

things something (normal and healthy) especially if it hasn't been before. Some

folks think TRT is a cure, its like if you take TRT you have no excuse in living

the way you did and not being heathly all because it worked for them....

Hey david, anytime you wish to talk I am here along with other cool dudes on

this site. Im sorry you went thru so much but I hope you can find some form of

begining. The begining in founding out what was wrong, and doing something

about it while working with professionals, researching, and seeking out advice

to help you create and emulate a new start toward your life.

ddavid6064 <ddavid6064@...> wrote: Hi im new on here i have xxy

klinefelters

i am usually on the other xxy websites but seems as though not much

is going on as it use to be,i mean sometimes its really going off

other times its quiet ,anyway thought ill broaden my horizons

anyway im dvid im from australia although im not actually an

australian like with blonde hair etc bu t ive had xxy for my entire

life but only found out 5 years or so back,hmmm its been hecket but i

guess thats life, i take injection of T 250 which is a real roller

coaster

and i have osteoporosis too which is another specail gift , so where

are you xxys from how long have you had xxy what do u think about it

and isnt it cool how us xxy can really talk sometimes , i guess i can

talk a leg off a chair any day ,but i guess that must be because of

this xrta x which i think makes me more sensitive then xy males

although i have met a lot of other xy males that talk more then i

do,ahhhh so much to say,im actually at the libarary using thier

computer coz i dont have the net at home i mean i did but i have a

problem when i have the net back home,not a positive problem so thats

why i dont have it,..well i better go ill hope to meet some of you

later ...bye and have fun ...davo

" god bless:

oh are any of you on here christians i really like talking about this

subject..anyway bye

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> > " god bless:

> >

> > oh are any of you on here christians i really like talking about this

> > subject..anyway bye

> ----------------------------

>

> Hello and a big welcome to you! I think you will like this group as

> there are a lot of very informed and helpful people here.

> However, can I just personally request that you stay away from

> attempting to introduce your religious views into this forum? I happen

> to be a hard core evangelical atheist and I do not believe it is proper

> to discuss my convictions on this hormone forum. I hope you will feel

> the same way about keeping to the subject of Hypo issues.

> Good to have you join us,

> Norton

>

You're correct about this, Norton. Those interested can enjoy an

email correspondence.

Brad

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I find that if we don't discuss subjects that are

best left alone, the subject quickly dies. Note,

don't respond and ya won't get a response back

on something ya'll don't wish to discuss!

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Hi ddavid6064 and welcome we have some men here with xxy klinefelters. Can you

do your shots your self and try doing them every week this keeps the ride down.

Go to this site www.allthingsmale.com and read TRT: A Recipe for Success and the

HCG update. This I feel is the best way to do TRT but I don't know how much you

can get out of HCG. But no harm in trying it.

Phil

ddavid6064 <ddavid6064@...> wrote:

Hi im new on here i have xxy klinefelters

i am usually on the other xxy websites but seems as though not much

is going on as it use to be,i mean sometimes its really going off

other times its quiet ,anyway thought ill broaden my horizons

anyway im dvid im from australia although im not actually an

australian like with blonde hair etc bu t ive had xxy for my entire

life but only found out 5 years or so back,hmmm its been hecket but i

guess thats life, i take injection of T 250 which is a real roller

coaster

and i have osteoporosis too which is another specail gift , so where

are you xxys from how long have you had xxy what do u think about it

and isnt it cool how us xxy can really talk sometimes , i guess i can

talk a leg off a chair any day ,but i guess that must be because of

this xrta x which i think makes me more sensitive then xy males

although i have met a lot of other xy males that talk more then i

do,ahhhh so much to say,im actually at the libarary using thier

computer coz i dont have the net at home i mean i did but i have a

problem when i have the net back home,not a positive problem so thats

why i dont have it,..well i better go ill hope to meet some of you

later ...bye and have fun ...davo

" god bless:

oh are any of you on here christians i really like talking about this

subject..anyway bye

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Huh?

were you replying to my post?

well i find the same with the other site,except for they get back to you

then end the disscusion just so nobody will feel left out

anyway see you....david

---------

Vickie or <plp40@...> wrote:

I find that if we don't discuss subjects that are

best left alone, the subject quickly dies. Note,

don't respond and ya won't get a response back

on something ya'll don't wish to discuss!

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  • 2 weeks later...
Guest guest

Subject: Re: ( ) Re: HI

Hi i am new to this group. I am from Milford, OH. I have a 12 son who is

asperger's/adhd.

LJL <laura6307@...> wrote: near Cleveland and Akron.

>

> ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND

ANOTHER

> WITH AUTISM

>

**** We always have a good number of people from Ohio here. I am in

Medina, Ohio.

Roxanna

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  • 2 weeks later...
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Hi Aron,

I looked at the photo - what a cute boy.

Good luck with the cast and band.

-christine

mom to Sydney, 5.5 mo, brachy, STARband 5-31-06

>

> hi just joined the group my son is going in at 9:00am to have the cast

> made for his doc band. simon is 5 months old and has torticollis we

> have been going to pt every week for that and he is doing very good,

> he also has acid reflux (first month was a living hell constant

> screaming then he got put on zantac turned into a diffrent baby).this

> is alot to deal with being a first time mom. heres pics of simon

> http://birds.lemonyfresh.com/gallery/Simon theres tons of them have to

> take lots of pics since my inlaws live out of the state and my parents

> dont get to see him to often.

>

>

> aron holwig

>

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Hi

I have a five year old son Ryley who has also just been dx with AS. Welcome to

the group. I am new also but so far have found it wonderful. I feel like we are

so " normal " everyone seems to be going through or has gone through the same

types of things. I am sure you will love it here! Good luck tomorrow!

( ) Hi

Hi everyone,

My name is . I was so excited to find this group!

I have a four year old son, Dylan, who was recently

diagnosed with AS. Tomorrow is his first IEP. Okay,

I'm a little nervous! I wanted to take a moment to

introduce myself and say hi.

Best,

__________________________________________________

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Hi Aron,

Welcome to the group. Simon is adorable. So does he have

torticollis? I noticed he seems to have a strong head tilt in a lot

of the pics. How was the cast? The pics look like he did just

fine :)

na, DOC Grad X2 Feb 04

Kiersten, DOC Grad Apr 04

www.thefilyaws.com/plagio/plagio.html

>

> hi just joined the group my son is going in at 9:00am to have the

cast

> made for his doc band. simon is 5 months old and has torticollis

we

> have been going to pt every week for that and he is doing very

good,

> he also has acid reflux (first month was a living hell constant

> screaming then he got put on zantac turned into a diffrent

baby).this

> is alot to deal with being a first time mom. heres pics of simon

> http://birds.lemonyfresh.com/gallery/Simon theres tons of them

have to

> take lots of pics since my inlaws live out of the state and my

parents

> dont get to see him to often.

>

>

> aron holwig

>

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Hi julia and welcome.

Young <love2jewels@...> wrote: Hi everyone,

My name is . I was so excited to find this group!

I have a four year old son, Dylan, who was recently

diagnosed with AS. Tomorrow is his first IEP. Okay,

I'm a little nervous! I wanted to take a moment to

introduce myself and say hi.

Best,

__________________________________________________

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yup he had pretty bad torticollis it has really improved though from

going to phyical theraphy once a week.

aron holwig

> >

> > hi just joined the group my son is going in at 9:00am to have

the

> cast

> > made for his doc band. simon is 5 months old and has torticollis

> we

> > have been going to pt every week for that and he is doing very

> good,

> > he also has acid reflux (first month was a living hell constant

> > screaming then he got put on zantac turned into a diffrent

> baby).this

> > is alot to deal with being a first time mom. heres pics of simon

> > http://birds.lemonyfresh.com/gallery/Simon theres tons of them

> have to

> > take lots of pics since my inlaws live out of the state and my

> parents

> > dont get to see him to often.

> >

> >

> > aron holwig

> >

>

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