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Marcy,

I was told after we applied and got accepted (the first time) that my having the

psychiatric Dx was the deciding factor. SS only pays for a psychologist eval.

and they way I see it is one psychologist can trump another... but neither can

change an MD Dx.. the psychiatrist. Our DDD (Division of developmental

disabilities) evaluation consisted of a psychiatrist, child psychologist and

social worker. That was fun especially when my DS and the psychiatrist began a

never ending conversation about baseball in the 20's and 30's..players, stats,

ball parks. A true Aspie trait... while I spoke to the others.

Good Luck

( ) Re: Hi

>

>

> Hi Marcy,

>

> In response to your questions about SSI, I have been trying for

3

> years now to obtain SSI for my son. I think it's much easier

when you

> have a confirmed diagnosis though. When we applied all I had

was ADHD

> as a diagnosis. After pushing for awhile, and having Regional

Center

> provide testing, the docs are now in agreement. There are ,

however,

> income limits for SSI. Hope this helps you.

>

> Larraine

>

>

> I

> > have a particular question for all you hard working parents

out

> > there. I am preparing to talk to an Aspergers Support group

and one

> > of the areas of interest for the parents is the possibility to

apply

> > for SSI benifits. I was hoping that some of you would share

your

> > stories if you have any. I want to hear all aspects so that I

can

> > best help these parents. I appreciate you taking time to read

this

> > and I am looking forward to sharing, and supporting eachother.

> >

> > BLessings,

> > Marcy

>

>

>

>

>

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Dawn

Hi. It is nice to know you are not alone. Around here where i live people look

at my daughter like she is some kind of freak or something. I get so tired of

the stares when she is walking across a parking lot because she doesn't walk

well either. She is starting to talk a little, she jabbers all day long, some

things i can understand and some i can't. i try to use tough love on her, like i

wont' give her what she wants until she says the name of it. of course its not

perfect but i take what i can get. well we can chat more if you want, let me

know, maybe you might have some tips for me. have a good day, nan

and Dawn <richardanddawn@...> wrote:

Hi Nan Hi ,

My name is Dawn I have a 4 1/2 year old too. He didn't start talking until

he was three. He had speech therapy until he was three. what really helped

him was Preschool. He is a chatter box now. I just wanted to say Hi and let

you know your not alone. If you want to talk just let me know. He has never

been diagnosed with apraxia, but as a slow talker, speech delay.

Dawn Blackerby

-- Re: [ ] Hi

Hi. my name is nan, my daughter is 4 1/2 years old, and she doesn't talk

hardly at all either. she too has been in speach for almost 1 1/2 years, i

don't think it's doing much either. we do alot of talking to her at home, i

try not to give her things unless she says the name of it, she was never

diagnosed with apraxia, but she had problems concerning vaccines, she was

starting to talk until her 9 month shots. i truly believe that speach

problems with children really have to do with the shots they receive. if you

want to talk sometime let me know. i would love to hear all about your son,

and i will share my daughters story with you. have a great day. nan

myloveisyours_22 <myloveisyours_22@...> wrote:Hi I am and my

son was diagnosed 3 weeks ago with verbal

apraxia. He is 3 years old and he doesnt talk. He has been doing

speech therapy for 2 years now and it is not working. I seen this

group and figured maybe I could find other parents with children with

apraxia thatr might be able to help me to understand it better.

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Nan,

I know how you feel. Just hang in there. Some adults are worse than the

children. I can over look a child, but not an adult. One of my husbands

relatives made fun of my little boy. That made me so mad. Your child is not

a freak she is a gift from God. It is good that she jabbers. did not

jabber. He would say a word one time and then never say it again. thanks for

writing back.

Dawn

-- Re: [ ] Hi

Dawn

Hi. It is nice to know you are not alone. Around here where i live people

look at my daughter like she is some kind of freak or something. I get so

tired of the stares when she is walking across a parking lot because she

doesn't walk well either. She is starting to talk a little, she jabbers all

day long, some things i can understand and some i can't. i try to use tough

love on her, like i wont' give her what she wants until she says the name of

it. of course its not perfect but i take what i can get. well we can chat

more if you want, let me know, maybe you might have some tips for me. have a

good day, nan

and Dawn <richardanddawn@...> wrote:

Hi Nan Hi ,

My name is Dawn I have a 4 1/2 year old too. He didn't start talking until

he was three. He had speech therapy until he was three. what really helped

him was Preschool. He is a chatter box now. I just wanted to say Hi and let

you know your not alone. If you want to talk just let me know. He has never

been diagnosed with apraxia, but as a slow talker, speech delay.

Dawn Blackerby

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Hi Dawn and Nan!

There is a difference between a child who has a mild delay in speech

and one who is speech impaired. I had two late talkers. My oldest

Dakota was speech delayed due to birth trauma and he was in therapy

overseen by a neurologist from 2 weeks old. He thrived like your

son Dawn around the age of three and in a regular preschool. For a

child with a delay in speech -it's probably hard to find

an " inappropriate " placement in a regular preschool. Tanner on the

other hand had apraxia. Kids like that don't just start talking

just because you stick them in a preschool class -and worse if it's

not an appropriate placement it can even make things worse. Why?

Because children with apraxia know what's expected of them -and

it 'doesn't' just come to them. Punishment or bribes won't make

them talk either -they need compassion and therapy. (Have you guys

read The Late Talker?)

I was told about my Aunt Betty and others as it says in The Late

Talker. " She didn't speak till 3 and then we couldn't shut her up

and now she's fluent in two languages "

It's true that the majority of late talkers, 75%, are just that -

kids that talk late. But if you have a child in the other 25% like

I do, it's hard to not think " why my baby? " We all want our little

ones to be one of the many who " just start talking " " when they're

ready " because we " gave them time " But unfortionatly for some, days

turn to weeks, months or years and the time isn't in sight.

Society has a way of noticing when it's time for a child to be

talking. The exact same two year old who is " just a late talker " to

everyone from Uncle Fred to the cashier at PathMark...is suddenly

viewed as " a freak " (as Nan says) when a wee bit older and taller.

How much older and taller? Usually around the age of 3.

I just today spoke with a parent in my area -the third I know of in

the general area of the Treasure Coast who has a child " suspected "

of, or diagnosed with apraxia. Her daughter is 5 and is " completely

nonverbal " Just a few months older than yours Nan.

(and for some freaky reason even though it's only three in the area -

all three have parents who work in law enforcement -really. Check

the archives for Kim S. and you can email the first who is known by

the second. The third doesn't know Kim but she works in a different

department)

The nonverbal 5 year old's mom I spoke with today works in

psychology. There is no professional or parental protection from

feeling helpless when your child is being teased or shunned because

of his or her impairment. Something the child is not able to help.

As parents we are hurt -but we also have to be protection for these

children.

The best way to deal with teasing from others is with humor, or

putting others in their place. We've had quite a few examples of

great come backs. My favorite back with Tanner was little was " he's

learning to talk and he's doing great " Terri White's response I

still find one of the funniest

http://www.cherab.org/information/familiesrelate/whatswrong.html

Perhaps as a group we should put together a list!

Truth is even if misery doesn't always admit to liking company -it

does really help to know you are not alone. So Nan, as Dawn has

already been kind enough to let you know -you are not alone!

=====

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I live in Detroit Wayne County. The thing is Wayne County has a

really good Autism School it is called Burger but since I live in

Detroit my son cannot attend because Detroit so-called suppose to

have a program like the one at Burger. Since I live extremely close

to Grosse Pointe I will be sending my son to a school for Exceptional

children part time and continue to HS for the remainder of the day.

> > > Hello,

> > >

> > > I am new to the group today. I am a mom of a 5 yr old with

high

> > > funncionting autism. I live in MI with my husband and my 7 yr

> old

> > > son. (I know what was I thinking having the boys 20 mo apart

> LOL). I

> > > have a particular question for all you hard working parents out

> > > there. I am preparing to talk to an Aspergers Support group

and

> one

> > > of the areas of interest for the parents is the possibility to

> apply

> > > for SSI benifits. I was hoping that some of you would share

> your

> > > stories if you have any. I want to hear all aspects so that I

> can

> > > best help these parents. I appreciate you taking time to read

> this

> > > and I am looking forward to sharing, and supporting eachother.

> > >

> > > BLessings,

> > > Marcy

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Guest guest

dawn

hi, sorry it took me so long to get back with you, but we have been having bad

storms so our electric doesn't want to stay on. yes i can over look children,

but adults should know better, if anyone of my or my husbands family would make

fun of lorna i would be on them like bees on honey. that would really tick me

off too, having someone in your family make fun of someone, i don't care who it

is, that is just rude. alot of my family is like that, but i have never heard

them anything about lorna, they better not. my husbands family i sometimes think

don't really know how to handle her, but they are always nice to her. well if

you want to chat more let me know, nan

and Dawn <richardanddawn@...> wrote:

Nan,

I know how you feel. Just hang in there. Some adults are worse than the

children. I can over look a child, but not an adult. One of my husbands

relatives made fun of my little boy. That made me so mad. Your child is not

a freak she is a gift from God. It is good that she jabbers. did not

jabber. He would say a word one time and then never say it again. thanks for

writing back.

Dawn

-- Re: [ ] Hi

Dawn

Hi. It is nice to know you are not alone. Around here where i live people

look at my daughter like she is some kind of freak or something. I get so

tired of the stares when she is walking across a parking lot because she

doesn't walk well either. She is starting to talk a little, she jabbers all

day long, some things i can understand and some i can't. i try to use tough

love on her, like i wont' give her what she wants until she says the name of

it. of course its not perfect but i take what i can get. well we can chat

more if you want, let me know, maybe you might have some tips for me. have a

good day, nan

and Dawn <richardanddawn@...> wrote:

Hi Nan Hi ,

My name is Dawn I have a 4 1/2 year old too. He didn't start talking until

he was three. He had speech therapy until he was three. what really helped

him was Preschool. He is a chatter box now. I just wanted to say Hi and let

you know your not alone. If you want to talk just let me know. He has never

been diagnosed with apraxia, but as a slow talker, speech delay.

Dawn Blackerby

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Guest guest

In a message dated 7/22/05 2:54:00 AM GMT Daylight Time,

ehealth77@... writes:

I " m new to the group and wanted to say hi!

Hi ,

Welcome to the group. I am , aged 48, P since I was 23 and PA since

the age of 30.

Hope you can tell us a bit about yourself.

Take care,

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  • 3 weeks later...

Hon,

Need more info from you. What is your

genotype, numbers, etc., what alternate treatments were you on?

Johanna Koskinen - Outreach Coordinator Hepatitis C

Association - 1.816.767.9897 Toll-free: 1.866.437.4377

From:

[mailto: ] On

Behalf Of tmurr7455

Sent: Sunday, August 14, 2005 4:42

PM

To:

Subject: [ ] Hi

After using alternative treatment for 2 years I just found out that i

need to start peg 2a has anyone else used this and

is it as bad as 2b?

Terri

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I can tell you a couple of things but regarding the numbers and genotype, I've got a call to my doctor to verify that information. I have several chronic illnesses and take a lot of medication so I sure don't remember or can get my hands on the latest testing.

Anyway, I was diagnosed in 2000. They couldn't do a biopsy because I weigh 400 pounds and couldn't fit on the table with the equipment. After about a year, I went on interferon for 6 months. It looked like it was clearing up but I had a short relapse with drugs and my viral load shot back up again.

I went to the Hep C conference and got a few ideas of things to do like acupuncture, Qi Gong, meditation, and milk thistle but all I really try to keep up on is the milk thistle every day. I also got a liver cleanse treatment recently but I haven't tried that yet. I tried Qi Gong and even though you move very slowly, I was sweating and uncomfortable and I had to sit down frequently. I'm just too big to do most exercises. But I can see how that could have been helpful.

I'm tired all the time, I'm irritable, and I hurt. But actually, it is difficult to blame these problems only on Hep C. I suffer from Diabetes, depression, and sleep apnea as well. My immune system is definitely compromised. I have been in the hospital twice this year with cellulitis. It's not a pretty story. I've been sicker this year than I have been in a while.

Oh well, I guess I'll have to e-mail you back in a couple of days. I look forward to hearing from you.

Alysia Childs"Johanna (HCA)" <johanna@...> wrote:

Hon,

Need more info from you. What is your genotype, numbers, etc., what alternate treatments were you on?

Johanna Koskinen - Outreach Coordinator Hepatitis C Association - 1.816.767.9897 Toll-free: 1.866.437.4377

From: [mailto: ] On Behalf Of tmurr7455Sent: Sunday, August 14, 2005 4:42 PM Subject: [ ] Hi

After using alternative treatment for 2 years I just found out that i need to start peg 2a has anyone else used this and is it as bad as 2b? Terri

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Hi Again,

Email me privately, so we can talk. Here’s

my email below:

Johanna Koskinen - Outreach Coordinator Hepatitis C

Association

http://www.hepcassoc.org

 / email: johanna@...

1.816.767.9897/ Toll-free: 1.866.437.4377

From:

[mailto: ] On

Behalf Of Alysia Childs

Sent: Sunday, August 14, 2005 8:00

PM

To:

Subject: RE: [ ]

Hi

I can tell you a couple of things but regarding the numbers and

genotype, I've got a call to my doctor to verify that information. I have

several chronic illnesses and take a lot of medication so I sure don't remember

or can get my hands on the latest testing.

Anyway, I was diagnosed in 2000. They couldn't do a biopsy

because I weigh 400 pounds and couldn't fit on the table with the

equipment. After about a year, I went on interferon for 6 months. It

looked like it was clearing up but I had a short relapse with drugs and my

viral load shot back up again.

I went to the Hep C conference and got a few ideas of things to do like

acupuncture, Qi Gong, meditation, and milk thistle but all I really try to keep

up on is the milk thistle every day. I also got a liver cleanse treatment

recently but I haven't tried that yet. I tried Qi Gong and even though

you move very slowly, I was sweating and uncomfortable and I had to sit down

frequently. I'm just too big to do most exercises. But I can see

how that could have been helpful.

I'm tired all the time, I'm irritable, and I hurt. But actually,

it is difficult to blame these problems only on Hep C. I suffer from

Diabetes, depression, and sleep apnea as well. My immune system is

definitely compromised. I have been in the hospital twice this year with

cellulitis. It's not a pretty story. I've been sicker this year

than I have been in a while.

Oh well, I guess I'll have to e-mail you back in a couple of

days. I look forward to hearing from you.

Alysia Childs

" Johanna

(HCA) " <johanna@...> wrote:

Hon,

Need more info from you. What is your

genotype, numbers, etc., what alternate treatments were you on?

Johanna Koskinen - Outreach Coordinator Hepatitis C

Association - 1.816.767.9897 Toll-free: 1.866.437.4377

From:

[mailto: ] On

Behalf Of tmurr7455

Sent: Sunday, August 14, 2005 4:42

PM

To:

Subject: [ ] Hi

After using alternative

treatment for 2 years I just found out that i

need to start peg 2a has anyone else used this and

is it as bad as 2b?

Terri

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  • 1 month later...

Hey Kevlar - welcome to the group - this is the first step - educate your self

on the issues and feel free to discuss your personal situation. We all have some

issue associated with low T. There is alot of knowledge to be gained from the

archives as well. Go to the group page and you can perform searches for the

topic you are interested in.

Arkansas

kevlar12005 <kevlar12005@...> wrote:

New to all this

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sara11alex77 <sara61145@...> wrote:

Hi everyone!

My name is Sara and I am sooooooooooooo excited to join this group!

My son is 16 years old and has AS - PDD - some psychosis

I am looking foward to talking with all of you and get some much

needed feedback and support.

-Sara

Welcome to our group, Sara! Feel free to join in anywhere you like!

Roxanna

Always Remember You're Unique

Just Like Everyone Else

__________________________________________________

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  • 4 weeks later...

Welcome Curt. Do you have insurance?

I'm Sharon, did peg-intron and have been undetectable

for 3 years.

--- wheel0513 <wheel0513@...> wrote:

> hi my name is Curt. I just joined, looking for

> support. I should be

> starting interferon here in a couple of weeks. im

> kinda worryed about

> the cost.

>

>

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

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Hi Curt, welcome to the group. Treatment can be costly, I was lucky my insurance paid for most of it. Terrywheel0513 <wheel0513@...> wrote:

hi my name is Curt. I just joined, looking for support. I should be starting interferon here in a couple of weeks. im kinda worryed about the cost.

Music Unlimited - Access over 1 million songs. Try it free.

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Hi Curt,

I bin there. One of the old interferon 3 shots a week for a year and one

year rebatron with pills. I responded but the viral levels came back up.

It was a tuff road. My doc wouldn't talk about alternative medicine. This

was 6 or more years ago - can't remember ( I'm old - 61 :-) ). The people

in this group are the best. I don't contribute but stay in touch.

I want to say that I had a bad bout with depression at the end of my

treatment; so watch out for that . I have never been in such a bad place

in my life. It would have been helpful if the doc knew or would have

watched out or cared about that. There are meds for that. Now I try to eat

healthy and I take milk thistle, which I buy and grind.

Where are you from?

Be strong,

Dennis from NH

[ ] hi

> hi my name is Curt. I just joined, looking for support. I should be

> starting interferon here in a couple of weeks. im kinda worryed about

> the cost.

>

>

>

>

>

>

>

>

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Hi Sharon,

I'm very glad you wrote me. Its good to here something positive. Realy i just delete all the negative ones. Yes i have insurance, not sure what they are going to cover right now but should find out in the next couple of weeks. How much did it cost you for the stuff? please write me back. Thanks

Sharon Zeis <szeis_1@...> wrote:

Welcome Curt. Do you have insurance?I'm Sharon, did peg-intron and have been undetectablefor 3 years.--- wheel0513 <wheel0513@...> wrote:> hi my name is Curt. I just joined, looking for> support. I should be > starting interferon here in a couple of weeks. im> kinda worryed about > the cost.> > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs

Music Unlimited - Access over 1 million songs. Try it free.

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I think I paid about $50 a month which was my copay

for prescriptions.

Sharon

--- curt wheeler <wheel0513@...> wrote:

> Hi Sharon,

> I'm very glad you wrote me. Its good to here

> something positive. Realy i just delete all the

> negative ones. Yes i have insurance, not sure what

> they are going to cover right now but should find

> out in the next couple of weeks. How much did it

> cost you for the stuff? please write me back. Thanks

>

>

>

> Sharon Zeis <szeis_1@...> wrote:

> Welcome Curt. Do you have insurance?

> I'm Sharon, did peg-intron and have been

> undetectable

> for 3 years.

>

>

> --- wheel0513 <wheel0513@...> wrote:

>

> > hi my name is Curt. I just joined, looking for

> > support. I should be

> > starting interferon here in a couple of weeks. im

> > kinda worryed about

> > the cost.

> >

> >

> >

> >

>

>

>

>

> __________________________________

> Start your day with - Make it your home page!

>

> http://www./r/hs

>

>

>

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My insurance covered the meds. I had a co-pay of $20 for non generic. I got a 2 week supply at a time and my pharmacist said that retail was over $700. -dz-curt wheeler <wheel0513@...> wrote:

Hi Sharon,

I'm very glad you wrote me. Its good to here something positive. Realy i just delete all the negative ones. Yes i have insurance, not sure what they are going to cover right now but should find out in the next couple of weeks. How much did it cost you for the stuff? please write me back. Thanks

Sharon Zeis <szeis_1@...> wrote:

Welcome Curt. Do you have insurance?I'm Sharon, did peg-intron and have been undetectablefor 3 years.--- wheel0513 <wheel0513@...> wrote:> hi my name is Curt. I just joined, looking for> support. I should be > starting interferon here in a couple of weeks. im> kinda worryed about > the cost.> > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs

Music Unlimited - Access over 1 million songs. Try it free.

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Dear ,

I've been gone, but I wanted to welcome you to the group. It's a great place.

I don't know what I would have done without it. Chronic pain is such an

isolating experience and only someone who's been there can really understand.

Here we are! laura

katieschuler <katieschuler@...> wrote:

Hello all. I wanted to introduce myself. I am 35 years old, female,

diagnosed with RA last September. I've had quite a time of it... the

RA came on very suddenly (which is how it happens a lot, I've

learned from reading some of your posts) - affecting mostly my

hands, wrists, elbows, knees, and shoulders. I was put on

prednisone - which worked like a miracle. Unfortunately, because of

my personal situation (I moved from San Francisco to London in late

January), I had to leave my rheumatologist in CA shortly after

getting in to see him. I managed to see one in Florida (where my

parents live) a few times - and she put me on Plaquenil and Celebrex

(starting in March). Things seemed to be under control, until I

started waking up in the middle of the night with terrible tingling

and numbness in my hands - which eventually spread to my lower arms,

as well. My GP here in the UK thought it might be a pinched nerve,

and sent me for neck x-rays - which were normal. I went back on the

prednisone (self directed) because the pain was unbearable, and saw

my rheumatologist during a visit to the states. She immediately

recognized the problem as severe carpal tunnel syndrome. Upon

returning to the UK, I shared this information with my doctor, and

he recommended me to a plastic surgeon who does CT release surgery.

Two weeks ago, I had my second wrist operated on, and the CT is

completely gone in my first wrist (first surgery was about 5 weeks

ago), with just a bit of nerve sensitivity remaining in the second

wrist. Overall, I am happy with the surgery and the results (mainly,

the complete relief it has provided me!)

So, all that being said, I am finally " off the prednisone " for good.

With my sitatuon of being " between doctors " and also having the CT

pain, I'd been taking it on and off for almost a year. Now, I am

faced with my symptoms without the steroids. I have no idea what I

should except, or how things should feel. Just this week, I have

started waking up a bit stiff - mostly in my hands. I also notice a

lot of " popping " in my joints. I also do not have a rheumatologist

in the UK - my GP here seems to want to treat me himself. Is that

normal? Is there anyone from the UK on this list? We are on private

insurance here, as we are ex-pats, living here temporarily. Also, I

was quite active before the RA - doing bikram yoga and lifting

weights almost daily. I am also a runner... what are other people's

experiences with exercise? I hate the thought of giving it up, as it

feels like the only thing I can control lately. Finally, any

experience with Plaquenil? It seems to be working okay, but is hard

to tell because of my steroid use. I was put on Plaquenil

specfically because I am hoping to become pregnant sometime in the

nost-so-distant future. I wonder if it is a " weaker " drug.

Thanks for reading... it's nice to have some people to talk to who

actually understand how I am feeling! Best wishes to all of you out

there...

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Dear ,

I've been gone, but I wanted to welcome you to the group. It's a great place.

I don't know what I would have done without it. Chronic pain is such an

isolating experience and only someone who's been there can really understand.

Here we are! laura

katieschuler <katieschuler@...> wrote:

Hello all. I wanted to introduce myself. I am 35 years old, female,

diagnosed with RA last September. I've had quite a time of it... the

RA came on very suddenly (which is how it happens a lot, I've

learned from reading some of your posts) - affecting mostly my

hands, wrists, elbows, knees, and shoulders. I was put on

prednisone - which worked like a miracle. Unfortunately, because of

my personal situation (I moved from San Francisco to London in late

January), I had to leave my rheumatologist in CA shortly after

getting in to see him. I managed to see one in Florida (where my

parents live) a few times - and she put me on Plaquenil and Celebrex

(starting in March). Things seemed to be under control, until I

started waking up in the middle of the night with terrible tingling

and numbness in my hands - which eventually spread to my lower arms,

as well. My GP here in the UK thought it might be a pinched nerve,

and sent me for neck x-rays - which were normal. I went back on the

prednisone (self directed) because the pain was unbearable, and saw

my rheumatologist during a visit to the states. She immediately

recognized the problem as severe carpal tunnel syndrome. Upon

returning to the UK, I shared this information with my doctor, and

he recommended me to a plastic surgeon who does CT release surgery.

Two weeks ago, I had my second wrist operated on, and the CT is

completely gone in my first wrist (first surgery was about 5 weeks

ago), with just a bit of nerve sensitivity remaining in the second

wrist. Overall, I am happy with the surgery and the results (mainly,

the complete relief it has provided me!)

So, all that being said, I am finally " off the prednisone " for good.

With my sitatuon of being " between doctors " and also having the CT

pain, I'd been taking it on and off for almost a year. Now, I am

faced with my symptoms without the steroids. I have no idea what I

should except, or how things should feel. Just this week, I have

started waking up a bit stiff - mostly in my hands. I also notice a

lot of " popping " in my joints. I also do not have a rheumatologist

in the UK - my GP here seems to want to treat me himself. Is that

normal? Is there anyone from the UK on this list? We are on private

insurance here, as we are ex-pats, living here temporarily. Also, I

was quite active before the RA - doing bikram yoga and lifting

weights almost daily. I am also a runner... what are other people's

experiences with exercise? I hate the thought of giving it up, as it

feels like the only thing I can control lately. Finally, any

experience with Plaquenil? It seems to be working okay, but is hard

to tell because of my steroid use. I was put on Plaquenil

specfically because I am hoping to become pregnant sometime in the

nost-so-distant future. I wonder if it is a " weaker " drug.

Thanks for reading... it's nice to have some people to talk to who

actually understand how I am feeling! Best wishes to all of you out

there...

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I HATED giving myself shots. In fact I cried the

first few times. (I almost never cry) In the long

run it was worth it though.

Sharon

--- curt wheeler <wheel0513@...> wrote:

> hi,

> thanks for responding

> ive been kinda worried. was supost to start the

> treatment today, but got delayed because my

> insurance is going to put it under my major medical

> benifit instead of a perscription. i think they are

> just trying to find a company that they are

> contracted with to ship it or something. I seem to

> be getting pretty stressed. i dont want to give

> myself shots and i dont want to get sick. but i dont

> want to die in 30yrs or somthing either.

>

> Sharon Zeis <szeis_1@...> wrote:

> I think I paid about $50 a month which was my copay

> for prescriptions.

> Sharon

>

> --- curt wheeler <wheel0513@...> wrote:

>

> > Hi Sharon,

> > I'm very glad you wrote me. Its good to here

> > something positive. Realy i just delete all the

> > negative ones. Yes i have insurance, not sure what

> > they are going to cover right now but should find

> > out in the next couple of weeks. How much did it

> > cost you for the stuff? please write me back.

> Thanks

> >

> >

> >

> > Sharon Zeis <szeis_1@...> wrote:

> > Welcome Curt. Do you have insurance?

> > I'm Sharon, did peg-intron and have been

> > undetectable

> > for 3 years.

> >

> >

> > --- wheel0513 <wheel0513@...> wrote:

> >

> > > hi my name is Curt. I just joined, looking for

> > > support. I should be

> > > starting interferon here in a couple of weeks.

> im

> > > kinda worryed about

> > > the cost.

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > Start your day with - Make it your home

> page!

> >

> > http://www./r/hs

> >

> >

> >

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Its so great to hear from you. You give me HOPE. I think hope is one of the best things that you could give a person, and i am truly grateful. I don't have much time but ill write you later.

Thanks AgainSharon Zeis <szeis_1@...> wrote:

I HATED giving myself shots. In fact I cried thefirst few times. (I almost never cry) In the longrun it was worth it though. Sharon--- curt wheeler <wheel0513@...> wrote:> hi,> thanks for responding> ive been kinda worried. was supost to start the> treatment today, but got delayed because my> insurance is going to put it under my major medical> benifit instead of a perscription. i think they are> just trying to find a company that they are> contracted with to ship it or something. I seem to> be getting pretty stressed. i dont want to give> myself shots and i dont want to get sick. but i dont> want to die in 30yrs or somthing either.> > Sharon Zeis <szeis_1@...> wrote:> I

think I paid about $50 a month which was my copay> for prescriptions.> Sharon> > --- curt wheeler <wheel0513@...> wrote:> > > Hi Sharon,> > I'm very glad you wrote me. Its good to here> > something positive. Realy i just delete all the> > negative ones. Yes i have insurance, not sure what> > they are going to cover right now but should find> > out in the next couple of weeks. How much did it> > cost you for the stuff? please write me back.> Thanks> > > > > > > > Sharon Zeis <szeis_1@...> wrote:> > Welcome Curt. Do you have insurance?> > I'm Sharon, did peg-intron and have been> > undetectable> > for 3 years.> > > > > > --- wheel0513 <wheel0513@...>

wrote:> > > > > hi my name is Curt. I just joined, looking for> > > support. I should be > > > starting interferon here in a couple of weeks.> im> > > kinda worryed about > > > the cost.> > > > > > > > > > > > > > > > > > > > > > __________________________________ > > Start your day with - Make it your home> page!> > > > http://www./r/hs> > > > > >

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Three years after treatment, I feel great and my

health is good. I reminded myself many times during

treatment that 48 weeks was only a small piece of my

life. Especially if I could get control over this damn

virus.

Sharon

--- curt wheeler <wheel0513@...> wrote:

> Its so great to hear from you. You give me HOPE. I

> think hope is one of the best things that you could

> give a person, and i am truly grateful. I don't have

> much time but ill write you later.

> Thanks Again

>

> Sharon Zeis <szeis_1@...> wrote:

> I HATED giving myself shots. In fact I cried the

> first few times. (I almost never cry) In the long

> run it was worth it though.

> Sharon

>

> --- curt wheeler <wheel0513@...> wrote:

>

> > hi,

> > thanks for responding

> > ive been kinda worried. was supost to start the

> > treatment today, but got delayed because my

> > insurance is going to put it under my major

> medical

> > benifit instead of a perscription. i think they

> are

> > just trying to find a company that they are

> > contracted with to ship it or something. I seem

> to

> > be getting pretty stressed. i dont want to give

> > myself shots and i dont want to get sick. but i

> dont

> > want to die in 30yrs or somthing either.

> >

> > Sharon Zeis <szeis_1@...> wrote:

> > I think I paid about $50 a month which was my

> copay

> > for prescriptions.

> > Sharon

> >

> > --- curt wheeler <wheel0513@...> wrote:

> >

> > > Hi Sharon,

> > > I'm very glad you wrote me. Its good to here

> > > something positive. Realy i just delete all the

> > > negative ones. Yes i have insurance, not sure

> what

> > > they are going to cover right now but should

> find

> > > out in the next couple of weeks. How much did it

> > > cost you for the stuff? please write me back.

> > Thanks

> > >

> > >

> > >

> > > Sharon Zeis <szeis_1@...> wrote:

> > > Welcome Curt. Do you have insurance?

> > > I'm Sharon, did peg-intron and have been

> > > undetectable

> > > for 3 years.

> > >

> > >

> > > --- wheel0513 <wheel0513@...> wrote:

> > >

> > > > hi my name is Curt. I just joined, looking for

> > > > support. I should be

> > > > starting interferon here in a couple of weeks.

> > im

> > > > kinda worryed about

> > > > the cost.

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Start your day with - Make it your home

> > page!

> > >

> > > http://www./r/hs

> > >

> > >

> > >

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