Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

Low dose naltrexone

Rate this topic

Recommended Posts

Guest guest

" Fitzpatrick " wrote:

>Is there anybody here that has any experience with Low Dose Naltrexone (LDN) ?

If so can you tell me what your experience was. Were there any side effects?

>

I've only been taking it for about a week-and-a-half and the only side effects

are a little more restless during the night. From what I understand, that

levels out after a couple of weeks, so I should be almost there! ;)

xxoo

Share this post


Link to post
Share on other sites
Guest guest

,

There are very little if any side effects from LDN.

Mostly the first week or two restless sleep.

Side effects:

LDN has virtually no side effects. Occasionally,

during the first week's use of LDN, patients may

complain of some difficulty sleeping. This rarely

persists after the first week.

You can read about LDN here:

http://www.low dose naltrexone.org/#Are_there_any_side_effects

I have been on it for almost 1 year for stage 4 cancer

and my husband takes it also as a " preventative " .

If you need any further information or assistance in

finding a prescribing doctor, just let me know.

Dee

http://www.ldn4cancer.com

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

Share this post


Link to post
Share on other sites
Guest guest

Dear Dee,

I was asking for my little girl. She was 13 when she was diagnosed with

glioblastoma on Dec7/06. I've spoken to Dr. Ian Zagon (he did research on LDN)

and he recommended a dosage of 3mg. I spoke to 's Dr about it because I

don't see how it could hurt her but the Dr was less than enthusiastic. We live

in Canada. If you know of any Dr's that would be able to prescribe this for us

could you please provide the information to me. Thank you so much to everybody

that responded.

Share this post


Link to post
Share on other sites
Guest guest

Hello ,

I sent you a private email about 30 minutes ago with

the Canada's doctors information... Let me know if

you got it or need further information.

Yes it is to be expected your doctor is less that

enthusiatic... mine was also and dropped me as no

further treatment he could offer. I searched for a

LDN doctor and found a nice GP who prescribes for

me. He is very supportive.

When you have life threatening cancer you have to take

your health into your own hands sometimes and fight

back without the oncologists... as they can only do so

much as their hands are tied to the establishment

unfortunately.

Let me know if I can be of any further assistance,

Dee

--- Fitzpatrick wrote:

> Dear Dee,

> I was asking for my little girl. She was 13 when

> she was diagnosed with glioblastoma on Dec7/06.

> I've spoken to Dr. Ian Zagon (he did research on

> LDN) and he recommended a dosage of 3mg. I spoke to

> 's Dr about it because I don't see how it could

> hurt her but the Dr was less than enthusiastic. We

> live in Canada. If you know of any Dr's that would

> be able to prescribe this for us could you please

> provide the information to me. Thank you so much to

> everybody that responded.

>

Share this post


Link to post
Share on other sites
Guest guest

Dear ,

My husband, (chronic lymphocytic leukemia), and I take LDN at night -

4.5mg, and I take 3mg. Neither of us have experienced any side effects,

including sleep issues. To my knowledge, at the low dose of 4.5mg or less,

there are no known serious side effects.

Warm wishes,

Jan

Share this post


Link to post
Share on other sites
Guest guest

Hi Dee,

I just got home now and I'm looking through all of the information. I'm going

to start making phone calls tomorrow. I can't thank you enough..

Share this post


Link to post
Share on other sites
Guest guest

In a message dated 1/15/08 1:24:41 AM Eastern Standard Time,

deealejo@... writes:

> When you have life threatening cancer you have to take

> your health into your own hands

I have taken my life into my own hands and most doctors want nothing to do

with people who do this.

**************

Start the year off right. Easy ways to

stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

Share this post


Link to post
Share on other sites
Guest guest

This sounds like such good stuff. My husband was diagnosed with

stage iv lung cancer and we are needing some hope right now. I

printed out a lot of this info about ldn from the sight and am going

to bring it to his oncologist this thurs. Just wondering, where

people here on this list are getting their LDN? Thanks, Barbara

Share this post


Link to post
Share on other sites
Guest guest

> Has it been shown to help your leukemia?

*****************************************

It's much too early for me to make any definative judgement regarding

, my husband who has chronic lymphocytic leukemia.

started taking LDN 4.5mg about mid October 2007. He's gone through

some odd changes, all of which have resulted in my *getting my

husband back*.

The first change was a marked decrease in the size of his visable

lymph nodes. As a result, the expressed lymphocytes raised his blood

lymphocyte count for a while, and he felt terrible. Now his WBC

seems to be on the down-swing, but a consistant decline will tell the

story. Shucks, the lymphocyte count just not rising would be a

blessing.

I will say this. 's color has come back; he no longer

experiences the over-whelming fatigue that he had; is no longer

dehydrated and does not require I.V. fluids; he is strong, and

his humor has returned. He will be having blood work on January 24

and is scheduled for a follow-up bone marrow biopsy in 6 months,

so we will see. It's all in a consistant trend. I'll trust nothing

else.

So to be cautious, I will not say that the LDN has stopped his CLL

progression in this short period of time or, for that matter, started

to reverse it, but I will say that how he feels has been a remarkable

turn-around.

Warm wishes,

Jan

Share this post


Link to post
Share on other sites
Guest guest

dee writes:

> You can talk to those with Cll at:

> LDN_4_cancer/

>

I don't want to go back to the doctor that's been perscribing LDN for me.

How can I find one in my area or via phone consult to write a script?

Share this post


Link to post
Share on other sites
Guest guest

Yes and with good success.

You can talk to those with Cll at:

LDN_4_cancer/

Dee

--- Carol Ford <carolford@...> wrote:

> Has anyone had any experience using Low Dose

> Naltrexone for Chronic

> Lymphatic Leukemia? I would appreciate any help

> possible.

> Thankyou, Carol

>

>

>

>

________________________________________________________________________________\

____

Special deal for users & friends - No Cost. Get a month of Blockbuster

Total Access now

http://tc.deals./tc/blockbuster/text3.com

Share this post


Link to post
Share on other sites
Guest guest

Hi Carol,

You can find an LDN-related CLL testimonial at

http://tinyurl.com/2p57xv

Best regards,

Dudley Delany

dudley_delany

[ ] Low Dose Naltrexone

Has anyone had any experience using Low Dose Naltrexone for Chronic

Lymphatic Leukemia? I would appreciate any help possible.

Thankyou, Carol

------------------------------------

Share this post


Link to post
Share on other sites
Guest guest

winiecki@... writes:

> - I didn't know you were taking LDN. Have you seen any

> benefits yet?

>

..my dog Flurry is on it. I also need a vet to perscribe for her.

Share this post


Link to post
Share on other sites
Guest guest

- I didn't know you were taking LDN. Have you seen any

benefits yet?

On Mar 30, 2008, at 8:50 AM, szukipoo@... wrote:

> I don't want to go back to the doctor that's been perscribing LDN for

> me.

> How can I find one in my area or via phone consult to write a script?

>

Share this post


Link to post
Share on other sites
Guest guest

Check out www.low dose naltrexone.org. 50mg is used to treat addictions, but

4.5mg is being used as an immune booster in a wide variety of diseases. It

increases blood levels of beta endorphins and enkephalins, increasing well being

and preventing disease relapse. (Purportedly)

**************

Wondering what's for

Dinner Tonight? Get new twists on family favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

Share this post


Link to post
Share on other sites
Guest guest

check out the low dose naltrexone group. there are a few with RA

doing it there. one woman is off all other meds and doing well. another

did great the 1st 2 mos and is now flaring a bit - she is thinking herx

so may be adding ap to her regimen.

monique

Share this post


Link to post
Share on other sites
Guest guest

There is a study currently enrolling patients in a Low

Dose Naltrexon Study for Fibromyalgia patients at

Stanford University. I am thinkingabout applying to

participate.

Cheryl Ferguson

--- Sauve <moniquesauve@...> wrote:

> check out the low dose naltrexone group. there

> are a few with RA

> doing it there. one woman is off all other meds and

> doing well. another

> did great the 1st 2 mos and is now flaring a bit -

> she is thinking herx

> so may be adding ap to her regimen.

>

> monique

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

Share this post


Link to post
Share on other sites
Guest guest

I thought Naltrexone was used for treating alcohol addiction?? How is it being

applied for RA?

rheumatic Re:low dose naltrexone

check out the low dose naltrexone group. there are a few with RA

doing it there. one woman is off all other meds and doing well. another

did great the 1st 2 mos and is now flaring a bit - she is thinking herx

so may be adding ap to her regimen.

monique

Share this post


Link to post
Share on other sites
Guest guest

Here is a link to a website for this treatment.

www.low dose naltrexone.org

I know of several AP doctors who have recommended this

treatment along with AP to their patients. There is a

thread on the Road Back Foundation Bulliten Board

about LDN. Several people have tried it, one person

was asking because their AP doctor recommended it.

The results of the patients who posted seem

inconclusive.

Cheryl

--- DEBBIE GIBSON <Debbullwinkle@...> wrote:

> I thought Naltrexone was used for treating alcohol

> addiction?? How is it being applied for RA?

> rheumatic Re:low dose naltrexone

>

>

> check out the low dose naltrexone group.

> there are a few with RA

> doing it there. one woman is off all other meds

> and doing well. another

> did great the 1st 2 mos and is now flaring a bit -

> she is thinking herx

> so may be adding ap to her regimen.

>

> monique

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

Share this post


Link to post
Share on other sites
Guest guest

I'm so glad to hear this is helping you Dee. Yaayyy!! How many mg do you

take every day? I have to convince my doc to prescribe this for me.

~Amber

-- [ ] Low dose Naltrexone

For terminal/ late stage cancer with no conventional treatment

available I have been on Low dose Naltrexone for 20 months and it

has kept me alive. ( was told 4-9 months prognosis)

LDN website

http://www.ldninfo.org

For those who are interested in learning more about LDN, the 4th

annual LDN conference will be held in Los Angeles October 11, at USC

Medical Campus.

Details are here:

http://www.ldninfo.org/conf2008.htm

This information may be useful for those like me who have failed all

conventional means and want a safe, low cost, non toxic and most of

all " life saving " treatment.

Dee

http://www.ldn4cancer.com

------------------------------------

Share this post


Link to post
Share on other sites
Guest guest

Reading the LDN website is  beneficial.

Dosage for cancer is  4.5 mg.  Most doctors don't know

about  the " low dose "   version of naltrexone  and need

to be educated.  If you  have trouble  with your doctor,

we have  material and  doctor lists  which can help you.

I have now 2 doctors which are willing to  prescribe 

LDN  for me but went through a series of  emails with doctors

who  didn't see the benefit.   Education is the key.

http://www.low dose naltrexone.org/

Thankful I  kept up the fight and found doctors who are eager to keep me alive.

Hope to see many at the LDN conference in October.

Dee

http://www.ldn4cancer.com

I'm so glad to hear this is helping you Dee. Yaayyy!! How many mg do you take

every day? I have to convince my doc to prescribe this for me.

~Amber

Share this post


Link to post
Share on other sites
Guest guest

Dee,

Can you email me privately.

You can just order this from the pharmacy in NYC then?

Everyone has been so helpful. ...thank you :)

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...