Re: ages of your daughters

[Guest guest]

Cheryl, My husband said I was mistaken, that dtr's IQ test was between

60-70. Guess I had a 'senior moment.'

Re: Re: Medication

> > > >

> > > >

> > > > > Except for weight gain, a part of which might have

> > > > > been due to natural " growth spurt " , due to increased

> > > > > appetite we have seen no ill effects from Risperdal.

> > > > > In fact, it has greatly improved our daughtr's

> > > > > behavior and sort of " leveled off " her moods. She was

> > > > > drowsy for the first two or three days but soon

> > > > > adjusted. The appetite increase also increased the

> > > > > variety of foods she would eat, which was a plus. So,

> > > > > although I would prefer that Jan was not on meds this

> > > > > one doesn't seem to be bad, IMHO.

> > > > > Tamara

> > > > > --- paulette de <pauletgarza@y...> wrote:

> > > > > > Hi,

> > > > > >

> > > > > > I recently just had a visit with my daughters

> > > > > > neurologist. She had been taking Depakane since she

> > > > > > was about 4 yrs old. She is 8 now. Towards the end

> > > > > > it had seemed to be making her very sleepy in the

> > > > > > morning which was interrupting her school work. She

> > > > > > would sleep at school in the morning. Well we took

> > > > > > her off of it in March. She did very well the last

> > > > > > couple of months in school. Now that she is not on

> > > > > > any medication she is doing okay. She does do alot

> > > > > > of

> > > > > > whining and some times little tantrums. I talked to

> > > > > > the doctor and we both agreed to wait till she

> > > > > > started

> > > > > > school again. He wants to start her on Risperdol.

> > > > > > I

> > > > > > have heard so many things about this drug bad &

> > > > > > good.

> > > > > > He wants to start her off small and a maxium dose of

> > > > > > 1ml. I know most of yall have discussed this med

> > > > > > before but would like some input on this. 's

> > > > > > email really helped.

> > > > > >

> > > > > > thanks,

> > > > > > paulette (mother to le 8yrs)

> > > > > >

> > > > > >

> > > > > > --- Dougherty <jbelle456@h...> wrote:

> > > > > > > Hi Tamara,

> > > > > > > My daughter, , just started taking

> > > > > > > Risperadol towards the end of

> > > > > > > March. Up until then, we had been trying to

> > > > > > control

> > > > > > > her whining, crying and

> > > > > > > anger through natural means. She just turned 12 in

> > > > > > > March and although she is

> > > > > > > developing, she hasn't started her period yet. The

> > > > > > > Risperadol not only

> > > > > > > calmed her, but also helped with her attention and

> > > > > > > focus in school. Her fear

> > > > > > > of dogs has also greatly diminished. She also has

> > > > > > > gained weight since being

> > > > > > > on it, but like your daughter was thin and the

> > > > > > > filling out really looks good

> > > > > > > on her so far. For your info, another parent sent

> > > > > > me

> > > > > > > a report about taking

> > > > > > > Zantac or Pepcid to help fight the weight gain.

> > > > > > > However, we had problems

> > > > > > > with our computer and this info got lost. I'm

> > > > > > hoping

> > > > > > > to see her name on the

> > > > > > > list so I can contact her again to get this

> > > > > > report.

> > > > > > > My best,

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > > __________________________________________________

> > > > > >

[Guest guest]

I know, Penny, I agree, but I wasn't the injured party, and I'm not

even there to go around gathering evidence to make a case, so all I

can do is fume whenever I think about it. She has decided that it

was for the best in the long run, she's only a year younger than I

am, and has lupus, so more children would be out of the question

anyway -- but what an awful thing to do to someone.

Kathleen

[Guest guest]

Betty- Hi, Deanna here, I stand by my earlier post. A verbal IQ

would be very difficult for a visual learner. I know of someone who

had a score of 70 in childhood and is now a doctor. That person was

not autistic, but I think you can see that we have to take these

things with a grain of salt. Best to you,

Deanna

> Cheryl, My husband said I was mistaken, that dtr's IQ test

was between

> 60-70. Guess I had a 'senior moment.'

> Re: Re: Medication

> > > > >

> > > > >

> > > > > > Except for weight gain, a part of which might have

> > > > > > been due to natural " growth spurt " , due to increased

> > > > > > appetite we have seen no ill effects from Risperdal.

> > > > > > In fact, it has greatly improved our daughtr's

> > > > > > behavior and sort of " leveled off " her moods. She was

> > > > > > drowsy for the first two or three days but soon

> > > > > > adjusted. The appetite increase also increased the

> > > > > > variety of foods she would eat, which was a plus. So,

> > > > > > although I would prefer that Jan was not on meds this

> > > > > > one doesn't seem to be bad, IMHO.

> > > > > > Tamara

> > > > > > --- paulette de <pauletgarza@y...> wrote:

> > > > > > > Hi,

> > > > > > >

> > > > > > > I recently just had a visit with my daughters

> > > > > > > neurologist. She had been taking Depakane since she

> > > > > > > was about 4 yrs old. She is 8 now. Towards the end

> > > > > > > it had seemed to be making her very sleepy in the

> > > > > > > morning which was interrupting her school work. She

> > > > > > > would sleep at school in the morning. Well we took

> > > > > > > her off of it in March. She did very well the last

> > > > > > > couple of months in school. Now that she is not on

> > > > > > > any medication she is doing okay. She does do alot

> > > > > > > of

> > > > > > > whining and some times little tantrums. I talked to

> > > > > > > the doctor and we both agreed to wait till she

> > > > > > > started

> > > > > > > school again. He wants to start her on Risperdol.

> > > > > > > I

> > > > > > > have heard so many things about this drug bad &

> > > > > > > good.

> > > > > > > He wants to start her off small and a maxium dose of

> > > > > > > 1ml. I know most of yall have discussed this med

> > > > > > > before but would like some input on this. 's

> > > > > > > email really helped.

> > > > > > >

> > > > > > > thanks,

> > > > > > > paulette (mother to le 8yrs)

> > > > > > >

> > > > > > >

> > > > > > > --- Dougherty <jbelle456@h...> wrote:

> > > > > > > > Hi Tamara,

> > > > > > > > My daughter, , just started taking

> > > > > > > > Risperadol towards the end of

> > > > > > > > March. Up until then, we had been trying to

> > > > > > > control

> > > > > > > > her whining, crying and

> > > > > > > > anger through natural means. She just turned 12 in

> > > > > > > > March and although she is

> > > > > > > > developing, she hasn't started her period yet. The

> > > > > > > > Risperadol not only

> > > > > > > > calmed her, but also helped with her attention and

> > > > > > > > focus in school. Her fear

> > > > > > > > of dogs has also greatly diminished. She also has

> > > > > > > > gained weight since being

> > > > > > > > on it, but like your daughter was thin and the

> > > > > > > > filling out really looks good

> > > > > > > > on her so far. For your info, another parent sent

> > > > > > > me

> > > > > > > > a report about taking

> > > > > > > > Zantac or Pepcid to help fight the weight gain.

> > > > > > > > However, we had problems

> > > > > > > > with our computer and this info got lost. I'm

> > > > > > > hoping

> > > > > > > > to see her name on the

> > > > > > > > list so I can contact her again to get this

> > > > > > > report.

> > > > > > > > My best,

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > __________________________________________________

> > > > > > >

[Guest guest]

Thank you, Deanna.

> > > > My daughter is 7 and has precocious puberty so I am extremely

> > > worried

> > > > about her being taken advantage of. I am glad to see that

one

> of

> > > you

> > > > has put your daughter on birth control pills. I, too, hate

the

> > > > thought of it but, it beats the alternative, I guess.

> > > >

> > > > And as to the sexual harrassment, my daughter was abused and

we

> > > > notified the police immediately. I explained to them that

she

> was

> > > > autistic... they said they knew about autism, but after they

> > > > interviewed her about the incident... alone... they told me

that

> > > she

> > > > would not give them any info so there was nothing else they

> could

> > > > do. I was livid! It is very important that we educate the

> public

> > > > about our kids and not accept the response that they

understand

> > > > because often they do not!

> > > >

> > > > Lyn

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks Deanna, the only reason i would test my daughters IQ would be if it

was the ony way i could get the funding she needs for school. I have been

told that next year she will have to be assessed next year again!!!!!for

goodness sake, the child is high-functioning Autism,I can hardly see it

disappearing!!!!, but the government wants to make sure it isn't giving away

it's precious money on people who don't need it, instead they will waste it

other areas,[that i won't go into, otherwise i will be here all day!!!], bye

for now, Cheryl

Re: Re: ages of your daughters

>

>

> Cheryl, Mildly autistic was what the diagnosis said from Kennedy

Kreiger

> Institute in Baltimore, Md. She was previously diagnosed as PDD,

but

> changed to Mildly autistic when she began to flap her hands and

arms and has

> serious obsessions. I guess she would be a high functioning

autistic if she

> didn't have the other problems. Mildly mentally retarded diagnosis

was

> because she scored 80 in the IQ test. As I said, she is also

> developmentally delayed. It is hard sometimes, because I don't

what is

> causing what. I definitely can relate to several of the daughters'

systems,

> but I do wish I had had this information when she was younger.

> Betty

> Re: Re: Medication

> > >

> > >

> > > > Except for weight gain, a part of which might have

> > > > been due to natural " growth spurt " , due to increased

> > > > appetite we have seen no ill effects from Risperdal.

> > > > In fact, it has greatly improved our daughtr's

> > > > behavior and sort of " leveled off " her moods. She was

> > > > drowsy for the first two or three days but soon

> > > > adjusted. The appetite increase also increased the

> > > > variety of foods she would eat, which was a plus. So,

> > > > although I would prefer that Jan was not on meds this

> > > > one doesn't seem to be bad, IMHO.

> > > > Tamara

> > > > --- paulette de <pauletgarza@y...> wrote:

> > > > > Hi,

> > > > >

> > > > > I recently just had a visit with my daughters

> > > > > neurologist. She had been taking Depakane since she

> > > > > was about 4 yrs old. She is 8 now. Towards the end

> > > > > it had seemed to be making her very sleepy in the

> > > > > morning which was interrupting her school work. She

> > > > > would sleep at school in the morning. Well we took

> > > > > her off of it in March. She did very well the last

> > > > > couple of months in school. Now that she is not on

> > > > > any medication she is doing okay. She does do alot

> > > > > of

> > > > > whining and some times little tantrums. I talked to

> > > > > the doctor and we both agreed to wait till she

> > > > > started

> > > > > school again. He wants to start her on Risperdol.

> > > > > I

> > > > > have heard so many things about this drug bad &

> > > > > good.

> > > > > He wants to start her off small and a maxium dose of

> > > > > 1ml. I know most of yall have discussed this med

> > > > > before but would like some input on this. 's

> > > > > email really helped.

> > > > >

> > > > > thanks,

> > > > > paulette (mother to le 8yrs)

> > > > >

> > > > >

> > > > > --- Dougherty <jbelle456@h...> wrote:

> > > > > > Hi Tamara,

> > > > > > My daughter, , just started taking

> > > > > > Risperadol towards the end of

> > > > > > March. Up until then, we had been trying to

> > > > > control

> > > > > > her whining, crying and

> > > > > > anger through natural means. She just turned 12 in

> > > > > > March and although she is

> > > > > > developing, she hasn't started her period yet. The

> > > > > > Risperadol not only

> > > > > > calmed her, but also helped with her attention and

> > > > > > focus in school. Her fear

> > > > > > of dogs has also greatly diminished. She also has

> > > > > > gained weight since being

> > > > > > on it, but like your daughter was thin and the

> > > > > > filling out really looks good

> > > > > > on her so far. For your info, another parent sent

> > > > > me

> > > > > > a report about taking

> > > > > > Zantac or Pepcid to help fight the weight gain.

> > > > > > However, we had problems

> > > > > > with our computer and this info got lost. I'm

> > > > > hoping

> > > > > > to see her name on the

> > > > > > list so I can contact her again to get this

> > > > > report.

> > > > > > My best,

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > __________________________________________________

> > > > >

[Guest guest]

Yeah--I'm amazed at the amount of energy they spent covering up. My

attorney even described the district as " sly and wiley. "

And " stupid. " She says to give them enough time, they'll screw up--

they always do. But I'm out of time, energy--and money.

Now that I've picked a school, they do think they're done with me.

And all those services I worked so hard to get written into the IEP--

it doesn't mean they are going to follow through--it boggles the

mind. I'm going to have to spend as much time as I can in that new

classroom. Sort of precludes earning a living at any type of job, I

guess. I'm going to contact the UW law students and the PAVE

advocate again--maybe they have some ideas.

Thanks, Kathleen.

Mandy

> > > My daughter is 7 and has precocious puberty so I am extremely

> > worried

> > > about her being taken advantage of. I am glad to see that one

of

> > you

> > > has put your daughter on birth control pills. I, too, hate the

> > > thought of it but, it beats the alternative, I guess.

> > >

> > > And as to the sexual harrassment, my daughter was abused and we

> > > notified the police immediately. I explained to them that she

> was

> > > autistic... they said they knew about autism, but after they

> > > interviewed her about the incident... alone... they told me

that

> > she

> > > would not give them any info so there was nothing else they

could

> > > do. I was livid! It is very important that we educate the

> public

> > > about our kids and not accept the response that they understand

> > > because often they do not!

> > >

> > > Lyn

[Guest guest]

Thanks, Cheryl.

> > > > My daughter is 7 and has precocious puberty so I am extremely

> > > worried

> > > > about her being taken advantage of. I am glad to see that one

> of

> > > you

> > > > has put your daughter on birth control pills. I, too, hate

the

> > > > thought of it but, it beats the alternative, I guess.

> > > >

> > > > And as to the sexual harrassment, my daughter was abused and

we

> > > > notified the police immediately. I explained to them that she

> was

> > > > autistic... they said they knew about autism, but after they

> > > > interviewed her about the incident... alone... they told me

that

> > > she

> > > > would not give them any info so there was nothing else they

> could

> > > > do. I was livid! It is very important that we educate the

> public

> > > > about our kids and not accept the response that they

understand

> > > > because often they do not!

> > > >

> > > > Lyn

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Well Penny, it is so nice to know there is someone else around who has such a delightful child. Right now hannah is in the next room reciting songs and kids shows she has seen on the TV months ago, word for word, and if i dare interrupt her, she tells me to be quiet, and starts all over again!!!!!!, so i think i had better be quiet, ot she will be doing it all day until she gets it right!!!!!! We were going to go to church today, but 3 kids with runny noses, is just too much for 1 day!!!!! God Bless, Cheryl

-----Original Message-----From: Penny Sent: Sunday, 15 July 2001 3:51 AMTo: Autism_in_Girls Subject: RE: Re: ages of your daughters

>>>>yes, my daughter is High-functioning Autistic, she is immature for her age, as her cognitive is way out,you must not give her two many instructions at once, just the simple and basic. She has her little obsessions too. Like not wanting you to talk at certain times, and repeating the thing she just did, if you did talk!!!which really annoys me sometimes. If i get her hair brush, she immediately takes it off me, goes back puts it down, then she gets it. Hair clips must be put into hair a certain way [grrr], without any talking, and if i say "there all done" at the end, well all heck breaks loose,and we have to start again!!! is this what you mean by obsesions??? Her speech is improving, and word useage. she loves music, and can remember actions, and words of songs that is amazing. She has never had the hand flapping as far as i know. I have never had her IQ tested, but it would be hard, as some stranger would have done it in a strange environment, so maybe when she is older i would do it, when i know she could handle her surroundings better. All the best, Cheryl<<< hee hee Cheryl...Did you come and get my daughter while I wasn't looking? That's her in a nutshell. Penny--------------------------------------------------------"What a way to promote Autism Awareness Month - please encourage people at your school, church, or neighborhood to see this video.Yahoo! Terms of Service.

[Guest guest]

Amen Mandy!!!! I have been in the judging seat myself, and i have had to

correct myself so many times. I have to keep reminding myself that God is in

control no matter what!!!! I even had church friends who thought they were

doing such a good thing by going around and asking all the memebers of the

congregation, did they think there was something wrong with Hannah!!!, and

boy, did we both blow our temper!!!now to this day, i haven't been able to

talk to these people, who went around behind our backs, i have said hello,

but nothing more. I know i have to forgive, and see it from their angle, but

gee, it is so hard!!! the hurt is finally subsiding though. God Bless you

Mandy

Re: ages of your daughters

Yes, it's true. There is apathy out there. I like to think, that

most parents love their children more than anything else in the world

and would give them a perfect life, if they could.

Yes, parents must fight for their children. I have done that,

unfailingly.

One thing we, as fellow parents, must not do--is sit in judgement.

That's God's job. And HE is merciful. And loving.

I've shared my stories with this listserv--except for my Mom, who has

no idea what raising an Austic daughter is like--I don't really have

anyone else who CAN understand.

Everyone has a different path, different circumstances and we don't

always know the whole story before we judge.

Mandy

> > I'm told private schools aren't necessarily better than the

public

> > schools--that's according to doctors (who know didley about the

> > educational side of things) and other parents. My attorney has

> > warned me that unless I know it's something that I want, I

> shouldn't

> > ask for it because they'd probably give it to me and cross me off

> > their list.

>

>

> It is true that private schools aren't necessarily going to be

better

> than the public schools. Even home-schooling isn't necessarily

> better, unless the parents make it better. You all are learning

what

> I wish all parents would realize, that if you don't get in there

and

> get involved with your child's education and be fully responsible

for

> them YOURSELF (not dumping that responsibility off on someone

else),

> they can't be sure of GETTING an education. This applies to ALL

> children, not just autistic or other handicaps. (I know I'm

yelling,

> but I get so upset with the apathy I see most parents have about

> this -- sometimes I feel like I care more about their children than

> they do!).

>

> I'll tell you a little story here, a true one, unfortunately. My

> church has a very good little Christian school (not particularly

set

> up for handicapped children, but still very sound spiritually and

> academically). People put their children in our school, agreeing

> with our position that character is the most important thing,

because

> as we tell them, once the character is there, the academics fall

into

> place. (And this has been proven true many times!) Well, they

stay

> for a little while, sometimes for a few years, even, but they find

> that their own homes can't measure up to what the children are

> learning at school. So, do they desire a higher standard at home?

> Do they work on improving themselves and their own character for

> their children's sakes? No, they do not! They pull the children

out

> on one pretext or another, and in a few years we usually hear of

> those children being in one kind of trouble or another -- unwed

> mothers, drugs, in jail, etc. Now many of you are learning just

how

> much effort you have to put out for the sake of your handicapped

> child getting the education she needs -- how many of you are

putting

> the same effort into your " normal " children's education and

character

> development? (This isn't meant as a put-down of anyone, I hope no

> one takes it that way. It's meant as a wake-up call.) Fight for

ALL

> your children, and teach others to fight for their children, too!!!

>

> Kathleen

[Guest guest]

I find it hard to forgive, also. I guess the whole idea behind

forgiving is that you don't carry the pain and anger around with you,

feeding it and letting it overwhelm you. That's hard.

So, I would say, take care of you and yours and don't punish yourself

for feeling angry. Friends understand. God Bless you too.

> > > I'm told private schools aren't necessarily better than the

> public

> > > schools--that's according to doctors (who know didley about the

> > > educational side of things) and other parents. My attorney has

> > > warned me that unless I know it's something that I want, I

> > shouldn't

> > > ask for it because they'd probably give it to me and cross me

off

> > > their list.

> >

> >

> > It is true that private schools aren't necessarily going to be

> better

> > than the public schools. Even home-schooling isn't necessarily

> > better, unless the parents make it better. You all are learning

> what

> > I wish all parents would realize, that if you don't get in there

> and

> > get involved with your child's education and be fully responsible

> for

> > them YOURSELF (not dumping that responsibility off on someone

> else),

> > they can't be sure of GETTING an education. This applies to ALL

> > children, not just autistic or other handicaps. (I know I'm

> yelling,

> > but I get so upset with the apathy I see most parents have about

> > this -- sometimes I feel like I care more about their children

than

> > they do!).

> >

> > I'll tell you a little story here, a true one, unfortunately. My

> > church has a very good little Christian school (not particularly

> set

> > up for handicapped children, but still very sound spiritually and

> > academically). People put their children in our school, agreeing

> > with our position that character is the most important thing,

> because

> > as we tell them, once the character is there, the academics fall

> into

> > place. (And this has been proven true many times!) Well, they

> stay

> > for a little while, sometimes for a few years, even, but they find

> > that their own homes can't measure up to what the children are

> > learning at school. So, do they desire a higher standard at home?

> > Do they work on improving themselves and their own character for

> > their children's sakes? No, they do not! They pull the children

> out

> > on one pretext or another, and in a few years we usually hear of

> > those children being in one kind of trouble or another -- unwed

> > mothers, drugs, in jail, etc. Now many of you are learning just

> how

> > much effort you have to put out for the sake of your handicapped

> > child getting the education she needs -- how many of you are

> putting

> > the same effort into your " normal " children's education and

> character

> > development? (This isn't meant as a put-down of anyone, I hope no

> > one takes it that way. It's meant as a wake-up call.) Fight for

> ALL

> > your children, and teach others to fight for their children,

too!!!

> >

> > Kathleen

>

>

>

>

>

[Guest guest]

Hi Tamara,

We live in Lawson which is North of Kansas City about 30 minutes on 35. At

this time we recieve only speech and language from our school district which

has a SUPER S/L teacher. Our District has been wonderful in cooperating with

all of our needs. I am currently homeschooling ie with those services

coming from our district. My son goes to lawson schools. How old is your

daughter? God Bless,

[Guest guest]

All i can say to that Kathleen is AMEN!!!!!! from Cheryl

Re: ages of your daughters

Mandy, I hope you didn't think I was judging you or anyone else on

this list. I was just sharing some observations I've made over the

years. We homeschooled until our older girls were in 8th and 9th

grades, then they attended the school at our church, and I helped out

there for five years to pay their tuition, so I saw a lot of people

come and go. There are some who do care about their children, but a

lot only *think* they do! I've seen apathy and foolishness on the

part of parents that would make you weep for the children. And,

humm, I don't know if discussion of religion is appropriate for this

list, but as far as whether judging people is right according to God

or not, that is a verse that has been badly taken out of context, and

a whole lot of other scripture on the same topic is totally ignored!

So if anyone wants to discuss that with me, feel free to e-mail me

privately. (Better have your Bible handy, though, LOL!!)

Kathleen