Re: Please read this if you are new to Biomed

[Guest guest]

Dear NikkiThank youI think that you are misrepresenting the situation of my daughter because she has NO formal diagnosis.. She did regress at two and stopped sleeping, talking , communicating.. had mega bowel issues along with complex epilepsy,... She has had problems being able to read emotions and has a very rigid way of seeing the world.. black or white. She has had problems finding words to complete sentences and has not easily fitted in to peer groups.We have been using homeopathy, cranial osteopathy and diet with her since she was born..She has a brain injury which is beginning to heal.

She has NO FORMAL DIAGNOSIS because I have NO faith in modern medicine which has been to my benefit as she was never vaccinated.( BUT DID REGRESS)  I think it is very unfortunate to discount something because of a subset of label which is being given, without the full facts to hand. There are many other families with undiagnosed kids on this list who appear not to be being " excluded "

I had thought that the purpose of ABE was to share all experiences not only within the different points of the spectrum, but also within the various therapies on offer and if this is not the case then we are no better than Mr Deer and his one dimension peddling of a view.

Tracey

 

The Autism Research Institute in the US, founded by Bernie Rimland have a Parents Rating list of behavioural effects of Biomedical Interventions. This is a great list to consult when you are first starting out to help you decide what would be the best intervention(s) to start with your child. It is based on data from more than 27000 parents who have tried these interventions and reported bAck on how their children have responded these treatments, so it is a great resource.

You can find this list here:

http://www.autism.com/pdf/providers/ParentRatings2009.pdf

If i was starting out again this is one of the first places i would look to help me decide what to do. You will see that Scotson Therapy/TST does not feature on this list. Tracey is promoting this intervention on ABE because her daughter has done well on this therapy and i am happy for her but do please be aware that her daughter does not have a diagnosis of autism, but has epilepsy which has responded to Scotson therapy. So this therapy is not necessarily going to help a child with autism improve. There are many parent rated effective treatments on the pdf above and IMO these should be the first port of call for beginners, not a therapy for other health issues/disabilities.

Nikki

[Guest guest]

Tracey I am really surprised to read this. Nikki made a really important point,

which I agree with 100%, that there are other things to address first for a

child with autism before trying fringe approaches such as Scotson. There is no

one approach which will work wonders for every single child and to suggest

otherwise is naive at the very least.

And as for the purpose of this group, I think the name, Autism BIOMED Europe, is

self explanatory.

Best Wishes

x

>

> > **

> >

> >

> >

> > The Autism Research Institute in the US, founded by Bernie Rimland have a

> > Parents Rating list of behavioural effects of Biomedical Interventions. This

> > is a great list to consult when you are first starting out to help you

> > decide what would be the best intervention(s) to start with your child. It

> > is based on data from more than 27000 parents who have tried these

> > interventions and reported bAck on how their children have responded these

> > treatments, so it is a great resource.

> >

> > You can find this list here:

> >

> > http://www.autism.com/pdf/providers/ParentRatings2009.pdf

> >

> > If i was starting out again this is one of the first places i would look to

> > help me decide what to do. You will see that Scotson Therapy/TST does not

> > feature on this list. Tracey is promoting this intervention on ABE because

> > her daughter has done well on this therapy and i am happy for her but do

> > please be aware that her daughter does not have a diagnosis of autism, but

> > has epilepsy which has responded to Scotson therapy. So this therapy is not

> > necessarily going to help a child with autism improve. There are many parent

> > rated effective treatments on the pdf above and IMO these should be the

> > first port of call for beginners, not a therapy for other health

> > issues/disabilities.

> >

> > Nikki

> >

> >

> >

>

[Guest guest]

Tracey, It is very uncomfortable to have to read such an aggressive post

to autism mum.

I'm afraid it is also very clear from your posts that you do not

experience the same type of parenting that many of us experience.

I also think you should take the hint from all the recent messages

that people dislike your approach to 'advertising' the Scotson technique

so ferociously, particularly as a first port of call for new parents.

This is fast becoming a Scotson forum and I suggest that many people do

not like that or your absolute insistence that it is the right and

perhaps the only way to go. It is very annoying and you are clearly

wrong about that anyway.

I am not suggesting that we don't talk about Scotson and autism on here

but I do believe that there is a large number of people who do not

appreciate your particular approach.

[Guest guest]

I agree with Sara's post. I was just about to post a very angry message when the

door went, so I now have some time to reflect again upon what to say.

Margaret

>

> Tracey, It is very uncomfortable to have to read such an aggressive post

> to autism mum.

> I'm afraid it is also very clear from your posts that you do not

> experience the same type of parenting that many of us experience.

> I also think you should take the hint from all the recent messages

> that people dislike your approach to 'advertising' the Scotson technique

> so ferociously, particularly as a first port of call for new parents.

> This is fast becoming a Scotson forum and I suggest that many people do

> not like that or your absolute insistence that it is the right and

> perhaps the only way to go. It is very annoying and you are clearly

> wrong about that anyway.

> I am not suggesting that we don't talk about Scotson and autism on here

> but I do believe that there is a large number of people who do not

> appreciate your particular approach.

>

[Guest guest]

I do not find Tracey's post agressive. Sure she recommends Scotson often and

thinks that it would help most of the kids, but I think she does it because,

after years of trying everything, she found something which worked like magic

for her daughter. She wants to share this success and make people aware of the

therapy in the hope that it will be as beneficial to their children. I do

believe that proper breathing (which Scotson technique is about) and good diet

are the foundations of good health- and those 2 things will help everyone, so in

that sense is absolutely right. I think about the Scotson therapy as a

foundation and support for other therapies.