Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Hi , Congratulations on the birth of your twin boys. I have boy/girl twins both with Down syndrome. Yes I have heard it is rare. I have been off this list for about a year and when I signed back on a couple weeks ago I was amazed at how many sets of twins both with DS there are. And I can't help but wonder, well how do THEY do it(manage)??????? Although mine are 5 years old next month it still feels like I am flying my the seat of my pants! I do love the celebrity status though. Get used to getting lots of attention. People in the community are so very kind and thoughtful. I was so scared of the rejection/acceptance, but I feel so very special when I take my sweeties out. Are both of them healthy? Any heart defects or other issues? My boy, Keane was a strong little guy from the beginning, Kalena was medically fragile for the first year. Their pictures are under the photos under " Kalena and Keane " . Look forward to seeing your itto guys pictures soon. Oh yeah, I have a 16 year old. I decided to get my tubes tied about 2 years ago since I am now 37. I think it's a very normal and common reaction. But this is the best place to ask about that I think there are only a couple families that had another child with DS. Maybe that's more rare than twins both? Anyone know the odds? I keep saying we should be on Oprah! Take Care and thanks for sharing. Char Robbins Maple Valley, WA > > 1. What is your name? > > > 2. What are the first names of your children and how > old are they? and identical twins born > 7/6/04 > > 3. Which child/children has Down syndrome? Both > > 4. Which state or country do you live in? Illinois > > 5. Anything else you want to tell us? I'm interested > in finding other sets of identical twins with DS. I > hear it is very uncommon. I would also like to know > if anyone else had identical twins with DS as a first > pregnancy and if they have had more children and how > they handle it. My husband and I are thinking of > having more but are scared. > > Thanks, > WEndy > > > > __________________________________________________ > Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 Hi Char, I guess I should reintroduce myself! I haven't posted in a REALLY LONG TIME! My twins are now 2! We celebrated last week. They were born with transient leukemia but no other health issues. They are doing so good. I actually just had a 3rd little boy in April and when I came home from the hospital... and were walking! --- Charlene Robbins wrote: > Hi , > Congratulations on the birth of your twin boys. I > have boy/girl twins > both with Down syndrome. Yes I have heard it is > rare. I have been off > this list for about a year and when I signed back on > a couple weeks > ago I was amazed at how many sets of twins both with > DS there are. And > I can't help but wonder, well how do THEY do > it(manage)??????? > Although mine are 5 years old next month it still > feels like I am > flying my the seat of my pants! I do love the > celebrity status though. > Get used to getting lots of attention. People in the > community are so > very kind and thoughtful. I was so scared of the > rejection/acceptance, > but I feel so very special when I take my sweeties > out. > Are both of them healthy? Any heart defects or other > issues? My boy, > Keane was a strong little guy from the beginning, > Kalena was medically > fragile for the first year. > Their pictures are under the photos under " Kalena > and Keane " . > Look forward to seeing your itto guys pictures soon. > Oh yeah, I have a 16 year old. I decided to get my > tubes tied about 2 > years ago since I am now 37. I think it's a very > normal and common > reaction. But this is the best place to ask about > that I think there > are only a couple families that had another child > with DS. Maybe > that's more rare than twins both? Anyone know the > odds? > I keep saying we should be on Oprah! > Take Care and thanks for sharing. > > Char Robbins > Maple Valley, WA > > > > > > 1. What is your name? > > > > > > 2. What are the first names of your children and > how > > old are they? and identical twins > born > > 7/6/04 > > > > 3. Which child/children has Down syndrome? Both > > > > 4. Which state or country do you live in? > Illinois > > > > 5. Anything else you want to tell us? I'm > interested > > in finding other sets of identical twins with DS. > I > > hear it is very uncommon. I would also like to > know > > if anyone else had identical twins with DS as a > first > > pregnancy and if they have had more children and > how > > they handle it. My husband and I are thinking of > > having more but are scared. > > > > Thanks, > > WEndy > > > > > > > > __________________________________________________ > > Quote
Guest guest Posted July 15, 2006 Report Posted July 15, 2006 Myu husband and I also have identical twin boys with DS. They were born Feb 18, 2003, 8 weeks early. They are the light of our lives. They are doing really well and are so much fun to be around. We are blessed to be their parents and wouldn't change a thing. a, and Re: Re: Twins both w/ DS Hi Char, I guess I should reintroduce myself! I haven't posted in a REALLY LONG TIME! My twins are now 2! We celebrated last week. They were born with transient leukemia but no other health issues. They are doing so good. I actually just had a 3rd little boy in April and when I came home from the hospital... and were walking! --- Charlene Robbins <CharRobbinshotmail> wrote: > Hi , > Congratulations on the birth of your twin boys. I > have boy/girl twins > both with Down syndrome. Yes I have heard it is > rare. I have been off > this list for about a year and when I signed back on > a couple weeks > ago I was amazed at how many sets of twins both with > DS there are. And > I can't help but wonder, well how do THEY do > it(manage)??????? > Although mine are 5 years old next month it still > feels like I am > flying my the seat of my pants! I do love the > celebrity status though. > Get used to getting lots of attention. People in the > community are so > very kind and thoughtful. I was so scared of the > rejection/acceptance, > but I feel so very special when I take my sweeties > out. > Are both of them healthy? Any heart defects or other > issues? My boy, > Keane was a strong little guy from the beginning, > Kalena was medically > fragile for the first year. > Their pictures are under the photos under "Kalena > and Keane". > Look forward to seeing your itto guys pictures soon. > Oh yeah, I have a 16 year old. I decided to get my > tubes tied about 2 > years ago since I am now 37. I think it's a very > normal and common > reaction. But this is the best place to ask about > that I think there > are only a couple families that had another child > with DS. Maybe > that's more rare than twins both? Anyone know the > odds? > I keep saying we should be on Oprah! > Take Care and thanks for sharing. > > Char Robbins > Maple Valley, WA > > > > > > 1. What is your name? > > > > > > 2. What are the first names of your children and > how > > old are they? and identical twins > born > > 7/6/04 > > > > 3. Which child/children has Down syndrome? Both > > > > 4. Which state or country do you live in? > Illinois > > > > 5. Anything else you want to tell us? I'm > interested > > in finding other sets of identical twins with DS. > I > > hear it is very uncommon. I would also like to > know > > if anyone else had identical twins with DS as a > first > > pregnancy and if they have had more children and > how > > they handle it. My husband and I are thinking of > > having more but are scared. > > > > Thanks, > > WEndy > > > > > > > > __________________________________________________ > > Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.