Liz??

[Guest guest]

Liz, does Tori have a service coordinator? It has made such a difference for Mic

this year. I got a really good one who truly cares about our family. Shes

finding me funding for alot of stuff I would have never known about.I am

fortunate because even moving 40 miles I get to keep her that was one of my

biggest worries I was gonna lose her. .She is a med waiver SC theres a

difference a big one.She hunts down funding she doesnt just wait and see what

comes up.I got really lucky when the state got her for me.I cant believe what

shes coming up with.Gas for me to go to Mics school, more respite and reshab

then I know what to do with. medicaid has been denying Mics pediasure and she

told me keep my receipts she found a place to help me with that.A fence for our

new house so Mic can go out and play without us being right on top of him.Mic

going to camp.Because Mic is on med waiver our income is waived. I will beable

to go back to work without hurting Mics services.Mic got on

waiver program easily because he has a duel dx its not that easy for most

families. Allot of the kids with one dx and they think will be mainstreamed are

denied.One guy told me parents get divorced the state goes by the mothers income

and he knows families that have done that.I think thats so crappy but families

become desperate.I would think with Tories problems she ought to get everything

available.Catholic Charities helps with alot of funding for Mic.The ARC helps

with respite money regardless of our income.The only thing so far is Ive been

waiting for almost a year to get the dynovox I have to call my peds office and

make sure his new office help is doing their job. Mics ped merged with family

services because he has so many disabled kids they thought it would be a help

and has turned out to be chaos his wife told me.She got Mics pediasure pushed

thru in one phone call and told me from now on go thru her and not the " new "

office staff.Mics pediasure will be paid for

come next Saturday. Ive been paying for it since March and nows he eats but ped

says keep using the pediasure because hes not eating much nutritionally. I just

wish he would drink it from a cup and not the stupid bottle Mic has a hard time

keeping liquids in his mouth and swallowing most of it leaks out on him and he

hates it.. Just a few thoughts and mostly rambling on sorry. Laurie