Re: Question about supplemental income

[Guest guest]

In a message dated 8/19/2006 3:24:49 P.M. Eastern Standard Time,

pastmidvale@... writes:

Joan is partially right.

In PA, once you qualify by disability for SSI, and get a DIS-qualifying

letter from SSi based on income, you are then eligible for Access and

MEdicaid thru a (in most counties) an HMO. In the SE part of PA, the best

available(IMHO)available(IMHO)<WBR>for kids with disabilities is Keystone

mental health portion is handled by CCBH (I believe) in most of the counties

in the SE.

Once that papee cahse is over, then your support coordinator needs to do a

PUNS which is a Priortization of Urgency of Needs document. This

determines if you are eligible (does not determine if you GET) for Person

Directed Family Support money, Community Support Waiver, or only Family

Support money. the determination of eligiblity is based on what you tell

them, document to them on the PUNS> It is VERY IMPORTANT that you tell them

how very difficult it is to live with Tori. Detail some of the more

Yes, I do a PUNS every year. We'll do the waiver stuff this month too. I

am also looking into the CBH as well. They will come to the house and

work with her with goals in mind, such as POSSIBLY going to church, walking

down

the pavement without running into the street...things like that. We also

get funds through FDSS (family driven support services), but it's only about

$500 every year.

Good luck Liz.

Donna

[Guest guest]

I have something to say about SSI. I applied for SSI for my son 2

years ago and after fighting it twice was told that autism is not a

lifelong disability. He is now almost 20 so I took him to reapply. I

haven't heard anything yet since this just happened a couple weeks

ago. I really don't understand why some get it and some don't. I

know people who have stress and got disability for that. Now they

sit at home and watch TV all day or go out shopping.These are people

I know personally. Meanwhile, my son has autism and I have taken him

to put in applications at many places. I really think they look at

me like they are saying are you kidding. The state believes he can

work. Even the programs with job coaches cant get him a job.If you

get turned down fight it, fight it, and fight it.

-- In , " Liz D " wrote:

>

> Ok, I just reapplied for SSIDisability for Tori and was denied

once again. Isn't there a disability program out there for kids who

are disabled (DS, Autism & Legally Blind). We don't get any

supplemental support for her. there is a 3-year waiting list for

FDFS funds.

>

> Liz-Again we are in Pa.

>

> " Success manifests in small daily events, not only in

accomplishing great things " - Remez Sasson

>

>

>

>

[Guest guest]

I am confused. Since this is a list for kids with both

down syndrome and autism, the down syndrome issues

would likely take care of qualifying. Does your child

have autism only? That's fine, but I want to clarify

for the rest of the gorup, just in case.

Joan

> >

> > Ok, I just reapplied for SSIDisability for Tori

> and was denied

> once again. Isn't there a disability program out

> there for kids who

> are disabled (DS, Autism & Legally Blind). We don't

> get any

> supplemental support for her. there is a 3-year

> waiting list for

> FDFS funds.

> >

> > Liz-Again we are in Pa.

> >

> > " Success manifests in small daily events, not only

> in

> accomplishing great things " - Remez Sasson

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

> http://groups.yahoo.com/group/

> --------------------------------------------

>

[Guest guest]

Dear group,

what is PUNS?

from Arkansas

duffey48@... wrote:

In a message dated 8/19/2006 3:24:49 P.M. Eastern Standard Time,

pastmidvale@... writes:

Joan is partially right.

In PA, once you qualify by disability for SSI, and get a DIS-qualifying

letter from SSi based on income, you are then eligible for Access and

MEdicaid thru a (in most counties) an HMO. In the SE part of PA, the best

available(IMHO)available(IMHO)<WBR>for kids with disabilities is Keystone

mental health portion is handled by CCBH (I believe) in most of the counties

in the SE.

Once that papee cahse is over, then your support coordinator needs to do a

PUNS which is a Priortization of Urgency of Needs document. This

determines if you are eligible (does not determine if you GET) for Person

Directed Family Support money, Community Support Waiver, or only Family

Support money. the determination of eligiblity is based on what you tell

them, document to them on the PUNS> It is VERY IMPORTANT that you tell them

how very difficult it is to live with Tori. Detail some of the more

Yes, I do a PUNS every year. We'll do the waiver stuff this month too. I

am also looking into the CBH as well. They will come to the house and

work with her with goals in mind, such as POSSIBLY going to church, walking down

the pavement without running into the street...things like that. We also

get funds through FDSS (family driven support services), but it's only about

$500 every year.

Good luck Liz.

Donna